Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child / Jake MEADS in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2411-2417 Titre : Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child Type de document : Texte imprimé et/ou numérique Auteurs : Jake MEADS, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur Article en page(s) : p.2411-2417 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The current study was a secondary analysis of cross-sectional data collected in New Zealand. Parents (n = 291) of an autistic child completed an online survey that included temporal/demographic questions relating to the parent and child, and parent ratings of the child?s core ASD symptoms, their parenting stress, and psychological well-being. Child and parent ages were related to ASD core symptoms, parenting stress, and psychological well-being, the parent-child age gap was not. Diagnostic delay was only positively associated with parent depression and negatively associated with child communication impairment. Findings indicated that temporal variables can be predictive of parent well-being and child autism symptoms. The findings suggest that focusing interventions on communication abilities may have positive impacts parental mental health. En ligne : https://doi.org/10.1007/s10803-022-05642-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child [Texte imprimé et/ou numérique] / Jake MEADS, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur . - p.2411-2417. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2411-2417 Index. décimale : PER Périodiques Résumé : The current study was a secondary analysis of cross-sectional data collected in New Zealand. Parents (n = 291) of an autistic child completed an online survey that included temporal/demographic questions relating to the parent and child, and parent ratings of the child?s core ASD symptoms, their parenting stress, and psychological well-being. Child and parent ages were related to ASD core symptoms, parenting stress, and psychological well-being, the parent-child age gap was not. Diagnostic delay was only positively associated with parent depression and negatively associated with child communication impairment. Findings indicated that temporal variables can be predictive of parent well-being and child autism symptoms. The findings suggest that focusing interventions on communication abilities may have positive impacts parental mental health. En ligne : https://doi.org/10.1007/s10803-022-05642-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism / Sonja GOEDEKE in Research in Autism Spectrum Disorders, 60 (April 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 60 (April 2019) . - p.36-47 Titre : How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism Type de document : Texte imprimé et/ou numérique Auteurs : Sonja GOEDEKE, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Steve TAYLOR, Auteur Article en page(s) : p.36-47 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Perceived support  Care-related stress  ASD symptoms Index. décimale : PER Périodiques Résumé : Background Caring for a child with autism spectrum disorder (ASD) may be stressful and subsequently affect parents’ ability to manage their child’s symptoms. In this research, we explore the effects of perceived levels of support on parents’ care-related stress and on ASD symptoms. Method Participants (n?=?585) completed an online survey which included ratings of support (partner, family, friend, professionals), how they perceived their child’s symptoms, their care-related stress, and ratings of their child’s interventions. Results Results indicate that parents perceive partners and families as providing greater support than friends and professionals. However, perceptions of family support decrease with both parent and child age. Perceived family support did not appear to influence parents’ perceptions of their child’s symptoms, although partner support moderated the relationship between particular symptom subsets and care-related stress. Professional support was related to a decrease in care-related stress levels. Finally, some sources of support were associated with perceived effectiveness and stress reduction in relation to specific interventions. Conclusions Partners and family provide an important support role for parents yet may need education and support to assist them in this role on an ongoing basis. Understanding how professionals can better support parents in their caregiving role is also important. En ligne : https://doi.org/10.1016/j.rasd.2019.01.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387 [article] How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism [Texte imprimé et/ou numérique] / Sonja GOEDEKE, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Steve TAYLOR, Auteur . - p.36-47. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 60 (April 2019) . - p.36-47 Mots-clés : Autism spectrum disorders  Perceived support  Care-related stress  ASD symptoms Index. décimale : PER Périodiques Résumé : Background Caring for a child with autism spectrum disorder (ASD) may be stressful and subsequently affect parents’ ability to manage their child’s symptoms. In this research, we explore the effects of perceived levels of support on parents’ care-related stress and on ASD symptoms. Method Participants (n?=?585) completed an online survey which included ratings of support (partner, family, friend, professionals), how they perceived their child’s symptoms, their care-related stress, and ratings of their child’s interventions. Results Results indicate that parents perceive partners and families as providing greater support than friends and professionals. However, perceptions of family support decrease with both parent and child age. Perceived family support did not appear to influence parents’ perceptions of their child’s symptoms, although partner support moderated the relationship between particular symptom subsets and care-related stress. Professional support was related to a decrease in care-related stress levels. Finally, some sources of support were associated with perceived effectiveness and stress reduction in relation to specific interventions. Conclusions Partners and family provide an important support role for parents yet may need education and support to assist them in this role on an ongoing basis. Understanding how professionals can better support parents in their caregiving role is also important. En ligne : https://doi.org/10.1016/j.rasd.2019.01.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387

