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Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder / Alan H. GERBER in Journal of Autism and Developmental Disorders, 47-6 (June 2017)
[article]
Titre : Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Alan H. GERBER, Auteur ; Carolyn E. B. MCCORMICK, Auteur ; Todd P. LEVINE, Auteur ; Eric M. MORROW, Auteur ; Thomas F. ANDERS, Auteur ; Stephen J. SHEINKOPF, Auteur Article en page(s) : p.1896-1903 Langues : Anglais (eng) Mots-clés : ASD Autism Adult Healthcare Satisfaction Index. décimale : PER Périodiques Résumé : The current study investigated healthcare satisfaction and factors related to satisfaction in 92 adults with Autism Spectrum Disorder (ASD). Participants or their caregiver completed a survey about their experiences with primary care and specialty physicians. Respondents reported a high level of satisfaction with their healthcare. The only factor significantly associated with satisfaction was age, with participants under age 26 reporting significantly higher levels of satisfaction than participants above age 26. Participants under age 26 also were significantly more likely to live at home, have private health insurance, and have others making their healthcare decisions than participants above age 26. Results indicate that healthcare satisfaction can be high for adults with ASD that have good family and community support. En ligne : http://dx.doi.org/10.1007/s10803-017-3087-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308
in Journal of Autism and Developmental Disorders > 47-6 (June 2017) . - p.1896-1903[article] Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Alan H. GERBER, Auteur ; Carolyn E. B. MCCORMICK, Auteur ; Todd P. LEVINE, Auteur ; Eric M. MORROW, Auteur ; Thomas F. ANDERS, Auteur ; Stephen J. SHEINKOPF, Auteur . - p.1896-1903.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-6 (June 2017) . - p.1896-1903
Mots-clés : ASD Autism Adult Healthcare Satisfaction Index. décimale : PER Périodiques Résumé : The current study investigated healthcare satisfaction and factors related to satisfaction in 92 adults with Autism Spectrum Disorder (ASD). Participants or their caregiver completed a survey about their experiences with primary care and specialty physicians. Respondents reported a high level of satisfaction with their healthcare. The only factor significantly associated with satisfaction was age, with participants under age 26 reporting significantly higher levels of satisfaction than participants above age 26. Participants under age 26 also were significantly more likely to live at home, have private health insurance, and have others making their healthcare decisions than participants above age 26. Results indicate that healthcare satisfaction can be high for adults with ASD that have good family and community support. En ligne : http://dx.doi.org/10.1007/s10803-017-3087-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308 Brief Report: Telehealth Satisfaction Among Caregivers of Pediatric and Adult Psychology and Psychiatry Patients with Intellectual and Developmental Disability in the Wake of Covid-19 / Victoria ROSEN in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Brief Report: Telehealth Satisfaction Among Caregivers of Pediatric and Adult Psychology and Psychiatry Patients with Intellectual and Developmental Disability in the Wake of Covid-19 Type de document : Texte imprimé et/ou numérique Auteurs : Victoria ROSEN, Auteur ; Elizabeth BLANK, Auteur ; Erica LAMPERT, Auteur ; Kelli DOMINICK, Auteur ; Meredith WILL, Auteur ; Craig ERICKSON, Auteur ; Ernest V. PEDAPATI, Auteur ; Martine LAMY, Auteur ; Rebecca SHAFFER, Auteur Année de publication : 2022 Article en page(s) : p.5253-5265 Langues : Anglais (eng) Mots-clés : Adult Humans Child covid-19 Pandemics SARS-CoV-2 Caregivers Developmental Disabilities/therapy Personal Satisfaction Patient Satisfaction Autism Spectrum Disorder/therapy Telemedicine/methods Intellectual Disability Psychiatry ASC (autism spectrum conditions) Developmental disability Satisfaction Telehealth Telepsychiatry Index. décimale : PER Périodiques Résumé : Telehealth has been shown to be both acceptable and effective in many areas of healthcare, yet it was not widely adopted prior to the SARS-CoV-2 (COVID-19) pandemic. Additionally, previous evaluations of telehealth for autism spectrum condition (ASC) and intellectual and developmental disability (IDD) populations are limited in both number and scope. Here, we investigated satisfaction amongst Psychology and Psychiatry patient caregivers at Cincinnati Children's Hospital Medical Center (CCHMC) after the onset of the COVID-19 pandemic. Results (640 responses) showed high rates of satisfaction across departments, appointment types, and diagnoses, with 92% indicating overall satisfaction with their appointment. There were, however, notable decreases in satisfaction among Group Therapy respondents, and those whose diagnosis was classified as Other. En ligne : http://dx.doi.org/10.1007/s10803-022-05712-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5253-5265[article] Brief Report: Telehealth Satisfaction Among Caregivers of Pediatric and Adult Psychology and Psychiatry Patients with Intellectual and Developmental Disability in the Wake of Covid-19 [Texte imprimé et/ou numérique] / Victoria ROSEN, Auteur ; Elizabeth BLANK, Auteur ; Erica LAMPERT, Auteur ; Kelli DOMINICK, Auteur ; Meredith WILL, Auteur ; Craig ERICKSON, Auteur ; Ernest V. PEDAPATI, Auteur ; Martine LAMY, Auteur ; Rebecca SHAFFER, Auteur . - 2022 . - p.5253-5265.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5253-5265
