Functioning and quality of life in transition-aged youth on the autism spectrum - associations with autism symptom severity and mental health problems / Anna BACKMAN in Research in Autism Spectrum Disorders, 104 (June 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 104 (June 2023) . - 102168 Titre : Functioning and quality of life in transition-aged youth on the autism spectrum - associations with autism symptom severity and mental health problems Type de document : Texte imprimé et/ou numérique Auteurs : Anna BACKMAN, Auteur ; Eric ZANDER, Auteur ; Lise ROLL-PETTERSSON, Auteur ; Sarah VIGERLAND, Auteur ; Tatja HIRVIKOSKI, Auteur Article en page(s) : 102168 Langues : Anglais (eng) Mots-clés : Functioning  Co-occurrence  Self-report  Autism spectrum disorder  Transition-age  Quality of life Index. décimale : PER Périodiques Résumé : Previous research notes difficulties in functioning and low quality of life (QoL) among transition-age youth on the autism spectrum, and poor mental health may contribute to these difficulties. This study examined the role of autism symptom severity and mental health problems on self-reported functioning and QoL in treatment-seeking transition-age autistic youth. The study included 140 autistic youth (16-25 years, M = 20.44 (SD = 2.95); n = 91 females [65%], n = 42 males [30%], n = 7 non-binary [5%]). We assessed functioning using a structured interview and QoL through a self-report questionnaire. Factors potentially associated with functioning and QoL were assessed using standardized self-report questionnaires of autism symptom severity, symptoms of anxiety and depression, and information from medical records. Participants reported functioning on the 90th percentile compared to general population norms, indicating significant disability, and also rated low overall QoL. Regression analysis showed that autism symptom severity and anxiety symptoms, and to some extent gender and having an ADHD diagnosis, explained 46% of the variance in overall functioning. Symptoms of anxiety and depression, and to a lesser extent, active friendship, explained 43% of the variance in QoL. Sampling limitations of the study include the overrepresentation of women and newly diagnosed participants. We highlight that functioning and QoL are multifactorial, necessitating a comprehensive assessment of transition-aged autistic youth, including mental health problems, to plan tangible interventions. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102168 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504 [article] Functioning and quality of life in transition-aged youth on the autism spectrum - associations with autism symptom severity and mental health problems [Texte imprimé et/ou numérique] / Anna BACKMAN, Auteur ; Eric ZANDER, Auteur ; Lise ROLL-PETTERSSON, Auteur ; Sarah VIGERLAND, Auteur ; Tatja HIRVIKOSKI, Auteur . - 102168. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 104 (June 2023) . - 102168 Mots-clés : Functioning  Co-occurrence  Self-report  Autism spectrum disorder  Transition-age  Quality of life Index. décimale : PER Périodiques Résumé : Previous research notes difficulties in functioning and low quality of life (QoL) among transition-age youth on the autism spectrum, and poor mental health may contribute to these difficulties. This study examined the role of autism symptom severity and mental health problems on self-reported functioning and QoL in treatment-seeking transition-age autistic youth. The study included 140 autistic youth (16-25 years, M = 20.44 (SD = 2.95); n = 91 females [65%], n = 42 males [30%], n = 7 non-binary [5%]). We assessed functioning using a structured interview and QoL through a self-report questionnaire. Factors potentially associated with functioning and QoL were assessed using standardized self-report questionnaires of autism symptom severity, symptoms of anxiety and depression, and information from medical records. Participants reported functioning on the 90th percentile compared to general population norms, indicating significant disability, and also rated low overall QoL. Regression analysis showed that autism symptom severity and anxiety symptoms, and to some extent gender and having an ADHD diagnosis, explained 46% of the variance in overall functioning. Symptoms of anxiety and depression, and to a lesser extent, active friendship, explained 43% of the variance in QoL. Sampling limitations of the study include the overrepresentation of women and newly diagnosed participants. We highlight that functioning and QoL are multifactorial, necessitating a comprehensive assessment of transition-aged autistic youth, including mental health problems, to plan tangible interventions. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102168 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504

