Experiences of student and trainee autism researchers during the COVID-19 pandemic / Sowmyashree Mayur KAKU in Autism Research, 15-3 (March 2022)  

Public ISBD [article]  inAutism Research > 15-3 (March 2022) . - p.413-420 Titre : Experiences of student and trainee autism researchers during the COVID-19 pandemic Type de document : texte imprimé Auteurs : Sowmyashree Mayur KAKU, Auteur ; Alana J. MCVEY, Auteur ; Alan H. GERBER, Auteur ; Charlotte M. PRETZSCH, Auteur ; Desiree R. JONES, Auteur ; Fathima Muhsina KODAKKADAN, Auteur ; Jiedi LEI, Auteur ; Lauren SINGER, Auteur ; Lucy CHITEHWE, Auteur ; Rebecca Elizabeth POULSEN, Auteur ; Marika C. COFFMAN, Auteur Article en page(s) : p.413-420 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Circumstances surrounding the COVID-19 pandemic have resulted in significant personal and professional adjustments. Students and trainees, including those in autism research, face unique challenges to accomplishing their training and career goals during this unprecedented time. In this commentary, we, as members of the International Society for Autism Research Student and Trainee Committee, describe our personal experiences, which may or may not align with those of other students and trainees. Our experiences have varied both in terms of the ease (or lack thereof) with which we adapted and the degree to which we were supported in the transition to online research and clinical practice. We faced and continue to adjust to uncertainties about future training and academic positions, for which opportunities have been in decline and have subsequently negatively impacted our mental health. Students and trainees' prospects have been particularly impacted compared to more established researchers and faculty. In addition to the challenges we have faced, however, there have also been unexpected benefits in our training during the pandemic, which we describe here. We have learned new coping strategies which, we believe, have served us well. The overarching goal of this commentary is to describe these experiences and strategies in the hope that they will benefit the autism research community moving forward. Here, we provide a set of recommendations for faculty, especially mentors, to support students and trainees as well as strategies for students and trainees to bolster their self-advocacy, both of which we see as crucial for our future careers. Lay Summary The COVID-19 pandemic has affected students and trainees, including those in autism research, in different ways. Here, we describe our personal experiences. These experiences include challenges. For example, it has been difficult to move from in-person to online work. It has also been difficult to keep up with work and training goals. Moreover, working from home has made it hard to connect with our supervisors and mentors. As a result, many of us have felt unsure about how to make the best career choices. Working in clinical services and getting to know and support our patients online has also been challenging. Overall, the pandemic has made us feel more isolated and some of us have struggled to cope with that. On the other hand, our experiences have also included benefits. For example, by working online, we have been able to join meetings all over the world. Also, the pandemic has pushed us to learn new skills. Those include technical skills but also skills for well-being. Next, we describe our experiences of returning to work. Finally, we give recommendations for trainees and supervisors on how to support each other and to build a strong community. En ligne : https://doi.org/10.1002/aur.2662 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Experiences of student and trainee autism researchers during the COVID-19 pandemic [texte imprimé] / Sowmyashree Mayur KAKU, Auteur ; Alana J. MCVEY, Auteur ; Alan H. GERBER, Auteur ; Charlotte M. PRETZSCH, Auteur ; Desiree R. JONES, Auteur ; Fathima Muhsina KODAKKADAN, Auteur ; Jiedi LEI, Auteur ; Lauren SINGER, Auteur ; Lucy CHITEHWE, Auteur ; Rebecca Elizabeth POULSEN, Auteur ; Marika C. COFFMAN, Auteur . - p.413-420. Langues : Anglais (eng) in Autism Research > 15-3 (March 2022) . - p.413-420 Index. décimale : PER Périodiques Résumé : Abstract Circumstances surrounding the COVID-19 pandemic have resulted in significant personal and professional adjustments. Students and trainees, including those in autism research, face unique challenges to accomplishing their training and career goals during this unprecedented time. In this commentary, we, as members of the International Society for Autism Research Student and Trainee Committee, describe our personal experiences, which may or may not align with those of other students and trainees. Our experiences have varied both in terms of the ease (or lack thereof) with which we adapted and the degree to which we were supported in the transition to online research and clinical practice. We faced and continue to adjust to uncertainties about future training and academic positions, for which opportunities have been in decline and have subsequently negatively impacted our mental health. Students and trainees' prospects have been particularly impacted compared to more established researchers and faculty. In addition to the challenges we have faced, however, there have also been unexpected benefits in our training during the pandemic, which we describe here. We have learned new coping strategies which, we believe, have served us well. The overarching goal of this commentary is to describe these experiences and strategies in the hope that they will benefit the autism research community moving forward. Here, we provide a set of recommendations for faculty, especially mentors, to support students and trainees as well as strategies for students and trainees to bolster their self-advocacy, both of which we see as crucial for our future careers. Lay Summary The COVID-19 pandemic has affected students and trainees, including those in autism research, in different ways. Here, we describe our personal experiences. These experiences include challenges. For example, it has been difficult to move from in-person to online work. It has also been difficult to keep up with work and training goals. Moreover, working from home has made it hard to connect with our supervisors and mentors. As a result, many