Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents / Shana R. COHEN in Journal of Autism and Developmental Disorders, 48-6 (June 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.1995-2009 Titre : Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur Article en page(s) : p.1995-2009 Langues : Anglais (eng) Mots-clés : ASD cause  Beliefs  Latino families  Mexican-heritage parents  Mixed methods analysis Index. décimale : PER Périodiques Résumé : This study examined cultural beliefs about ASD and its causes among Mexican-heritage families. In focus group interviews, we asked 25 immigrant parents of children with ASD to identify words they associated with ASD and its causes. Participants free-listed, ranked, and justified their responses. Mixed methods analyses utilized saliency scores to calculate responses. Deductive interview analyses justified participants' responses. Salient responses for ASD perceptions included specific characteristics about the child (e.g., loving) and perceptions about lack of resources. Salient responses for ASD causes were vaccines, genetics, and a combination of genetics and environment. Inductive analyses revealed distinct beliefs about social stigma, child characteristics, factors supporting development, and parents' emotional stress. Interpretations linked these beliefs to promising adaptations in diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-017-3457-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361 [article] Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur . - p.1995-2009. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.1995-2009 Mots-clés : ASD cause  Beliefs  Latino families  Mexican-heritage parents  Mixed methods analysis Index. décimale : PER Périodiques Résumé : This study examined cultural beliefs about ASD and its causes among Mexican-heritage families. In focus group interviews, we asked 25 immigrant parents of children with ASD to identify words they associated with ASD and its causes. Participants free-listed, ranked, and justified their responses. Mixed methods analyses utilized saliency scores to calculate responses. Deductive interview analyses justified participants' responses. Salient responses for ASD perceptions included specific characteristics about the child (e.g., loving) and perceptions about lack of resources. Salient responses for ASD causes were vaccines, genetics, and a combination of genetics and environment. Inductive analyses revealed distinct beliefs about social stigma, child characteristics, factors supporting development, and parents' emotional stress. Interpretations linked these beliefs to promising adaptations in diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-017-3457-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361

ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families / Shana R. COHEN in Journal of Autism and Developmental Disorders, 53-3 (March 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1017-1033 Titre : ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Jessica TREJOS, Auteur Article en page(s) : p.1017-1033 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : To understand the ASD diagnosis and treatment pathways for US families, N=38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families. En ligne : https://doi.org/10.1007/s10803-022-05512-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Jessica TREJOS, Auteur . - p.1017-1033. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1017-1033 Index. décimale : PER Périodiques Résumé : To understand the ASD diagnosis and treatment pathways for US families, N=38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families. En ligne : https://doi.org/10.1007/s10803-022-05512-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

Child-rearing routines among Mexican-heritage children with autism spectrum disorder / Shana R. COHEN in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.80-94 Titre : Child-rearing routines among Mexican-heritage children with autism spectrum disorder Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Alison WISHARD GUERRA, Auteur Article en page(s) : p.80-94 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  daily activities  experienced sampling methods  immigrant families  interventions Index. décimale : PER Périodiques Résumé : This study examined the daily routines and activities of Mexican-heritage mothers and their children with autism spectrum disorder. Experienced sampling methods were used to capture families' current daily routines and activities, how parents valued those activities, and whether the activity was part of the child's autism spectrum disorder intervention. A total of 32 mothers were texted five times per day over five consecutive days for a total of 721 observations. Mothers frequently engaged in Self-Care (e.g. showering), General Caregiving (e.g. cooking), and House Chores (e.g. laundry). Children engaged in activities in which interventions could easily be integrated (e.g. Academics, Self-Care, and Playing with Others). Families spent less than one-third (26.1%) of their activities participating in interventions. Mothers and children jointly spent time in General Caregiving, Playing with Others, and Using Electronics. Practitioners should focus on integrating evidence-based interventions into daily joint routine activities. En ligne : http://dx.doi.org/10.1177/1362361319849244 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Child-rearing routines among Mexican-heritage children with autism spectrum disorder [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Alison WISHARD GUERRA, Auteur . - p.80-94. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.80-94 Mots-clés : autism spectrum disorder  daily activities  experienced sampling methods  immigrant families  interventions Index. décimale : PER Périodiques Résumé : This study examined the daily routines and activities of Mexican-heritage mothers and their children with autism spectrum disorder. Experienced sampling methods were used to capture families' current daily routines and activities, how parents valued those activities, and whether the activity was part of the child's autism spectrum disorder intervention. A total of 32 mothers were texted five times per day over five consecutive days for a total of 721 observations. Mothers frequently engaged in Self-Care (e.g. showering), General Caregiving (e.g. cooking), and House Chores (e.g. laundry). Children engaged in activities in which interventions could easily be integrated (e.g. Academics, Self-Care, and Playing with Others). Families spent less than one-third (26.1%) of their activities participating in interventions. Mothers and children jointly spent time in General Caregiving, Playing with Others, and Using Electronics. Practitioners should focus on integrating evidence-based interventions into daily joint routine activities. En ligne : http://dx.doi.org/10.1177/1362361319849244 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

