A comparison of a specialist autism spectrum disorder assessment team with local assessment teams / IAIN MCCLURE in Autism, 14-6 (November 2010)  

Public ISBD [article]  inAutism > 14-6 (November 2010) . - p.589-603 Titre : A comparison of a specialist autism spectrum disorder assessment team with local assessment teams Type de document : Texte imprimé et/ou numérique Auteurs : IAIN MCCLURE, Auteur ; Tommy MACKAY, Auteur ; Haider MAMDANI, Auteur ; Roslyn MCCAUGHEY, Auteur Année de publication : 2010 Article en page(s) : p.589-603 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Background: Early diagnosis of autism spectrum disorders (ASD) is of crucial importance, but lengthy delays are common. We examined whether this issue could be reliably addressed by local teams trained by a specialist ASD assessment team. Method: Four local teams were trained in diagnostic assessment. Their assessments of 38 children and young people using the Autism Diagnostic Observation Schedule—Generic (ADOS-G) were video recorded and independently assessed by the specialist team. Results: There was a high level of correspondence between the diagnoses of the local teams and of the specialist team. The number of assessments carried out increased and there was a considerable reduction in waiting times. Conclusion: This study has demonstrated the potential feasibility of creating local, multi-agency ASD assessment teams, which will serve to reduce waiting times, improve clinical skills at a lower level of specialism and thereby improve the overall quality of ASD services. En ligne : http://dx.doi.org/10.1177/1362361310373369 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114 [article] A comparison of a specialist autism spectrum disorder assessment team with local assessment teams [Texte imprimé et/ou numérique] / IAIN MCCLURE, Auteur ; Tommy MACKAY, Auteur ; Haider MAMDANI, Auteur ; Roslyn MCCAUGHEY, Auteur . - 2010 . - p.589-603. Langues : Anglais (eng) in Autism > 14-6 (November 2010) . - p.589-603 Index. décimale : PER Périodiques Résumé : Background: Early diagnosis of autism spectrum disorders (ASD) is of crucial importance, but lengthy delays are common. We examined whether this issue could be reliably addressed by local teams trained by a specialist ASD assessment team. Method: Four local teams were trained in diagnostic assessment. Their assessments of 38 children and young people using the Autism Diagnostic Observation Schedule—Generic (ADOS-G) were video recorded and independently assessed by the specialist team. Results: There was a high level of correspondence between the diagnoses of the local teams and of the specialist team. The number of assessments carried out increased and there was a considerable reduction in waiting times. Conclusion: This study has demonstrated the potential feasibility of creating local, multi-agency ASD assessment teams, which will serve to reduce waiting times, improve clinical skills at a lower level of specialism and thereby improve the overall quality of ASD services. En ligne : http://dx.doi.org/10.1177/1362361310373369 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114

Gender ratio in a clinical population sample, age of diagnosis and duration of assessment in children and adults with autism spectrum disorder / Marion RUTHERFORD in Autism, 20-5 (July 2016)  

Public ISBD [article]  inAutism > 20-5 (July 2016) . - p.628-634 Titre : Gender ratio in a clinical population sample, age of diagnosis and duration of assessment in children and adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Marion RUTHERFORD, Auteur ; Karen MCKENZIE, Auteur ; Tess JOHNSON, Auteur ; Ciara CATCHPOLE, Auteur ; Anne O’HARE, Auteur ; IAIN MCCLURE, Auteur ; Kirsty FORSYTH, Auteur ; Deborah MCCARTNEY, Auteur ; Aja MURRAY, Auteur Article en page(s) : p.628-634 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  diagnosis  females  gender  males Index. décimale : PER Périodiques Résumé : This article reports on gender ratio, age of diagnosis and the duration of assessment procedures in autism spectrum disorder diagnosis in a national study which included all types of clinical services for children and adults. Findings are reported from a retrospective case note analysis undertaken with a representative sample of 150 Scottish children and adults recently diagnosed with autism spectrum disorder. The study reports key findings that the gender ratio in this consecutively referred cohort is lower than anticipated in some age groups and reduces with increasing age. The gender ratio in children, together with the significant difference in the mean age of referral and diagnosis for girls compared to boys, adds evidence of delayed recognition of autism spectrum disorder in younger girls. There was no significant difference in duration of assessment for males and females suggesting that delays in diagnosis of females occur prior to referral for assessment. Implications for practice and research are considered. En ligne : http://dx.doi.org/10.1177/1362361315617879 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 [article] Gender ratio in a clinical population sample, age of diagnosis and duration of assessment in children and adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Marion RUTHERFORD, Auteur ; Karen MCKENZIE, Auteur ; Tess JOHNSON, Auteur ; Ciara CATCHPOLE, Auteur ; Anne O’HARE, Auteur ; IAIN MCCLURE, Auteur ; Kirsty FORSYTH, Auteur ; Deborah MCCARTNEY, Auteur ; Aja MURRAY, Auteur . - p.628-634. Langues : Anglais (eng) in Autism > 20-5 (July 2016) . - p.628-634 Mots-clés : autism spectrum disorder  diagnosis  females  gender  males Index. décimale : PER Périodiques Résumé : This article reports on gender ratio, age of diagnosis and the duration of assessment procedures in autism spectrum disorder diagnosis in a national study which included all types of clinical services for children and adults. Findings are reported from a retrospective case note analysis undertaken with a representative sample of 150 Scottish children and adults recently diagnosed with autism spectrum disorder. The study reports key findings that the gender ratio in this consecutively referred cohort is lower than anticipated in some age groups and reduces with increasing age. The gender ratio in children, together with the significant difference in the mean age of referral and diagnosis for girls compared to boys, adds evidence of delayed recognition of autism spectrum disorder in younger girls. There was no significant difference in duration of assessment for males and females suggesting that delays in diagnosis of females occur prior to referral for assessment. Implications for practice and research are considered. En ligne : http://dx.doi.org/10.1177/1362361315617879 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290

