Acceptability and feasibility of a parent-mediated social-communication therapy for young autistic children in Brazil: A qualitative implementation study of Paediatric Autism Communication Therapy / Lorna MCWILLIAMS ; Leticia RODRIGUES DA SILVEIRA ; Mirian DE CESARO REVERS BIASÃO ; Fernanda SPEGGIORIN PEREIRA ALARCÃO ; Leonardo SEDA ; Renata GENEROSO CAMPOLI ; Holan LIANG ; Gauri DIVAN ; Kathy LEADBITTER in Autism, 28-1 (January 2024)  

Public ISBD [article]  inAutism > 28-1 (January 2024) . - p.123?137 Titre : Acceptability and feasibility of a parent-mediated social-communication therapy for young autistic children in Brazil: A qualitative implementation study of Paediatric Autism Communication Therapy Type de document : Texte imprimé et/ou numérique Auteurs : Lorna MCWILLIAMS, Auteur ; Leticia RODRIGUES DA SILVEIRA, Auteur ; Mirian DE CESARO REVERS BIASÃO, Auteur ; Fernanda SPEGGIORIN PEREIRA ALARCÃO, Auteur ; Leonardo SEDA, Auteur ; Renata GENEROSO CAMPOLI, Auteur ; Holan LIANG, Auteur ; Gauri DIVAN, Auteur ; Kathy LEADBITTER, Auteur Article en page(s) : p.123?137 Mots-clés : autism  Brazil  implementation study  Paediatric Autism Communication Therapy  qualitative study Index. décimale : PER Périodiques Résumé : Effective support for autistic individuals is lacking in Brazil. Few centres offer services and those that do are limited in therapeutic options and geographical location. Paediatric Autism Communication Therapy is a low-intensity, evidence-based parent-mediated social-communication intervention that may be useful for this scenario. This implementation study aimed to assess the acceptability and feasibility of Paediatric Autism Communication Therapy for young autistic children (aged 2?10?years) in Brazil. Parents (n?=?18) of 2- to 10-year-old autistic children and clinicians (n?=?20) who work with autistic children in Brazil were interviewed and the data analysed using thematic analysis to explore their perceptions concerning the acceptability and feasibility of Paediatric Autism Communication Therapy. In addition, Paediatric Autism Communication Therapy was delivered to a case series of 15 further parent?child dyads; these parents were interviewed at the end of the therapy, and the data were analysed using thematic analysis. All parents and clinicians had favourable opinions about the acceptability, feasibility and perceived effectiveness of a parent-mediated intervention conducted mainly in the home. However, they also highlighted obstacles concerning the implementation of Paediatric Autism Communication Therapy in Brazil, especially related to engaging Brazilian parents in a parent-mediated model of therapy. Based on these data, minor adaptations were made to the original Paediatric Autism Communication Therapy protocol to facilitate the implementation of the intervention in Brazil. Lay abstract Parents of autistic children and health professionals who work with autistic children in Brazil had positive views about introducing Paediatric Autism Communication Therapy as a therapy for autistic children in Brazil. The parents and clinicians also mentioned some difficulties about using Paediatric Autism Communication Therapy in Brazil. We made adaptations to Paediatric Autism Communication Therapy to address these difficulties. Paediatric Autism Communication Therapy is a therapy to support the development of social and communication skills for autistic children aged 2?10 years. The therapy is conducted with the autistic child?s parent. Paediatric Autism Communication Therapy has not been used in Brazil before. There are few therapy options available for autistic children in Brazil and we believed that Paediatric Autism Communication Therapy may be useful. We asked three groups of people in Brazil about their views of Paediatric Autism Communication Therapy, after explaining how the therapy works. Group 1 included 18 parents of autistic children aged 2?10 years. Group 2 included 20 health professionals such as psychologists who work with autistic children. Group 3 included 15 parents of autistic children aged 2?7 years who received the Paediatric Autism Communication Therapy. We learned that parents and clinicians felt that Paediatric Autism Communication Therapy would be a beneficial therapy for autistic children in Brazil. We also found out about the challenges of using Paediatric Autism Communication Therapy in