of us have felt unsure about how to make the best career choices. Working in clinical services and getting to know and support our patients online has also been challenging. Overall, the pandemic has made us feel more isolated and some of us have struggled to cope with that. On the other hand, our experiences have also included benefits. For example, by working online, we have been able to join meetings all over the world. Also, the pandemic has pushed us to learn new skills. Those include technical skills but also skills for well-being. Next, we describe our experiences of returning to work. Finally, we give recommendations for trainees and supervisors on how to support each other and to build a strong community. En ligne : https://doi.org/10.1002/aur.2662 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Health Related Quality of Life in Autistic Youth and Their Families / Rebecca C. SHAFFER ; Lauren M. SCHMITT ; Marika C. COFFMAN ; Paul S. HORN ; Debra L. REISINGER ; Craig A. ERICKSON in Journal of Autism and Developmental Disorders, 55-6 (June 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-6 (June 2025) . - p.1982-1987 Titre : Health Related Quality of Life in Autistic Youth and Their Families Type de document : texte imprimé Auteurs : Rebecca C. SHAFFER, Auteur ; Lauren M. SCHMITT, Auteur ; Marika C. COFFMAN, Auteur ; Paul S. HORN, Auteur ; Debra L. REISINGER, Auteur ; Craig A. ERICKSON, Auteur Article en page(s) : p.1982-1987 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The construct Quality of Life (QoL) involves a range of factors related to one?s well-being. Individuals on the autism spectrum have been previously reported to have lower QoL. The purpose of the present study is to examine QoL in autistic individuals and their families and to evaluate associations between QoL and measures of functioning using the PedsQL 4.0. En ligne : https://doi.org/10.1007/s10803-023-06054-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Health Related Quality of Life in Autistic Youth and Their Families [texte imprimé] / Rebecca C. SHAFFER, Auteur ; Lauren M. SCHMITT, Auteur ; Marika C. COFFMAN, Auteur ; Paul S. HORN, Auteur ; Debra L. REISINGER, Auteur ; Craig A. ERICKSON, Auteur . - p.1982-1987. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-6 (June 2025) . - p.1982-1987 Index. décimale : PER Périodiques Résumé : The construct Quality of Life (QoL) involves a range of factors related to one?s well-being. Individuals on the autism spectrum have been previously reported to have lower QoL. The purpose of the present study is to examine QoL in autistic individuals and their families and to evaluate associations between QoL and measures of functioning using the PedsQL 4.0. En ligne : https://doi.org/10.1007/s10803-023-06054-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Neural Mechanisms of Emotion Regulation in Autism Spectrum Disorder / J. Anthony RICHEY in Journal of Autism and Developmental Disorders, 45-11 (November 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-11 (November 2015) . - p.3409-3423 Titre : Neural Mechanisms of Emotion Regulation in Autism Spectrum Disorder Type de document : texte imprimé Auteurs : J. Anthony RICHEY, Auteur ; Cara R. DAMIANO, Auteur ; Antoinette SABATINO-DICRISCIO, Auteur ; Alison RITTENBERG, Auteur ; Chris PETTY, Auteur ; Joshua BIZZELL, Auteur ; James VOYVODIC, Auteur ; Aaron S. HELLER, Auteur ; Marika C. COFFMAN, Auteur ; Moria SMOSKI, Auteur ; Richard J. DAVIDSON, Auteur ; Gabriel S. DICHTER, Auteur Article en page(s) : p.3409-3423 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Dorsolateral prefrontal cortex  Amygdala  Nucleus accumbens  Emotion regulation  Eyetracking Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is characterized by high rates of comorbid internalizing and externalizing disorders. One mechanistic account of these comorbidities is that ASD is characterized by impaired emotion regulation (ER) that results in deficits modulating emotional responses. We assessed neural activation during cognitive reappraisal of faces in high functioning adults with ASD. Groups did not differ in looking time, pupilometry, or subjective ratings of faces during reappraisal. However, instructions to increase positive and negative emotional responses resulted in less increase in nucleus accumbens and amygdala activations (respectively) in the ASD group, and both regulation instructions resulted in less change in dorsolateral prefrontal cortex activation in the ASD group. Results suggest a potential mechanistic account of impaired ER in ASD. En ligne : http://dx.doi.org/10.1007/s10803-015-2359-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 [article] Neural Mechanisms of Emotion Regulation in Autism Spectrum Disorder [texte imprimé] / J. Anthony RICHEY, Auteur ; Cara R. DAMIANO, Auteur ; Antoinette SABATINO-DICRISCIO, Auteur ; Alison RITTENBERG, Auteur ; Chris PETTY, Auteur ; Joshua BIZZELL, Auteur ; James VOYVODIC, Auteur ; Aaron S. HELLER, Auteur ; Marika C. COFFMAN, Auteur ; Moria SMOSKI, Auteur ; Richard J. DAVIDSON, Auteur ; Gabriel S. DICHTER, Auteur . - p.3409-3423. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-11 (November 2015) . - p.3409-3423 Mots-clés : Autism spectrum disorder  Dorsolateral prefrontal cortex  Amygdala  Nucleus accumbens  Emotion regulation  Eyetracking Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is characterized by high rates of comorbid internalizing and externalizing disorders. One mechanistic account of these comorbidities is that ASD is characterized by impaired emotion regulation (ER) that results in deficits modulating emotional responses. We assessed neural activation during cognitive reappraisal of faces in high functioning adults with ASD. Groups did not differ in looking time, pupilometry, or subjective ratings of faces during reappraisal. However, instructions to increase positive and negative emotional responses resulted in less increase in nucleus accumbens and amygdala activations (respectively) in the ASD group, and both regulation instructions resulted in less change in dorsolateral prefrontal cortex activation in the ASD group. Results suggest a potential mechanistic account of impaired ER in ASD. En ligne : http://dx.doi.org/10.1007/s10803-015-2359-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270

