Autism Among Adults with Down Syndrome: Prevalence, Medicaid Usage, and Co-Occurring Conditions / Eric RUBENSTEIN in Journal of Autism and Developmental Disorders, 55-10 (October 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3670-3677 Titre : Autism Among Adults with Down Syndrome: Prevalence, Medicaid Usage, and Co-Occurring Conditions Type de document : texte imprimé Auteurs : Eric RUBENSTEIN, Auteur ; Mack TOTH, Auteur ; Salina TEWOLDE, Auteur Article en page(s) : p.3670-3677 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Our objective was to examine occurrence of both conditions in Medicaid; and compare Medicaid service use and cost, and chronic conditions among adults with Down syndrome and autism to those with Down syndrome alone and those with autism alone. We used ICD9 and ICD10 codes in Medicaid claims and encounters from 2011 to 2019 to identify autism and Down syndrome in adults > 18 years. We then calculated costs, claims, hospitalizations, long term care days, and chronic conditions, and compared by group- autism alone, Down syndrome alone, Down syndrome + autism. Between 2011 and 2019, there were 519,450 adult Medicaid enrollees who met our criteria for autism (N = 396,426), Down syndrome (N = 116,422), or both Down syndrome and autism (N = 6,602). In 2011, 4.1% of enrollees with Down syndrome had co-occurring autism; by 2011 it was 6.6%. The autism group had the fewest claims and inpatient hospitalizations, followed by the Down syndrome group, then the Down syndrome + autism group. After age adjustment, those with Down syndrome alone and Down syndrome + autism had elevated prevalence of atrial fibrillation, dementia, heart failure, kidney disease, and obesity compared to the autism alone group. Both groups also had decreased occurrence of depression and hypertension compared to the autism alone group. Prevalence of autism is higher among people with Down syndrome than in peers. The increased costs and service use for those with both conditions highlight the extent to which this population need health care and signal the need for more effective preventative care and therapies. En ligne : https://doi.org/10.1007/s10803-024-06484-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568 [article] Autism Among Adults with Down Syndrome: Prevalence, Medicaid Usage, and Co-Occurring Conditions [texte imprimé] / Eric RUBENSTEIN, Auteur ; Mack TOTH, Auteur ; Salina TEWOLDE, Auteur . - p.3670-3677. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3670-3677 Index. décimale : PER Périodiques Résumé : Our objective was to examine occurrence of both conditions in Medicaid; and compare Medicaid service use and cost, and chronic conditions among adults with Down syndrome and autism to those with Down syndrome alone and those with autism alone. We used ICD9 and ICD10 codes in Medicaid claims and encounters from 2011 to 2019 to identify autism and Down syndrome in adults > 18 years. We then calculated costs, claims, hospitalizations, long term care days, and chronic conditions, and compared by group- autism alone, Down syndrome alone, Down syndrome + autism. Between 2011 and 2019, there were 519,450 adult Medicaid enrollees who met our criteria for autism (N = 396,426), Down syndrome (N = 116,422), or both Down syndrome and autism (N = 6,602). In 2011, 4.1% of enrollees with Down syndrome had co-occurring autism; by 2011 it was 6.6%. The autism group had the fewest claims and inpatient hospitalizations, followed by the Down syndrome group, then the Down syndrome + autism group. After age adjustment, those with Down syndrome alone and Down syndrome + autism had elevated prevalence of atrial fibrillation, dementia, heart failure, kidney disease, and obesity compared to the autism alone group. Both groups also had decreased occurrence of depression and hypertension compared to the autism alone group. Prevalence of autism is higher among people with Down syndrome than in peers. The increased costs and service use for those with both conditions highlight the extent to which this population need health care and signal the need for more effective preventative care and therapies. En ligne : https://doi.org/10.1007/s10803-024-06484-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568

Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020) / Eric RUBENSTEIN in Journal of Autism and Developmental Disorders, 51-5 (May 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-5 (May 2021) . - p.1808-1809 Titre : Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020) Type de document : texte imprimé Auteurs : Eric RUBENSTEIN, Auteur ; Amy E. KALKBRENNER, Auteur ; Heather E. VOLK, Auteur ; Laura MCGUINN, Auteur Article en page(s) : p.1808-1809 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-020-04762-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020) [texte imprimé] / Eric RUBENSTEIN, Auteur ; Amy E. KALKBRENNER, Auteur ; Heather E. VOLK, Auteur ; Laura MCGUINN, Auteur . - p.1808-1809. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-5 (May 2021) . - p.1808-1809 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-020-04762-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

