Assessing gender differences in autism spectrum disorder using the Gendered Autism Behavioral Scale (GABS): An exploratory study / Elaine B. CLARKE in Research in Autism Spectrum Disorders, 88 (October 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 88 (October 2021) . - 101844 Titre : Assessing gender differences in autism spectrum disorder using the Gendered Autism Behavioral Scale (GABS): An exploratory study Type de document : Texte imprimé et/ou numérique Auteurs : Elaine B. CLARKE, Auteur ; Laura HULL, Auteur ; Rachel LOOMES, Auteur ; Carolyn E. B. MCCORMICK, Auteur ; Stephen J. SHEINKOPF, Auteur ; William MANDY, Auteur Article en page(s) : 101844 Langues : Anglais (eng) Mots-clés : Gender  Sex  Diagnosis  ADOS  Autism spectrum disorder Index. décimale : PER Périodiques Résumé : Introduction Gendered differences in autism spectrum disorder (hereafter, ‘autism’) symptomatology, may contribute to delayed diagnoses for autistic females. The aim of this study was to develop a coding system, the Gendered Autism Behavioral Scale (GABS), to identify and measure hypothesized components of non-traditional autism phenotypes. Methods Two independent cohorts of autistic individuals completed modules 3 and 4 of the Autism Diagnostic Observation Schedule (ADOS, 2nd edition). Video-recorded ADOS administrations were coded using the GABS, and separate coding teams analyzed each cohort. Cohort 1 from the United Kingdom consisted of 22 males and 22 females, aged 9–15 years. Cohort 2 from the United States consisted of 40 males and 20 females, aged 4–59 years. Results The coders achieved acceptable inter-rater reliability both within and across coding teams. In exploratory analyses, gender differences between codes were assessed within cohorts. Within Cohort 1, there were significant gender differences, of a moderate size, on several individual items as well as the Managing Emotions subscale and the Total GABS score. Within Cohort 2, significant gender differences were found for two individual items. Conclusions This study demonstrated the feasibility of the GABS across different sites. Validity tests resulted in partial replication of gender differences on the GABS. Preliminary evidence from the GABS suggests that valuable data on hypothesized non-traditional autism phenotypes could be extracted from widely employed assessments such as the ADOS. Future work could capitalize on the GABS’ utility for secondary data analysis to study gender differences in ASD in larger, adequately powered samples. En ligne : https://doi.org/10.1016/j.rasd.2021.101844 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Assessing gender differences in autism spectrum disorder using the Gendered Autism Behavioral Scale (GABS): An exploratory study [Texte imprimé et/ou numérique] / Elaine B. CLARKE, Auteur ; Laura HULL, Auteur ; Rachel LOOMES, Auteur ; Carolyn E. B. MCCORMICK, Auteur ; Stephen J. SHEINKOPF, Auteur ; William MANDY, Auteur . - 101844. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 88 (October 2021) . - 101844 Mots-clés : Gender  Sex  Diagnosis  ADOS  Autism spectrum disorder Index. décimale : PER Périodiques Résumé : Introduction Gendered differences in autism spectrum disorder (hereafter, ‘autism’) symptomatology, may contribute to delayed diagnoses for autistic females. The aim of this study was to develop a coding system, the Gendered Autism Behavioral Scale (GABS), to identify and measure hypothesized components of non-traditional autism phenotypes. Methods Two independent cohorts of autistic individuals completed modules 3 and 4 of the Autism Diagnostic Observation Schedule (ADOS, 2nd edition). Video-recorded ADOS administrations were coded using the GABS, and separate coding teams analyzed each cohort. Cohort 1 from the United Kingdom consisted of 22 males and 22 females, aged 9–15 years. Cohort 2 from the United States consisted of 40 males and 20 females, aged 4–59 years. Results The coders achieved acceptable inter-rater reliability both within and across coding teams. In exploratory analyses, gender differences between codes were assessed within cohorts. Within Cohort 1, there were significant gender differences, of a moderate size, on several individual items as well as the Managing Emotions subscale and the Total GABS score. Within Cohort 2, significant gender differences were found for two individual items. Conclusions This study demonstrated the feasibility of the GABS across different sites. Validity tests resulted in partial replication of gender differences on the GABS. Preliminary evidence from the GABS suggests that valuable data on hypothesized non-traditional autism phenotypes could be extracted from widely employed assessments such as the ADOS. Future work could capitalize on the GABS’ utility for secondary data analysis to study gender differences in ASD in larger, adequately powered samples. En ligne : https://doi.org/10.1016/j.rasd.2021.101844 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder / Alan H. GERBER in Journal of Autism and Developmental Disorders, 47-6 (June 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-6 (June 2017) . - p.1896-1903 Titre : Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Alan H. GERBER, Auteur ; Carolyn E. B. MCCORMICK, Auteur ; Todd P. LEVINE, Auteur ; Eric M. MORROW, Auteur ; Thomas F. ANDERS, Auteur ; Stephen J. SHEINKOPF, Auteur Article en page(s) : p.1896-1903 Langues : Anglais (eng) Mots-clés : ASD  Autism  Adult  Healthcare  Satisfaction Index. décimale : PER Périodiques Résumé : The current study investigated healthcare satisfaction and factors related to satisfaction in 92 adults with Autism Spectrum Disorder (ASD). Participants