Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child / Jake MEADS in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2411-2417 Titre : Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child Type de document : texte imprimé Auteurs : Jake MEADS, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur Article en page(s) : p.2411-2417 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The current study was a secondary analysis of cross-sectional data collected in New Zealand. Parents (n = 291) of an autistic child completed an online survey that included temporal/demographic questions relating to the parent and child, and parent ratings of the child?s core ASD symptoms, their parenting stress, and psychological well-being. Child and parent ages were related to ASD core symptoms, parenting stress, and psychological well-being, the parent-child age gap was not. Diagnostic delay was only positively associated with parent depression and negatively associated with child communication impairment. Findings indicated that temporal variables can be predictive of parent well-being and child autism symptoms. The findings suggest that focusing interventions on communication abilities may have positive impacts parental mental health. En ligne : https://doi.org/10.1007/s10803-022-05642-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child [texte imprimé] / Jake MEADS, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur . - p.2411-2417. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2411-2417 Index. décimale : PER Périodiques Résumé : The current study was a secondary analysis of cross-sectional data collected in New Zealand. Parents (n = 291) of an autistic child completed an online survey that included temporal/demographic questions relating to the parent and child, and parent ratings of the child?s core ASD symptoms, their parenting stress, and psychological well-being. Child and parent ages were related to ASD core symptoms, parenting stress, and psychological well-being, the parent-child age gap was not. Diagnostic delay was only positively associated with parent depression and negatively associated with child communication impairment. Findings indicated that temporal variables can be predictive of parent well-being and child autism symptoms. The findings suggest that focusing interventions on communication abilities may have positive impacts parental mental health. En ligne : https://doi.org/10.1007/s10803-022-05642-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Brief Report: Parent's Assessments of Their Care-Related Stress and Child's ASD Symptoms in Relation to Their child's Intervention History / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 48-8 (August 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2879-2885 Titre : Brief Report: Parent's Assessments of Their Care-Related Stress and Child's ASD Symptoms in Relation to Their child's Intervention History Type de document : texte imprimé Auteurs : Daniel SHEPHERD, Auteur ; Rita CSAKO, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur Article en page(s) : p.2879-2885 Langues : Anglais (eng) Mots-clés : Asd  Autism  Interventions  Parenting stress Index. décimale : PER Périodiques Résumé : Parenting a child with autism spectrum disorder (ASD) can be stressful. Understanding parent's perceptions of their stress and their child's ASD-related symptoms is important for both the well-being of parent and child and for other reasons, such as intervention adherence and diagnostic accuracy. We report parent (N = 570) ratings of both their ASD Care-Related Stress scores and their child's symptoms in relation to the child's exposure to five mainstream ASD interventions. Differences across intervention history in the way parents perceive their child's symptoms and rate the stressfulness of performing ASD-related parenting duties were found. En ligne : http://dx.doi.org/10.1007/s10803-018-3543-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] Brief Report: Parent's Assessments of Their Care-Related Stress and Child's ASD Symptoms in Relation to Their child's Intervention History [texte imprimé] / Daniel SHEPHERD, Auteur ; Rita CSAKO, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur . - p.2879-2885. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2879-2885 Mots-clés : Asd  Autism  Interventions  Parenting stress Index. décimale : PER Périodiques Résumé : Parenting a child with autism spectrum disorder (ASD) can be stressful. Understanding parent's perceptions of their stress and their child's ASD-related symptoms is important for both the well-being of parent and child and for other reasons, such as intervention adherence and diagnostic accuracy. We report parent (N = 570) ratings of both their ASD Care-Related Stress scores and their child's symptoms in relation to the child's exposure to five mainstream ASD interventions. Differences across intervention history in the way parents perceive their child's symptoms and rate the stressfulness of performing ASD-related parenting duties were found. En ligne : http://dx.doi.org/10.1007/s10803-018-3543-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