Community-based service use in preschool children with autism spectrum disorder and associations with insurance status / Eric RUBENSTEIN in Research in Autism Spectrum Disorders, 66 (October 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 66 (October 2019) . - p.101410 Titre : Community-based service use in preschool children with autism spectrum disorder and associations with insurance status Type de document : texte imprimé Auteurs : Eric RUBENSTEIN, Auteur ; Lisa A. CROEN, Auteur ; Li-Ching LEE, Auteur ; Eric MOODY, Auteur ; Laura A. SCHIEVE, Auteur ; Gnakub N. SOKE, Auteur ; Kathleen THOMAS, Auteur ; Lisa D. WIGGINS, Auteur ; Julie L. DANIELS, Auteur Article en page(s) : p.101410 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Service  Therapy  Insurance  Behavioral therapy Index. décimale : PER Périodiques Résumé : Background ASD-related services can improve outcomes for children, but less is known about service outside of school settings during preschool age. We aimed to describe amount and category of community-based service use among 3–5-year-old children with ASD and examine differences by health insurance. Methods We used cross-sectional data on 792 children with ASD diagnoses in the Study to Explore Early Development, a community-based study of neurodevelopment with enrollment between 2012-2016. Mothers reported current child service use and insurance status at study entry. We used log-Poisson and logistic regression to compare service use by insurance group. Results Nearly 40% of children were not receiving community-based services at study entry. Children with public insurance had fewer total services than children with private or both insurances. After adjustment for sociodemographic confounders, insurance status was not associated with amount of different categories of community-based services. However, children with public insurance alone were least likely to receive community-based behavioral therapy and most likely to receive psychotropic medication compared to other insurances. Conclusion Many preschool-aged children do not receive community-based services, with receipt of some service types associated with insurance type. Increasing access and availability for evidence-based service, especially for beneficiaries of public insurance, may improve service use and outcomes. En ligne : https://doi.org/10.1016/j.rasd.2019.101410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404 [article] Community-based service use in preschool children with autism spectrum disorder and associations with insurance status [texte imprimé] / Eric RUBENSTEIN, Auteur ; Lisa A. CROEN, Auteur ; Li-Ching LEE, Auteur ; Eric MOODY, Auteur ; Laura A. SCHIEVE, Auteur ; Gnakub N. SOKE, Auteur ; Kathleen THOMAS, Auteur ; Lisa D. WIGGINS, Auteur ; Julie L. DANIELS, Auteur . - p.101410. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101410 Mots-clés : Autism spectrum disorder  Service  Therapy  Insurance  Behavioral therapy Index. décimale : PER Périodiques Résumé : Background ASD-related services can improve outcomes for children, but less is known about service outside of school settings during preschool age. We aimed to describe amount and category of community-based service use among 3–5-year-old children with ASD and examine differences by health insurance. Methods We used cross-sectional data on 792 children with ASD diagnoses in the Study to Explore Early Development, a community-based study of neurodevelopment with enrollment between 2012-2016. Mothers reported current child service use and insurance status at study entry. We used log-Poisson and logistic regression to compare service use by insurance group. Results Nearly 40% of children were not receiving community-based services at study entry. Children with public insurance had fewer total services than children with private or both insurances. After adjustment for sociodemographic confounders, insurance status was not associated with amount of different categories of community-based services. However, children with public insurance alone were least likely to receive community-based behavioral therapy and most likely to receive psychotropic medication compared to other insurances. Conclusion Many preschool-aged children do not receive community-based services, with receipt of some service types associated with insurance type. Increasing access and availability for evidence-based service, especially for beneficiaries of public insurance, may improve service use and outcomes. En ligne : https://doi.org/10.1016/j.rasd.2019.101410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404

Epidemiology of Alzheimer Disease and Related Dementia Among Medicare and Medicaid Enrolled Autistic Adults, 2011-2019 / Samuel B. ROSENBERG ; Josue Antonio G. ESTRADA ; Marcia Pescador JIMENEZ ; Ashley SCOTT ; Alianna HIGGINS ; Eric RUBENSTEIN in Autism Research, 18-5 (May 2025)  

