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Caregiver employment changes and care coordination in families with children with autism / Andrea J. JAFFE in Research in Autism, 135 (July 2026)  

Public ISBD [article]  inResearch in Autism > 135 (July 2026) . - 202930 Titre : Caregiver employment changes and care coordination in families with children with autism Type de document : texte imprimé Auteurs : Andrea J. JAFFE, Auteur ; Anne M. ROUX, Auteur ; Kristy A. ANDERSON, Auteur ; Vijay VASUDEVAN, Auteur ; Arianna ESPOSITO, Auteur ; Stuart SPIELMAN, Auteur ; Jessica E. RAST, Auteur Année de publication : 2026 Article en page(s) : 202930 Langues : Anglais (eng) Mots-clés : Autism  Parental employment  Care coordination  Children with special health care needs Index. décimale : PER Périodiques Résumé : Purpose To examine changes in employment of caregivers of children with autism and children with special health care needs (CSHCN). Methods This study used the National Survey of Children’s Health to examine the prevalence of employment changes of caregivers, including reducing hours or stopping work and avoiding changing jobs to maintain insurance. We used multivariable logistic regression to estimate associations of care coordination with both employment outcomes. Finally, we examined differences by age and insurance type, stratified by care coordination status, to examine potential interaction of these variables in children with autism and CSHCN. Results Caregivers of children with autism were more likely to experience changes in their employment than CSHCN. Caregivers who did not receive needed care coordination had 2.21 times the odds of reducing hours or stopping work than those who received needed care coordination (95% CI 1.89, 2.58). Age was also associated with employment changes for caregivers of children and autism and CSHCN. For caregivers of children with autism ages 3–5 years, the rate of reduced hours or stopped working was triple for those who did not receive needed care coordination (59%) compared to those who did (21%). Conclusions Caregivers may reduce employment to support their child in receiving needed care. The findings from this study demonstrate the need for further research to examine the provision of care coordination and the cost-benefit analysis of public funding for care coordination to improve caregiver employment outcomes and create more support for families with a child with autism. En ligne : https://doi.org/10.1016/j.reia.2026.202930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Caregiver employment changes and care coordination in families with children with autism [texte imprimé] / Andrea J. JAFFE, Auteur ; Anne M. ROUX, Auteur ; Kristy A. ANDERSON, Auteur ; Vijay VASUDEVAN, Auteur ; Arianna ESPOSITO, Auteur ; Stuart SPIELMAN, Auteur ; Jessica E. RAST, Auteur . - 2026 . - 202930. Langues : Anglais (eng) in Research in Autism > 135 (July 2026) . - 202930 Mots-clés : Autism  Parental employment  Care coordination  Children with special health care needs Index. décimale : PER Périodiques Résumé : Purpose To examine changes in employment of caregivers of children with autism and children with special health care needs (CSHCN). Methods This study used the National Survey of Children’s Health to examine the prevalence of employment changes of caregivers, including reducing hours or stopping work and avoiding changing jobs to maintain insurance. We used multivariable logistic regression to estimate associations of care coordination with both employment outcomes. Finally, we examined differences by age and insurance type, stratified by care coordination status, to examine potential interaction of these variables in children with autism and CSHCN. Results Caregivers of children with autism were more likely to experience changes in their employment than CSHCN. Caregivers who did not receive needed care coordination had 2.21 times the odds of reducing hours or stopping work than those who received needed care coordination (95% CI 1.89, 2.58). Age was also associated with employment changes for caregivers of children and autism and CSHCN. For caregivers of children with autism ages 3–5 years, the rate of reduced hours or stopped working was triple for those who did not receive needed care coordination (59%) compared to those who did (21%). Conclusions Caregivers may reduce employment to support their child in receiving needed care. The findings from this study demonstrate the need for further research to examine the provision of care coordination and the cost-benefit analysis of public funding for care coordination to improve caregiver employment outcomes and create more support for families with a child with autism. En ligne : https://doi.org/10.1016/j.reia.2026.202930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588