Mots-clés : Adult Humans Child covid-19 Pandemics SARS-CoV-2 Caregivers Developmental Disabilities/therapy Personal Satisfaction Patient Satisfaction Autism Spectrum Disorder/therapy Telemedicine/methods Intellectual Disability Psychiatry ASC (autism spectrum conditions) Developmental disability Satisfaction Telehealth Telepsychiatry Index. décimale : PER Périodiques Résumé : Telehealth has been shown to be both acceptable and effective in many areas of healthcare, yet it was not widely adopted prior to the SARS-CoV-2 (COVID-19) pandemic. Additionally, previous evaluations of telehealth for autism spectrum condition (ASC) and intellectual and developmental disability (IDD) populations are limited in both number and scope. Here, we investigated satisfaction amongst Psychology and Psychiatry patient caregivers at Cincinnati Children's Hospital Medical Center (CCHMC) after the onset of the COVID-19 pandemic. Results (640 responses) showed high rates of satisfaction across departments, appointment types, and diagnoses, with 92% indicating overall satisfaction with their appointment. There were, however, notable decreases in satisfaction among Group Therapy respondents, and those whose diagnosis was classified as Other. En ligne : http://dx.doi.org/10.1007/s10803-022-05712-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Caregiver perspectives, experiences and service satisfaction, and health service utilization among families of children with developmental disorders at a tertiary center in a low-resource setting / Kirsten A. DONALD in Research in Autism Spectrum Disorders, 110 (February 2024)
[article]
Titre : Caregiver perspectives, experiences and service satisfaction, and health service utilization among families of children with developmental disorders at a tertiary center in a low-resource setting Type de document : Texte imprimé et/ou numérique Auteurs : Kirsten A. DONALD, Auteur Article en page(s) : p.102285 Mots-clés : Neurodevelopmental disorders Perspectives Experiences Satisfaction Health Service utilization Low-resource setting Index. décimale : PER Périodiques Résumé : Background We describe the health perspectives, experiences, and level of service satisfaction among caregivers of children with autism spectrum disorder (ASD) and those with global developmental delays (GDD) attending services at a tertiary paediatric center, and how these influence health services utilization (HSU). Methods In this cross-sectional study, we interviewed caregivers using pre-validated questionnaires to establish their health perspectives, family distress level, healthcare experiences and service satisfaction level. HSU was determined by a review of their medical records in the preceding year. We used descriptive statistics and logistic regression analysis to correlate these variables comparing households with children with ASD versus GDD. Results We enrolled 240 children, 116 had ASD and 124 with GDD, within the age range of 3?8 years, and more males (2:1). Overall, most caregivers believed they had a low understanding of these conditions and that existing treatments were not effective. Both groups reported moderate family distress, mean of 3.3 /10 (SD 1.2), and moderate satisfaction level (68.3%). The mean annual frequency of visits was 12.5, but higher in GDD (13.3 vs 11.5). Overall, households that believed that therapy was able to control the illness recorded higher HSU (p = 0.003). Among families with children with ASD, lower family distress (p = 0.003), and higher general satisfaction (p = 0.06) predicted higher HSU. Conclusion Caregivers hold complex perceptions around these conditions that influence their service usage. There is a need to empower the caregivers, decentralize early intervention services, and adopt family-centered approaches in supporting families, to improve service compliance. En ligne : https://doi.org/10.1016/j.rasd.2023.102285 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520
in Research in Autism Spectrum Disorders > 110 (February 2024) . - p.102285[article] Caregiver perspectives, experiences and service satisfaction, and health service utilization among families of children with developmental disorders at a tertiary center in a low-resource setting [Texte imprimé et/ou numérique] / Kirsten A. DONALD, Auteur . - p.102285.
