Being a Girl in a Boys’ World: Investigating the Experiences of Girls with Autism Spectrum Disorders During Adolescence / Elizabeth K. CRIDLAND in Journal of Autism and Developmental Disorders, 44-6 (June 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1261-1274 Titre : Being a Girl in a Boys’ World: Investigating the Experiences of Girls with Autism Spectrum Disorders During Adolescence Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Peter CAPUTI, Auteur ; Christopher A. MAGEE, Auteur Article en page(s) : p.1261-1274 Langues : Anglais (eng) Mots-clés : Autism  Female  Girl  Adolescence  Qualitative  Family systems Index. décimale : PER Périodiques Résumé : This study investigates the experiences of adolescent girls with autism spectrum disorders (ASD) during adolescence. Semi-structured interviews were conducted with three mother–daughter dyads and two additional mothers. A range of issues were highlighted covering physical, emotional, social and sexual domains. Some of these issues were similar to those experienced by boys with ASD during adolescence, such as negative implications of late diagnosis, challenges of transitioning to and coping with high school, ‘hands-on’ role of parents into adolescence, difficulties adjusting to the increased demands of adolescent hygiene routines, and the importance of learning personal boundaries in interactions with others. Other issues discussed were of particular relevance to adolescent girls with ASD, such as difficulties socialising with neurotypically developing girls, sex-specific puberty issues, and sexual vulnerabilities. This study highlights an important research area and is a preliminary step towards understanding the experiences of adolescent girls with ASD and their families. En ligne : http://dx.doi.org/10.1007/s10803-013-1985-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 [article] Being a Girl in a Boys’ World: Investigating the Experiences of Girls with Autism Spectrum Disorders During Adolescence [Texte imprimé et/ou numérique] / Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Peter CAPUTI, Auteur ; Christopher A. MAGEE, Auteur . - p.1261-1274. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1261-1274 Mots-clés : Autism  Female  Girl  Adolescence  Qualitative  Family systems Index. décimale : PER Périodiques Résumé : This study investigates the experiences of adolescent girls with autism spectrum disorders (ASD) during adolescence. Semi-structured interviews were conducted with three mother–daughter dyads and two additional mothers. A range of issues were highlighted covering physical, emotional, social and sexual domains. Some of these issues were similar to those experienced by boys with ASD during adolescence, such as negative implications of late diagnosis, challenges of transitioning to and coping with high school, ‘hands-on’ role of parents into adolescence, difficulties adjusting to the increased demands of adolescent hygiene routines, and the importance of learning personal boundaries in interactions with others. Other issues discussed were of particular relevance to adolescent girls with ASD, such as difficulties socialising with neurotypically developing girls, sex-specific puberty issues, and sexual vulnerabilities. This study highlights an important research area and is a preliminary step towards understanding the experiences of adolescent girls with ASD and their families. En ligne : http://dx.doi.org/10.1007/s10803-013-1985-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233

Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters / Elizabeth K. CRIDLAND in Focus on Autism and Other Developmental Disabilities, 31-3 (September 2016)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 31-3 (September 2016) . - p.196-207 Titre : Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Gerard STOYLES, Auteur ; Peter CAPUTI, Auteur ; Christopher A. MAGEE, Auteur Article en page(s) : p.196-207 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  siblings  family  support systems  high school  adolescence  sister Index. décimale : PER Périodiques Résumé : There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed. En ligne : http://dx.doi.org/10.1177/1088357615583466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292 [article] Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters [Texte imprimé et/ou numérique] / Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Gerard STOYLES, Auteur ; Peter CAPUTI, Auteur ; Christopher A. MAGEE, Auteur . - p.196-207. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 31-3 (September 2016) . - p.196-207 Mots-clés : autism spectrum disorders  siblings  family  support systems  high school  adolescence  sister Index. décimale : PER Périodiques Résumé : There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed. En ligne : http://dx.doi.org/10.1177/1088357615583466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292

Family-focused autism spectrum disorder research: A review of the utility of family systems approaches / Elizabeth K. CRIDLAND in Autism, 18-3 (April 2014)  

Public ISBD [article]  inAutism > 18-3 (April 2014) . - p.213-222 Titre : Family-focused autism spectrum disorder research: A review of the utility of family systems approaches Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Christopher A. MAGEE, Auteur ; Peter CAPUTI, Auteur Article en page(s) : p.213-222 Langues : Anglais (eng) Mots-clés : ambiguous loss  autism spectrum disorders  dyad  family functioning  family systems  holistic approaches  resilience  subsystem  support services  stress  traumatic growth Index. décimale : PER Périodiques Résumé : A family member with an autism spectrum disorder presents pervasive and bidirectional influences on the entire family system, suggesting a need for family-focused autism spectrum disorder research. While there has been increasing interest in this research area, family-focused autism spectrum disorder research can still be considered relatively recent, and there are limitations to the existing literature. The purpose of this article is to provide theoretical and methodological directions for future family-focused autism spectrum disorder research. In particular, this article proposes Family Systems approaches as a common theoretical framework for future family-focused autism spectrum disorder research by considering theoretical concepts such as Boundaries, Ambiguous Loss, Resilience and Traumatic Growth. We discuss reasons why these concepts are important to researching families living with autism spectrum disorder and provide recommendations for future research. The potential for research grounded in Family Systems approaches to influence clinical support services is also discussed. En ligne : http://dx.doi.org/10.1177/1362361312472261 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=229 [article] Family-focused autism spectrum disorder research: A review of the utility of family systems approaches [Texte imprimé et/ou numérique] / Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Christopher A. MAGEE, Auteur ; Peter CAPUTI, Auteur . - p.213-222. Langues : Anglais (eng) in Autism > 18-3 (April 2014) . - p.213-222 Mots-clés : ambiguous loss  autism spectrum disorders  dyad  family functioning  family systems  holistic approaches  resilience  subsystem  support services  stress  traumatic growth Index. décimale : PER Périodiques Résumé : A family member with an autism spectrum disorder presents pervasive and bidirectional influences on the entire family system, suggesting a need for family-focused autism spectrum disorder research. While there has been increasing interest in this research area, family-focused autism spectrum disorder research can still be considered relatively recent, and there are limitations to the existing literature. The purpose of this article is to provide theoretical and methodological directions for future family-focused autism spectrum disorder research. In particular, this article proposes Family Systems approaches as a common theoretical framework for future family-focused autism spectrum disorder research by considering theoretical concepts such as Boundaries, Ambiguous Loss, Resilience and Traumatic Growth. We discuss reasons why these concepts are important to researching families living with autism spectrum disorder and provide recommendations for future research. The potential for research grounded in Family Systems approaches to influence clinical support services is also discussed. En ligne : http://dx.doi.org/10.1177/1362361312472261 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=229

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