Classifying sensory design principles for autism-friendly environments: A PRISMA-based systematic review / Monireh KERAMATI in Research in Autism, 135 (July 2026)  

Public ISBD [article]  inResearch in Autism > 135 (July 2026) . - 202932 Titre : Classifying sensory design principles for autism-friendly environments: A PRISMA-based systematic review Type de document : texte imprimé Auteurs : Monireh KERAMATI, Auteur ; Seyed Mohammad Hossein ZAKERI, Auteur Année de publication : 2026 Article en page(s) : 202932 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder (ASD)  Sensory Design  Design Principles  Autism Friendly Environments  PRISMA Systematic Review Index. décimale : PER Périodiques Résumé : Autism Spectrum Disorder (ASD) is a neurodevelopmental condition that affects communication, social interaction, and sensory processing, often expressed through repetitive behaviors, cognitive delays, and verbal or non-verbal impairments. According to the World Health Organization, its prevalence is rising globally, creating challenges for educational systems. While ASD occurs across all age groups, childhood is a critical period in which autism-friendly environments can support learning and well-being. Although no definitive cure exists, sensory-responsive environments mitigate anxiety, reduce distraction, and improve behavioral outcomes. This study systematically extracted, consolidated, and classified sensory design principles into a structured framework to guide architects, educators, and caregivers. Using the PRISMA methodology, an initial pool of 2512 studies was screened, and after applying criteria, 25 articles were selected for review. From these, 21 sensory design principles were identified and grouped into three categories: (1) design problems (e.g., acoustics, lighting, color, safety, spatial sequencing), (2) proposed spaces and spatial requirements (e.g., gardens, quiet rooms), and (3) requirements related to architectural components (e.g., windows, ceilings, materials, textures). For each principle, corresponding design strategies and spatial features were synthesized to ensure practical application. Findings show that while design problems received the most attention, proposed spaces and architectural components were less explored, despite often serving as solutions to broader challenges. By mapping these interdependent categories, this review provides an integrated framework that can reduce stress, enhance focus, and foster social interaction for autistic children. The framework offers a practical reference for interdisciplinary collaboration and a basis for future guidelines in autism-friendly design. En ligne : https://doi.org/10.1016/j.reia.2026.202932 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Classifying sensory design principles for autism-friendly environments: A PRISMA-based systematic review [texte imprimé] / Monireh KERAMATI, Auteur ; Seyed Mohammad Hossein ZAKERI, Auteur . - 2026 . - 202932. Langues : Anglais (eng) in Research in Autism > 135 (July 2026) . - 202932 Mots-clés : Autism Spectrum Disorder (ASD)  Sensory Design  Design Principles  Autism Friendly Environments  PRISMA Systematic Review Index. décimale : PER Périodiques Résumé : Autism Spectrum Disorder (ASD) is a neurodevelopmental condition that affects communication, social interaction, and sensory processing, often expressed through repetitive behaviors, cognitive delays, and verbal or non-verbal impairments. According to the World Health Organization, its prevalence is rising globally, creating challenges for educational systems. While ASD occurs across all age groups, childhood is a critical period in which autism-friendly environments can support learning and well-being. Although no definitive cure exists, sensory-responsive environments mitigate anxiety, reduce distraction, and improve behavioral outcomes. This study systematically extracted, consolidated, and classified sensory design principles into a structured framework to guide architects, educators, and caregivers. Using the PRISMA methodology, an initial pool of 2512 studies was screened, and after applying criteria, 25 articles were selected for review. From these, 21 sensory design principles were identified and grouped into three categories: (1) design problems (e.g., acoustics, lighting, color, safety, spatial sequencing), (2) proposed spaces and spatial requirements (e.g., gardens, quiet rooms), and (3) requirements related to architectural components (e.g., windows, ceilings, materials, textures). For each principle, corresponding design strategies and spatial features were synthesized to ensure practical application. Findings show that while design problems received the most attention, proposed spaces and architectural components were less explored, despite often serving as solutions to broader challenges. By mapping these interdependent categories, this review provides an integrated framework that can reduce stress, enhance focus, and foster social interaction for autistic children. The framework offers a practical reference for interdisciplinary collaboration and a basis for future guidelines in autism-friendly design. En ligne : https://doi.org/10.1016/j.reia.2026.202932 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588

Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation / Hannah E. VINER in Research in Autism, 135 (July 2026)  

Public ISBD [article]  inResearch in Autism > 135 (July 2026) . - 202933 Titre : Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation Type de document : texte imprimé Auteurs : Hannah E. VINER, Auteur ; Philipp SISCHKA, Auteur ; Holly RADFORD, Auteur ; Anna E. KORNADT, Auteur Année de publication : 2026 Article en page(s) : 202933 Langues : Anglais (eng) Mots-clés : Autism  PCA  Neurodiversity  Questionnaire development  Ageing  Quality of life Index. décimale : PER Périodiques Résumé : Background and objectives Quality of life (QoL) has been identified as a key research priority by the autism community. Previous qualitative research has highlighted autism-specific QoL domains which are not captured by existing QoL measures. Accurately measuring QoL across the lifespan is essential to providing appropriate support and services which enhance QoL and ageing experiences. This study aimed to develop and validate a novel Quality of Life for Autistic Adults (QoL-AA) measure reflecting these underrepresented or absent domains. Research design and methods A total of 407 autistic adults aged 40–76 years from the United Kingdom, Germany, and Luxembourg completed an online questionnaire including 15 new QoL items, established QoL questionnaires, and measures of mental health and loneliness. Results Principal Component Analysis identified three components: Accessibility and Acceptance, Interpersonal Connection and Support, and Control over Daily Life. As expected, these components correlated positively with existing QoL measures and negatively with mental health and loneliness measures. The components explained significant additional variance in depression, anxiety, perceived stress, and loneliness, beyond existing QoL measures. Individual components demonstrated differential associations with each outcome and can be used as independent modules. Discussion and implications The resulting QoL-AA measure, available in English, French, and German, provides initial validation of a tool addressing QoL domains identified as important by autistic adults in mid- to late-life, supporting a more comprehensive assessment of autistic adults’ QoL in later life. En ligne : https://doi.org/10.1016/j.reia.2026.202933 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation [texte imprimé] / Hannah E. VINER, Auteur ; Philipp SISCHKA, Auteur ; Holly RADFORD, Auteur ; Anna E. KORNADT, Auteur . - 2026 . - 202933. Langues : Anglais (eng) in Research in Autism > 135 (July 2026) . - 202933 Mots-clés : Autism  PCA  Neurodiversity  Questionnaire development  Ageing  Quality of life Index. décimale : PER Périodiques Résumé : Background and objectives Quality of life (QoL) has been identified as a key research priority by the autism community. Previous qualitative research has highlighted autism-specific QoL domains which are not captured by existing QoL measures. Accurately measuring QoL across the lifespan is essential to providing appropriate support and services which enhance QoL and ageing experiences. This study aimed to develop and validate a novel Quality of Life for Autistic Adults (QoL-AA) measure reflecting these underrepresented or absent domains. Research design and methods A total of 407 autistic adults aged 40–76 years from the United Kingdom, Germany, and Luxembourg completed an online questionnaire including 15 new QoL items, established QoL questionnaires, and measures of mental health and loneliness. Results Principal Component Analysis identified three components: Accessibility and Acceptance, Interpersonal Connection and Support, and Control over Daily Life. As expected, these components correlated positively with existing QoL measures and negatively with mental health and loneliness measures. The components explained significant additional variance in depression, anxiety, perceived stress, and loneliness, beyond existing QoL measures. Individual components demonstrated differential associations with each outcome and can be used as independent modules. Discussion and implications The resulting QoL-AA measure, available in English, French, and German, provides initial validation of a tool addressing QoL domains identified as important by autistic adults in mid- to late-life, supporting a more comprehensive assessment of autistic adults’ QoL in later life. En ligne : https://doi.org/10.1016/j.reia.2026.202933 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588