in Research in Autism Spectrum Disorders > 110 (February 2024) . - p.102285
Mots-clés : Neurodevelopmental disorders Perspectives Experiences Satisfaction Health Service utilization Low-resource setting Index. décimale : PER Périodiques Résumé : Background We describe the health perspectives, experiences, and level of service satisfaction among caregivers of children with autism spectrum disorder (ASD) and those with global developmental delays (GDD) attending services at a tertiary paediatric center, and how these influence health services utilization (HSU). Methods In this cross-sectional study, we interviewed caregivers using pre-validated questionnaires to establish their health perspectives, family distress level, healthcare experiences and service satisfaction level. HSU was determined by a review of their medical records in the preceding year. We used descriptive statistics and logistic regression analysis to correlate these variables comparing households with children with ASD versus GDD. Results We enrolled 240 children, 116 had ASD and 124 with GDD, within the age range of 3?8 years, and more males (2:1). Overall, most caregivers believed they had a low understanding of these conditions and that existing treatments were not effective. Both groups reported moderate family distress, mean of 3.3 /10 (SD 1.2), and moderate satisfaction level (68.3%). The mean annual frequency of visits was 12.5, but higher in GDD (13.3 vs 11.5). Overall, households that believed that therapy was able to control the illness recorded higher HSU (p = 0.003). Among families with children with ASD, lower family distress (p = 0.003), and higher general satisfaction (p = 0.06) predicted higher HSU. Conclusion Caregivers hold complex perceptions around these conditions that influence their service usage. There is a need to empower the caregivers, decentralize early intervention services, and adopt family-centered approaches in supporting families, to improve service compliance. En ligne : https://doi.org/10.1016/j.rasd.2023.102285 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520 Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study / Quentin GUILLON in Autism, 26-8 (November 2022)
[article]
Titre : Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study Type de document : Texte imprimé et/ou numérique Auteurs : Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Alvaro BEJARANO-MARTIN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Maria MAGAN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; Maria Victoria MARTAN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine Kloster WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigrídur Lóa JONSDOTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Johanna XENIA KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur ; Bernadette ROGE, Auteur Article en page(s) : p.2136-2150 Langues : Anglais (eng) Mots-clés : Child Humans Child, Preschool Autistic Disorder/diagnosis/psychology Personal Satisfaction Autism Spectrum Disorder/diagnosis/psychology Parents/psychology Family autism early detection parents’ experiences satisfaction Index. décimale : PER Périodiques Résumé : Professional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process. En ligne : http://dx.doi.org/10.1177/13623613221080318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism > 26-8 (November 2022) . - p.2136-2150[article] Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study [Texte imprimé et/ou numérique] / Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Alvaro BEJARANO-MARTIN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Maria MAGAN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; Maria Victoria MARTAN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine Kloster WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigrídur Lóa JONSDOTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Johanna XENIA KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur ; Bernadette ROGE, Auteur . - p.2136-2150.
