Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions / Rini VOHRA in Autism, 18-7 (October 2014)  

Public ISBD [article]  inAutism > 18-7 (October 2014) . - p.815-826 Titre : Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions Type de document : texte imprimé Auteurs : Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur ; Claire ST PETER, Auteur Article en page(s) : p.815-826 Langues : Anglais (eng) Mots-clés : Access to services  autism  autism spectrum disorder health care  burden of autism  developmental disabilities  family impact  mental health condition  quality of care Index. décimale : PER Périodiques Résumé : This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3–17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009–2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child’s special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both. En ligne : http://dx.doi.org/10.1177/1362361313512902 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 [article] Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions [texte imprimé] / Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur ; Claire ST PETER, Auteur . - p.815-826. Langues : Anglais (eng) in Autism > 18-7 (October 2014) . - p.815-826 Mots-clés : Access to services  autism  autism spectrum disorder health care  burden of autism  developmental disabilities  family impact  mental health condition  quality of care Index. décimale : PER Périodiques Résumé : This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3–17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009–2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child’s special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both. En ligne : http://dx.doi.org/10.1177/1362361313512902 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241

Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders / Rahul KHANNA in Journal of Autism and Developmental Disorders, 41-9 (September 2011)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 41-9 (September 2011) . - p.1214-1227 Titre : Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Julie H. PATRICK, Auteur ; Cindy TWOREK, Auteur ; Barbara BECKER-COTTRILL, Auteur Année de publication : 2011 Article en page(s) : p.1214-1227 Langues : Anglais (eng) Mots-clés : Autism  Caregiver  Health-related quality of life  Burden Index. décimale : PER Périodiques Résumé : The impact of caring for a child with autism on caregivers’ health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills. En ligne : http://dx.doi.org/10.1007/s10803-010-1140-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142 [article] Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders [texte imprimé] / Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Julie H. PATRICK, Auteur ; Cindy TWOREK, Auteur ; Barbara BECKER-COTTRILL, Auteur . - 2011 . - p.1214-1227. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 41-9 (September 2011) . - p.1214-1227 Mots-clés : Autism  Caregiver  Health-related quality of life  Burden Index. décimale : PER Périodiques Résumé : The impact of caring for a child with autism on caregivers’ health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills. En ligne : http://dx.doi.org/10.1007/s10803-010-1140-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142

Comorbidity prevalence, healthcare utilization, and expenditures of Medicaid enrolled adults with autism spectrum disorders / Rini VOHRA in Autism, 21-8 (November 2017)  