Group Psychoeducational Intervention for Grandparents of Young Children with ASD: An Open Feasibility Study / Lise ROLL-PETTERSSON ; Kristina ANDERSSON ; Helena LARSSON ; Mara ALLODI WESTLING ; Tatja HIRVIKOSKI in Journal of Autism and Developmental Disorders, 53-2 (February 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-2 (February 2023) . - p.808-824 Titre : Group Psychoeducational Intervention for Grandparents of Young Children with ASD: An Open Feasibility Study Type de document : Texte imprimé et/ou numérique Auteurs : Lise ROLL-PETTERSSON, Auteur ; Kristina ANDERSSON, Auteur ; Helena LARSSON, Auteur ; Mara ALLODI WESTLING, Auteur ; Tatja HIRVIKOSKI, Auteur Article en page(s) : p.808-824 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This initial open feasibility trial reports on feasibility and preliminary effectiveness of the manualized, group-based psychoeducational intervention for grandparents of preschool-aged children with ASD provided by the outpatient habilitation services in Stockholm, Sweden. One hundred and twenty non-custodial grandparents participated in a 6-h intervention program. The study demonstrated good feasibility: 114 (95%) grandparents completed both pre- and post-intervention measures and evaluations and reported high intervention acceptability. The results also indicated that grandparents increased their knowledge about ASD from pre-intervention to post-intervention, gained skills about strategies of supporting their grandchildren and adult children, and appreciated the opportunity to meet and share experiences with other grandparents. Follow-up with a randomized controlled trial design is needed to firmly establish efficacy of this intervention. En ligne : https://doi.org/10.1007/s10803-021-05189-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=495 [article] Group Psychoeducational Intervention for Grandparents of Young Children with ASD: An Open Feasibility Study [Texte imprimé et/ou numérique] / Lise ROLL-PETTERSSON, Auteur ; Kristina ANDERSSON, Auteur ; Helena LARSSON, Auteur ; Mara ALLODI WESTLING, Auteur ; Tatja HIRVIKOSKI, Auteur . - p.808-824. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-2 (February 2023) . - p.808-824 Index. décimale : PER Périodiques Résumé : This initial open feasibility trial reports on feasibility and preliminary effectiveness of the manualized, group-based psychoeducational intervention for grandparents of preschool-aged children with ASD provided by the outpatient habilitation services in Stockholm, Sweden. One hundred and twenty non-custodial grandparents participated in a 6-h intervention program. The study demonstrated good feasibility: 114 (95%) grandparents completed both pre- and post-intervention measures and evaluations and reported high intervention acceptability. The results also indicated that grandparents increased their knowledge about ASD from pre-intervention to post-intervention, gained skills about strategies of supporting their grandchildren and adult children, and appreciated the opportunity to meet and share experiences with other grandparents. Follow-up with a randomized controlled trial design is needed to firmly establish efficacy of this intervention. En ligne : https://doi.org/10.1007/s10803-021-05189-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=495

High self-perceived stress and poor coping in intellectually able adults with autism spectrum disorder / Tatja HIRVIKOSKI in Autism, 19-6 (August 2015)  

Public ISBD [article]  inAutism > 19-6 (August 2015) . - p.752-757 Titre : High self-perceived stress and poor coping in intellectually able adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Tatja HIRVIKOSKI, Auteur ; My BLOMQVIST, Auteur Article en page(s) : p.752-757 Langues : Anglais (eng) Mots-clés : adults  Asperger syndrome  autism spectrum disorder  autistic traits  coping  high-functioning autism  perceived stress  stress Index. décimale : PER Périodiques Résumé : Despite average intellectual capacity, autistic traits may complicate performance in many everyday situations, thus leading to stress. This study focuses on stress in everyday life in intellectually able adults with autism spectrum disorders. In total, 53 adults (25 with autism spectrum disorder and 28 typical adults from the general population) completed the Perceived Stress Scale. Autistic traits were assessed using the Autism Spectrum Quotient. Adults with autism spectrum disorder reported significantly higher subjective stress and poorer ability to cope with stress in everyday life, as compared to typical adults. Autistic traits were associated with both subjective stress/distress and coping in this cross-sectional series. The long-term consequences of chronic stress in everyday life, as well as treatment intervention focusing on stress and coping, should be addressed in future research as well as in the clinical management of intellectually able adults with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361314543530 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263 [article] High self-perceived stress and poor coping in intellectually able adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Tatja HIRVIKOSKI, Auteur ; My BLOMQVIST, Auteur . - p.752-757. Langues : Anglais (eng) in Autism > 19-6 (August 2015) . - p.752-757 Mots-clés : adults  Asperger syndrome  autism spectrum disorder  autistic traits  coping  high-functioning autism  perceived stress  stress Index. décimale : PER Périodiques Résumé : Despite average intellectual capacity, autistic traits may complicate performance in many everyday situations, thus leading to stress. This study focuses on stress in everyday life in intellectually able adults with autism spectrum disorders. In total, 53 adults (25 with autism spectrum disorder and 28 typical adults from the general population) completed the Perceived Stress Scale. Autistic traits were assessed using the Autism Spectrum Quotient. Adults with autism spectrum disorder reported significantly higher subjective stress and poorer ability to cope with stress in everyday life, as compared to typical adults. Autistic traits were associated with both subjective stress/distress and coping in this cross-sectional series. The long-term consequences of chronic stress in everyday life, as well as treatment intervention focusing on stress and coping, should be addressed in future research as well as in the clinical management of intellectually able adults with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361314543530 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263