A Preliminary Psychometric Analysis of the Difficulties with Emotion Regulation Scale (DERS) Among Autistic Adolescents and Adults: Factor Structure, Reliability, and Validity / A. J. MCVEY in Journal of Autism and Developmental Disorders, 52-3 (March 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1169-1188 Titre : A Preliminary Psychometric Analysis of the Difficulties with Emotion Regulation Scale (DERS) Among Autistic Adolescents and Adults: Factor Structure, Reliability, and Validity Type de document : texte imprimé Auteurs : A. J. MCVEY, Auteur ; H. K. SCHILTZ, Auteur ; Marika C. COFFMAN, Auteur ; Ligia ANTEZANA, Auteur ; B. MAGNUS, Auteur Article en page(s) : p.1169-1188 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Emotional Regulation  Humans  Psychometrics  Reproducibility of Results  Autism  Emotion regulation Index. décimale : PER Périodiques Résumé : Emotion dysregulation is common among autistic people, yet few measures have received psychometric evaluation in this population. We examined the factor structure, reliability, and validity of a commonly-used measure of emotion dysregulation, the Difficulties with Emotion Regulation Scale (DERS), in a sample of 156 autistic adolescents and adults. Data were drawn from the NIH National Database for Autism Research (NDAR) and an author's existing dataset. Results demonstrated that the factor structure generally conformed to the original 6-factor model, with modifications. Reliability analyses revealed good-to-excellent internal consistencies. Validity analyses indicated that the DERS was positively associated with measures of anxiety, depression, and alexithymia. Our findings provide preliminary evidence for the utility of the DERS in a small autistic sample, with minor modifications. En ligne : http://dx.doi.org/10.1007/s10803-021-05018-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] A Preliminary Psychometric Analysis of the Difficulties with Emotion Regulation Scale (DERS) Among Autistic Adolescents and Adults: Factor Structure, Reliability, and Validity [texte imprimé] / A. J. MCVEY, Auteur ; H. K. SCHILTZ, Auteur ; Marika C. COFFMAN, Auteur ; Ligia ANTEZANA, Auteur ; B. MAGNUS, Auteur . - p.1169-1188. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1169-1188 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Emotional Regulation  Humans  Psychometrics  Reproducibility of Results  Autism  Emotion regulation Index. décimale : PER Périodiques Résumé : Emotion dysregulation is common among autistic people, yet few measures have received psychometric evaluation in this population. We examined the factor structure, reliability, and validity of a commonly-used measure of emotion dysregulation, the Difficulties with Emotion Regulation Scale (DERS), in a sample of 156 autistic adolescents and adults. Data were drawn from the NIH National Database for Autism Research (NDAR) and an author's existing dataset. Results demonstrated that the factor structure generally conformed to the original 6-factor model, with modifications. Reliability analyses revealed good-to-excellent internal consistencies. Validity analyses indicated that the DERS was positively associated with measures of anxiety, depression, and alexithymia. Our findings provide preliminary evidence for the utility of the DERS in a small autistic sample, with minor modifications. En ligne : http://dx.doi.org/10.1007/s10803-021-05018-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Regulating Together: Emotion Dysregulation Group Treatment for ASD Youth and Their Caregivers / Rebecca C. SHAFFER in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1942-1962 Titre : Regulating Together: Emotion Dysregulation Group Treatment for ASD Youth and Their Caregivers Type de document : texte imprimé Auteurs : Rebecca C. SHAFFER, Auteur ; Lauren