Adherence and Opportunity Frequency as Predictors of Communication Outcomes from Pivotal Response Parent Training / Mendy B. MINJAREZ in Journal of Autism and Developmental Disorders, 55-10 (October 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3446-3459 Titre : Adherence and Opportunity Frequency as Predictors of Communication Outcomes from Pivotal Response Parent Training Type de document : texte imprimé Auteurs : Mendy B. MINJAREZ, Auteur ; Grace W. GENGOUX, Auteur ; Katherine PASZEK, Auteur ; Jennifer A. LIANG, Auteur ; Christina M. ARDEL, Auteur ; Antonio Y. HARDAN, Auteur ; Thomas W. FRAZIER, Auteur Article en page(s) : p.3446-3459 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Access to intervention is a barrier for children with autism. As parent-mediated interventions have emerged to address this need, understanding implementation components contributing to child gains is critically important. Existing literature documents relationships between parent treatment adherence and child progress; however, less is understood about components, such as frequency of learning opportunities, which could also affect child outcomes. En ligne : https://doi.org/10.1007/s10803-024-06447-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568 [article] Adherence and Opportunity Frequency as Predictors of Communication Outcomes from Pivotal Response Parent Training [texte imprimé] / Mendy B. MINJAREZ, Auteur ; Grace W. GENGOUX, Auteur ; Katherine PASZEK, Auteur ; Jennifer A. LIANG, Auteur ; Christina M. ARDEL, Auteur ; Antonio Y. HARDAN, Auteur ; Thomas W. FRAZIER, Auteur . - p.3446-3459. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3446-3459 Index. décimale : PER Périodiques Résumé : Access to intervention is a barrier for children with autism. As parent-mediated interventions have emerged to address this need, understanding implementation components contributing to child gains is critically important. Existing literature documents relationships between parent treatment adherence and child progress; however, less is understood about components, such as frequency of learning opportunities, which could also affect child outcomes. En ligne : https://doi.org/10.1007/s10803-024-06447-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568

Brief Report: Impact of COVID-19 in Individuals with Autism Spectrum Disorders: Analysis of a National Private Claims Insurance Database / Arun KARPUR in Journal of Autism and Developmental Disorders, 52-5 (May 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2350-2356 Titre : Brief Report: Impact of COVID-19 in Individuals with Autism Spectrum Disorders: Analysis of a National Private Claims Insurance Database Type de document : texte imprimé Auteurs : Arun KARPUR, Auteur ; Vijay VASUDEVAN, Auteur ; Andy SHIH, Auteur ; Thomas W. FRAZIER, Auteur Article en page(s) : p.2350-2356 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/epidemiology  COVID-19/epidemiology  Humans  Insurance  Length of Stay  Pandemics  Autism spectrum disorders  COVID-19 pandemic  FAIR health inc.  Hospitalization  Intellectual disabilities Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic continues to have a detrimental impact on individuals with disabilities. Data from FAIR Health's FH® NPIC (National Private Insurance Claims) database, one of the nation's largest databases of private insurance claim records, were analyzed to understand the experiences of individuals with ASD in the COVID-19 pandemic. Multivariate logistic regression models revealed that individuals with ASD+ID were nine times more likely to be hospitalized following COVID-19 infection (OR=9.3; 95% CI: 6.9-12.5) and were nearly six times more likely to have an elevated length of hospital stay (OR=5.9; 95% CI: 3.5-10.1) compared to those without ASD+ID. These findings point to the need for prioritizing access to vaccines to prevent COVID-19 infection and morbidities. This is the first study to illustrate a higher likelihood of hospitalization and elevated length of hospital stay from COVID-19 in individuals with ASD and other comorbidities. En ligne : http://dx.doi.org/10.1007/s10803-021-05100-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 [article] Brief Report: Impact of COVID-19 in Individuals with Autism Spectrum Disorders: Analysis of a National Private Claims Insurance Database [texte imprimé] / Arun KARPUR, Auteur ; Vijay VASUDEVAN, Auteur ; Andy SHIH, Auteur ; Thomas W. FRAZIER, Auteur . - p.2350-2356. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2350-2356 Mots-clés : Autism Spectrum Disorder/epidemiology  COVID-19/epidemiology  Humans  Insurance  Length of Stay  Pandemics  Autism spectrum disorders  COVID-19 pandemic  FAIR health inc.  Hospitalization  Intellectual disabilities Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic continues to have a detrimental impact on individuals with disabilities. Data from FAIR Health's FH® NPIC (National Private Insurance Claims) database, one of the nation's largest databases of private insurance claim records, were analyzed to understand the experiences of individuals with ASD in the COVID-19 pandemic. Multivariate logistic regression models revealed that individuals with ASD+ID were nine times more likely to be hospitalized following COVID-19 infection (OR=9.3; 95% CI: 6.9-12.5) and were nearly six times more likely to have an elevated length of hospital stay (OR=5.9; 95% CI: 3.5-10.1) compared to those without ASD+ID. These findings point to the need for prioritizing access to vaccines to prevent COVID-19 infection and morbidities. This is the first study to illustrate a higher likelihood of hospitalization and elevated length of hospital stay from COVID-19 in individuals with ASD and other comorbidities. En ligne : http://dx.doi.org/10.1007/s10803-021-05100-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476