A national study to investigate the clinical use of standardised instruments in autism spectrum disorder assessment of children and adults in Scotland / Marion RUTHERFORD in Research in Autism Spectrum Disorders, 29-30 (September–October 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 29-30 (September–October 2016) . - p.93-100 Titre : A national study to investigate the clinical use of standardised instruments in autism spectrum disorder assessment of children and adults in Scotland Type de document : Texte imprimé et/ou numérique Auteurs : Marion RUTHERFORD, Auteur ; Karen MCKENZIE, Auteur ; IAIN MCCLURE, Auteur ; Kirsty FORSYTH, Auteur ; Anne O’HARE, Auteur ; Deborah MCCARTNEY, Auteur ; Ian FINLAYSON, Auteur Article en page(s) : p.93-100 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Children  Adults  Assessment Index. décimale : PER Périodiques Résumé : AbstractBackground There are few large scale studies about the nature and extent of the actual use of standardised assessments for Autism Spectrum Disorder diagnosis in clinical practice. This study compares and contrasts practice in diagnostic services for both adults and children. Method We conducted an analysis of retrospective case notes from 150 cases (70 adult, 80 children) assessed for Autism Spectrum Disorder by 16 diagnostic services. Results We found differences between adult and child services in staff training and use of standardised assessment during diagnosis. All child services had staff trained in and regularly using standardised assessments. Most adult services had staff trained in using instruments but only half used them regularly. Administration of standardised ASD assessments was ten times more likely in children than in adults (OR = 10.1; CI = 4.24, 24.0). Child services selected the ADOS as the standardised tool and adult services selected the DISCO, with very little overlap. Decisions to administer standardised tools were not based on case complexity but rather the same process was applied to all referrals within a service. The three recommended components of assessment (clinical history, clinical observation and contextual information) were included for the majority of cases, although clinical observation was more frequently used with children than with adults. Conclusions Based on the findings, we suggest a need for a wider range of appropriate assessments for use with adults, particularly those with an intellectual disability and for further research into the reasons behind the choices clinicians make during the assessment process. For child services in Scotland, there is a need for more training in use of current diagnostic interviews. Clinicians did not vary tools used based on complexity, suggesting that this is a notion still to be clearly defined and operationalised in clinical decision making about the use of standardised assessments. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.05.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292 [article] A national study to investigate the clinical use of standardised instruments in autism spectrum disorder assessment of children and adults in Scotland [Texte imprimé et/ou numérique] / Marion RUTHERFORD, Auteur ; Karen MCKENZIE, Auteur ; IAIN MCCLURE, Auteur ; Kirsty FORSYTH, Auteur ; Anne O’HARE, Auteur ; Deborah MCCARTNEY, Auteur ; Ian FINLAYSON, Auteur . - p.93-100. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 29-30 (September–October 2016) . - p.93-100 Mots-clés : Autism Spectrum Disorder  Children  Adults  Assessment Index. décimale : PER Périodiques Résumé : AbstractBackground There are few large scale studies about the nature and extent of the actual use of standardised assessments for Autism Spectrum Disorder diagnosis in clinical practice. This study compares and contrasts practice in diagnostic services for both adults and children. Method We conducted an analysis of retrospective case notes from 150 cases (70 adult, 80 children) assessed for Autism Spectrum Disorder by 16 diagnostic services. Results We found differences between adult and child services in staff training and use of standardised assessment during diagnosis. All child services had staff trained in and regularly using standardised assessments. Most adult services had staff trained in using instruments but only half used them regularly. Administration of standardised ASD assessments was ten times more likely in children than in adults (OR = 10.1; CI = 4.24, 24.0). Child services selected the ADOS as the standardised tool and adult services selected the DISCO, with very little overlap. Decisions to administer standardised tools were not based on case complexity but rather the same process was applied to all referrals within a service. The three recommended components of assessment (clinical history, clinical observation and contextual information) were included for the majority of cases, although clinical observation was more frequently used with children than with adults. Conclusions Based on the findings, we suggest a need for a wider range of appropriate assessments for use with adults, particularly those with an intellectual disability and for further research into the reasons behind the choices clinicians make during the assessment process. For child services in Scotland, there is a need for more training in use of current diagnostic interviews. Clinicians did not vary tools used based on complexity, suggesting that this is a notion still to be clearly defined and operationalised in clinical decision making about the use of standardised assessments. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.05.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292