In the eye of the beholder: Reports of autism symptoms by Anglo and Latino mothers / Jan BLACHER in Research in Autism Spectrum Disorders, 8-12 (December 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-12 (December 2014) . - p.1648-1656 Titre : In the eye of the beholder: Reports of autism symptoms by Anglo and Latino mothers Type de document : texte imprimé Auteurs : Jan BLACHER, Auteur ; Shana R. COHEN, Auteur ; Gazi F. AZAD, Auteur Article en page(s) : p.1648-1656 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Latino families  Screening  Ethnicity  Culture  Parent report  Diagnosis Index. décimale : PER Périodiques Résumé : Abstract Latino children with autism spectrum disorder (ASD) are under-identified and under-diagnosed. Children suspected of ASD (28 Anglo and 55 Latino) were assessed via the Autism Diagnostic Observation Schedule (ADOS) and the mother Intake Form. A sub-sample of 40 children were assessed with the Autism Disagnostic Interview-Revised (ADI-R). The primary objective was to determine whether Anglo and Latino mothers differed in their symptom reports, and whether their children differed in the professional classifications. Anglo mothers reported significantly more developmental concerns and ASD symptoms than Latino mothers, yet Latino children meeting diagnostic criteria for autism on the ADOS obtained higher ASD severity scores than Anglo children. The authors set forth three possible explanations for such discrepancies between parents and professionals in perceptions and reporting of autism symptoms: (1) Latino mothers are not as aware of the symptoms, and thus do not report them; and (2) Latino mothers are aware of general developmental delay but not as concerned as Anglo mothers until social communication deficits become more apparent. (3) Latino mothers’ parenting practices and cultural beliefs about child-rearing might mask both the ASD symptomatology exhibited by their children and their recognition of it. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.08.017 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=243 [article] In the eye of the beholder: Reports of autism symptoms by Anglo and Latino mothers [texte imprimé] / Jan BLACHER, Auteur ; Shana R. COHEN, Auteur ; Gazi F. AZAD, Auteur . - p.1648-1656. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-12 (December 2014) . - p.1648-1656 Mots-clés : Autism spectrum disorder  Latino families  Screening  Ethnicity  Culture  Parent report  Diagnosis Index. décimale : PER Périodiques Résumé : Abstract Latino children with autism spectrum disorder (ASD) are under-identified and under-diagnosed. Children suspected of ASD (28 Anglo and 55 Latino) were assessed via the Autism Diagnostic Observation Schedule (ADOS) and the mother Intake Form. A sub-sample of 40 children were assessed with the Autism Disagnostic Interview-Revised (ADI-R). The primary objective was to determine whether Anglo and Latino mothers differed in their symptom reports, and whether their children differed in the professional classifications. Anglo mothers reported significantly more developmental concerns and ASD symptoms than Latino mothers, yet Latino children meeting diagnostic criteria for autism on the ADOS obtained higher ASD severity scores than Anglo children. The authors set forth three possible explanations for such discrepancies between parents and professionals in perceptions and reporting of autism symptoms: (1) Latino mothers are not as aware of the symptoms, and thus do not report them; and (2) Latino mothers are aware of general developmental delay but not as concerned as Anglo mothers until social communication deficits become more apparent. (3) Latino mothers’ parenting practices and cultural beliefs about child-rearing might mask both the ASD symptomatology exhibited by their children and their recognition of it. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.08.017 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=243

Perceived Social Competence and Loneliness Among Young Children with ASD: Child, Parent and Teacher Reports / Sasha M. ZEEDYK in Journal of Autism and Developmental Disorders, 46-2 (February 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.436-449 Titre : Perceived Social Competence and Loneliness Among Young Children with ASD: Child, Parent and Teacher Reports Type de document : texte imprimé Auteurs : Sasha M. ZEEDYK, Auteur ; Shana R. COHEN, Auteur ; Abbey EISENHOWER, Auteur ; Jan BLACHER, Auteur Année de publication : 2016 Article en page(s) : p.436-449 Langues : Anglais (eng) Mots-clés : Loneliness  Social competence  Child self-report  Multi-informant  Student–teacher relationships Index. décimale : PER Périodiques Résumé : Perceived loneliness and social competence were assessed for 127 children with ASD without comorbid ID, 4–7 years old, through child self-report. Using an abbreviated version of the Loneliness and Social Dissatisfaction Questionnaire (LSDQ; Cassidy and Asher in Child Dev 63:250–365, 1992), the majority of children reported friendships, yet a considerable proportion also reported social difficulties. Factor analysis of the abbreviated LSDQ identified three factors, which were significantly associated with parent- and teacher-reported variables. Regression analyses revealed parent-reported social skills deficits and teacher-reported conflict in the student–teacher relationship to be associated with child-reported loneliness. Implications for practice are discussed. En ligne : http://dx.doi.org/10.1007/s10803-015-2575-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280 [article] Perceived Social Competence and Loneliness Among Young Children with ASD: Child, Parent and Teacher Reports [texte imprimé] / Sasha M. ZEEDYK, Auteur ; Shana R. COHEN, Auteur ; Abbey EISENHOWER, Auteur ; Jan BLACHER, Auteur . - 2016 . - p.436-449. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.436-449 Mots-clés : Loneliness  Social competence  Child self-report  Multi-informant  Student–teacher relationships Index. décimale : PER Périodiques Résumé : Perceived loneliness and social competence were assessed for 127 children with ASD without comorbid ID, 4–7 years old, through child self-report. Using an abbreviated version of the Loneliness and Social Dissatisfaction Questionnaire (LSDQ; Cassidy and Asher in Child Dev 63:250–365, 1992), the majority of children reported friendships, yet a considerable proportion also reported social difficulties. Factor analysis of the abbreviated LSDQ identified three factors, which were significantly associated with parent- and teacher-reported variables. Regression analyses revealed parent-reported social skills deficits and teacher-reported conflict in the student–teacher relationship to be associated with child-reported loneliness. Implications for practice are discussed. En ligne : http://dx.doi.org/10.1007/s10803-015-2575-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280

Short report: Perceptions of causes and common beliefs of autism spectrum disorder in the U.S / Anabel CASTILLO in Research in Autism Spectrum Disorders, 70 (February 2020)  

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