Telehealth autism services: Service providers and users’ perspectives / Lina HAWI in Research in Autism, 135 (July 2026)  

Public ISBD [article]  inResearch in Autism > 135 (July 2026) . - 202942 Titre : Telehealth autism services: Service providers and users’ perspectives Type de document : texte imprimé Auteurs : Lina HAWI, Auteur ; Jessica MONAGHAN, Auteur ; Nicole NEIL, Auteur Année de publication : 2026 Article en page(s) : 202942 Langues : Anglais (eng) Mots-clés : Telehealth  Feasibility  Mixed-method  Acceptability  Caregiver perspectives Index. décimale : PER Périodiques Résumé : Background Access to autism services could be challenging for families in rural areas. Telehealth has become a popular tool for autism services since the pandemic. This study aimed to examine providers’ and service users’ perspectives on the feasibility of telehealth for autism services and to identify factors predicting their continued intent to use telehealth. Methods Participants (n = 67) included 24 autism service providers, 37 caregivers, and eight autistic individuals. All completed an online survey adapted from the Telehealth Satisfaction Questionnaire. Qualitative responses were analyzed using a priori coding based on a feasibility theoretical framework. Results Quantitative analyses indicated that perceptions of practicality and acceptability of telehealth significantly predicted participants’ intent to use these services. Qualitative results indicate that telehealth presents some barriers: (a) implementation barriers, including technological difficulties and client profile challenges; (b) acceptability barriers related to rapport; (c) adaptation barriers related to modifications of material; (d) integration barriers related to training and caregiver capacity. Conclusions Telehealth is generally acceptable and practical for autism services, but barriers remain at organizational, provider, and client levels. Addressing these barriers through strategic planning may enhance equitable access to evidence-based autism services. En ligne : https://doi.org/10.1016/j.reia.2026.202942 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Telehealth autism services: Service providers and users’ perspectives [texte imprimé] / Lina HAWI, Auteur ; Jessica MONAGHAN, Auteur ; Nicole NEIL, Auteur . - 2026 . - 202942. Langues : Anglais (eng) in Research in Autism > 135 (July 2026) . - 202942 Mots-clés : Telehealth  Feasibility  Mixed-method  Acceptability  Caregiver perspectives Index. décimale : PER Périodiques Résumé : Background Access to autism services could be challenging for families in rural areas. Telehealth has become a popular tool for autism services since the pandemic. This study aimed to examine providers’ and service users’ perspectives on the feasibility of telehealth for autism services and to identify factors predicting their continued intent to use telehealth. Methods Participants (n = 67) included 24 autism service providers, 37 caregivers, and eight autistic individuals. All completed an online survey adapted from the Telehealth Satisfaction Questionnaire. Qualitative responses were analyzed using a priori coding based on a feasibility theoretical framework. Results Quantitative analyses indicated that perceptions of practicality and acceptability of telehealth significantly predicted participants’ intent to use these services. Qualitative results indicate that telehealth presents some barriers: (a) implementation barriers, including technological difficulties and client profile challenges; (b) acceptability barriers related to rapport; (c) adaptation barriers related to modifications of material; (d) integration barriers related to training and caregiver capacity. Conclusions Telehealth is generally acceptable and practical for autism services, but barriers remain at organizational, provider, and client levels. Addressing these barriers through strategic planning may enhance equitable access to evidence-based autism services. En ligne : https://doi.org/10.1016/j.reia.2026.202942 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588