Brazil. We used these findings to make small cultural adaptations to Paediatric Autism Communication Therapy to make it more suitable for Brazil. En ligne : https://dx.doi.org/10.1177/13623613221144501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 [article] Acceptability and feasibility of a parent-mediated social-communication therapy for young autistic children in Brazil: A qualitative implementation study of Paediatric Autism Communication Therapy [Texte imprimé et/ou numérique] / Lorna MCWILLIAMS, Auteur ; Leticia RODRIGUES DA SILVEIRA, Auteur ; Mirian DE CESARO REVERS BIASÃO, Auteur ; Fernanda SPEGGIORIN PEREIRA ALARCÃO, Auteur ; Leonardo SEDA, Auteur ; Renata GENEROSO CAMPOLI, Auteur ; Holan LIANG, Auteur ; Gauri DIVAN, Auteur ; Kathy LEADBITTER, Auteur . - p.123?137. in Autism > 28-1 (January 2024) . - p.123?137 Mots-clés : autism  Brazil  implementation study  Paediatric Autism Communication Therapy  qualitative study Index. décimale : PER Périodiques Résumé : Effective support for autistic individuals is lacking in Brazil. Few centres offer services and those that do are limited in therapeutic options and geographical location. Paediatric Autism Communication Therapy is a low-intensity, evidence-based parent-mediated social-communication intervention that may be useful for this scenario. This implementation study aimed to assess the acceptability and feasibility of Paediatric Autism Communication Therapy for young autistic children (aged 2?10?years) in Brazil. Parents (n?=?18) of 2- to 10-year-old autistic children and clinicians (n?=?20) who work with autistic children in Brazil were interviewed and the data analysed using thematic analysis to explore their perceptions concerning the acceptability and feasibility of Paediatric Autism Communication Therapy. In addition, Paediatric Autism Communication Therapy was delivered to a case series of 15 further parent?child dyads; these parents were interviewed at the end of the therapy, and the data were analysed using thematic analysis. All parents and clinicians had favourable opinions about the acceptability, feasibility and perceived effectiveness of a parent-mediated intervention conducted mainly in the home. However, they also highlighted obstacles concerning the implementation of Paediatric Autism Communication Therapy in Brazil, especially related to engaging Brazilian parents in a parent-mediated model of therapy. Based on these data, minor adaptations were made to the original Paediatric Autism Communication Therapy protocol to facilitate the implementation of the intervention in Brazil. Lay abstract Parents of autistic children and health professionals who work with autistic children in Brazil had positive views about introducing Paediatric Autism Communication Therapy as a therapy for autistic children in Brazil. The parents and clinicians also mentioned some difficulties about using Paediatric Autism Communication Therapy in Brazil. We made adaptations to Paediatric Autism Communication Therapy to address these difficulties. Paediatric Autism Communication Therapy is a therapy to support the development of social and communication skills for autistic children aged 2?10 years. The therapy is conducted with the autistic child?s parent. Paediatric Autism Communication Therapy has not been used in Brazil before. There are few therapy options available for autistic children in Brazil and we believed that Paediatric Autism Communication Therapy may be useful. We asked three groups of people in Brazil about their views of Paediatric Autism Communication Therapy, after explaining how the therapy works. Group 1 included 18 parents of autistic children aged 2?10 years. Group 2 included 20 health professionals such as psychologists who work with autistic children. Group 3 included 15 parents of autistic children aged 2?7 years who received the Paediatric Autism Communication Therapy. We learned that parents and clinicians felt that Paediatric Autism Communication Therapy would be a beneficial therapy for autistic children in Brazil. We also found out about the challenges of using Paediatric Autism Communication Therapy in Brazil. We used these findings to make small cultural adaptations to Paediatric Autism Communication Therapy to make it more suitable for Brazil. En ligne : https://dx.doi.org/10.1177/13623613221144501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519

Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews / Gauri DIVAN in Journal of Child Psychology and Psychiatry, 62-5 (May 2021)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 62-5 (May 2021) . - p.514-535 Titre : Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews Type de document : Texte imprimé et/ou numérique Auteurs : Gauri DIVAN, Auteur ; Supriya BHAVNANI, Auteur ; Kathy LEADBITTER, Auteur ; Ceri ELLIS, Auteur ; Jayashree DASGUPTA, Auteur ; Amina ABUBAKAR, Auteur ; Mayada ELSABBAGH, Auteur ; Syed Usman HAMDANI, Auteur ; Chiara SERVILI, Auteur ; Vikram PATEL, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.514-535 Langues : Anglais (eng) Mots-clés : Autism  detection gap  low- and middle-income countries  low-resource settings  scoping review  treatment gap Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism presents with similar prevalence and core impairments in diverse populations. We conducted a scoping review of reviews to determine key barriers and innovative strategies which can contribute to attaining universal health coverage (UHC), from early detection to effective interventions for autism in low- and middle-income countries (LAMIC). METHODS: A systematic literature search of review articles was conducted. Reviews relevant to the study research question were included if they incorporated papers from LAMIC and focused on children ( En ligne : http://dx.doi.org/10.1111/jcpp.13404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews [Texte imprimé et/ou numérique] / Gauri DIVAN, Auteur ; Supriya BHAVNANI, Auteur ; Kathy LEADBITTER, Auteur ; Ceri ELLIS, Auteur ; Jayashree DASGUPTA, Auteur ; Amina ABUBAKAR, Auteur ; Mayada ELSABBAGH, Auteur ; Syed Usman HAMDANI, Auteur ; Chiara SERVILI, Auteur ; Vikram PATEL, Auteur ; Jonathan GREEN, Auteur . - p.514-535. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 62-5 (May 2021) . - p.514-535 Mots-clés : Autism  detection gap  low- and middle-income countries  low-resource settings  scoping review  treatment gap Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism presents with similar prevalence and core impairments in diverse populations. We conducted a scoping review of reviews to determine key barriers and innovative strategies which can contribute to attaining universal health coverage (UHC), from early detection to effective interventions for autism in low- and middle-income countries (LAMIC). METHODS: A systematic literature search of review articles was conducted. Reviews relevant to the study research question were included if they incorporated papers from LAMIC and focused on children ( En ligne : http://dx.doi.org/10.1111/jcpp.13404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

Challenges, Coping Strategies, and Unmet Needs of Families with a Child with Autism Spectrum Disorder in Goa, India / Gauri DIVAN in Autism Research, 5-3 (June 2012)  

