Brief Report: The Impact of Social and News Media Coverage on the Dissemination of Autism Research / Anne LONGO in Journal of Autism and Developmental Disorders, 53-3 (March 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1285-1289 Titre : Brief Report: The Impact of Social and News Media Coverage on the Dissemination of Autism Research Type de document : Texte imprimé et/ou numérique Auteurs : Anne LONGO, Auteur ; Brittany N. HAND, Auteur Article en page(s) : p.1285-1289 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : We examined how sharing autism research articles via social and news media was associated with citations and downloads. We included articles published in 2019 from three autism-focused journals. Every 10 Twitter shares yielded a 4.4% increase in article downloads and 5.2% increase in citations. Articles with at least one Facebook post had 23.3% more downloads than those without. Articles with at least one news story had 56.9% more downloads and 39.3% more citations than those without. Descriptive analysis indicated the most shared, downloaded, and cited articles focused largely on treatments or interventions. Autism researchers should continue sharing articles via Twitter and news media because it increases the reach of their work and may better engage research and autism community members. En ligne : https://doi.org/10.1007/s10803-022-05464-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Brief Report: The Impact of Social and News Media Coverage on the Dissemination of Autism Research [Texte imprimé et/ou numérique] / Anne LONGO, Auteur ; Brittany N. HAND, Auteur . - p.1285-1289. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1285-1289 Index. décimale : PER Périodiques Résumé : We examined how sharing autism research articles via social and news media was associated with citations and downloads. We included articles published in 2019 from three autism-focused journals. Every 10 Twitter shares yielded a 4.4% increase in article downloads and 5.2% increase in citations. Articles with at least one Facebook post had 23.3% more downloads than those without. Articles with at least one news story had 56.9% more downloads and 39.3% more citations than those without. Descriptive analysis indicated the most shared, downloaded, and cited articles focused largely on treatments or interventions. Autism researchers should continue sharing articles via Twitter and news media because it increases the reach of their work and may better engage research and autism community members. En ligne : https://doi.org/10.1007/s10803-022-05464-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

Characteristics associated with healthcare independence among autistic adults / Anne LONGO in Research in Autism Spectrum Disorders, 95 (July 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 95 (July 2022) . - 101972 Titre : Characteristics associated with healthcare independence among autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Anne LONGO, Auteur ; Dan GILMORE, Auteur ; Jennifer GARVIN, Auteur ; J. Madison HYER, Auteur ; Daniel COURY, Auteur ; Christopher HANKS, Auteur ; Susan MOFFATT-BRUCE, Auteur ; Amy HESS, Auteur ; Brittany N. HAND, Auteur Article en page(s) : 101972 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Adults  Healthcare independence  Healthcare transition  Autism Index. décimale : PER Périodiques Résumé : Background Healthcare independence refers to someone?s ability to assume responsibility for their own health and complete tasks like taking medication as prescribed or scheduling healthcare appointments. Prior studies have shown that autistic people tend to need more support with healthcare tasks than people with other chronic conditions. We sought to identify modifiable and non-modifiable factors linked with healthcare independence among autistic adults. Method We conducted a cross-sectional survey to examine how executive functioning skills, restrictive and repetitive behaviors, gender, education, and age were linked with healthcare independence among this population. Participants included: (a) autistic adults (n = 19) who are their own legal guardian, who participated via self-report; and (b) family members of autistic adults with a legal guardian (n = 11), who provided proxy-reports. Results Findings differed between self- and proxy-reports. Among autistic adults who self-reported, difficulties in executive functioning were strongly linked with less healthcare independence. Among proxy-reports, greater restrictive and repetitive behaviors were strongly linked with less healthcare independence. According to the proxy-reports, having not completed high school, being older during the healthcare transition, and being male were all independently linked with less healthcare independence. Conclusions Interventions aimed at supporting executive functioning, providing opportunities to increase independence with healthcare tasks, and reducing the extent to which restrictive and repetitive behaviors interfere with daily activities may be viable options for supporting healthcare independence among autistic adults. Our findings are an important first step for future initiatives to better identify individuals who need additional care coordination, supports, or services to maximize healthcare independence. En ligne : https://doi.org/10.1016/j.rasd.2022.101972 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Characteristics associated with healthcare independence among autistic adults [Texte imprimé et/ou numérique] / Anne LONGO, Auteur ; Dan GILMORE, Auteur ; Jennifer GARVIN, Auteur ; J. Madison HYER, Auteur ; Daniel COURY, Auteur ; Christopher HANKS, Auteur ; Susan MOFFATT-BRUCE, Auteur ; Amy HESS, Auteur ; Brittany N. HAND, Auteur . - 101972. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 95 (July 2022) . - 101972 Mots-clés : Autism spectrum disorder  Adults  Healthcare independence  Healthcare transition  Autism Index. décimale : PER Périodiques Résumé : Background Healthcare independence refers to someone?s ability to assume responsibility for their own health and complete tasks like taking medication as prescribed or scheduling healthcare appointments. Prior studies have shown that autistic people tend to need more support with healthcare tasks than people with other chronic conditions. We sought to identify modifiable and non-modifiable factors linked with healthcare independence among autistic adults. Method We conducted a cross-sectional survey to examine how executive functioning skills, restrictive and repetitive behaviors, gender, education, and age were linked with healthcare independence among this population. Participants included: (a) autistic adults (n = 19) who are their own legal guardian, who participated via self-report; and (b) family members of autistic adults with a legal guardian (n = 11), who provided proxy-reports. Results Findings differed between self- and proxy-reports. Among autistic adults who self-reported, difficulties in executive functioning were strongly linked with less healthcare independence. Among proxy-reports, greater restrictive and repetitive behaviors were strongly linked with less healthcare independence. According to the proxy-reports, having not completed high school, being older during the healthcare transition, and being male were all independently linked with less healthcare independence. Conclusions Interventions aimed at supporting executive functioning, providing opportunities to increase independence with healthcare tasks, and reducing the extent to which restrictive and repetitive behaviors interfere with daily activities may be viable options for supporting healthcare independence among autistic adults. Our findings are an important first step for future initiatives to better identify individuals who need additional care coordination, supports, or services to maximize healthcare independence. En ligne : https://doi.org/10.1016/j.rasd.2022.101972 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Diabetes mellitus in privately insured autistic adults in the United States / Brittany N. HAND in Autism, 28-7 (July 2024)  