Public ISBD [article]  inAutism > 21-8 (November 2017) . - p.995-1009 Titre : Comorbidity prevalence, healthcare utilization, and expenditures of Medicaid enrolled adults with autism spectrum disorders Type de document : texte imprimé Auteurs : Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur Année de publication : 2017 Article en page(s) : p.995-1009 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : A retrospective data analysis using 2000 2008 three state Medicaid Analytic eXtract was conducted to examine the prevalence and association of comorbidities (psychiatric and non-psychiatric) with healthcare utilization and expenditures of fee-for-service enrolled adults (22 64 years) with and without autism spectrum disorders (International Classification of Diseases, Ninth Revision clinical modification code: 299.xx). Autism spectrum disorder cases were 1:3 matched to no autism spectrum disorder controls by age, gender, and race using propensity scores. Study outcomes were all-cause healthcare utilization (outpatient office visits, inpatient hospitalizations, emergency room, and prescription drug use) and associated healthcare expenditures. Bivariate analyses (chi-square tests and t-tests), multinomial logistic regressions (healthcare utilization), and generalized linear models with gamma distribution (expenditures) were used. Adults with autism spectrum disorders (n=1772) had significantly higher rates of psychiatric comorbidity (81%), epilepsy (22%), infections (22%), skin disorders (21%), and hearing impairments (18%). Adults with autism spectrum disorders had higher mean annual outpatient office visits (32ASD vs 8noASD) and prescription drug use claims (51ASD vs 24noASD) as well as higher mean annual outpatient office visits (US$4375ASD vs US$824noASD), emergency room (US$15,929ASD vs US$2598noASD), prescription drug use (US$6067ASD vs US$3144noASD), and total expenditures (US$13,700ASD vs US$8560noASD). The presence of a psychiatric and a non-psychiatric comorbidity among adults with autism spectrum disorders increased the annual total expenditures by US$4952 and US$5084, respectively. En ligne : https://doi.org/10.1177/1362361316665222 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=320 [article] Comorbidity prevalence, healthcare utilization, and expenditures of Medicaid enrolled adults with autism spectrum disorders [texte imprimé] / Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur . - 2017 . - p.995-1009. Langues : Anglais (eng) in Autism > 21-8 (November 2017) . - p.995-1009 Index. décimale : PER Périodiques Résumé : A retrospective data analysis using 2000 2008 three state Medicaid Analytic eXtract was conducted to examine the prevalence and association of comorbidities (psychiatric and non-psychiatric) with healthcare utilization and expenditures of fee-for-service enrolled adults (22 64 years) with and without autism spectrum disorders (International Classification of Diseases, Ninth Revision clinical modification code: 299.xx). Autism spectrum disorder cases were 1:3 matched to no autism spectrum disorder controls by age, gender, and race using propensity scores. Study outcomes were all-cause healthcare utilization (outpatient office visits, inpatient hospitalizations, emergency room, and prescription drug use) and associated healthcare expenditures. Bivariate analyses (chi-square tests and t-tests), multinomial logistic regressions (healthcare utilization), and generalized linear models with gamma distribution (expenditures) were used. Adults with autism spectrum disorders (n=1772) had significantly higher rates of psychiatric comorbidity (81%), epilepsy (22%), infections (22%), skin disorders (21%), and hearing impairments (18%). Adults with autism spectrum disorders had higher mean annual outpatient office visits (32ASD vs 8noASD) and prescription drug use claims (51ASD vs 24noASD) as well as higher mean annual outpatient office visits (US$4375ASD vs US$824noASD), emergency room (US$15,929ASD vs US$2598noASD), prescription drug use (US$6067ASD vs US$3144noASD), and total expenditures (US$13,700ASD vs US$8560noASD). The presence of a psychiatric and a non-psychiatric comorbidity among adults with autism spectrum disorders increased the annual total expenditures by US$4952 and US$5084, respectively. En ligne : https://doi.org/10.1177/1362361316665222 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=320

Emergency Department Use Among Adults with Autism Spectrum Disorders (ASD) / Rini VOHRA in Journal of Autism and Developmental Disorders, 46-4 (April 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1441-1454 Titre : Emergency Department Use Among Adults with Autism Spectrum Disorders (ASD) Type de document : texte imprimé Auteurs : Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur Article en page(s) : p.1441-1454 Langues : Anglais (eng) Mots-clés : Autism  Emergency department  Emergency room  Autism trends  Expenditures  Adult autism  Autism injury  Medical conditions in autism Index. décimale : PER Périodiques Résumé : A cross-sectional analyses using Nationwide Emergency Department Sample (2006–2011) was conducted to examine the trends, type of ED visits, and mean total ED charges for adults aged 22–64 years with and without ASD (matched 1:3). Around 0.4 % ED visits (n = 25,527) were associated with any ASD and rates of such visits more than doubled from 2006 to 2011 (2549–6087 per 100,000 admissions). Adults with ASD visited ED for: primary psychiatric disorder (15 %ASD vs. 4.2 %noASD), primary non-psychiatric disorder (16 %ASD vs. 14 %noASD), and any injury (24 %ASD vs. 28 %noASD). Mean total ED charges for adults with ASD were 2.3 times higher than for adults without ASD. Findings emphasize the need to examine the extent of frequent ED use in this population. En ligne : http://dx.doi.org/10.1007/s10803-015-2692-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284 [article] Emergency Department Use Among Adults with Autism Spectrum Disorders (ASD) [texte imprimé] / Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur . - p.1441-1454. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1441-1454 Mots-clés : Autism  Emergency department  Emergency room  Autism trends  Expenditures  Adult autism  Autism injury  Medical conditions in autism Index. décimale : PER Périodiques Résumé : A cross-sectional analyses using Nationwide Emergency Department Sample (2006–2011) was conducted to examine the trends, type of ED visits, and mean total ED charges for adults aged 22–64 years with and without ASD (matched 1:3). Around 0.4 % ED visits (n = 25,527) were associated with any ASD and rates of such visits more than doubled from 2006 to 2011 (2549–6087 per 100,000 admissions). Adults with ASD visited ED for: primary psychiatric disorder (15 %ASD vs. 4.2 %noASD), primary non-psychiatric disorder (16 %ASD vs. 14 %noASD), and any injury (24 %ASD vs. 28 %noASD). Mean total ED charges for adults with ASD were 2.3 times higher than for adults without ASD. Findings emphasize the need to examine the extent of frequent ED use in this population. En ligne : http://dx.doi.org/10.1007/s10803-015-2692-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284

Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism / Rahul KHANNA in Autism, 16-2 (March 2012)  

Public ISBD [article]  inAutism > 16-2 (March 2012) . - p.179-199 Titre : Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism Type de document : texte imprimé Auteurs : Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Cindy TWOREK, Auteur ; Julie H. PATRICK, Auteur ; Barbara BECKER-COTTRILL, Auteur Année de publication : 2012 Article en page(s) : p.179-199 Langues : Anglais (eng) Mots-clés : psychometric properties: CGSQ  autism  caregivers Index. décimale : PER Périodiques Résumé : The purpose of this study was to test the psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism. The CGSQ was originally developed to assess burden experienced by parents of children and adolescents with serious emotional and behavioral disorders. Study data was collected from 304 primary caregivers ofchildren with autism using a cross-sectional survey design. We tested the one-, two-, and three-factor CGSQ model. Though the three-factor CGSQ model fit better than the one- and two-factor model, it was still short of an acceptable fit. Minor modifications were made to the three-factor model by correlating error terms. The modified three-factor CGSQ model with correlated error indicated reasonable fit with the data. The 21-item CGSQ had good convergent validity, as indicated by the correlation of its three subscales with constructs including mental health-related quality of life, maladaptive coping, social support, family functioning, and care recipient level of functional impairment and extent of behavioral problems, respectively. The internal consistency reliability of the instrument was also good, and there were no floor and ceiling effects. The CGSQ was found to be a reliable and valid instrument to assess burden among caregivers of children with autism. En ligne : http://dx.doi.org/10.1177/1362361311406143 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=155 [article] Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism [texte imprimé] / Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Cindy TWOREK, Auteur ; Julie H. PATRICK, Auteur ; Barbara BECKER-COTTRILL, Auteur . - 2012 . - p.179-199. Langues : Anglais (eng) in Autism > 16-2 (March 2012) . - p.179-199 Mots-clés : psychometric properties: CGSQ  autism  caregivers Index. décimale : PER Périodiques Résumé : The purpose of this study was to test the psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism. The CGSQ was originally developed to assess burden experienced by parents of children and adolescents with serious emotional and behavioral disorders. Study data was collected from 304 primary caregivers ofchildren with autism using a cross-sectional survey design. We tested the one-, two-, and three-factor CGSQ model. Though the three-factor CGSQ model fit better than the one- and two-factor model, it was still short of an acceptable fit. Minor modifications were made to the three-factor model by correlating error terms. The modified three-factor CGSQ model with correlated error indicated reasonable fit with the data. The 21-item CGSQ had good convergent validity, as indicated by the correlation of its three subscales with constructs including mental health-related quality of life, maladaptive coping, social support, family functioning, and care recipient level of functional impairment and extent of behavioral problems, respectively. The internal consistency reliability of the instrument was also good, and there were no floor and ceiling effects. The CGSQ was found to be a reliable and valid instrument to assess burden among caregivers of children with autism. En ligne : http://dx.doi.org/10.1177/1362361311406143 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=155

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