Public ISBD [article]  inAutism Research > 5-3 (June 2012) . - p.190-200 Titre : Challenges, Coping Strategies, and Unmet Needs of Families with a Child with Autism Spectrum Disorder in Goa, India Type de document : Texte imprimé et/ou numérique Auteurs : Gauri DIVAN, Auteur ; Vivek VAJARATKAR, Auteur ; Miraj U. DESAI, Auteur ; Luisa STRIK-LIEVERS, Auteur ; Vikram PATEL, Auteur Année de publication : 2012 Article en page(s) : p.190-200 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorders  India  impact  qualitative  Faire face Index. décimale : PER Périodiques Résumé : Autism Spectrum Disorders (ASD) are increasingly recognized in developing countries like India. However, little is known about the experiences of parents raising a child with ASD. This study aimed to describe the experiences of families in Goa, India with a view to understanding the unmet needs of families raising a child with ASD. Twenty in-depth interviews and nine focus group discussions were carried out with families of children with ASD and key community stakeholders such as special educators, teachers, and parents of typically developing children. This qualitative data was triangulated to explore the experiences, life impact, and unmet needs of raising a child with ASD. Key findings suggest that raising a child with ASD puts a tremendous strain on families due to competing commitments, often leading to initial social withdrawal with later reintegration into social networks. Second, the impact is multidimensional, involving the personal sphere but also extending into the wider community with negative experiences of discrimination. Third, parents actively respond to these challenges through a range of approaches with help from existing and new social support networks and health care providers. Fourth, professionals from the health, education, and religious sectors have a low awareness of the unique needs of families living with ASD which leads to a considerable economic and emotional burden on families. Finally, as a consequence of these experiences, several unmet needs can be identified, notably for supporting increasingly isolated families and the limited access to multidisciplinary evidence-based services for ASD. En ligne : http://dx.doi.org/10.1002/aur.1225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163 [article] Challenges, Coping Strategies, and Unmet Needs of Families with a Child with Autism Spectrum Disorder in Goa, India [Texte imprimé et/ou numérique] / Gauri DIVAN, Auteur ; Vivek VAJARATKAR, Auteur ; Miraj U. DESAI, Auteur ; Luisa STRIK-LIEVERS, Auteur ; Vikram PATEL, Auteur . - 2012 . - p.190-200. Langues : Anglais (eng) in Autism Research > 5-3 (June 2012) . - p.190-200 Mots-clés : Autism Spectrum Disorders  India  impact  qualitative  Faire face Index. décimale : PER Périodiques Résumé : Autism Spectrum Disorders (ASD) are increasingly recognized in developing countries like India. However, little is known about the experiences of parents raising a child with ASD. This study aimed to describe the experiences of families in Goa, India with a view to understanding the unmet needs of families raising a child with ASD. Twenty in-depth interviews and nine focus group discussions were carried out with families of children with ASD and key community stakeholders such as special educators, teachers, and parents of typically developing children. This qualitative data was triangulated to explore the experiences, life impact, and unmet needs of raising a child with ASD. Key findings suggest that raising a child with ASD puts a tremendous strain on families due to competing commitments, often leading to initial social withdrawal with later reintegration into social networks. Second, the impact is multidimensional, involving the personal sphere but also extending into the wider community with negative experiences of discrimination. Third, parents actively respond to these challenges through a range of approaches with help from existing and new social support networks and health care providers. Fourth, professionals from the health, education, and religious sectors have a low awareness of the unique needs of families living with ASD which leads to a considerable economic and emotional burden on families. Finally, as a consequence of these experiences, several unmet needs can be identified, notably for supporting increasingly isolated families and the limited access to multidisciplinary evidence-based services for ASD. En ligne : http://dx.doi.org/10.1002/aur.1225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163

Editorial Perspective: ‘From there to here’: adapting child and adolescent mental health interventions for low-resource settings / Gauri DIVAN in Journal of Child Psychology and Psychiatry, 58-3 (March 2017)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 58-3 (March 2017) . - p.325-327 Titre : Editorial Perspective: ‘From there to here’: adapting child and adolescent mental health interventions for low-resource settings Type de document : Texte imprimé et/ou numérique Auteurs : Gauri DIVAN, Auteur Article en page(s) : p.325-327 Langues : Anglais (eng) Mots-clés : Disability  autism spectrum disorders  interventions Index. décimale : PER Périodiques Résumé : The majority of evidence for child and adolescent mental health interventions is generated in high-income countries. However, the majority of the world's children live in low- and middle-income countries, resulting in a large treatment gap for these disorders. A systematic approach to adapt evidence-based interventions so as to address cultural and contextual issues will increase an interventions acceptability and reach, allowing us to address these enormous unmet needs. En ligne : http://dx.doi.org/10.1111/jcpp.12627 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 [article] Editorial Perspective: ‘From there to here’: adapting child and adolescent mental health interventions for low-resource settings [Texte imprimé et/ou numérique] / Gauri DIVAN, Auteur . - p.325-327. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 58-3 (March 2017) . - p.325-327 Mots-clés : Disability  autism spectrum disorders  interventions Index. décimale : PER Périodiques Résumé : The majority of evidence for child and adolescent mental health interventions is generated in high-income countries. However, the majority of the world's children live in low- and middle-income countries, resulting in a large treatment gap for these disorders. A systematic approach to adapt evidence-based interventions so as to address cultural and contextual issues will increase an interventions acceptability and reach, allowing us to address these enormous unmet needs. En ligne : http://dx.doi.org/10.1111/jcpp.12627 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304

Global Prevalence of Autism and Other Pervasive Developmental Disorders / Mayada ELSABBAGH in Autism Research, 5-3 (June 2012)  