Public ISBD [article]  inAutism > 28-7 (July 2024) . - p.1785-1794 Titre : Diabetes mellitus in privately insured autistic adults in the United States Type de document : Texte imprimé et/ou numérique Auteurs : Brittany N. HAND, Auteur Article en page(s) : p.1785-1794 Langues : Anglais (eng) Mots-clés : autism  diabetes  medical co-morbidity Index. décimale : PER Périodiques Résumé : Diabetes mellitus is a challenging chronic health condition at the forefront of attention of the healthcare system. Important estimates quantifying how diabetes prevalence varies by age are available for the general population, but these estimates are poorly characterized among autistic adults. Improved diabetes prevalence and likelihood estimates are needed to understand the impact of diabetes on this population. We analyzed IBM MarketScan health claims data from 2019 to 2020 to estimate diabetes prevalence among privately insured autistic (N = 54,500) and non-autistic adults (N = 109,000) and estimate autistic adults' likelihood of diabetes relative to non-autistic adults at 5-year age intervals (e.g. 18-22 to 23-27) when controlling for demographic factors. Diabetes prevalence was 5.15% for autistic adults and 3.07% for non-autistic adults. Autistic adults had a higher likelihood of diabetes than non-autistic adults at most 5-year age intervals, with the greatest difference at ages 23-37 (odds ratio = 2.67; 95% confidence interval = 2.33-3.06). Our findings suggest that autistic adults may be more likely than non-autistic adults to experience diabetes. Thus, development of diabetes support services and programs that accommodate autistic adults' individualized needs are important for future study to promote optimal diabetes outcomes for this population. Lay abstract Diabetes is a chronic health condition that is challenging to manage. Estimates of how common diabetes is among non-autistic adults are available, but improved estimates for autistic adults are needed. The purpose of this study was to obtain improved diabetes estimates for autistic adults. We analyzed a large private health insurance claims database to estimate how common diabetes was among autistic adults, and how likely autistic adults were to have diabetes compared to non-autistic adults at 5-year age intervals throughout adulthood (e.g. 18-22, 23-27). We found that diabetes was more common among autistic adults than non-autistic adults and that autistic adults were significantly more likely than non-autistic adults to have diabetes throughout most of adulthood. Our findings suggest that autistic adults may be more likely than non-autistic adults to experience diabetes in adulthood. The development of diabetes support services and programs that accommodate autistic adults' individual needs are important for future study to promote positive diabetes outcomes for autistic adults. En ligne : https://dx.doi.org/10.1177/13623613231206421 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=531 [article] Diabetes mellitus in privately insured autistic adults in the United States [Texte imprimé et/ou numérique] / Brittany N. HAND, Auteur . - p.1785-1794. Langues : Anglais (eng) in Autism > 28-7 (July 2024) . - p.1785-1794 Mots-clés : autism  diabetes  medical co-morbidity Index. décimale : PER Périodiques Résumé : Diabetes mellitus is a challenging chronic health condition at the forefront of attention of the healthcare system. Important estimates quantifying how diabetes prevalence varies by age are available for the general population, but these estimates are poorly characterized among autistic adults. Improved diabetes prevalence and likelihood estimates are needed to understand the impact of diabetes on this population. We analyzed IBM MarketScan health claims data from 2019 to 2020 to estimate diabetes prevalence among privately insured autistic (N = 54,500) and non-autistic adults (N = 109,000) and estimate autistic adults' likelihood of diabetes relative to non-autistic adults at 5-year age intervals (e.g. 18-22 to 23-27) when controlling for demographic factors. Diabetes prevalence was 5.15% for autistic adults and 3.07% for non-autistic adults. Autistic adults had a higher likelihood of diabetes than non-autistic adults at most 5-year age intervals, with the greatest difference at ages 23-37 (odds ratio = 2.67; 95% confidence interval = 2.33-3.06). Our findings suggest that autistic adults may be more likely than non-autistic adults to experience diabetes. Thus, development of diabetes support services and programs that accommodate autistic adults' individualized needs are important for future study to promote optimal diabetes outcomes for this population. Lay abstract Diabetes is a chronic health condition that is challenging to manage. Estimates of how common diabetes is among non-autistic adults are available, but improved estimates for autistic adults are needed. The purpose of this study was to obtain improved diabetes estimates for autistic adults. We analyzed a large private health insurance claims database to estimate how common diabetes was among autistic adults, and how likely autistic adults were to have diabetes compared to non-autistic adults at 5-year age intervals throughout adulthood (e.g. 18-22, 23-27). We found that diabetes was more common among autistic adults than non-autistic adults and that autistic adults were significantly more likely than non-autistic adults to have diabetes throughout most of adulthood. Our findings suggest that autistic adults may be more likely than non-autistic adults to experience diabetes in adulthood. The development of diabetes support services and programs that accommodate autistic adults' individual needs are important for future study to promote positive diabetes outcomes for autistic adults. En ligne : https://dx.doi.org/10.1177/13623613231206421 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=531