or their caregiver completed a survey about their experiences with primary care and specialty physicians. Respondents reported a high level of satisfaction with their healthcare. The only factor significantly associated with satisfaction was age, with participants under age 26 reporting significantly higher levels of satisfaction than participants above age 26. Participants under age 26 also were significantly more likely to live at home, have private health insurance, and have others making their healthcare decisions than participants above age 26. Results indicate that healthcare satisfaction can be high for adults with ASD that have good family and community support. En ligne : http://dx.doi.org/10.1007/s10803-017-3087-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308 [article] Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Alan H. GERBER, Auteur ; Carolyn E. B. MCCORMICK, Auteur ; Todd P. LEVINE, Auteur ; Eric M. MORROW, Auteur ; Thomas F. ANDERS, Auteur ; Stephen J. SHEINKOPF, Auteur . - p.1896-1903. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-6 (June 2017) . - p.1896-1903 Mots-clés : ASD  Autism  Adult  Healthcare  Satisfaction Index. décimale : PER Périodiques Résumé : The current study investigated healthcare satisfaction and factors related to satisfaction in 92 adults with Autism Spectrum Disorder (ASD). Participants or their caregiver completed a survey about their experiences with primary care and specialty physicians. Respondents reported a high level of satisfaction with their healthcare. The only factor significantly associated with satisfaction was age, with participants under age 26 reporting significantly higher levels of satisfaction than participants above age 26. Participants under age 26 also were significantly more likely to live at home, have private health insurance, and have others making their healthcare decisions than participants above age 26. Results indicate that healthcare satisfaction can be high for adults with ASD that have good family and community support. En ligne : http://dx.doi.org/10.1007/s10803-017-3087-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308

Telehealth Parent Training in the Early Start Denver Model: Results From a Randomized Controlled Study / Laurie A. VISMARA in Focus on Autism and Other Developmental Disabilities, 33-2 (June 2018)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 33-2 (June 2018) . - p.67-79 Titre : Telehealth Parent Training in the Early Start Denver Model: Results From a Randomized Controlled Study Type de document : Texte imprimé et/ou numérique Auteurs : Laurie A. VISMARA, Auteur ; Carolyn E. B. MCCORMICK, Auteur ; Amy L. WAGNER, Auteur ; Katernia MONLUX, Auteur ; Anna NADHAN, Auteur ; Gregory S. YOUNG, Auteur Article en page(s) : p.67-79 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Telehealth training may benefit parents? use of early intervention for children with autism spectrum disorder (ASD). This study is one of the few randomized trials to compare telehealth parent training in the Early Start Denver Model (P-ESDM) with a community treatment-as-usual, early intervention program. Parents were randomized to 12 weekly 1.5-hr videoconferencing sessions with website access to P-ESDM learning resources or to monthly 1.5-hr videoconferencing sessions with website access to alternative resources to support their intervention. Telehealth training facilitated higher parent fidelity gains and program satisfaction for more of the P-ESDM than the community group at the end of the 12-week training and at follow-up. Children?s social communication skills improved for both groups regardless of parent fidelity. Findings suggest the feasibility of telehealth training with improved parent intervention usage and satisfaction from the program. However, the impact of these effects on children?s development over time is yet to be understood. En ligne : https://doi.org/10.1177/1088357616651064 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=363 [article] Telehealth Parent Training in the Early Start Denver Model: Results From a Randomized Controlled Study [Texte imprimé et/ou numérique] / Laurie A. VISMARA, Auteur ; Carolyn E. B. MCCORMICK, Auteur ; Amy L. WAGNER, Auteur ; Katernia MONLUX, Auteur ; Anna NADHAN, Auteur ; Gregory S. YOUNG, Auteur . - p.67-79. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 33-2 (June 2018) . - p.67-79 Index. décimale : PER Périodiques Résumé : Telehealth training may benefit parents? use of early intervention for children with autism spectrum disorder (ASD). This study is one of the few randomized trials to compare telehealth parent training in the Early Start Denver Model (P-ESDM) with a community treatment-as-usual, early intervention program. Parents were randomized to 12 weekly 1.5-hr videoconferencing sessions with website access to P-ESDM learning resources or to monthly 1.5-hr videoconferencing sessions with website access to alternative resources to support their intervention. Telehealth training facilitated higher parent fidelity gains and program satisfaction for more of the P-ESDM than the community group at the end of the 12-week training and at follow-up. Children?s social communication skills improved for both groups regardless of parent fidelity. Findings suggest the feasibility of telehealth training with improved parent intervention usage and satisfaction from the program. However, the impact of these effects on children?s development over time is yet to be understood. En ligne : https://doi.org/10.1177/1088357616651064 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=363

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