Brief Report: Role of Parent-Reported Executive Functioning and Anxiety in Insistence on Sameness in Individuals with Germline PTEN Mutations / Mirko ULJAREVIĆ in Journal of Autism and Developmental Disorders, 52-1 (January 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.414-422 Titre : Brief Report: Role of Parent-Reported Executive Functioning and Anxiety in Insistence on Sameness in Individuals with Germline PTEN Mutations Type de document : texte imprimé Auteurs : Mirko ULJAREVIĆ, Auteur ; Thomas W. FRAZIER, Auteur ; Gaëlle RACHED, Auteur ; Robyn M. BUSCH, Auteur ; Patricia KLAAS, Auteur ; Siddharth SRIVASTAVA, Auteur ; Julian A. MARTINEZ-AGOSTO, Auteur ; Mustafa SAHIN, Auteur ; Charis ENG, Auteur ; Antonio Y. HARDAN, Auteur Article en page(s) : p.414-422 Langues : Anglais (eng) Mots-clés : Anxiety/genetics  Autism Spectrum Disorder/genetics  Child  Child, Preschool  Germ Cells  Germ-Line Mutation  Humans  PTEN Phosphohydrolase/genetics  Parents  Anxiety  Executive functioning  Insistence on sameness  Macrocephaly  Pten Index. décimale : PER Périodiques Résumé : This study aimed to characterize the relationship between insistence on sameness (IS), executive functioning (EF) and anxiety among individuals with PTEN mutations and individuals with macrocephalic ASD. The sample included 38 individuals with PTEN mutation and ASD diagnosis (PTEN-ASD; M(age) = 8.93 years, SD(age) = 4.75), 23 with PTEN mutation without ASD (PTEN-no ASD; M(age) = 8.94 years; SD(age) = 4.85) and 25 with ASD and macrocephaly but with no PTEN mutation (Macro-ASD; M(age) = 11.99 years; SD(age) = 5.15). The final model accounted for 45.7% of variance in IS, with Set-Shifting EF subdomain as a unique independent predictor (t = 4.12, p < 0.001). This investigation provides the first preliminary evidence for the EF-anxiety-IS interrelationship in individuals with PTEN mutations and with macrocephalic ASD. En ligne : http://dx.doi.org/10.1007/s10803-021-04881-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] Brief Report: Role of Parent-Reported Executive Functioning and Anxiety in Insistence on Sameness in Individuals with Germline PTEN Mutations [texte imprimé] / Mirko ULJAREVIĆ, Auteur ; Thomas W. FRAZIER, Auteur ; Gaëlle RACHED, Auteur ; Robyn M. BUSCH, Auteur ; Patricia KLAAS, Auteur ; Siddharth SRIVASTAVA, Auteur ; Julian A. MARTINEZ-AGOSTO, Auteur ; Mustafa SAHIN, Auteur ; Charis ENG, Auteur ; Antonio Y. HARDAN, Auteur . - p.414-422. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.414-422 Mots-clés : Anxiety/genetics  Autism Spectrum Disorder/genetics  Child  Child, Preschool  Germ Cells  Germ-Line Mutation  Humans  PTEN Phosphohydrolase/genetics  Parents  Anxiety  Executive functioning  Insistence on sameness  Macrocephaly  Pten Index. décimale : PER Périodiques Résumé : This study aimed to characterize the relationship between insistence on sameness (IS), executive functioning (EF) and anxiety among individuals with PTEN mutations and individuals with macrocephalic ASD. The sample included 38 individuals with PTEN mutation and ASD diagnosis (PTEN-ASD; M(age) = 8.93 years, SD(age) = 4.75), 23 with PTEN mutation without ASD (PTEN-no ASD; M(age) = 8.94 years; SD(age) = 4.85) and 25 with ASD and macrocephaly but with no PTEN mutation (Macro-ASD; M(age) = 11.99 years; SD(age) = 5.15). The final model accounted for 45.7% of variance in IS, with Set-Shifting EF subdomain as a unique independent predictor (t = 4.12, p < 0.001). This investigation provides the first preliminary evidence for the EF-anxiety-IS interrelationship in individuals with PTEN mutations and with macrocephalic ASD. En ligne : http://dx.doi.org/10.1007/s10803-021-04881-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders / Thomas W. FRAZIER in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3965-3971 Titre : Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders Type de document : texte imprimé Auteurs : Thomas W. FRAZIER, Auteur ; Geraldine DAWSON, Auteur ; Donna S. MURRAY, Auteur ; Andy SHIH, Auteur ; Jessica Snyder SACHS, Auteur ; Angela GEIGER, Auteur Année de publication : 2018 Article en page(s) : p.3965-3971 Langues : Anglais (eng) Mots-clés : Adult transition  Autism  Caregivers  Funding  Research priorities  Stakeholders Index. décimale : PER Périodiques Résumé : Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1% female; 72.5% ages 30-59; 86.4% USA) completed the survey. Results indicated a preference for applied relative to basic science topics, though both basic and applied science areas were rated as important. Respondents gave their highest ratings to research focused on co-occurring conditions, health and well-being, adult transition, and lifespan issues. These results can guide decision-making by public and private funders when developing science funding priorities and engaging in science dissemination activities. En ligne : http://dx.doi.org/10.1007/s10803-018-3642-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders [texte imprimé] / Thomas W. FRAZIER, Auteur ; Geraldine DAWSON, Auteur ; Donna S. MURRAY, Auteur ; Andy SHIH, Auteur ; Jessica Snyder SACHS, Auteur ; Angela GEIGER, Auteur . - 2018 . - p.3965-3971. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3965-3971 Mots-clés : Adult transition  Autism  Caregivers  Funding  Research priorities  Stakeholders Index. décimale : PER Périodiques Résumé : Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1% female; 72.5% ages 30-59; 86.4% USA) completed the survey. Results indicated a preference for applied relative to basic science topics, though both basic and applied science areas were rated as important. Respondents gave their highest ratings to research focused on co-occurring conditions, health and well-being, adult transition, and lifespan issues. These results can guide decision-making by public and private funders when developing science funding priorities and engaging in science dissemination activities. En ligne : http://dx.doi.org/10.1007/s10803-018-3642-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives / Alicia GENG ; Luke D. SMILLIE ; Thomas W. FRAZIER ; Antonio Y. HARDAN ; Gail A. ALVAREZ ; Andrew WHITEHOUSE ; Rachel K. SCHUCK ; Susan R. LEEKAM ; Mirko ULJAREVIĆ in Journal of Autism and Developmental Disorders, 55-8 (August 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-8 (August 2025) . - p.2896-2908 Titre : Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives Type de document : texte imprimé Auteurs : Alicia GENG, Auteur ; Luke D. SMILLIE, Auteur ; Thomas W. FRAZIER, Auteur ; Antonio Y. HARDAN, Auteur ; Gail A. ALVAREZ, Auteur ; Andrew WHITEHOUSE, Auteur ; Rachel K. SCHUCK, Auteur ; Susan R. LEEKAM, Auteur ; Mirko ULJAREVIĆ, Auteur Article en page(s) : p.2896-2908 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Manifestations of insistence on sameness (IS) and circumscribed interests (CI) are complex, with individuals varying considerably, not only in the types of behaviours they express, but also in terms of a behaviour?s frequency, intensity, trajectory, adaptive benefits, and impacts. However, current quantitative RRB instruments capture only certain aspects of these behaviours (e.g., mostly frequency or general "severity"). Thus, the current study utilised a semi-structured caregiver interview to provide an in-depth, qualitative characterization of different aspects of IS and CI presentation. Caregivers of 27 autistic children and adolescents displaying IS and/or CI behaviours (3-16 years; 18 males; 9 females) participated in a semi-structured interview. Responses were analysed using thematic framework analysis. Framework analysis identified nine different aspects of IS and CI presentation: (1) intensity, (2) frequency, (3) emergence of behaviour, (4) changes over time, (5) day-to-day fluctuations, (6) purpose/adaptive benefit, (7) experiences of distress, (8) challenges for the individual, their family, and their socialisation, and (9) management strategies and their effectiveness. Autistic children and adolescents were reported to vary greatly on each of these dimensions. Findings demonstrate the complexity of IS and CI presentations and highlight the need for more comprehensive quantitative assessments that independently assess the frequency, intensity, and impact of behaviours. Further, findings reported here emphasize the need for ecologically valid measures that assess the contexts in which these behaviours occur and how their presentations can change within and across days. En ligne : https://doi.org/10.1007/s10803-024-06404-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=565 [article] Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives [texte imprimé] / Alicia GENG, Auteur ; Luke D. SMILLIE, Auteur ; Thomas W. FRAZIER, Auteur ; Antonio Y. HARDAN, Auteur ; Gail A. ALVAREZ, Auteur ; Andrew WHITEHOUSE, Auteur ; Rachel K. SCHUCK, Auteur ; Susan R. LEEKAM, Auteur ; Mirko ULJAREVIĆ, Auteur . - p.2896-2908. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-8 (August 2025) . - p.2896-2908 Index. décimale : PER Périodiques Résumé : Manifestations of insistence on sameness (IS) and circumscribed interests (CI) are complex, with individuals varying considerably, not only in the types of behaviours they express, but also in terms of a behaviour?s frequency, intensity, trajectory, adaptive benefits, and impacts. However, current quantitative RRB instruments capture only certain aspects of these behaviours (e.g., mostly frequency or general "severity"). Thus, the current study utilised a semi-structured caregiver interview to provide an in-depth, qualitative characterization of different aspects of IS and CI presentation. Caregivers of 27 autistic children and adolescents displaying IS and/or CI behaviours (3-16 years; 18 males; 9 females) participated in a semi-structured interview. Responses were analysed using thematic framework analysis. Framework analysis identified nine different aspects of IS and CI presentation: (1) intensity, (2) frequency, (3) emergence of behaviour, (4) changes over time, (5) day-to-day fluctuations, (6) purpose/adaptive benefit, (7) experiences of distress, (8) challenges for the individual, their family, and their socialisation, and (9) management strategies and their effectiveness. Autistic children and adolescents were reported to vary greatly on each of these dimensions. Findings demonstrate the complexity of IS and CI presentations and highlight the need for more comprehensive quantitative assessments that independently assess the frequency, intensity, and impact of behaviours. Further, findings reported here emphasize the need for ecologically valid measures that assess the contexts in which these behaviours occur and how their presentations can change within and across days. En ligne : https://doi.org/10.1007/s10803-024-06404-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=565

