Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents / Shana R. COHEN in Journal of Autism and Developmental Disorders, 48-6 (June 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.1995-2009 Titre : Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur Article en page(s) : p.1995-2009 Langues : Anglais (eng) Mots-clés : ASD cause  Beliefs  Latino families  Mexican-heritage parents  Mixed methods analysis Index. décimale : PER Périodiques Résumé : This study examined cultural beliefs about ASD and its causes among Mexican-heritage families. In focus group interviews, we asked 25 immigrant parents of children with ASD to identify words they associated with ASD and its causes. Participants free-listed, ranked, and justified their responses. Mixed methods analyses utilized saliency scores to calculate responses. Deductive interview analyses justified participants' responses. Salient responses for ASD perceptions included specific characteristics about the child (e.g., loving) and perceptions about lack of resources. Salient responses for ASD causes were vaccines, genetics, and a combination of genetics and environment. Inductive analyses revealed distinct beliefs about social stigma, child characteristics, factors supporting development, and parents' emotional stress. Interpretations linked these beliefs to promising adaptations in diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-017-3457-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361 [article] Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur . - p.1995-2009. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.1995-2009 Mots-clés : ASD cause  Beliefs  Latino families  Mexican-heritage parents  Mixed methods analysis Index. décimale : PER Périodiques Résumé : This study examined cultural beliefs about ASD and its causes among Mexican-heritage families. In focus group interviews, we asked 25 immigrant parents of children with ASD to identify words they associated with ASD and its causes. Participants free-listed, ranked, and justified their responses. Mixed methods analyses utilized saliency scores to calculate responses. Deductive interview analyses justified participants' responses. Salient responses for ASD perceptions included specific characteristics about the child (e.g., loving) and perceptions about lack of resources. Salient responses for ASD causes were vaccines, genetics, and a combination of genetics and environment. Inductive analyses revealed distinct beliefs about social stigma, child characteristics, factors supporting development, and parents' emotional stress. Interpretations linked these beliefs to promising adaptations in diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-017-3457-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361

ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families / Shana R. COHEN in Journal of Autism and Developmental Disorders, 53-3 (March 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1017-1033 Titre : ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Jessica TREJOS, Auteur Article en page(s) : p.1017-1033 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : To understand the ASD diagnosis and treatment pathways for US families, N=38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families. En ligne : https://doi.org/10.1007/s10803-022-05512-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Jessica TREJOS, Auteur . - p.1017-1033. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1017-1033 Index. décimale : PER Périodiques Résumé : To understand the ASD diagnosis and treatment pathways for US families, N=38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families. En ligne : https://doi.org/10.1007/s10803-022-05512-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

Child-rearing routines among Mexican-heritage children with autism spectrum disorder / Shana R. COHEN in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.80-94 Titre : Child-rearing routines among Mexican-heritage children with autism spectrum disorder Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Alison WISHARD GUERRA, Auteur Article en page(s) : p.80-94 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  daily activities  experienced sampling methods  immigrant families  interventions Index. décimale : PER Périodiques Résumé : This study examined the daily routines and activities of Mexican-heritage mothers and their children with autism spectrum disorder. Experienced sampling methods were used to capture families' current daily routines and activities, how parents valued those activities, and whether the activity was part of the child's autism spectrum disorder intervention. A total of 32 mothers were texted five times per day over five consecutive days for a total of 721 observations. Mothers frequently engaged in Self-Care (e.g. showering), General Caregiving (e.g. cooking), and House Chores (e.g. laundry). Children engaged in activities in which interventions could easily be integrated (e.g. Academics, Self-Care, and Playing with Others). Families spent less than one-third (26.1%) of their activities participating in interventions. Mothers and children jointly spent time in General Caregiving, Playing with Others, and Using Electronics. Practitioners should focus on integrating evidence-based interventions into daily joint routine activities. En ligne : http://dx.doi.org/10.1177/1362361319849244 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Child-rearing routines among Mexican-heritage children with autism spectrum disorder [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Alison WISHARD GUERRA, Auteur . - p.80-94. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.80-94 Mots-clés : autism spectrum disorder  daily activities  experienced sampling methods  immigrant families  interventions Index. décimale : PER Périodiques Résumé : This study examined the daily routines and activities of Mexican-heritage mothers and their children with autism spectrum disorder. Experienced sampling methods were used to capture families' current daily routines and activities, how parents valued those activities, and whether the activity was part of the child's autism spectrum disorder intervention. A total of 32 mothers were texted five times per day over five consecutive days for a total of 721 observations. Mothers frequently engaged in Self-Care (e.g. showering), General Caregiving (e.g. cooking), and House Chores (e.g. laundry). Children engaged in activities in which interventions could easily be integrated (e.g. Academics, Self-Care, and Playing with Others). Families spent less than one-third (26.1%) of their activities participating in interventions. Mothers and children jointly spent time in General Caregiving, Playing with Others, and Using Electronics. Practitioners should focus on integrating evidence-based interventions into daily joint routine activities. En ligne : http://dx.doi.org/10.1177/1362361319849244 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

