'I definitely feel more in control of my life': The perspectives of young autistic people and their parents on emerging adulthood / S. CRIBB in Autism, 23-7 (October 2019)  

Public ISBD [article]  inAutism > 23-7 (October 2019) . - p.1765-1781 Titre : 'I definitely feel more in control of my life': The perspectives of young autistic people and their parents on emerging adulthood Type de document : Texte imprimé et/ou numérique Auteurs : S. CRIBB, Auteur ; L. KENNY, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.1765-1781 Langues : Anglais (eng) Mots-clés : autism  development  emerging adulthood  longitudinal  outcomes  qualitative Index. décimale : PER Périodiques Résumé : Long-term outcomes studies often paint a discouraging picture of the lives lived by autistic adults. Yet, their outcomes are often measured against normative markers of traditional adult roles, which may not apply to autistic people making the transition to adulthood. Here, we investigated the transition experiences of a group of young autistic people who were followed from childhood. Twenty-six young people and their parents (n = 28) participated in semistructured interviews on the process of transition and their aspirations for the future. Parents often voiced serious concerns about the ongoing support their children would require and the severe lack of services designed to support them as adults. Yet, overall, young people reported feeling more in control of their own lives, including developing a sense of identity and personal autonomy, both of which may be rooted in young autistic people's executive skills and their ability to develop and maintain trusting relationships with others - two potential candidate areas for targeted support. These results call into question whether the traditional standards to which we often hold young autistic people are developmentally appropriate and suggest that the pressures of striving towards more normative ways of engaging in the world may be detrimental to their well-being. En ligne : http://dx.doi.org/10.1177/1362361319830029 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406 [article] 'I definitely feel more in control of my life': The perspectives of young autistic people and their parents on emerging adulthood [Texte imprimé et/ou numérique] / S. CRIBB, Auteur ; L. KENNY, Auteur ; E. PELLICANO, Auteur . - p.1765-1781. Langues : Anglais (eng) in Autism > 23-7 (October 2019) . - p.1765-1781 Mots-clés : autism  development  emerging adulthood  longitudinal  outcomes  qualitative Index. décimale : PER Périodiques Résumé : Long-term outcomes studies often paint a discouraging picture of the lives lived by autistic adults. Yet, their outcomes are often measured against normative markers of traditional adult roles, which may not apply to autistic people making the transition to adulthood. Here, we investigated the transition experiences of a group of young autistic people who were followed from childhood. Twenty-six young people and their parents (n = 28) participated in semistructured interviews on the process of transition and their aspirations for the future. Parents often voiced serious concerns about the ongoing support their children would require and the severe lack of services designed to support them as adults. Yet, overall, young people reported feeling more in control of their own lives, including developing a sense of identity and personal autonomy, both of which may be rooted in young autistic people's executive skills and their ability to develop and maintain trusting relationships with others - two potential candidate areas for targeted support. These results call into question whether the traditional standards to which we often hold young autistic people are developmentally appropriate and suggest that the pressures of striving towards more normative ways of engaging in the world may be detrimental to their well-being. En ligne : http://dx.doi.org/10.1177/1362361319830029 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406

'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum / J. GALPIN in Autism, 22-5 (July 2018)  

Public ISBD [article]  inAutism > 22-5 (July 2018) . - p.571-584 Titre : 'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : J. GALPIN, Auteur ; P. BARRATT, Auteur ; E. ASHCROFT, Auteur ; S. GREATHEAD, Auteur ; L. KENNY, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.571-584 Langues : Anglais (eng) Mots-clés : autism  education  parents  participatory research  self-efficacy  services  support  wellbeing Index. décimale : PER Périodiques Résumé : Much research has documented the elevated levels of stress experienced by families of autistic children. Yet remarkably little research has examined the types of support that these families perceive to be beneficial to their lives. This study, co-produced by researchers and school-based professionals, sought to establish these families' support needs from their own perspectives. In total, 139 parents of autistic children with additional intellectual disabilities and limited spoken communication, all attending an inner-city London school, participated in an initial survey examining parental wellbeing, self-efficacy and the extent to which they felt supported. Semi-structured interviews were conducted with a subgroup of parents ( n = 17), some of whom reported in the survey that they felt unsupported, in order to gain their in-depth perspectives. The results from both the survey and the interviews suggested that existing support (particularly from formal support services) was not meeting parents' needs, which ultimately made them feel isolated and alienated. Parents who were interviewed called for service provision that adopted a relational, family-centred approach - one that understands the specific needs of the whole family, builds a close working relationship with them and ensures that they are supported at times when the parents and families feel they need it most. En ligne : http://dx.doi.org/10.1177/1362361316687989 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=366 [article] 'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum [Texte imprimé et/ou numérique] / J. GALPIN, Auteur ; P. BARRATT, Auteur ; E. ASHCROFT, Auteur ; S. GREATHEAD, Auteur ; L. KENNY, Auteur ; E. PELLICANO, Auteur . - p.571-584. Langues : Anglais (eng) in Autism > 22-5 (July 2018) . - p.571-584 Mots-clés : autism  education  parents  participatory research  self-efficacy  services  support  wellbeing Index. décimale : PER Périodiques Résumé : Much research has documented the elevated levels of stress experienced by families of autistic children. Yet remarkably little research has examined the types of support that these families perceive to be beneficial to their lives. This study, co-produced by researchers and school-based professionals, sought to establish these families' support needs from their own perspectives. In total, 139 parents of autistic children with additional intellectual disabilities and limited spoken communication, all attending an inner-city London school, participated in an initial survey examining parental wellbeing, self-efficacy and the extent to which they felt supported. Semi-structured interviews were conducted with a subgroup of parents ( n = 17), some of whom reported in the survey that they felt unsupported, in order to gain their in-depth perspectives. The results from both the survey and the interviews suggested that existing support (particularly from formal support services) was not meeting parents' needs, which ultimately made them feel isolated and alienated. Parents who were interviewed called for service provision that adopted a relational, family-centred approach - one that understands the specific needs of the whole family, builds a close working relationship with them and ensures that they are supported at times when the parents and families feel they need it most. En ligne : http://dx.doi.org/10.1177/1362361316687989 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=366

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