Characterizing restricted and unusual interests in autistic youth / Luke D. SMILLIE ; Thomas W. FRAZIER ; Antonio Y. HARDAN ; Gail A. ALVARES ; Andrew J.O. WHITEHOUSE ; Mirko ULJAREVIĆ in Autism Research, 16-2 (February 2023)  

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Characterizing subdomains of insistence on sameness in autistic youth / Luke D. SMILLIE ; Thomas W. FRAZIER ; Antonio Y. HARDAN ; Mirko ULJAREVIĆ in Autism Research, 16-12 (December 2023)  

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Commentary: The observed association between autistic severity measured by the Social Responsiveness Scale (SRS) and general psychopathology – a response to Hus et al.() / John N. CONSTANTINO in Journal of Child Psychology and Psychiatry, 54-6 (June 2013)  

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Confirmatory factor analytic structure and measurement invariance of quantitative autistic traits measured by the Social Responsiveness Scale-2 / Thomas W. FRAZIER in Autism, 18-1 (January 2014)  

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Cross-level analysis of molecular and neurobehavioral function in a prospective series of patients with germline heterozygous PTEN mutations with and without autism / Thomas W. FRAZIER in Molecular Autism, 12 (2021)  

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Cytoplasm-predominant Pten associates with increased region-specific brain tyrosine hydroxylase and dopamine D2 receptors in mouse model with autistic traits / Xin HE in Molecular Autism, (November 2015)  

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Demographic and clinical correlates of autism symptom domains and autism spectrum diagnosis / Thomas W. FRAZIER in Autism, 18-5 (July 2014)  

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Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders / Leslie A. MARKOWITZ in Autism, 20-7 (October 2016)  

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Development and validation of an Arabic language eye-tracking paradigm for the early screening and diagnosis of autism spectrum disorders in Qatar / Iman GHAZAL ; I. Richard THOMPSON ; Eric W. KLINGEMIER ; Mohammed ALDOSARI ; Hawraa AL-SHAMMARI ; Fatema AL-FARAJ ; Saba EL-HAG ; Mohamed TOLEFAT ; Mogahed ALI ; Bisher NASIR ; Thomas W. FRAZIER in Autism Research, 16-12 (December 2023)  

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Development of the Stanford Social Dimensions Scale: initial validation in autism spectrum disorder and in neurotypicals / Jennifer M. PHILLIPS in Molecular Autism, 10 (2019)  

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