How do parents scaffold their autistic children’s bilingual language interactions in everyday settings? / Shana R. COHEN in Autism, 29-12 (December 2025)  

Public ISBD [article]  inAutism > 29-12 (December 2025) . - p.3014-3031 Titre : How do parents scaffold their autistic children’s bilingual language interactions in everyday settings? Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Alison WISHARD GUERRA, Auteur ; María José ARAGÓN, Auteur ; Angeline ESTRADA, Auteur ; Eunsu LEE, Auteur Article en page(s) : p.3014-3031 Langues : Anglais (eng) Mots-clés : activity settings  autism spectrum disorders  bilingual autistic children  communication and language  decontextualized language  environmental factors  multilingual autistic children Index. décimale : PER Périodiques Résumé : This study examines how multilingual caregivers use their linguistic resources to support their autistic children’s language development, challenging historical narratives recommending therapists use only one language, English. Using a critical language socialization framework in which multilingualism is considered a practice that transcends linguistic competence, we analyzed 108 videos from five Spanish-dominant, Mexican heritage families. Findings showed that (1) families flexibly used their linguistic resources in daily interactions; (2) home activity settings predicted language use in distinct ways, transportation activities provided fewer constraints for interlocutors to use decontextualized language, language for abstract reasoning and prediction; and (3) variability in maternal scaffolding strategies influenced children’s decontextualized language. We recommend the implementation of asset-based interventions designed to leverage the strengths of multilingual autistic children and their families.Lay Abstract Mexican heritage bilingual mothers of autistic children use a variety of language practices when talking with their children. We asked mothers to video record their language interactions with their autistic child over 10 days. Specifically, we analyzed the verbal language practices parents and children used during daily routine activities (e.g. meals). Historically, therapists have recommended that multilingual families only use English when talking with their autistic children, so as not to confuse them and interfere with their development. It is important to understand how multilingual parents use this non-empirical advice. In our sample, we found that mothers used a variety of language strategies including Spanish, English, describing and labeling their environment, action directions (directing a child to perform an action), close-ended questions (e.g. what color is this?), open-ended questions (e.g. How does the radio work?), and abstract reasoning to interact with their children. These strategies varied across activity settings. In particular, transportation was an important setting for children to use abstract language. Mothers' verbal strategies influenced children’s language output, including children’s use of abstract reasoning and prediction, one of the most complex language strategies. En ligne : https://dx.doi.org/10.1177/13623613251355259 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572 [article] How do parents scaffold their autistic children’s bilingual language interactions in everyday settings? [texte imprimé] / Shana R. COHEN, Auteur ; Alison WISHARD GUERRA, Auteur ; María José ARAGÓN, Auteur ; Angeline ESTRADA, Auteur ; Eunsu LEE, Auteur . - p.3014-3031. Langues : Anglais (eng) in Autism > 29-12 (December 2025) . - p.3014-3031 Mots-clés : activity settings  autism spectrum disorders  bilingual autistic children  communication and language  decontextualized language  environmental factors  multilingual autistic children Index. décimale : PER Périodiques Résumé : This study examines how multilingual caregivers use their linguistic resources to support their autistic children’s language development, challenging historical narratives recommending therapists use only one language, English. Using a critical language socialization framework in which multilingualism is considered a practice that transcends linguistic competence, we analyzed 108 videos from five Spanish-dominant, Mexican heritage families. Findings showed that (1) families flexibly used their linguistic resources in daily interactions; (2) home activity settings predicted language use in distinct ways, transportation activities provided fewer constraints for interlocutors to use decontextualized language, language for abstract reasoning and prediction; and (3) variability in maternal scaffolding strategies influenced children’s decontextualized language. We recommend the implementation of asset-based interventions designed to leverage the strengths of multilingual autistic children and their families.Lay Abstract Mexican heritage bilingual mothers of autistic children use a variety of language practices when talking with their children. We asked mothers to video record their language interactions with their autistic child over 10 days. Specifically, we analyzed the verbal language practices parents and children used during daily routine activities (e.g. meals). Historically, therapists have recommended that multilingual families only use English when talking with their autistic children, so as not to confuse them and interfere with their development. It is important to understand how multilingual parents use this non-empirical advice. In our sample, we found that mothers used a variety of language strategies including Spanish, English, describing and labeling their environment, action directions (directing a child to perform an action), close-ended questions (e.g. what color is this?), open-ended questions (e.g. How does the radio work?), and abstract reasoning to interact with their children. These strategies varied across activity settings. In particular, transportation was an important setting for children to use abstract language. Mothers' verbal strategies influenced children’s language output, including children’s use of abstract reasoning and prediction, one of the most complex language strategies. En ligne : https://dx.doi.org/10.1177/13623613251355259 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572