Public ISBD [article]  inAutism Research > 18-5 (May 2025) . - p.1077-1086 Titre : Epidemiology of Alzheimer Disease and Related Dementia Among Medicare and Medicaid Enrolled Autistic Adults, 2011-2019 Type de document : texte imprimé Auteurs : Samuel B. ROSENBERG, Auteur ; Josue Antonio G. ESTRADA, Auteur ; Marcia Pescador JIMENEZ, Auteur ; Ashley SCOTT, Auteur ; Alianna HIGGINS, Auteur ; Eric RUBENSTEIN, Auteur Article en page(s) : p.1077-1086 Langues : Anglais (eng) Mots-clés : Alzheimer disease  autism  dementia  disparity  epidemiology  intellectual disability  medicaid  medicare Index. décimale : PER Périodiques Résumé : ABSTRACT Alzheimer's disease and related dementias (ADRD) are burdensome and lethal conditions that have been hypothesized to be related to autism through shared genetic etiologies and environmental risk factors. Our objective was to use longitudinal Medicaid and Medicare data to describe the epidemiology of ADRD in publicly insured autistic adults. We used all claims and encounters from 2011 to 2019 to identify autism and ADRD. We calculated prevalence, incidence, age at onset, and created survival curves. There were 90,229 autistic adults ? 30 years of age and enrolled for at least 1 year in Medicaid and/or Medicare and 267 ADRD cases. Prevalence of ADRD was 2.09% (95% CI: 1.99%, 2.20%) in 2011 and 8.11% (95% CI: 7.92%, 8.30%) in 2019. Mean age at ADRD onset was 59.3 years (SD: 14.2). Mean age among men was 58.3 years (SD: 13.8) and 61.0 years among females. Incidence of ADRD was higher in autistic adults with intellectual disability with no difference by sex. ADRD is a prevalent condition in middle- and older-aged adults identified with autism in the Medicaid and Medicare system. Understanding the diagnostic process and phenotype of ADRD will be important to improve identification and treatment. En ligne : https://doi.org/10.1002/aur.70035 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Epidemiology of Alzheimer Disease and Related Dementia Among Medicare and Medicaid Enrolled Autistic Adults, 2011-2019 [texte imprimé] / Samuel B. ROSENBERG, Auteur ; Josue Antonio G. ESTRADA, Auteur ; Marcia Pescador JIMENEZ, Auteur ; Ashley SCOTT, Auteur ; Alianna HIGGINS, Auteur ; Eric RUBENSTEIN, Auteur . - p.1077-1086. Langues : Anglais (eng) in Autism Research > 18-5 (May 2025) . - p.1077-1086 Mots-clés : Alzheimer disease  autism  dementia  disparity  epidemiology  intellectual disability  medicaid  medicare Index. décimale : PER Périodiques Résumé : ABSTRACT Alzheimer's disease and related dementias (ADRD) are burdensome and lethal conditions that have been hypothesized to be related to autism through shared genetic etiologies and environmental risk factors. Our objective was to use longitudinal Medicaid and Medicare data to describe the epidemiology of ADRD in publicly insured autistic adults. We used all claims and encounters from 2011 to 2019 to identify autism and ADRD. We calculated prevalence, incidence, age at onset, and created survival curves. There were 90,229 autistic adults ? 30 years of age and enrolled for at least 1 year in Medicaid and/or Medicare and 267 ADRD cases. Prevalence of ADRD was 2.09% (95% CI: 1.99%, 2.20%) in 2011 and 8.11% (95% CI: 7.92%, 8.30%) in 2019. Mean age at ADRD onset was 59.3 years (SD: 14.2). Mean age among men was 58.3 years (SD: 13.8) and 61.0 years among females. Incidence of ADRD was higher in autistic adults with intellectual disability with no difference by sex. ADRD is a prevalent condition in middle- and older-aged adults identified with autism in the Medicaid and Medicare system. Understanding the diagnostic process and phenotype of ADRD will be important to improve identification and treatment. En ligne : https://doi.org/10.1002/aur.70035 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system / Lauren BISHOP in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.831-839 Titre : Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system Type de document : texte imprimé Auteurs : Lauren BISHOP, Auteur ; Kiley J. MCLEAN, Auteur ; Eric RUBENSTEIN, Auteur Article en page(s) : p.831-839 Langues : Anglais (eng) Mots-clés : Medicaid  autism spectrum disorders  epilepsy  gender  intellectual disability  medical comorbidity  sex differences  stroke Index. décimale : PER Périodiques Résumé : Epilepsy is more common in autistic children compared to children without autism, but we do not have good estimates of how many autistic adults have epilepsy. We used data from a full population of 7513 autistic adults who received Medicaid in Wisconsin to figure out the proportion of autistic adults who have epilepsy, as compared