Communication preferences of French-speaking autistic and non-autistic adults across social contexts / Florence MERKEN in Research in Autism, 135 (July 2026)  

Public ISBD [article]  inResearch in Autism > 135 (July 2026) . - 202943 Titre : Communication preferences of French-speaking autistic and non-autistic adults across social contexts Type de document : texte imprimé Auteurs : Florence MERKEN, Auteur ; Eliza NIBLETT, Auteur ; Sophie SOWDEN-CARVALHO, Auteur ; Gaétane DELIENS, Auteur ; Philippine GEELHAND, Auteur Année de publication : 2026 Article en page(s) : 202943 Langues : Anglais (eng) Mots-clés : Communication preferences  Autism  Writing  Adults  Modality Index. décimale : PER Périodiques Résumé : Communication modes vary widely in modality, synchronicity, and sensory input. While autistic adults often favour computer-based and written modes, particularly with unfamiliar interlocutors, how those preferences differ from non-autistic individuals and across different social contexts remains underexplored. A total of 147 adults (73 autistic and 74 non-autistic) rated nine communication modes (e.g., videoconference, face-to-face, email, etc.) across eight social scenarios (e.g., customer services, friends, work, etc.). Cumulative-link mixed models were used to analyse the effect of diagnosis, modality, communication mode, and individual characteristics (age, anxiety, camouflaging) on ratings. Autistic adults consistently preferred written over oral communication in all contexts, while non-autistic adults favoured oral modes or rated both modalities similarly. Autistic adults rated oral modes such as phone calls, videoconferencing with the camera on, and voice messages lower than non-autistic adults, but both groups gave similar ratings for written modes of communication in several contexts. Individual characteristics had limited explanatory power. French-speaking autistic adults' preference for written modes aligns with English-speaking findings, suggesting that this preference seems shared across those languages/cultures. Although oral communication differentiates autistic and non-autistic participants, written communication reduces these differences, indicating that offering written interaction options may support more inclusive cross-neurotype communication. En ligne : https://doi.org/10.1016/j.reia.2026.202943 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Communication preferences of French-speaking autistic and non-autistic adults across social contexts [texte imprimé] / Florence MERKEN, Auteur ; Eliza NIBLETT, Auteur ; Sophie SOWDEN-CARVALHO, Auteur ; Gaétane DELIENS, Auteur ; Philippine GEELHAND, Auteur . - 2026 . - 202943. Langues : Anglais (eng) in Research in Autism > 135 (July 2026) . - 202943 Mots-clés : Communication preferences  Autism  Writing  Adults  Modality Index. décimale : PER Périodiques Résumé : Communication modes vary widely in modality, synchronicity, and sensory input. While autistic adults often favour computer-based and written modes, particularly with unfamiliar interlocutors, how those preferences differ from non-autistic individuals and across different social contexts remains underexplored. A total of 147 adults (73 autistic and 74 non-autistic) rated nine communication modes (e.g., videoconference, face-to-face, email, etc.) across eight social scenarios (e.g., customer services, friends, work, etc.). Cumulative-link mixed models were used to analyse the effect of diagnosis, modality, communication mode, and individual characteristics (age, anxiety, camouflaging) on ratings. Autistic adults consistently preferred written over oral communication in all contexts, while non-autistic adults favoured oral modes or rated both modalities similarly. Autistic adults rated oral modes such as phone calls, videoconferencing with the camera on, and voice messages lower than non-autistic adults, but both groups gave similar ratings for written modes of communication in several contexts. Individual characteristics had limited explanatory power. French-speaking autistic adults' preference for written modes aligns with English-speaking findings, suggesting that this preference seems shared across those languages/cultures. Although oral communication differentiates autistic and non-autistic participants, written communication reduces these differences, indicating that offering written interaction options may support more inclusive cross-neurotype communication. En ligne : https://doi.org/10.1016/j.reia.2026.202943 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588