Parents’ assessments of their child’s autism-related interventions / Daniel SHEPHERD in Research in Autism Spectrum Disorders, 50 (June 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 50 (June 2018) . - p.1-10 Titre : Parents’ assessments of their child’s autism-related interventions Type de document : Texte imprimé et/ou numérique Auteurs : Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur ; Rita CSAKO, Auteur Année de publication : 2018 Article en page(s) : p.1-10 Langues : Anglais (eng) Mots-clés : Parent report  Autism spectrum disorder  Intervention effectiveness  Parenting stress Index. décimale : PER Périodiques Résumé : Background Interventions for autism spectrum disorders (ASD) are typically evaluated on the basis of symptom-focused outcome measures. These measures tend to be clinician rated and derived in clinical studies, whilst broader parental experiences are often neglected. Method Here we report a study of 585 parents of children diagnosed with ASD, focusing on their assessments of their child’s ASD Interventions, and how they are perceived to impact parental stress. Results Overall, high proportions of parents reported disengagement with treatment. The highest completion rates were evident with speech-language therapy, and the lowest with intensive applied behaviour analysis (iABA). However, parents reported the highest expectations, satisfaction and stress reduction with iABA. These paradoxical findings are perhaps due to the relative cost and lack of funding directed towards iABA. Conclusions Our research suggests that parental expectations and the factors influencing them are worthy of further investigation. More pertinently, parental ratings of intervention effectiveness along with current intervention engagement are a vital and often overlooked component of understanding the effects of interventions on children with ASD and their families. En ligne : https://doi.org/10.1016/j.rasd.2018.02.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=356 [article] Parents’ assessments of their child’s autism-related interventions [Texte imprimé et/ou numérique] / Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur ; Rita CSAKO, Auteur . - 2018 . - p.1-10. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 50 (June 2018) . - p.1-10 Mots-clés : Parent report  Autism spectrum disorder  Intervention effectiveness  Parenting stress Index. décimale : PER Périodiques Résumé : Background Interventions for autism spectrum disorders (ASD) are typically evaluated on the basis of symptom-focused outcome measures. These measures tend to be clinician rated and derived in clinical studies, whilst broader parental experiences are often neglected. Method Here we report a study of 585 parents of children diagnosed with ASD, focusing on their assessments of their child’s ASD Interventions, and how they are perceived to impact parental stress. Results Overall, high proportions of parents reported disengagement with treatment. The highest completion rates were evident with speech-language therapy, and the lowest with intensive applied behaviour analysis (iABA). However, parents reported the highest expectations, satisfaction and stress reduction with iABA. These paradoxical findings are perhaps due to the relative cost and lack of funding directed towards iABA. Conclusions Our research suggests that parental expectations and the factors influencing them are worthy of further investigation. More pertinently, parental ratings of intervention effectiveness along with current intervention engagement are a vital and often overlooked component of understanding the effects of interventions on children with ASD and their families. En ligne : https://doi.org/10.1016/j.rasd.2018.02.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=356