to 18,429 adults with intellectual disability. We also wanted to assess how often epilepsy is first diagnosed in adulthood. Finally, we wanted to see whether antiepileptic drugs are being used to treat epilepsy in autistic adults. We found that 34.6% of autistic adults with intellectual disability and 11.1% of autistic adults without intellectual disability had epilepsy, compared to 27.0% of adults with intellectual disability alone. Autistic women and autistic adults with intellectual disability were more likely than autistic men and autistic adults without intellectual disability to have both previous and new diagnoses of epilepsy. Finally, we found that antiepileptic medications are commonly prescribed to autistic people who do not have epilepsy potentially to treat mental health conditions or behavior problems, and that antiepileptic medications are not always prescribed to autistic people with epilepsy even though they are indicated as a first-line epilepsy treatment. The findings of this study highlight the need to effectively treat and prevent epilepsy in autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320942982 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system [texte imprimé] / Lauren BISHOP, Auteur ; Kiley J. MCLEAN, Auteur ; Eric RUBENSTEIN, Auteur . - p.831-839. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.831-839 Mots-clés : Medicaid  autism spectrum disorders  epilepsy  gender  intellectual disability  medical comorbidity  sex differences  stroke Index. décimale : PER Périodiques Résumé : Epilepsy is more common in autistic children compared to children without autism, but we do not have good estimates of how many autistic adults have epilepsy. We used data from a full population of 7513 autistic adults who received Medicaid in Wisconsin to figure out the proportion of autistic adults who have epilepsy, as compared to 18,429 adults with intellectual disability. We also wanted to assess how often epilepsy is first diagnosed in adulthood. Finally, we wanted to see whether antiepileptic drugs are being used to treat epilepsy in autistic adults. We found that 34.6% of autistic adults with intellectual disability and 11.1% of autistic adults without intellectual disability had epilepsy, compared to 27.0% of adults with intellectual disability alone. Autistic women and autistic adults with intellectual disability were more likely than autistic men and autistic adults without intellectual disability to have both previous and new diagnoses of epilepsy. Finally, we found that antiepileptic medications are commonly prescribed to autistic people who do not have epilepsy potentially to treat mental health conditions or behavior problems, and that antiepileptic medications are not always prescribed to autistic people with epilepsy even though they are indicated as a first-line epilepsy treatment. The findings of this study highlight the need to effectively treat and prevent epilepsy in autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320942982 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Features that best define the heterogeneity and homogeneity of autism in preschool-age children: A multisite case?control analysis replicated across two independent samples / Lisa D. WIGGINS in Autism Research, 15-3 (March 2022)  

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Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh / Jasmine M. BLAKE in Autism, 21-5 (July 2017)  

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Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning / Sarah M. FURNIER in Autism Research, 17-3 (March 2024)  

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The Broader Autism Phenotype in Mothers is Associated with Increased Discordance Between Maternal-Reported and Clinician-Observed Instruments that Measure Child Autism Spectrum Disorder / Eric RUBENSTEIN in Journal of Autism and Developmental Disorders, 47-10 (October 2017)  

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The physical and mental health of middle aged and older adults on the autism spectrum and the impact of intellectual disability / Lauren BISHOP-FITZPATRICK in Research in Autism Spectrum Disorders, 63 (July 2019)  

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The prevalence of gluten free diet use among preschool children with autism spectrum disorder / Eric RUBENSTEIN in Autism Research, 11-1 (January 2018)  

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Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development / Sarah M. FURNIER in Autism, 28-5 (May 2024)  

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