Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020) / Eric RUBENSTEIN in Journal of Autism and Developmental Disorders, 51-5 (May 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-5 (May 2021) . - p.1808-1809 Titre : Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020) Type de document : Texte imprimé et/ou numérique Auteurs : Eric RUBENSTEIN, Auteur ; Amy E. KALKBRENNER, Auteur ; Heather E. VOLK, Auteur ; Laura MCGUINN, Auteur Article en page(s) : p.1808-1809 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-020-04762-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020) [Texte imprimé et/ou numérique] / Eric RUBENSTEIN, Auteur ; Amy E. KALKBRENNER, Auteur ; Heather E. VOLK, Auteur ; Laura MCGUINN, Auteur . - p.1808-1809. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-5 (May 2021) . - p.1808-1809 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-020-04762-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

Community-based service use in preschool children with autism spectrum disorder and associations with insurance status / Eric RUBENSTEIN in Research in Autism Spectrum Disorders, 66 (October 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 66 (October 2019) . - p.101410 Titre : Community-based service use in preschool children with autism spectrum disorder and associations with insurance status Type de document : Texte imprimé et/ou numérique Auteurs : Eric RUBENSTEIN, Auteur ; Lisa A. CROEN, Auteur ; Li-Ching LEE, Auteur ; Eric MOODY, Auteur ; Laura A. SCHIEVE, Auteur ; Gnakub N. SOKE, Auteur ; Kathleen THOMAS, Auteur ; Lisa D. WIGGINS, Auteur ; Julie L. DANIELS, Auteur Article en page(s) : p.101410 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Service  Therapy  Insurance  Behavioral therapy Index. décimale : PER Périodiques Résumé : Background ASD-related services can improve outcomes for children, but less is known about service outside of school settings during preschool age. We aimed to describe amount and category of community-based service use among 3–5-year-old children with ASD and examine differences by health insurance. Methods We used cross-sectional data on 792 children with ASD diagnoses in the Study to Explore Early Development, a community-based study of neurodevelopment with enrollment between 2012-2016. Mothers reported current child service use and insurance status at study entry. We used log-Poisson and logistic regression to compare service use by insurance group. Results Nearly 40% of children were not receiving community-based services at study entry. Children with public insurance had fewer total services than children with private or both insurances. After adjustment for sociodemographic confounders, insurance status was not associated with amount of different categories of community-based services. However, children with public insurance alone were least likely to receive community-based behavioral therapy and most likely to receive psychotropic medication compared to other insurances. Conclusion Many preschool-aged children do not receive community-based services, with receipt of some service types associated with insurance type. Increasing access and availability for evidence-based service, especially for beneficiaries of public insurance, may improve service use and outcomes. En ligne : https://doi.org/10.1016/j.rasd.2019.101410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404 [article] Community-based service use in preschool children with autism spectrum disorder and associations with insurance status [Texte imprimé et/ou numérique] / Eric RUBENSTEIN, Auteur ; Lisa A. CROEN, Auteur ; Li-Ching LEE, Auteur ; Eric MOODY, Auteur ; Laura A. SCHIEVE, Auteur ; Gnakub N. SOKE, Auteur ; Kathleen THOMAS, Auteur ; Lisa D. WIGGINS, Auteur ; Julie L. DANIELS, Auteur . - p.101410. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101410 Mots-clés : Autism spectrum disorder  Service  Therapy  Insurance  Behavioral therapy Index. décimale : PER Périodiques Résumé : Background ASD-related services can improve outcomes for children, but less is known about service outside of school settings during preschool age. We aimed to describe amount and category of community-based service use among 3–5-year-old children with ASD and examine differences by health insurance. Methods We used cross-sectional data on 792 children with ASD diagnoses in the Study to Explore Early Development, a community-based study of neurodevelopment with enrollment between 2012-2016. Mothers reported current child service use and insurance status at study entry. We used log-Poisson and logistic regression to compare service use by insurance group. Results Nearly 40% of children were not receiving community-based services at study entry. Children with public insurance had fewer total services than children with private or both insurances. After adjustment for sociodemographic confounders, insurance status was not associated with amount of different categories of community-based services. However, children with public insurance alone were least likely to receive community-based behavioral therapy and most likely to receive psychotropic medication compared to other insurances. Conclusion Many preschool-aged children do not receive community-based services, with receipt of some service types associated with insurance type. Increasing access and availability for evidence-based service, especially for beneficiaries of public insurance, may improve service use and outcomes. En ligne : https://doi.org/10.1016/j.rasd.2019.101410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404

Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system / Lauren BISHOP in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.831-839 Titre : Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system Type de document : Texte imprimé et/ou numérique Auteurs : Lauren BISHOP, Auteur ; Kiley J. MCLEAN, Auteur ; Eric RUBENSTEIN, Auteur Article en page(s) : p.831-839 Langues : Anglais (eng) Mots-clés : Medicaid  autism spectrum disorders  epilepsy  gender  intellectual disability  medical comorbidity  sex differences  stroke Index. décimale : PER Périodiques Résumé : Epilepsy is more common in autistic children compared to children without autism, but we do not have good estimates of how many autistic adults have epilepsy. We used data from a full population of 7513 autistic adults who received Medicaid in Wisconsin to figure out the proportion of autistic adults who have epilepsy, as compared to 18,429 adults with intellectual disability. We also wanted to assess how often epilepsy is first diagnosed in adulthood. Finally, we wanted to see whether antiepileptic drugs are being used to treat epilepsy in autistic adults. We found that 34.6% of autistic adults with intellectual disability and 11.1% of autistic adults without intellectual disability had epilepsy, compared to 27.0% of adults with intellectual disability alone. Autistic women and autistic adults with intellectual disability were more likely than autistic men and autistic adults without intellectual disability to have both previous and new diagnoses of epilepsy. Finally, we found that antiepileptic medications are commonly prescribed to autistic people who do not have epilepsy potentially to treat mental health conditions or behavior problems, and that antiepileptic medications are not always prescribed to autistic people with epilepsy even though they are indicated as a first-line epilepsy treatment. The findings of this study highlight the need to effectively treat and prevent epilepsy in autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320942982 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system [Texte imprimé et/ou numérique] / Lauren BISHOP, Auteur ; Kiley J. MCLEAN, Auteur ; Eric RUBENSTEIN, Auteur . - p.831-839. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.831-839 Mots-clés : Medicaid  autism spectrum disorders  epilepsy  gender  intellectual disability  medical comorbidity  sex differences  stroke Index. décimale : PER Périodiques Résumé : Epilepsy is more common in autistic children compared to children without autism, but we do not have good estimates of how many autistic adults have epilepsy. We used data from a full population of 7513 autistic adults who received Medicaid in Wisconsin to figure out the proportion of autistic adults who have epilepsy, as compared to 18,429 adults with intellectual disability. We also wanted to assess how often epilepsy is first diagnosed in adulthood. Finally, we wanted to see whether antiepileptic drugs are being used to treat epilepsy in autistic adults. We found that 34.6% of autistic adults with intellectual disability and 11.1% of autistic adults without intellectual disability had epilepsy, compared to 27.0% of adults with intellectual disability alone. Autistic women and autistic adults with intellectual disability were more likely than autistic men and autistic adults without intellectual disability to have both previous and new diagnoses of epilepsy. Finally, we found that antiepileptic medications are commonly prescribed to autistic people who do not have epilepsy potentially to treat mental health conditions or behavior problems, and that antiepileptic medications are not always prescribed to autistic people with epilepsy even though they are indicated as a first-line epilepsy treatment. The findings of this study highlight the need to effectively treat and prevent epilepsy in autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320942982 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Features that best define the heterogeneity and homogeneity of autism in preschool-age children: A multisite case?control analysis replicated across two independent samples / Lisa D. WIGGINS in Autism Research, 15-3 (March 2022)  