A qualitative study of noise sensitivity in adults with autism spectrum disorder / Jason LANDON in Research in Autism Spectrum Disorders, 32 (December 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 32 (December 2016) . - p.43-52 Titre : A qualitative study of noise sensitivity in adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Jason LANDON, Auteur ; Daniel SHEPHERD, Auteur ; Veema LODHIA, Auteur Article en page(s) : p.43-52 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Noise sensitivity  Adults  Auditory processing  Qualitative Index. décimale : PER Périodiques Résumé : AbstractBackground Individuals with autism spectrum disorder (ASD) may respond to environmental stimuli more intensely and less conventionally than typical peers. Research has generally focused on sensory sensitivity broadly, rather than individual modalities. Thus, experiences of noise sensitivity (NS) have not been specifically documented in detail. This study documents the experiences of NS in adults with ASD. Method Semi-structured interviews were undertaken and recorded with 10 participants. The resultant data were analysed using a descriptive thematic approach to summarise the patterns in the participants’ experiences. Results The analysis identified four themes emphasising the unique way those with ASD experience sound, and the impacts of noise sensitivity on them. Conclusions Documenting experiences such as these is an important early step towards a better understanding and hence supporting those negatively experiencing sound. The present results are both useful for those affected and those working with them, in terms of developing improved methods of coping and clinical interventions. The results are also consistent with recent neurophysiological research. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.08.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=296 [article] A qualitative study of noise sensitivity in adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Jason LANDON, Auteur ; Daniel SHEPHERD, Auteur ; Veema LODHIA, Auteur . - p.43-52. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 32 (December 2016) . - p.43-52 Mots-clés : Autism spectrum disorders  Noise sensitivity  Adults  Auditory processing  Qualitative Index. décimale : PER Périodiques Résumé : AbstractBackground Individuals with autism spectrum disorder (ASD) may respond to environmental stimuli more intensely and less conventionally than typical peers. Research has generally focused on sensory sensitivity broadly, rather than individual modalities. Thus, experiences of noise sensitivity (NS) have not been specifically documented in detail. This study documents the experiences of NS in adults with ASD. Method Semi-structured interviews were undertaken and recorded with 10 participants. The resultant data were analysed using a descriptive thematic approach to summarise the patterns in the participants’ experiences. Results The analysis identified four themes emphasising the unique way those with ASD experience sound, and the impacts of noise sensitivity on them. Conclusions Documenting experiences such as these is an important early step towards a better understanding and hence supporting those negatively experiencing sound. The present results are both useful for those affected and those working with them, in terms of developing improved methods of coping and clinical interventions. The results are also consistent with recent neurophysiological research. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.08.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=296

The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4331-4343 Titre : The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context Type de document : Texte imprimé et/ou numérique Auteurs : Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Jake MEADS, Auteur Article en page(s) : p.4331-4343 Langues : Anglais (eng) Mots-clés : Asd  Autism  Formal support  Informal support  Mediation  Moderation  Parenting stress  Psychological distress  Social support Index. décimale : PER Périodiques Résumé : The underlying mechanisms by which social support exerts its (typically) positive effects on parental wellbeing are still being investigated in the autism spectrum disorder (ASD) context. Parents (n?=?674) of a child with ASD responded to questions probing parenting stress, parent psychological health, their child's ASD symptoms, and the types of social supports they were currently utilising. Hierarchical multiple linear regression analyses examined whether social support moderated or mediated (or neither) the relationships between: (a) parent-rated child ASD symptoms and parenting stress, and (b) parenting stress and parent psychological health. The main findings were that none of the mediating models reached statistical significance, while 7/20 moderation analyses were significant, though significance was dependent upon how social support was operationalised. En ligne : http://dx.doi.org/10.1007/s10803-020-04487-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context [Texte imprimé et/ou numérique] / Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Jake MEADS, Auteur . - p.4331-4343. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4331-4343 Mots-clés : Asd  Autism  Formal support  Informal support  Mediation  Moderation  Parenting stress  Psychological distress  Social support Index. décimale : PER Périodiques Résumé : The underlying mechanisms by which social support exerts its (typically) positive effects on parental wellbeing are still being investigated in the autism spectrum disorder (ASD) context. Parents (n?=?674) of a child with ASD responded to questions probing parenting stress, parent psychological health, their child's ASD symptoms, and the types of social supports they were currently utilising. Hierarchical multiple linear regression analyses examined whether social support moderated or mediated (or neither) the relationships between: (a) parent-rated child ASD symptoms and parenting stress, and (b) parenting stress and parent psychological health. The main findings were that none of the mediating models reached statistical significance, while 7/20 moderation analyses were significant, though significance was dependent upon how social support was operationalised. En ligne : http://dx.doi.org/10.1007/s10803-020-04487-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

The Types and Functions of Social Supports Used by Parents Caring for a Child With Autism Spectrum Disorder / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 50-4 (April 2020)  

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