An International Clinical Study of Ability and Disability in Autism Spectrum Disorder Using the WHO-ICF Framework / S. MAHDI in Journal of Autism and Developmental Disorders, 48-6 (June 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2148-2163 Titre : An International Clinical Study of Ability and Disability in Autism Spectrum Disorder Using the WHO-ICF Framework Type de document : Texte imprimé et/ou numérique Auteurs : S. MAHDI, Auteur ; K. ALBERTOWSKI, Auteur ; Omar ALMODAYFER, Auteur ; V. ARSENOPOULOU, Auteur ; S. CARUCCI, Auteur ; J. C. DIAS, Auteur ; M. KHALIL, Auteur ; A. KNUPPEL, Auteur ; A. LANGMANN, Auteur ; M. B. LAURITSEN, Auteur ; G. R. DA CUNHA, Auteur ; T. UCHIYAMA, Auteur ; N. WOLFF, Auteur ; M. SELB, Auteur ; M. GRANLUND, Auteur ; P. J. DE VRIES, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.2148-2163 Langues : Anglais (eng) Mots-clés : Asd  Assessment  Clinical study  Dsm  Functioning  Icd  Neurodevelopmental disorder Index. décimale : PER Périodiques Résumé : This is the fourth international preparatory study designed to develop International Classification of Functioning, Disability and Health (ICF, and Children and Youth version, ICF-CY) Core Sets for Autism Spectrum Disorder (ASD). Examine functioning of individuals diagnosed with ASD as documented by the ICF-CY in a variety of clinical settings. A cross-sectional study was conducted, involving 11 units from 10 countries. Clinical investigators assessed functioning of 122 individuals with ASD using the ICF-CY checklist. In total, 139 ICF-CY categories were identified: 64 activities and participation, 40 body functions and 35 environmental factors. The study results reinforce the heterogeneity of ASD, as evidenced by the many functional and contextual domains impacting on ASD from a clinical perspective. En ligne : http://dx.doi.org/10.1007/s10803-018-3482-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362 [article] An International Clinical Study of Ability and Disability in Autism Spectrum Disorder Using the WHO-ICF Framework [Texte imprimé et/ou numérique] / S. MAHDI, Auteur ; K. ALBERTOWSKI, Auteur ; Omar ALMODAYFER, Auteur ; V. ARSENOPOULOU, Auteur ; S. CARUCCI, Auteur ; J. C. DIAS, Auteur ; M. KHALIL, Auteur ; A. KNUPPEL, Auteur ; A. LANGMANN, Auteur ; M. B. LAURITSEN, Auteur ; G. R. DA CUNHA, Auteur ; T. UCHIYAMA, Auteur ; N. WOLFF, Auteur ; M. SELB, Auteur ; M. GRANLUND, Auteur ; P. J. DE VRIES, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur . - p.2148-2163. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2148-2163 Mots-clés : Asd  Assessment  Clinical study  Dsm  Functioning  Icd  Neurodevelopmental disorder Index. décimale : PER Périodiques Résumé : This is the fourth international preparatory study designed to develop International Classification of Functioning, Disability and Health (ICF, and Children and Youth version, ICF-CY) Core Sets for Autism Spectrum Disorder (ASD). Examine functioning of individuals diagnosed with ASD as documented by the ICF-CY in a variety of clinical settings. A cross-sectional study was conducted, involving 11 units from 10 countries. Clinical investigators assessed functioning of 122 individuals with ASD using the ICF-CY checklist. In total, 139 ICF-CY categories were identified: 64 activities and participation, 40 body functions and 35 environmental factors. The study results reinforce the heterogeneity of ASD, as evidenced by the many functional and contextual domains impacting on ASD from a clinical perspective. En ligne : http://dx.doi.org/10.1007/s10803-018-3482-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362

An international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework / S. MAHDI in Autism Research, 11-3 (March 2018)  