Documenting and Understanding Parent's Intervention Choices for Their Child with Autism Spectrum Disorder / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.988-1001 Titre : Documenting and Understanding Parent's Intervention Choices for Their Child with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Daniel SHEPHERD, Auteur ; Rita CSAKO, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur Article en page(s) : p.988-1001 Langues : Anglais (eng) Mots-clés : Asd  Autism  Intervention choice  Parent decision making Index. décimale : PER Périodiques Résumé : Understanding why parents choose some interventions but not others for their child with autism is important for a number of reasons. Estimating the proportion of evidence-based interventions engaged, identifying the agencies influencing parental decisions, and elucidating the barriers or reasons leading to intervention rejection or discontinuation can result in better service provision. New Zealand parents (n = 570) of a child with autism reported what interventions were being engaged, and why some interventions were engaged but not others. Funding was a major determinant of intervention engagement, while medical professionals exerted the most influence. Sources of support were not related to intervention engagement, but parental perceptions of their child's symptom severity were. Finally, non-engagement does not necessarily reflect parental opposition to an intervention, but rather the existence of barriers. En ligne : http://dx.doi.org/10.1007/s10803-017-3395-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351 [article] Documenting and Understanding Parent's Intervention Choices for Their Child with Autism Spectrum Disorder [texte imprimé] / Daniel SHEPHERD, Auteur ; Rita CSAKO, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur . - p.988-1001. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.988-1001 Mots-clés : Asd  Autism  Intervention choice  Parent decision making Index. décimale : PER Périodiques Résumé : Understanding why parents choose some interventions but not others for their child with autism is important for a number of reasons. Estimating the proportion of evidence-based interventions engaged, identifying the agencies influencing parental decisions, and elucidating the barriers or reasons leading to intervention rejection or discontinuation can result in better service provision. New Zealand parents (n = 570) of a child with autism reported what interventions were being engaged, and why some interventions were engaged but not others. Funding was a major determinant of intervention engagement, while medical professionals exerted the most influence. Sources of support were not related to intervention engagement, but parental perceptions of their child's symptom severity were. Finally, non-engagement does not necessarily reflect parental opposition to an intervention, but rather the existence of barriers. En ligne : http://dx.doi.org/10.1007/s10803-017-3395-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351

How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism / Sonja GOEDEKE in Research in Autism Spectrum Disorders, 60 (April 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 60 (April 2019) . - p.36-47 Titre : How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism Type de document : texte imprimé Auteurs : Sonja GOEDEKE, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Steve TAYLOR, Auteur Article en page(s) : p.36-47 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Perceived support  Care-related stress  ASD symptoms Index. décimale : PER Périodiques Résumé : Background Caring for a child with autism spectrum disorder (ASD) may be stressful and subsequently affect parents’ ability to manage their child’s symptoms. In this research, we explore the effects of perceived levels of support on parents’ care-related stress and on ASD symptoms. Method Participants (n = 585) completed an online survey which included ratings of support (partner, family, friend, professionals), how they perceived their child’s symptoms, their care-related stress, and ratings of their child’s interventions. Results Results indicate that parents perceive partners and families as providing greater support than friends and professionals. However, perceptions of family support decrease with both parent and child age. Perceived family support did not appear to influence parents’ perceptions of their child’s symptoms, although partner support moderated the relationship between particular symptom subsets and care-related stress. Professional support was related to a decrease in care-related stress levels. Finally, some sources of support were associated with perceived effectiveness and stress reduction in relation to specific interventions. Conclusions Partners and family provide an important support role for parents yet may need education and support to assist them in this role on an ongoing basis. Understanding how professionals can better support parents in their caregiving role is also important. En ligne : https://doi.org/10.1016/j.rasd.2019.01.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387 [article] How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism [texte imprimé] / Sonja GOEDEKE, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Steve TAYLOR, Auteur . - p.36-47. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 60 (April 2019) . - p.36-47 Mots-clés : Autism spectrum disorders  Perceived support  Care-related stress  ASD symptoms Index. décimale : PER Périodiques Résumé : Background Caring for a child with autism spectrum disorder (ASD) may be stressful and subsequently affect parents’ ability to manage their child’s symptoms. In this research, we explore the effects of perceived levels of support on parents’ care-related stress and on ASD symptoms. Method Participants (n = 585) completed an online survey which included ratings of support (partner, family, friend, professionals), how they perceived their child’s symptoms, their care-related stress, and ratings of their child’s interventions. Results Results indicate that parents perceive partners and families as providing greater support than friends and professionals. However, perceptions of family support decrease with both parent and child age. Perceived family support did not appear to influence parents’ perceptions of their child’s symptoms, although partner support moderated the relationship between particular symptom subsets and care-related stress. Professional support was related to a decrease in care-related stress levels. Finally, some sources of support were associated with perceived effectiveness and stress reduction in relation to specific interventions. Conclusions Partners and family provide an important support role for parents yet may need education and support to assist them in this role on an ongoing basis. Understanding how professionals can better support parents in their caregiving role is also important. En ligne : https://doi.org/10.1016/j.rasd.2019.01.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387