M. SCHMITT, Auteur ; Debra L. REISINGER, Auteur ; Marika C. COFFMAN, Auteur ; Paul HORN, Auteur ; Matthew S. GOODWIN, Auteur ; Carla MAZEFSKY, Auteur ; Shelley RANDALL, Auteur ; Craig ERICKSON, Auteur Article en page(s) : p.1942-1962 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) experience behavioral and emotional symptoms hypothesized to arise from emotion dysregulation (ED), difficulty modulating emotional experience, expression, and intensity in an acceptable and contextually appropriate manner. We developed Regulating Together (RT)-an intensive-outpatient, caregiver-assisted group program to meet the ASD+ED intervention critical need. A within-subjects trial was conducted (5-week-control lead-in period, 5-week-treatment, and 5-and 10-weeks-post-treatment follow-ups). Forty-four youth with ASD+ED (25 8-12, 19 13-18 yr-olds, 88% male, mean FSIQ of 96) participated. Improvements were found in reactivity, emotion regulation knowledge, and flexibility post-treatment and 10-weeks post-treatment. A reduction in inpatient hospitalization rates by 16% from the 12 months pre-RT to 12 months post-RT was observed. RT shows promise to reduce ED in ASD. En ligne : https://doi.org/10.1007/s10803-022-05461-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501 [article] Regulating Together: Emotion Dysregulation Group Treatment for ASD Youth and Their Caregivers [texte imprimé] / Rebecca C. SHAFFER, Auteur ; Lauren M. SCHMITT, Auteur ; Debra L. REISINGER, Auteur ; Marika C. COFFMAN, Auteur ; Paul HORN, Auteur ; Matthew S. GOODWIN, Auteur ; Carla MAZEFSKY, Auteur ; Shelley RANDALL, Auteur ; Craig ERICKSON, Auteur . - p.1942-1962. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1942-1962 Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) experience behavioral and emotional symptoms hypothesized to arise from emotion dysregulation (ED), difficulty modulating emotional experience, expression, and intensity in an acceptable and contextually appropriate manner. We developed Regulating Together (RT)-an intensive-outpatient, caregiver-assisted group program to meet the ASD+ED intervention critical need. A within-subjects trial was conducted (5-week-control lead-in period, 5-week-treatment, and 5-and 10-weeks-post-treatment follow-ups). Forty-four youth with ASD+ED (25 8-12, 19 13-18 yr-olds, 88% male, mean FSIQ of 96) participated. Improvements were found in reactivity, emotion regulation knowledge, and flexibility post-treatment and 10-weeks post-treatment. A reduction in inpatient hospitalization rates by 16% from the 12 months pre-RT to 12 months post-RT was observed. RT shows promise to reduce ED in ASD. En ligne : https://doi.org/10.1007/s10803-022-05461-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501

Relationship between quantitative digital behavioral features and clinical profiles in young autistic children / Marika C. COFFMAN in Autism Research, 16-7 (July 2023)  

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Sex Differences in Social Perception in Children with ASD / Marika C. COFFMAN in Journal of Autism and Developmental Disorders, 45-2 (February 2015)  

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Sibling Relationships: Parent-Child Agreement and Contributions of Siblings With and Without ASD / Megan L. BRACONNIER in Journal of Autism and Developmental Disorders, 48-5 (May 2018)  

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Social Anxiety Symptoms Predict Poorer Facial Emotion Recognition in Autistic Male Adolescents and Young Adults Without Intellectual Disability / Andrew VALDESPINO ; Andrea T. WIECKOWSKI ; Marika C. COFFMAN ; Corinne N. CARLTON ; Katelyn M. GARCIA ; Denis GRACANIN ; Susan W. WHITE ; John A. RICHEY in Journal of Autism and Developmental Disorders, 54-7 (July 2024)  

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