Public ISBD [article]  inAutism Research > 11-3 (March 2018) . - p.463-475 Titre : An international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework Type de document : Texte imprimé et/ou numérique Auteurs : S. MAHDI, Auteur ; M. VILJOEN, Auteur ; T. YEE, Auteur ; M. SELB, Auteur ; N. SINGHAL, Auteur ; Omar ALMODAYFER, Auteur ; M. GRANLUND, Auteur ; P. J. DE VRIES, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.463-475 Langues : Anglais (eng) Mots-clés : Icf  assessment  autism spectrum disorder  clinical practice  functioning  qualitative study  strength Index. décimale : PER Périodiques Résumé : This is the third in a series of four empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Autism Spectrum Disorder (ASD). The present study aimed to describe functioning in ASD (as operationalized by the ICF) derived from the perspectives of diagnosed individuals, family members, and professionals. A qualitative study using focus groups and semi-structured interviews were conducted with 19 stakeholder groups (N = 90) from Canada, India, Saudi Arabia, South Africa, and Sweden. Meaningful concepts from the focus groups and individual interviews were linked to ICF categories using a deductive qualitative approach with standardized linking procedures. The deductive qualitative content analysis yielded meaningful functioning concepts that were linked to 110 ICF categories across all four ICF components. Broad variation of environmental factors and activities and participation categories were identified in this study, while body functions consisted mainly of mental functions. Body structures were sparsely mentioned by the participants. Positive aspects of ASD included honesty, attention to detail, and memory. The experiences provided by international stakeholders support the need to understand individuals with ASD in a broader perspective, extending beyond diagnostic criteria into many areas of functioning and environmental domains. This study is part of a larger systematic effort that will provide the basis to define ICF Core Sets for ASD, from which assessment tools can be generated for use in clinical practice, research, and health care policy making. Autism Res 2018, 11: 463-475. (c) 2017 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. LAY SUMMARY: The study findings support the need to understand the living experiences of individuals with Autism Spectrum Disorder (ASD) from a broader perspective, taking into account many areas of an individual's functioning and environment. The ICF can serve as foundation for exploring these living experiences more extensively by offering tools that enable wide variety of individual difficulties and strengths to be captured along with important environmental influences. As such, these tools can facilitate interventions that meet the needs and goals of the individual. En ligne : http://dx.doi.org/10.1002/aur.1905 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352 [article] An international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework [Texte imprimé et/ou numérique] / S. MAHDI, Auteur ; M. VILJOEN, Auteur ; T. YEE, Auteur ; M. SELB, Auteur ; N. SINGHAL, Auteur ; Omar ALMODAYFER, Auteur ; M. GRANLUND, Auteur ; P. J. DE VRIES, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur . - p.463-475. Langues : Anglais (eng) in Autism Research > 11-3 (March 2018) . - p.463-475 Mots-clés : Icf  assessment  autism spectrum disorder  clinical practice  functioning  qualitative study  strength Index. décimale : PER Périodiques Résumé : This is the third in a series of four empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Autism Spectrum Disorder (ASD). The present study aimed to describe functioning in ASD (as operationalized by the ICF) derived from the perspectives of diagnosed individuals, family members, and professionals. A qualitative study using focus groups and semi-structured interviews were conducted with 19 stakeholder groups (N = 90) from Canada, India, Saudi Arabia, South Africa, and Sweden. Meaningful concepts from the focus groups and individual interviews were linked to ICF categories using a deductive qualitative approach with standardized linking procedures. The deductive qualitative content analysis yielded meaningful functioning concepts that were linked to 110 ICF categories across all four ICF components. Broad variation of environmental factors and activities and participation categories were identified in this study, while body functions consisted mainly of mental functions. Body structures were sparsely mentioned by the participants. Positive aspects of ASD included honesty, attention to detail, and memory. The experiences provided by international stakeholders support the need to understand individuals with ASD in a broader perspective, extending beyond diagnostic criteria into many areas of functioning and environmental domains. This study is part of a larger systematic effort that will provide the basis to define ICF Core Sets for ASD, from which assessment tools can be generated for use in clinical practice, research, and health care policy making. Autism Res 2018, 11: 463-475. (c) 2017 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. LAY SUMMARY: The study findings support the need to understand the living experiences of individuals with Autism Spectrum Disorder (ASD) from a broader perspective, taking into account many areas of an individual's functioning and environment. The ICF can serve as foundation for exploring these living experiences more extensively by offering tools that enable wide variety of individual difficulties and strengths to be captured along with important environmental influences. As such, these tools can facilitate interventions that meet the needs and goals of the individual. En ligne : http://dx.doi.org/10.1002/aur.1905 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352

Functioning and disability in autism spectrum disorder: A worldwide survey of experts / Elles DE SCHIPPER in Autism Research, 9-9 (September 2016)  