Internet-delivered psychoeducation for older adolescents and young adults with autism spectrum disorder (SCOPE): An open feasibility study / Anna BACKMAN in Research in Autism Spectrum Disorders, 54 (October 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 54 (October 2018) . - p.51-64 Titre : Internet-delivered psychoeducation for older adolescents and young adults with autism spectrum disorder (SCOPE): An open feasibility study Type de document : Texte imprimé et/ou numérique Auteurs : Anna BACKMAN, Auteur ; Are MELLBLOM, Auteur ; Elisabet NORMAN-CLAESSON, Auteur ; Gunilla KEITH-BODROS, Auteur ; Maj FROSTVITTRA, Auteur ; Sven BÖLTE, Auteur ; Tatja HIRVIKOSKI, Auteur Article en page(s) : p.51-64 Langues : Anglais (eng) Mots-clés : Autism  Neurodevelopmental disorders  Internet-mediated intervention  e-services  Young adults  Digitally mediated interaction  Digital communication Index. décimale : PER Périodiques Résumé : Background There is a paucity regarding interventions in general, and especially internet-delivered treatment options, for adolescents and young adults with autism spectrum disorder (ASD), despite the group´s capacity and willingness to utilize computer-mediated communication. This open feasibility study evaluated the new internet-delivered, psychoeducational intervention, SCOPE (Spectrum COmputerized PsychoEducation), for adolescents and young adults aged 16–25 years with ASD in the normative IQ range. Method The participation in SCOPE was facilitated by weekly contacts with disability service professionals (trained coaches) and the intervention consisted of eight ASD-themed modules. In an open feasibility study we evaluated treatment completion, treatment credibility and satisfaction, as well as preliminary efficacy. We assessed feasibility in an outpatient disability services context, regarding both participants’ and coaches’ experiences. Results Twenty-three out of the 29 included participants (79%) completed the intervention. The participants’ experience of treatment credibility was increased during the SCOPE web course and the overall satisfaction with the treatment was high. The coaches reported high treatment credibility and good clinical feasibility of the internet-based delivered intervention. The participants’ knowledge of ASD increased significantly from pre-intervention to post-intervention. The increased knowledge of ASD was not associated with negative effects on psychological well-being. Conclusions Our results suggest that the internet-delivered psychoeducational intervention SCOPE is a feasible intervention and could contribute to youth’s sense of empowerment through increased knowledge of ASD and themselves. An ongoing randomized controlled study will generate further evidence concerning the SCOPE intervention. En ligne : https://doi.org/10.1016/j.rasd.2018.07.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368 [article] Internet-delivered psychoeducation for older adolescents and young adults with autism spectrum disorder (SCOPE): An open feasibility study [Texte imprimé et/ou numérique] / Anna BACKMAN, Auteur ; Are MELLBLOM, Auteur ; Elisabet NORMAN-CLAESSON, Auteur ; Gunilla KEITH-BODROS, Auteur ; Maj FROSTVITTRA, Auteur ; Sven BÖLTE, Auteur ; Tatja HIRVIKOSKI, Auteur . - p.51-64. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 54 (October 2018) . - p.51-64 Mots-clés : Autism  Neurodevelopmental disorders  Internet-mediated intervention  e-services  Young adults  Digitally mediated interaction  Digital communication Index. décimale : PER Périodiques Résumé : Background There is a paucity regarding interventions in general, and especially internet-delivered treatment options, for adolescents and young adults with autism spectrum disorder (ASD), despite the group´s capacity and willingness to utilize computer-mediated communication. This open feasibility study evaluated the new internet-delivered, psychoeducational intervention, SCOPE (Spectrum COmputerized PsychoEducation), for adolescents and young adults aged 16–25 years with ASD in the normative IQ range. Method The participation in SCOPE was facilitated by weekly contacts with disability service professionals (trained coaches) and the intervention consisted of eight ASD-themed modules. In an open feasibility study we evaluated treatment completion, treatment credibility and satisfaction, as well as preliminary efficacy. We assessed feasibility in an outpatient disability services context, regarding both participants’ and coaches’ experiences. Results Twenty-three out of the 29 included participants (79%) completed the intervention. The participants’ experience of treatment credibility was increased during the SCOPE web course and the overall satisfaction with the treatment was high. The coaches reported high treatment credibility and good clinical feasibility of the internet-based delivered intervention. The participants’ knowledge of ASD increased significantly from pre-intervention to post-intervention. The increased knowledge of ASD was not associated with negative effects on psychological well-being. Conclusions Our results suggest that the internet-delivered psychoeducational intervention SCOPE is a feasible intervention and could contribute to youth’s sense of empowerment through increased knowledge of ASD and themselves. An ongoing randomized controlled study will generate further evidence concerning the SCOPE intervention. En ligne : https://doi.org/10.1016/j.rasd.2018.07.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368