Latent constructs underlying sensory subtypes in children with autism: A preliminary study / Brittany N. HAND in Autism Research, 10-8 (August 2017)  

Public ISBD [article]  inAutism Research > 10-8 (August 2017) . - p.1364-1371 Titre : Latent constructs underlying sensory subtypes in children with autism: A preliminary study Type de document : Texte imprimé et/ou numérique Auteurs : Brittany N. HAND, Auteur ; Simon DENNIS, Auteur ; Alison E. LANE, Auteur Article en page(s) : p.1364-1371 Langues : Anglais (eng) Mots-clés : autism  sensory subtypes  independent component analysis  sensory features  sensory processing Index. décimale : PER Périodiques Résumé : Recent reports identify sensory subtypes in ASD based on shared patterns of responses to daily sensory stimuli [Ausderau et al., 2014; Lane, Molloy, & Bishop, 2014]. Lane et al. propose that two broad sensory dimensions, sensory reactivity and multisensory integration, best explain the differences between subtypes, however this has yet to be tested. The present study tests this hypothesis by examining the latent constructs underlying Lane's sensory subtypes. Participants for this study were caregivers of children with autism spectrum disorder (ASD) aged 2–12 years. Caregiver responses on the Short Sensory Profile (SSP), used to establish Lane's sensory subtypes, were extracted from two existing datasets (total n?=?287). Independent component analyses were conducted to test the fit and interpretability of a two-construct structure underlying the SSP, and therefore, the sensory subtypes. The first construct was largely comprised of the taste/smell sensitivity domain, which describes hyper-reactivity to taste and smell stimuli. The second construct had a significant contribution from the low energy/weak domain, which describes behaviors that may be indicative of difficulties with multisensory integration. Findings provide initial support for our hypothesis that sensory reactivity and multisensory integration underlie Lane's sensory subtypes in ASD. En ligne : http://dx.doi.org/10.1002/aur.1787 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 [article] Latent constructs underlying sensory subtypes in children with autism: A preliminary study [Texte imprimé et/ou numérique] / Brittany N. HAND, Auteur ; Simon DENNIS, Auteur ; Alison E. LANE, Auteur . - p.1364-1371. Langues : Anglais (eng) in Autism Research > 10-8 (August 2017) . - p.1364-1371 Mots-clés : autism  sensory subtypes  independent component analysis  sensory features  sensory processing Index. décimale : PER Périodiques Résumé : Recent reports identify sensory subtypes in ASD based on shared patterns of responses to daily sensory stimuli [Ausderau et al., 2014; Lane, Molloy, & Bishop, 2014]. Lane et al. propose that two broad sensory dimensions, sensory reactivity and multisensory integration, best explain the differences between subtypes, however this has yet to be tested. The present study tests this hypothesis by examining the latent constructs underlying Lane's sensory subtypes. Participants for this study were caregivers of children with autism spectrum disorder (ASD) aged 2–12 years. Caregiver responses on the Short Sensory Profile (SSP), used to establish Lane's sensory subtypes, were extracted from two existing datasets (total n?=?287). Independent component analyses were conducted to test the fit and interpretability of a two-construct structure underlying the SSP, and therefore, the sensory subtypes. The first construct was largely comprised of the taste/smell sensitivity domain, which describes hyper-reactivity to taste and smell stimuli. The second construct had a significant contribution from the low energy/weak domain, which describes behaviors that may be indicative of difficulties with multisensory integration. Findings provide initial support for our hypothesis that sensory reactivity and multisensory integration underlie Lane's sensory subtypes in ASD. En ligne : http://dx.doi.org/10.1002/aur.1787 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310

