Brief Report: Pediatrician Perspectives Regarding Genetic Evaluations of Children with Autism Spectrum Disorder / Audrey RUTZ in Journal of Autism and Developmental Disorders, 49-2 (February 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-2 (February 2019) . - p.794-808 Titre : Brief Report: Pediatrician Perspectives Regarding Genetic Evaluations of Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Audrey RUTZ, Auteur ; Karin M. DENT, Auteur ; Lorenzo D. BOTTO, Auteur ; Paul C. YOUNG, Auteur ; Paul S. CARBONE, Auteur Article en page(s) : p.794-808 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Chromosomal microarray  Genetics  Primary care provider Index. décimale : PER Périodiques Résumé : Despite current guidelines, few children with autism spectrum disorder (ASD) receive genetic evaluations. We surveyed Utah pediatricians to characterize the knowledge, beliefs, current practices and perceived barriers of pediatricians regarding genetic evaluation of children with ASD. We found over half lacked knowledge of current guidelines and many held beliefs about genetic evaluation that did not align with guidelines. Barriers were lack of insurance coverage for genetic evaluation/testing and long wait times to see geneticists. Pediatricians with beliefs aligned with guidelines and those aware of the role of genetic counselors were more likely to adhere to guidelines. Efforts to educate pediatricians are needed along with system level solutions regarding availability of geneticists and reimbursement for genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-018-3738-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=382 [article] Brief Report: Pediatrician Perspectives Regarding Genetic Evaluations of Children with Autism Spectrum Disorder [texte imprimé] / Audrey RUTZ, Auteur ; Karin M. DENT, Auteur ; Lorenzo D. BOTTO, Auteur ; Paul C. YOUNG, Auteur ; Paul S. CARBONE, Auteur . - p.794-808. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-2 (February 2019) . - p.794-808 Mots-clés : Autism spectrum disorder  Chromosomal microarray  Genetics  Primary care provider Index. décimale : PER Périodiques Résumé : Despite current guidelines, few children with autism spectrum disorder (ASD) receive genetic evaluations. We surveyed Utah pediatricians to characterize the knowledge, beliefs, current practices and perceived barriers of pediatricians regarding genetic evaluation of children with ASD. We found over half lacked knowledge of current guidelines and many held beliefs about genetic evaluation that did not align with guidelines. Barriers were lack of insurance coverage for genetic evaluation/testing and long wait times to see geneticists. Pediatricians with beliefs aligned with guidelines and those aware of the role of genetic counselors were more likely to adhere to guidelines. Efforts to educate pediatricians are needed along with system level solutions regarding availability of geneticists and reimbursement for genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-018-3738-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=382

Parent and Pediatrician Perspectives Regarding the Primary Care of Children with Autism Spectrum Disorders / Paul S. CARBONE in Journal of Autism and Developmental Disorders, 43-4 (April 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-4 (April 2013) . - p.964-972 Titre : Parent and Pediatrician Perspectives Regarding the Primary Care of Children with Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Paul S. CARBONE, Auteur ; Nancy A. MURPHY, Auteur ; Chuck NORLIN, Auteur ; Virgina AZOR, Auteur ; Xiaoming SHENG, Auteur ; Paul C. YOUNG, Auteur Article en page(s) : p.964-972 Langues : Anglais (eng) Mots-clés : Autism  Autism spectrum disorders  Medical home  Children  Family-centered care  Primary care Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP’s ability to deliver family-centered care. A majority of parents rated their PCP’s ability as “not good” in addressing 14 of 17 ASD-specific needs, while a majority of PCPs rated themselves as “good” in addressing 10 of 17 areas. On 7 of 17 items, parents rated their PCPs lower than PCPs rated themselves. Parents who reported receiving family-centered care were more likely to rate the PCP’s ability to meet ASD specific needs as “good”. Both parents and PCPs identified areas for improvement in caring for children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1640-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194 [article] Parent and Pediatrician Perspectives Regarding the Primary Care of Children with Autism Spectrum Disorders [texte imprimé] / Paul S. CARBONE, Auteur ; Nancy A. MURPHY, Auteur ; Chuck NORLIN, Auteur ; Virgina AZOR, Auteur ; Xiaoming SHENG, Auteur ; Paul C. YOUNG, Auteur . - p.964-972. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-4 (April 2013) . - p.964-972 Mots-clés : Autism  Autism spectrum disorders  Medical home  Children  Family-centered care  Primary care Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP’s ability to deliver family-centered care. A majority of parents rated their PCP’s ability as “not good” in addressing 14 of 17 ASD-specific needs, while a majority of PCPs rated themselves as “good” in addressing 10 of 17 areas. On 7 of 17 items, parents rated their PCPs lower than PCPs rated themselves. Parents who reported receiving family-centered care were more likely to rate the PCP’s ability to meet ASD specific needs as “good”. Both parents and PCPs identified areas for improvement in caring for children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1640-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194

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