Mindfulness-based stress reduction for autistic adults: A feasibility study in an outpatient context / Anne-Kristina LUOTO ; Anna BACKMAN ; Carina ERIKSDOTTER ; Nitya JAYARAM-LINDSTRÖM ; Sven BÖLTE ; Tatja HIRVIKOSKI in Autism, 28-2 (February 2024)  

Public ISBD [article]  inAutism > 28-2 (February 2024) . - p.403?414 Titre : Mindfulness-based stress reduction for autistic adults: A feasibility study in an outpatient context Type de document : Texte imprimé et/ou numérique Auteurs : Anne-Kristina LUOTO, Auteur ; Anna BACKMAN, Auteur ; Carina ERIKSDOTTER, Auteur ; Nitya JAYARAM-LINDSTRÖM, Auteur ; Sven BÖLTE, Auteur ; Tatja HIRVIKOSKI, Auteur Article en page(s) : p.403?414 Mots-clés : adults  autism  intervention  mindfulness  stress Index. décimale : PER Périodiques Résumé : Autistic adults report high stress and impaired ability to cope with stressors. Mindfulness-based stress reduction targets individual?s own resources to regulate stress responses. An open feasibility study was conducted in an outpatient context, recruiting autistic adults without intellectual disability. The intervention, guided by trained mindfulness-based stress reduction teachers, followed the contents of the standard manual while adapting the delivery to autistic adults? needs. The total sample comprised of N?=?50 participants; N?=?43 (86%) attended at least one session, and N?=?34 of these (79%) completed the intervention. Participants found mindfulness-based stress reduction logical, likely to lead to improvement and recommendable to autistic peers. No serious adverse events were reported. Measures of preliminary effectiveness indicated reduced symptoms of stress (p? En ligne : https://dx.doi.org/10.1177/13623613231172809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 [article] Mindfulness-based stress reduction for autistic adults: A feasibility study in an outpatient context [Texte imprimé et/ou numérique] / Anne-Kristina LUOTO, Auteur ; Anna BACKMAN, Auteur ; Carina ERIKSDOTTER, Auteur ; Nitya JAYARAM-LINDSTRÖM, Auteur ; Sven BÖLTE, Auteur ; Tatja HIRVIKOSKI, Auteur . - p.403?414. in Autism > 28-2 (February 2024) . - p.403?414 Mots-clés : adults  autism  intervention  mindfulness  stress Index. décimale : PER Périodiques Résumé : Autistic adults report high stress and impaired ability to cope with stressors. Mindfulness-based stress reduction targets individual?s own resources to regulate stress responses. An open feasibility study was conducted in an outpatient context, recruiting autistic adults without intellectual disability. The intervention, guided by trained mindfulness-based stress reduction teachers, followed the contents of the standard manual while adapting the delivery to autistic adults? needs. The total sample comprised of N?=?50 participants; N?=?43 (86%) attended at least one session, and N?=?34 of these (79%) completed the intervention. Participants found mindfulness-based stress reduction logical, likely to lead to improvement and recommendable to autistic peers. No serious adverse events were reported. Measures of preliminary effectiveness indicated reduced symptoms of stress (p? En ligne : https://dx.doi.org/10.1177/13623613231172809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519

Needs of Grandparents of Preschool-Aged Children with ASD in Sweden / Rano ZAKIROVA ENGSTRAND in Journal of Autism and Developmental Disorders, 50-6 (June 2020)  

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Outcomes of an acceptance and commitment therapy-based skills training group for students with high-functioning autism spectrum disorder: A quasi-experimental pilot study / Johan PAHNKE in Autism, 18-8 (November 2014)  

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Shared familial risk factors between autism spectrum disorder and obesity - a register-based familial coaggregation cohort study / Richard AHLBERG in Journal of Child Psychology and Psychiatry, 63-8 (August 2022)  

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Support in Daily Living for Young Adults with Neurodevelopmental Conditions in Sweden: A Qualitative Description of Current Practice / Tatja HIRVIKOSKI ; Sonya GIRDLER ; Sven BÖLTE ; Ulf JONSSON in Journal of Autism and Developmental Disorders, 54-8 (August 2024)  

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