Parents’ assessments of their child’s autism-related interventions / Daniel SHEPHERD in Research in Autism Spectrum Disorders, 50 (June 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 50 (June 2018) . - p.1-10 Titre : Parents’ assessments of their child’s autism-related interventions Type de document : texte imprimé Auteurs : Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur ; Rita CSAKO, Auteur Année de publication : 2018 Article en page(s) : p.1-10 Langues : Anglais (eng) Mots-clés : Parent report  Autism spectrum disorder  Intervention effectiveness  Parenting stress Index. décimale : PER Périodiques Résumé : Background Interventions for autism spectrum disorders (ASD) are typically evaluated on the basis of symptom-focused outcome measures. These measures tend to be clinician rated and derived in clinical studies, whilst broader parental experiences are often neglected. Method Here we report a study of 585 parents of children diagnosed with ASD, focusing on their assessments of their child’s ASD Interventions, and how they are perceived to impact parental stress. Results Overall, high proportions of parents reported disengagement with treatment. The highest completion rates were evident with speech-language therapy, and the lowest with intensive applied behaviour analysis (iABA). However, parents reported the highest expectations, satisfaction and stress reduction with iABA. These paradoxical findings are perhaps due to the relative cost and lack of funding directed towards iABA. Conclusions Our research suggests that parental expectations and the factors influencing them are worthy of further investigation. More pertinently, parental ratings of intervention effectiveness along with current intervention engagement are a vital and often overlooked component of understanding the effects of interventions on children with ASD and their families. En ligne : https://doi.org/10.1016/j.rasd.2018.02.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=356 [article] Parents’ assessments of their child’s autism-related interventions [texte imprimé] / Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur ; Rita CSAKO, Auteur . - 2018 . - p.1-10. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 50 (June 2018) . - p.1-10 Mots-clés : Parent report  Autism spectrum disorder  Intervention effectiveness  Parenting stress Index. décimale : PER Périodiques Résumé : Background Interventions for autism spectrum disorders (ASD) are typically evaluated on the basis of symptom-focused outcome measures. These measures tend to be clinician rated and derived in clinical studies, whilst broader parental experiences are often neglected. Method Here we report a study of 585 parents of children diagnosed with ASD, focusing on their assessments of their child’s ASD Interventions, and how they are perceived to impact parental stress. Results Overall, high proportions of parents reported disengagement with treatment. The highest completion rates were evident with speech-language therapy, and the lowest with intensive applied behaviour analysis (iABA). However, parents reported the highest expectations, satisfaction and stress reduction with iABA. These paradoxical findings are perhaps due to the relative cost and lack of funding directed towards iABA. Conclusions Our research suggests that parental expectations and the factors influencing them are worthy of further investigation. More pertinently, parental ratings of intervention effectiveness along with current intervention engagement are a vital and often overlooked component of understanding the effects of interventions on children with ASD and their families. En ligne : https://doi.org/10.1016/j.rasd.2018.02.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=356

Predictors of Satisfaction with Life in Parents of Children with Autism Spectrum Disorder / Jason LANDON in Journal of Autism and Developmental Disorders, 48-5 (May 2018)  

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Symptom severity, caregiver stress and intervention helpfulness assessed using ratings from parents caring for a child with autism / Daniel SHEPHERD in Autism, 22-5 (July 2018)  

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The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

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The Types and Functions of Social Supports Used by Parents Caring for a Child With Autism Spectrum Disorder / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 50-4 (April 2020)  

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