Mortality rate and age of death among Medicare-enrolled autistic older adults / Morgan KRANTZ in Research in Autism Spectrum Disorders, 100 (February 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 100 (February 2023) . - 102077 Titre : Mortality rate and age of death among Medicare-enrolled autistic older adults Type de document : Texte imprimé et/ou numérique Auteurs : Morgan KRANTZ, Auteur ; Djhenne DALMACY, Auteur ; Lauren BISHOP, Auteur ; J. Madison HYER, Auteur ; Brittany N. HAND, Auteur Article en page(s) : 102077 Langues : Anglais (eng) Mots-clés : Autism  Older adulthood  Survival  Mortality Index. décimale : PER Périodiques Résumé : Background An emerging body of evidence suggests that autistic people are at greater risk for mortality than non-autistic people. Yet, relatively little is known about mortality rates among autistic people during older adulthood (i.e., age 65 or older). Methods We examined 5-year mortality among a national US sample of Medicare-enrolled autistic (n = 3308) and non-autistic (n = 33,080) adults aged 65 or older. Results Autistic older adults had 2.87 times greater rate of mortality (95 % CI = 2.61 “3.07) than non-autistic older adults. Among decedents (39.6 % of autistic and 15.1 % of non-autistic older adults), the median age of death was 72 years (IQR = 69 “78) for autistic and 75 years (IQR=70 “83) for non-autistic older adults. Among autistic older adults, those with intellectual disability had 1.57 times greater rate of mortality (95 % CI = 1.41 “1.76) than those without, and males had 1.27 times greater rate of mortality (95 % CI = 1.12 “1.43) than females. Conclusions Many trends regarding mortality observed in younger samples of autistic people were also observed in our study. However, we found only a three-year difference in median age at death between autistic and non-autistic decedents, which is a much smaller disparity than reported in some other studies. This potentially suggests that when autistic people live to the age of 65, they may live to a more similar age as non-autistic peers. En ligne : https://doi.org/10.1016/j.rasd.2022.102077 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 [article] Mortality rate and age of death among Medicare-enrolled autistic older adults [Texte imprimé et/ou numérique] / Morgan KRANTZ, Auteur ; Djhenne DALMACY, Auteur ; Lauren BISHOP, Auteur ; J. Madison HYER, Auteur ; Brittany N. HAND, Auteur . - 102077. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 100 (February 2023) . - 102077 Mots-clés : Autism  Older adulthood  Survival  Mortality Index. décimale : PER Périodiques Résumé : Background An emerging body of evidence suggests that autistic people are at greater risk for mortality than non-autistic people. Yet, relatively little is known about mortality rates among autistic people during older adulthood (i.e., age 65 or older). Methods We examined 5-year mortality among a national US sample of Medicare-enrolled autistic (n = 3308) and non-autistic (n = 33,080) adults aged 65 or older. Results Autistic older adults had 2.87 times greater rate of mortality (95 % CI = 2.61 “3.07) than non-autistic older adults. Among decedents (39.6 % of autistic and 15.1 % of non-autistic older adults), the median age of death was 72 years (IQR = 69 “78) for autistic and 75 years (IQR=70 “83) for non-autistic older adults. Among autistic older adults, those with intellectual disability had 1.57 times greater rate of mortality (95 % CI = 1.41 “1.76) than those without, and males had 1.27 times greater rate of mortality (95 % CI = 1.12 “1.43) than females. Conclusions Many trends regarding mortality observed in younger samples of autistic people were also observed in our study. However, we found only a three-year difference in median age at death between autistic and non-autistic decedents, which is a much smaller disparity than reported in some other studies. This potentially suggests that when autistic people live to the age of 65, they may live to a more similar age as non-autistic peers. En ligne : https://doi.org/10.1016/j.rasd.2022.102077 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491

Short report: Patterns of US federal autism research funding during 2017-2019 / Lauren HARRIS in Autism, 26-7 (October 2022)  

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The Association Between Obesity and Key Health or Psychosocial Outcomes Among Autistic Adults: A Systematic Review / Daniel G. GILMORE in Journal of Autism and Developmental Disorders, 52-9 (September 2022)  

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