Langues : Anglais (eng)
in Autism > 26-8 (November 2022) . - p.2136-2150
Mots-clés : Child Humans Child, Preschool Autistic Disorder/diagnosis/psychology Personal Satisfaction Autism Spectrum Disorder/diagnosis/psychology Parents/psychology Family autism early detection parents’ experiences satisfaction Index. décimale : PER Périodiques Résumé : Professional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process. En ligne : http://dx.doi.org/10.1177/13623613221080318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 Factors associated with parental stress and satisfaction during the process of diagnosis of children with Autism Spectrum Disorders / Teresa AILING MOH in Research in Autism Spectrum Disorders, 6-1 (January-March 2012)
[article]
Titre : Factors associated with parental stress and satisfaction during the process of diagnosis of children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Teresa AILING MOH, Auteur ; Iliana MAGIATI, Auteur Année de publication : 2012 Article en page(s) : p.293-303 Langues : Anglais (eng) Mots-clés : Diagnosis Autism Autism Spectrum Disorders Stress Satisfaction Parents Index. décimale : PER Périodiques Résumé : Diagnosis of Autism Spectrum Disorders (ASD) is complex and parents worldwide often experience difficulties and frustration during the diagnostic process. This study examined the duration of the diagnostic period, the number of professionals consulted, the relationship with the professional(s) and the perceived helpfulness of information provided in relation to how they impact on parental satisfaction and stress during the diagnostic process. The study also obtained professional perspectives regarding current diagnostic practices to understand aspects of the process which may be helpful in increasing professional confidence in diagnosing ASD. One hundred and two parents of 2–17 years old children and young people with ASD recruited from ASD special schools, intervention centres and hospitals in Singapore completed a survey, which included information on various aspects of the diagnostic process and measures of autism severity, parental stress and satisfaction. Seventeen professionals completed a similar survey. Parents from higher educational and socioeconomic backgrounds were more likely to raise concerns about their child's development at an earlier age. Higher parental stress was associated with more professionals consulted and lower perceived collaboration with professionals. Higher parental satisfaction was associated with higher perceived collaboration with professionals, higher perceived helpfulness of received information, lower severity of child ASD symptoms and lower levels of stress. Findings are discussed in relation to clinical practice guidelines and existing literature on the process and impact of diagnosis on families. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.05.011 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=146
in Research in Autism Spectrum Disorders > 6-1 (January-March 2012) . - p.293-303[article] Factors associated with parental stress and satisfaction during the process of diagnosis of children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Teresa AILING MOH, Auteur ; Iliana MAGIATI, Auteur . - 2012 . - p.293-303.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 6-1 (January-March 2012) . - p.293-303
Mots-clés : Diagnosis Autism Autism Spectrum Disorders Stress Satisfaction Parents Index. décimale : PER Périodiques Résumé : Diagnosis of Autism Spectrum Disorders (ASD) is complex and parents worldwide often experience difficulties and frustration during the diagnostic process. This study examined the duration of the diagnostic period, the number of professionals consulted, the relationship with the professional(s) and the perceived helpfulness of information provided in relation to how they impact on parental satisfaction and stress during the diagnostic process. The study also obtained professional perspectives regarding current diagnostic practices to understand aspects of the process which may be helpful in increasing professional confidence in diagnosing ASD. One hundred and two parents of 2–17 years old children and young people with ASD recruited from ASD special schools, intervention centres and hospitals in Singapore completed a survey, which included information on various aspects of the diagnostic process and measures of autism severity, parental stress and satisfaction. Seventeen professionals completed a similar survey. Parents from higher educational and socioeconomic backgrounds were more likely to raise concerns about their child's development at an earlier age. Higher parental stress was associated with more professionals consulted and lower perceived collaboration with professionals. Higher parental satisfaction was associated with higher perceived collaboration with professionals, higher perceived helpfulness of received information, lower severity of child ASD symptoms and lower levels of stress. Findings are discussed in relation to clinical practice guidelines and existing literature on the process and impact of diagnosis on families. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.05.011 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=146 Parent Perspectives on Outcomes and Satisfaction Levels of Young Adults With Autism and Cognitive Impairments / Eve MULLER in Focus on Autism and Other Developmental Disabilities, 31-2 (June 2016)
PermalinkPost-adoption contact, adoption communicative openness, and satisfaction with contact as predictors of externalizing behavior in adolescence and emerging adulthood / Harold D. GROTEVANT in Journal of Child Psychology and Psychiatry, 52-5 (May 2011)
PermalinkProvider and Caregiver Satisfaction with Telehealth Evaluation of Autism Spectrum Disorder in Young Children During the COVID-19 Pandemic / Debra L. REISINGER in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
PermalinkDo Social Networks Differ? Comparison of the Social Networks of People with Intellectual Disabilities, People with Autism Spectrum Disorders and Other People Living in the Community / A. E. VAN ASSELT-GOVERTS in Journal of Autism and Developmental Disorders, 45-5 (May 2015)
PermalinkObtaining an autism spectrum disorder diagnosis and supports: New Zealand parents’ experiences / Matthew J. F. EGGLESTON in Research in Autism Spectrum Disorders, 62 (June 2019)
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