Sleep Disorders / Karen MCKENZIE  

Public ISBD in Comorbid Conditions Among Children with Autism Spectrum Disorders / Johnny L. MATSON Titre : Sleep Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Karen MCKENZIE, Auteur ; Halina RZEPECKA, Auteur ; IAIN MCCLURE, Auteur Année de publication : 2016 Importance : p.217-233 Langues : Anglais (eng) Index. décimale : TRO-F TRO-F - Autres Troubles En ligne : http://dx.doi.org/10.1007/978-3-319-19183-6_9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=300 in Comorbid Conditions Among Children with Autism Spectrum Disorders / Johnny L. MATSON Sleep Disorders [Texte imprimé et/ou numérique] / Karen MCKENZIE, Auteur ; Halina RZEPECKA, Auteur ; IAIN MCCLURE, Auteur . - 2016 . - p.217-233. Langues : Anglais (eng) Index. décimale : TRO-F TRO-F - Autres Troubles En ligne : http://dx.doi.org/10.1007/978-3-319-19183-6_9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=300

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The relation between practice that is consistent with NICE guideline 142 recommendations and waiting times within Autism Spectrum Disorder diagnostic services / Karen MCKENZIE in Research in Autism Spectrum Disorders, 26 (June 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 26 (June 2016) . - p.10-15 Titre : The relation between practice that is consistent with NICE guideline 142 recommendations and waiting times within Autism Spectrum Disorder diagnostic services Type de document : Texte imprimé et/ou numérique Auteurs : Karen MCKENZIE, Auteur ; Marion RUTHERFORD, Auteur ; Kirsty FORSYTH, Auteur ; Anne O’HARE, Auteur ; IAIN MCCLURE, Auteur ; Aja L. MURRAY, Auteur ; Linda IRVINE, Auteur Article en page(s) : p.10-15 Langues : Anglais (eng) Mots-clés : Clinical guidelines  Wait times  Diagnosis  Autism Spectrum Disorder  NICE Index. décimale : PER Périodiques Résumé : AbstractBackground This study explores the extent to which recommendations from the National Institute of Health and Care Excellence (NICE) 142 guidelines, section 9.2 (relating to identification, assessment and diagnosis) reflected existing routine clinical practice in Autism Spectrum Disorder (ASD) diagnosing services in Scotland; and whether there was a significant relation between routine practice which more closely reflected these recommendations and waiting times. Method A cross-sectional, retrospective case note analysis of recently diagnosed adults, in eight ASD services across Scotland. Results The study found that the existing practice of the participating services was consistent with 14 (maximum number) of the included recommendations in at least half of cases analysed (range 37–70 cases) and was not related to increased total waiting time for diagnosis. Conclusion The results, based only on the included recommendations, suggest that the section 9.2 recommendations can be integrated into clinical practice in Scotland with relative ease and that it is unlikely to have a negative impact on waiting times. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.03.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285 [article] The relation between practice that is consistent with NICE guideline 142 recommendations and waiting times within Autism Spectrum Disorder diagnostic services [Texte imprimé et/ou numérique] / Karen MCKENZIE, Auteur ; Marion RUTHERFORD, Auteur ; Kirsty FORSYTH, Auteur ; Anne O’HARE, Auteur ; IAIN MCCLURE, Auteur ; Aja L. MURRAY, Auteur ; Linda IRVINE, Auteur . - p.10-15. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 26 (June 2016) . - p.10-15 Mots-clés : Clinical guidelines  Wait times  Diagnosis  Autism Spectrum Disorder  NICE Index. décimale : PER Périodiques Résumé : AbstractBackground This study explores the extent to which recommendations from the National Institute of Health and Care Excellence (NICE) 142 guidelines, section 9.2 (relating to identification, assessment and diagnosis) reflected existing routine clinical practice in Autism Spectrum Disorder (ASD) diagnosing services in Scotland; and whether there was a significant relation between routine practice which more closely reflected these recommendations and waiting times. Method A cross-sectional, retrospective case note analysis of recently diagnosed adults, in eight ASD services across Scotland. Results The study found that the existing practice of the participating services was consistent with 14 (maximum number) of the included recommendations in at least half of cases analysed (range 37–70 cases) and was not related to increased total waiting time for diagnosis. Conclusion The results, based only on the included recommendations, suggest that the section 9.2 recommendations can be integrated into clinical practice in Scotland with relative ease and that it is unlikely to have a negative impact on waiting times. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.03.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285

The relationship between waiting times and ‘adherence’ to the Scottish Intercollegiate Guidelines Network 98 guideline in autism spectrum disorder diagnostic services in Scotland / Karen MCKENZIE in Autism, 20-4 (May 2016)  

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Why are they waiting? Exploring professional perspectives and developing solutions to delayed diagnosis of autism spectrum disorder in adults and children / Marion RUTHERFORD in Research in Autism Spectrum Disorders, 31 (November 2016)  

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