Public ISBD [article]  inAutism Research > 5-3 (June 2012) . - p.160-179 Titre : Global Prevalence of Autism and Other Pervasive Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Mayada ELSABBAGH, Auteur ; Gauri DIVAN, Auteur ; Yun-Joo KOH, Auteur ; Young-Shin KIM, Auteur ; Shuaib KAUCHALI, Auteur ; Carlos MARCIN, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Vikram PATEL, Auteur ; Cristiane S. DE PAULA, Auteur ; Chongying WANG, Auteur ; Mohammad TAGHI YASAMY, Auteur ; Eric FOMBONNE, Auteur Année de publication : 2012 Article en page(s) : p.160-179 Langues : Anglais (eng) Mots-clés : epidemiology  prevalence  global health  low- and middle-income countries Index. décimale : PER Périodiques Résumé : We provide a systematic review of epidemiological surveys of autistic disorder and pervasive developmental disorders (PDDs) worldwide. A secondary aim was to consider the possible impact of geographic, cultural/ethnic, and socioeconomic factors on prevalence estimates and on clinical presentation of PDD. Based on the evidence reviewed, the median of prevalence estimates of autism spectrum disorders was 62/10 000. While existing estimates are variable, the evidence reviewed does not support differences in PDD prevalence by geographic region nor of a strong impact of ethnic/cultural or socioeconomic factors. However, power to detect such effects is seriously limited in existing data sets, particularly in low-income countries. While it is clear that prevalence estimates have increased over time and these vary in different neighboring and distant regions, these findings most likely represent broadening of the diagnostic concets, diagnostic switching from other developmental disabilities to PDD, service availability, and awareness of autistic spectrum disorders in both the lay and professional public. The lack of evidence from the majority of the world's population suggests a critical need for further research and capacity building in low- and middle-income countries. En ligne : http://dx.doi.org/10.1002/aur.239 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163 [article] Global Prevalence of Autism and Other Pervasive Developmental Disorders [Texte imprimé et/ou numérique] / Mayada ELSABBAGH, Auteur ; Gauri DIVAN, Auteur ; Yun-Joo KOH, Auteur ; Young-Shin KIM, Auteur ; Shuaib KAUCHALI, Auteur ; Carlos MARCIN, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Vikram PATEL, Auteur ; Cristiane S. DE PAULA, Auteur ; Chongying WANG, Auteur ; Mohammad TAGHI YASAMY, Auteur ; Eric FOMBONNE, Auteur . - 2012 . - p.160-179. Langues : Anglais (eng) in Autism Research > 5-3 (June 2012) . - p.160-179 Mots-clés : epidemiology  prevalence  global health  low- and middle-income countries Index. décimale : PER Périodiques Résumé : We provide a systematic review of epidemiological surveys of autistic disorder and pervasive developmental disorders (PDDs) worldwide. A secondary aim was to consider the possible impact of geographic, cultural/ethnic, and socioeconomic factors on prevalence estimates and on clinical presentation of PDD. Based on the evidence reviewed, the median of prevalence estimates of autism spectrum disorders was 62/10 000. While existing estimates are variable, the evidence reviewed does not support differences in PDD prevalence by geographic region nor of a strong impact of ethnic/cultural or socioeconomic factors. However, power to detect such effects is seriously limited in existing data sets, particularly in low-income countries. While it is clear that prevalence estimates have increased over time and these vary in different neighboring and distant regions, these findings most likely represent broadening of the diagnostic concets, diagnostic switching from other developmental disabilities to PDD, service availability, and awareness of autistic spectrum disorders in both the lay and professional public. The lack of evidence from the majority of the world's population suggests a critical need for further research and capacity building in low- and middle-income countries. En ligne : http://dx.doi.org/10.1002/aur.239 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163

"I was Confused ? and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study / Supriya BHAVNANI in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

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Using mobile health technology to assess childhood autism in low-resource community settings in India: An innovation to address the detection gap / Indu DUBEY in Autism, 28-3 (March 2024)  

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