Public ISBD [article]  inAutism Research > 15-3 (March 2022) . - p.539-550 Titre : Features that best define the heterogeneity and homogeneity of autism in preschool-age children: A multisite case?control analysis replicated across two independent samples Type de document : Texte imprimé et/ou numérique Auteurs : Lisa D. WIGGINS, Auteur ; Lin H. TIAN, Auteur ; Eric RUBENSTEIN, Auteur ; Laura A. SCHIEVE, Auteur ; Julie L. DANIELS, Auteur ; Karen PAZOL, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Brian BARGER, Auteur ; Eric MOODY, Auteur ; Steven ROSENBERG, Auteur ; Chyrise BRADLEY, Auteur ; Melanie HSU, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur ; Deborah CHRISTENSEN, Auteur ; Tessa CRUME, Auteur ; Juhi PANDEY, Auteur ; Susan E. LEVY, Auteur Article en page(s) : p.539-550 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract The heterogeneous nature of children with symptoms of autism spectrum disorder (ASD) makes it difficult to identify risk factors and effective treatment options. We sought to identify behavioral and developmental features that best define the heterogeneity and homogeneity in 2?5-year-old children classified with ASD and subthreshold ASD characteristics. Children were enrolled in a multisite case?control study of ASD. Detailed behavioral and developmental data were gathered by maternal telephone interview, parent-administered questionnaires, child cognitive evaluation, and ASD diagnostic measures. Participants with a positive ASD screen score or prior ASD diagnosis were referred for comprehensive evaluation. Children in the ASD group met study criteria based on this evaluation; children who did not meet study criteria were categorized as having subthreshold ASD characteristics. There were 1480 children classified as ASD (81.6% boys) and 594 children classified as having subthreshold ASD characteristics (70.2% boys) in the sample. Factors associated with dysregulation (e.g., aggression, anxiety/depression, sleep problems) followed by developmental abilities (e.g., expressive and receptive language skills) most contributed to heterogeneity in both groups of children. Atypical sensory response contributed to homogeneity in children classified as ASD but not those with subthreshold characteristics. These findings suggest that dysregulation and developmental abilities are clinical features that can impact functioning in children with ASD and other DD, and that documenting these features in pediatric records may help meet the needs of the individual child. Sensory dysfunction could be considered a core feature of ASD and thus used to inform more targeted screening, evaluation, treatment, and research efforts. Lay summary The diverse nature of autism spectrum disorder (ASD) makes it difficult to find risk factors and treatment options. We identified the most dissimilar and most similar symptom(s) in children classified as ASD and as having subthreshold ASD characteristics. Factors associated with dysregulation and developmental abilities contributed to diversity in both groups of children. Sensory dysfunction was the most common symptom in children with ASD but not those with subthreshold characteristics. Findings can inform clinical practice and research. En ligne : https://doi.org/10.1002/aur.2663 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Features that best define the heterogeneity and homogeneity of autism in preschool-age children: A multisite case?control analysis replicated across two independent samples [Texte imprimé et/ou numérique] / Lisa D. WIGGINS, Auteur ; Lin H. TIAN, Auteur ; Eric RUBENSTEIN, Auteur ; Laura A. SCHIEVE, Auteur ; Julie L. DANIELS, Auteur ; Karen PAZOL, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Brian BARGER, Auteur ; Eric MOODY, Auteur ; Steven ROSENBERG, Auteur ; Chyrise BRADLEY, Auteur ; Melanie HSU, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur ; Deborah CHRISTENSEN, Auteur ; Tessa CRUME, Auteur ; Juhi PANDEY, Auteur ; Susan E. LEVY, Auteur . - p.539-550. Langues : Anglais (eng) in Autism Research > 15-3 (March 2022) . - p.539-550 Index. décimale : PER Périodiques Résumé : Abstract The heterogeneous nature of children with symptoms of autism spectrum disorder (ASD) makes it difficult to identify risk factors and effective treatment options. We sought to identify behavioral and developmental features that best define the heterogeneity and homogeneity in 2?5-year-old children classified with ASD and subthreshold ASD characteristics. Children were enrolled in a multisite case?control study of ASD. Detailed behavioral and developmental data were gathered by maternal telephone interview, parent-administered questionnaires, child cognitive evaluation, and ASD diagnostic measures. Participants with a positive ASD screen score or prior ASD diagnosis were referred for comprehensive evaluation. Children in the ASD group met study criteria based on this evaluation; children who did not meet study criteria were categorized as having subthreshold ASD characteristics. There were 1480 children classified as ASD (81.6% boys) and 594 children classified as having subthreshold ASD characteristics (70.2% boys) in the sample. Factors associated with dysregulation (e.g., aggression, anxiety/depression, sleep problems) followed by developmental abilities (e.g., expressive and receptive language skills) most contributed to heterogeneity in both groups of children. Atypical sensory response contributed to homogeneity in children classified as ASD but not those with subthreshold characteristics. These findings suggest that dysregulation and developmental abilities are clinical features that can impact functioning in children with ASD and other DD, and that documenting these features in pediatric records may help meet the needs of the individual child. Sensory dysfunction could be considered a core feature of ASD and thus used to inform more targeted screening, evaluation, treatment, and research efforts. Lay summary The diverse nature of autism spectrum disorder (ASD) makes it difficult to find risk factors and treatment options. We identified the most dissimilar and most similar symptom(s) in children classified as ASD and as having subthreshold ASD characteristics. Factors associated with dysregulation and developmental abilities contributed to diversity in both groups of children. Sensory dysfunction was the most common symptom in children with ASD but not those with subthreshold characteristics. Findings can inform clinical practice and research. En ligne : https://doi.org/10.1002/aur.2663 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh / Jasmine M. BLAKE in Autism, 21-5 (July 2017)  