Public ISBD [article]  inAutism Research > 9-9 (September 2016) . - p.959-969 Titre : Functioning and disability in autism spectrum disorder: A worldwide survey of experts Type de document : Texte imprimé et/ou numérique Auteurs : Elles DE SCHIPPER, Auteur ; Soheil MAHDI, Auteur ; Petrus DE VRIES, Auteur ; Mats GRANLUND, Auteur ; Martin HOLTMANN, Auteur ; Sunil KARANDE, Auteur ; Omar ALMODAYFER, Auteur ; Cory SHULMAN, Auteur ; Bruce TONGE, Auteur ; Virginia C.N. WONG, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.959-969 Langues : Anglais (eng) Mots-clés : autism  neurodevelopmental disorder  assessment  child psychiatry  heterogeneity  quality of life Index. décimale : PER Périodiques Résumé : Objective: This study is the second of four to prepare International Classification of Functioning, Disability and Health (ICF; and Children and Youth version, ICF(-CY)) Core Sets for Autism Spectrum Disorder (ASD).The objective of this study was to survey the opinions and experiences of international experts on functioning and disability in ASD. Methods: Using a protocol stipulated by the World Health Organization (WHO) and monitored by the ICF Research Branch, an email-based questionnaire was circulated worldwide among ASD experts, and meaningful functional ability and disability concepts were extracted from their responses. These concepts were then linked to the ICF(-CY) by two independent researchers using a standardized linking procedure. Results: N?=?225 experts from 10 different disciplines and all six WHO-regions completed the survey. Meaningful concepts from the responses were linked to 210 ICF(-CY) categories. Of these, 103 categories were considered most relevant to ASD (i.e., identified by at least 5% of the experts), of which 37 were related to Activities and Participation, 35 to Body functions, 22 to Environmental factors, and 9 to Body structures. A variety of personal characteristics and ASD-related functioning skills were provided by experts, including honesty, loyalty, attention to detail and creative talents. Reported gender differences in ASD comprised more externalizing behaviors among males and more internalizing behaviors in females. Conclusion: The ICF(-CY) categories derived from international expert opinions indicate that the impact of ASD on functioning extends far beyond core symptom domains. Autism Res 2016, 9: 959–969. En ligne : http://dx.doi.org/10.1002/aur.1592 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294 [article] Functioning and disability in autism spectrum disorder: A worldwide survey of experts [Texte imprimé et/ou numérique] / Elles DE SCHIPPER, Auteur ; Soheil MAHDI, Auteur ; Petrus DE VRIES, Auteur ; Mats GRANLUND, Auteur ; Martin HOLTMANN, Auteur ; Sunil KARANDE, Auteur ; Omar ALMODAYFER, Auteur ; Cory SHULMAN, Auteur ; Bruce TONGE, Auteur ; Virginia C.N. WONG, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur . - p.959-969. Langues : Anglais (eng) in Autism Research > 9-9 (September 2016) . - p.959-969 Mots-clés : autism  neurodevelopmental disorder  assessment  child psychiatry  heterogeneity  quality of life Index. décimale : PER Périodiques Résumé : Objective: This study is the second of four to prepare International Classification of Functioning, Disability and Health (ICF; and Children and Youth version, ICF(-CY)) Core Sets for Autism Spectrum Disorder (ASD).The objective of this study was to survey the opinions and experiences of international experts on functioning and disability in ASD. Methods: Using a protocol stipulated by the World Health Organization (WHO) and monitored by the ICF Research Branch, an email-based questionnaire was circulated worldwide among ASD experts, and meaningful functional ability and disability concepts were extracted from their responses. These concepts were then linked to the ICF(-CY) by two independent researchers using a standardized linking procedure. Results: N?=?225 experts from 10 different disciplines and all six WHO-regions completed the survey. Meaningful concepts from the responses were linked to 210 ICF(-CY) categories. Of these, 103 categories were considered most relevant to ASD (i.e., identified by at least 5% of the experts), of which 37 were related to Activities and Participation, 35 to Body functions, 22 to Environmental factors, and 9 to Body structures. A variety of personal characteristics and ASD-related functioning skills were provided by experts, including honesty, loyalty, attention to detail and creative talents. Reported gender differences in ASD comprised more externalizing behaviors among males and more internalizing behaviors in females. Conclusion: The ICF(-CY) categories derived from international expert opinions indicate that the impact of ASD on functioning extends far beyond core symptom domains. Autism Res 2016, 9: 959–969. En ligne : http://dx.doi.org/10.1002/aur.1592 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294

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