In the eye of the beholder: Reports of autism symptoms by Anglo and Latino mothers / Jan BLACHER in Research in Autism Spectrum Disorders, 8-12 (December 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-12 (December 2014) . - p.1648-1656 Titre : In the eye of the beholder: Reports of autism symptoms by Anglo and Latino mothers Type de document : texte imprimé Auteurs : Jan BLACHER, Auteur ; Shana R. COHEN, Auteur ; Gazi F. AZAD, Auteur Article en page(s) : p.1648-1656 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Latino families  Screening  Ethnicity  Culture  Parent report  Diagnosis Index. décimale : PER Périodiques Résumé : Abstract Latino children with autism spectrum disorder (ASD) are under-identified and under-diagnosed. Children suspected of ASD (28 Anglo and 55 Latino) were assessed via the Autism Diagnostic Observation Schedule (ADOS) and the mother Intake Form. A sub-sample of 40 children were assessed with the Autism Disagnostic Interview-Revised (ADI-R). The primary objective was to determine whether Anglo and Latino mothers differed in their symptom reports, and whether their children differed in the professional classifications. Anglo mothers reported significantly more developmental concerns and ASD symptoms than Latino mothers, yet Latino children meeting diagnostic criteria for autism on the ADOS obtained higher ASD severity scores than Anglo children. The authors set forth three possible explanations for such discrepancies between parents and professionals in perceptions and reporting of autism symptoms: (1) Latino mothers are not as aware of the symptoms, and thus do not report them; and (2) Latino mothers are aware of general developmental delay but not as concerned as Anglo mothers until social communication deficits become more apparent. (3) Latino mothers’ parenting practices and cultural beliefs about child-rearing might mask both the ASD symptomatology exhibited by their children and their recognition of it. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.08.017 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=243 [article] In the eye of the beholder: Reports of autism symptoms by Anglo and Latino mothers [texte imprimé] / Jan BLACHER, Auteur ; Shana R. COHEN, Auteur ; Gazi F. AZAD, Auteur . - p.1648-1656. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-12 (December 2014) . - p.1648-1656 Mots-clés : Autism spectrum disorder  Latino families  Screening  Ethnicity  Culture  Parent report  Diagnosis Index. décimale : PER Périodiques Résumé : Abstract Latino children with autism spectrum disorder (ASD) are under-identified and under-diagnosed. Children suspected of ASD (28 Anglo and 55 Latino) were assessed via the Autism Diagnostic Observation Schedule (ADOS) and the mother Intake Form. A sub-sample of 40 children were assessed with the Autism Disagnostic Interview-Revised (ADI-R). The primary objective was to determine whether Anglo and Latino mothers differed in their symptom reports, and whether their children differed in the professional classifications. Anglo mothers reported significantly more developmental concerns and ASD symptoms than Latino mothers, yet Latino children meeting diagnostic criteria for autism on the ADOS obtained higher ASD severity scores than Anglo children. The authors set forth three possible explanations for such discrepancies between parents and professionals in perceptions and reporting of autism symptoms: (1) Latino mothers are not as aware of the symptoms, and thus do not report them; and (2) Latino mothers are aware of general developmental delay but not as concerned as Anglo mothers until social communication deficits become more apparent. (3) Latino mothers’ parenting practices and cultural beliefs about child-rearing might mask both the ASD symptomatology exhibited by their children and their recognition of it. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.08.017 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=243

Perceived Social Competence and Loneliness Among Young Children with ASD: Child, Parent and Teacher Reports / Sasha M. ZEEDYK in Journal of Autism and Developmental Disorders, 46-2 (February 2016)  

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Short report: Perceptions of causes and common beliefs of autism spectrum disorder in the U.S / Anabel CASTILLO in Research in Autism Spectrum Disorders, 70 (February 2020)  

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