Public ISBD [article]  inAutism > 21-5 (July 2017) . - p.611-621 Titre : Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh Type de document : Texte imprimé et/ou numérique Auteurs : Jasmine M. BLAKE, Auteur ; Eric RUBENSTEIN, Auteur ; Peng-Chou TSAI, Auteur ; Hafizur RAHMAN, Auteur ; Sarah R. RIETH, Auteur ; Hasmot ALI, Auteur ; Li-Ching LEE, Auteur Article en page(s) : p.611-621 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Low- and middle-income countries often have limited resources, underdeveloped health systems and scarce knowledge of autism spectrum disorder. The objectives of this preliminary study were to develop and adapt intervention materials and to train a native clinician to implement a community-based parent-mediated behavioural intervention in rural Gaibandha, Bangladesh. Intervention materials to support parents? use of behavioural strategies were developed and refined by US behavioural intervention experts and Bangladesh field experts. Study investigators trained a native child psychologist in developmental milestones and behavioural intervention techniques. The native clinician delivered a 1-day group education session attended by 10 families of children aged 7?9 years with autism spectrum disorder, followed by two one-on-one training sessions with each family to train and practice individualized strategies for targeted challenging behaviours. Preliminary qualitative results indicate the importance of materials that are culturally appropriate and at an adequate literacy level. All families expressed strong desires to have learned the behavioural strategies when their child was younger and vocalized their need for further support and tools to help their children. This study is a preliminary step to creating sustainable and low-cost autism spectrum disorder interventions in rural Bangladesh, and possibly for families in regions with similar cultural and socioeconomic status backgrounds. En ligne : http://dx.doi.org/10.1177/1362361316683890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 [article] Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh [Texte imprimé et/ou numérique] / Jasmine M. BLAKE, Auteur ; Eric RUBENSTEIN, Auteur ; Peng-Chou TSAI, Auteur ; Hafizur RAHMAN, Auteur ; Sarah R. RIETH, Auteur ; Hasmot ALI, Auteur ; Li-Ching LEE, Auteur . - p.611-621. Langues : Anglais (eng) in Autism > 21-5 (July 2017) . - p.611-621 Index. décimale : PER Périodiques Résumé : Low- and middle-income countries often have limited resources, underdeveloped health systems and scarce knowledge of autism spectrum disorder. The objectives of this preliminary study were to develop and adapt intervention materials and to train a native clinician to implement a community-based parent-mediated behavioural intervention in rural Gaibandha, Bangladesh. Intervention materials to support parents? use of behavioural strategies were developed and refined by US behavioural intervention experts and Bangladesh field experts. Study investigators trained a native child psychologist in developmental milestones and behavioural intervention techniques. The native clinician delivered a 1-day group education session attended by 10 families of children aged 7?9 years with autism spectrum disorder, followed by two one-on-one training sessions with each family to train and practice individualized strategies for targeted challenging behaviours. Preliminary qualitative results indicate the importance of materials that are culturally appropriate and at an adequate literacy level. All families expressed strong desires to have learned the behavioural strategies when their child was younger and vocalized their need for further support and tools to help their children. This study is a preliminary step to creating sustainable and low-cost autism spectrum disorder interventions in rural Bangladesh, and possibly for families in regions with similar cultural and socioeconomic status backgrounds. En ligne : http://dx.doi.org/10.1177/1362361316683890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310

Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning / Sarah M. FURNIER in Autism Research, 17-3 (March 2024)  

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The Broader Autism Phenotype in Mothers is Associated with Increased Discordance Between Maternal-Reported and Clinician-Observed Instruments that Measure Child Autism Spectrum Disorder / Eric RUBENSTEIN in Journal of Autism and Developmental Disorders, 47-10 (October 2017)  

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The physical and mental health of middle aged and older adults on the autism spectrum and the impact of intellectual disability / Lauren BISHOP-FITZPATRICK in Research in Autism Spectrum Disorders, 63 (July 2019)  

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The prevalence of gluten free diet use among preschool children with autism spectrum disorder / Eric RUBENSTEIN in Autism Research, 11-1 (January 2018)  

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Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development / Sarah M. FURNIER in Autism, 28-5 (May 2024)  

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