Anxiety and Interpretation of Ambiguity in Autistic Children, Typical Children and Their Mothers / L. NEIL in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1035-1047 Titre : Anxiety and Interpretation of Ambiguity in Autistic Children, Typical Children and Their Mothers Type de document : Texte imprimé et/ou numérique Auteurs : L. NEIL, Auteur ; H. WHITE, Auteur ; K. WARREN, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.1035-1047 Langues : Anglais (eng) Mots-clés : Anxiety  Autism  Child  Cognition Index. décimale : PER Périodiques Résumé : Anxiety is highly prevalent in autistic children. Yet interpretation biases implicated in anxiety in non-autistic individuals have received little research attention in this group. Twenty-two autistic children and 25 typical children completed an ambiguous scenarios interview and questionnaire-based measures of anxiety. A subsample of mothers completed parent-report and adult relevant versions of the interview and anxiety questionnaires. Autistic children self-reported similar interpretations of ambiguous scenarios, and similar levels of anxiety, to their typical peers. In contrast, mothers of autistic children reported greater levels of anxiety, and more negative interpretations of ambiguous scenarios in both their children and themselves, relative to mothers of typical children. These data highlight the importance of including autistic children's self-reports when measuring and treating anxiety. En ligne : http://dx.doi.org/10.1007/s10803-018-3781-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386 [article] Anxiety and Interpretation of Ambiguity in Autistic Children, Typical Children and Their Mothers [Texte imprimé et/ou numérique] / L. NEIL, Auteur ; H. WHITE, Auteur ; K. WARREN, Auteur ; E. PELLICANO, Auteur . - p.1035-1047. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1035-1047 Mots-clés : Anxiety  Autism  Child  Cognition Index. décimale : PER Périodiques Résumé : Anxiety is highly prevalent in autistic children. Yet interpretation biases implicated in anxiety in non-autistic individuals have received little research attention in this group. Twenty-two autistic children and 25 typical children completed an ambiguous scenarios interview and questionnaire-based measures of anxiety. A subsample of mothers completed parent-report and adult relevant versions of the interview and anxiety questionnaires. Autistic children self-reported similar interpretations of ambiguous scenarios, and similar levels of anxiety, to their typical peers. In contrast, mothers of autistic children reported greater levels of anxiety, and more negative interpretations of ambiguous scenarios in both their children and themselves, relative to mothers of typical children. These data highlight the importance of including autistic children's self-reports when measuring and treating anxiety. En ligne : http://dx.doi.org/10.1007/s10803-018-3781-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386

Color Afterimages in Autistic Adults / J. MAULE in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1409-1421 Titre : Color Afterimages in Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : J. MAULE, Auteur ; K. STANWORTH, Auteur ; E. PELLICANO, Auteur ; A. FRANKLIN, Auteur Article en page(s) : p.1409-1421 Langues : Anglais (eng) Mots-clés : Adaptation  Afterimages  Autism  Color  Top-down knowledge Index. décimale : PER Périodiques Résumé : It has been suggested that attenuated adaptation to visual stimuli in autism is the result of atypical perceptual priors (e.g., Pellicano and Burr in Trends Cogn Sci 16(10):504-510, 2012. doi: 10.1016/j.tics.2012.08.009 ). This study investigated adaptation to color in autistic adults, measuring both strength of afterimage and the influence of top-down knowledge. We found no difference in color afterimage strength between autistic and typical adults. Effects of top-down knowledge on afterimage intensity shown by Lupyan (Acta Psychol 161:117-130, 2015. doi: 10.1016/j.actpsy.2015.08.006 ) were not replicated for either group. This study finds intact color adaptation in autistic adults. This is in contrast to findings of attenuated adaptation to faces and numerosity in autistic children. Future research should investigate the possibility of developmental differences in adaptation and further examine top-down effects on adaptation. En ligne : http://dx.doi.org/10.1007/s10803-016-2786-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352 [article] Color Afterimages in Autistic Adults [Texte imprimé et/ou numérique] / J. MAULE, Auteur ; K. STANWORTH, Auteur ; E. PELLICANO, Auteur ; A. FRANKLIN, Auteur . - p.1409-1421. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1409-1421 Mots-clés : Adaptation  Afterimages  Autism  Color  Top-down knowledge Index. décimale : PER Périodiques Résumé : It has been suggested that attenuated adaptation to visual stimuli in autism is the result of atypical perceptual priors (e.g., Pellicano and Burr in Trends Cogn Sci 16(10):504-510, 2012. doi: 10.1016/j.tics.2012.08.009 ). This study investigated adaptation to color in autistic adults, measuring both strength of afterimage and the influence of top-down knowledge. We found no difference in color afterimage strength between autistic and typical adults. Effects of top-down knowledge on afterimage intensity shown by Lupyan (Acta Psychol 161:117-130, 2015. doi: 10.1016/j.actpsy.2015.08.006 ) were not replicated for either group. This study finds intact color adaptation in autistic adults. This is in contrast to findings of attenuated adaptation to faces and numerosity in autistic children. Future research should investigate the possibility of developmental differences in adaptation and further examine top-down effects on adaptation. En ligne : http://dx.doi.org/10.1007/s10803-016-2786-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352

Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout / J. M. HIGGINS in Autism, 25-8 (November 2021)  

Public ISBD [article]  inAutism > 25-8 (November 2021) . - p.2356-2369 Titre : Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout Type de document : Texte imprimé et/ou numérique Auteurs : J. M. HIGGINS, Auteur ; Samuel R. C. ARNOLD, Auteur ; J. WEISE, Auteur ; E. PELLICANO, Auteur ; J. N. TROLLOR, Auteur Article en page(s) : p.2356-2369 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Burnout, Psychological  Humans  Delphi  autistic burnout  burnout  definition  grounded theory Index. décimale : PER Périodiques Résumé : Autistic burnout has been commonly described in social media by autistic people. There is little mention of autistic burnout in the academic literature. Only one recent study has used interviews and reviews of social media descriptions to try to understand autistic burnout. Anecdotally, autistic burnout is a very debilitating condition that reduced people's daily living skills and can lead to suicide attempts. It is suggested that autistic burnout is caused by the stress of masking and living in an unaccommodating neurotypical world. We wanted to create a definition of autistic burnout that could be used by clinicians and the autism community. We used the Grounded Delphi method, which allowed autistic voice to lead the study. Autistic adults who had experienced autistic burnout were considered as experts on the topic, in the co-production of this definition. The definition describes autistic burnout as a condition involving exhaustion, withdrawal, problems with thinking, reduced daily living skills and increases in the manifestation of autistic traits. It is important for future research that there is a specific description of the condition. In practice, it is important for clinicians to be aware that autistic burnout is different from depression. Psychological treatments for depression potentially could make autistic burnout worse. Further awareness of autistic burnout is needed, as well as further research to prove this condition is separate from depression, chronic fatigue and non-autistic burnout. En ligne : http://dx.doi.org/10.1177/13623613211019858 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout [Texte imprimé et/ou numérique] / J. M. HIGGINS, Auteur ; Samuel R. C. ARNOLD, Auteur ; J. WEISE, Auteur ; E. PELLICANO, Auteur ; J. N. TROLLOR, Auteur . - p.2356-2369. Langues : Anglais (eng) in Autism > 25-8 (November 2021) . - p.2356-2369 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Burnout, Psychological  Humans  Delphi  autistic burnout  burnout  definition  grounded theory Index. décimale : PER Périodiques Résumé : Autistic burnout has been commonly described in social media by autistic people. There is little mention of autistic burnout in the academic literature. Only one recent study has used interviews and reviews of social media descriptions to try to understand autistic burnout. Anecdotally, autistic burnout is a very debilitating condition that reduced people's daily living skills and can lead to suicide attempts. It is suggested that autistic burnout is caused by the stress of masking and living in an unaccommodating neurotypical world. We wanted to create a definition of autistic burnout that could be used by clinicians and the autism community. We used the Grounded Delphi method, which allowed autistic voice to lead the study. Autistic adults who had experienced autistic burnout were considered as experts on the topic, in the co-production of this definition. The definition describes autistic burnout as a condition involving exhaustion, withdrawal, problems with thinking, reduced daily living skills and increases in the manifestation of autistic traits. It is important for future research that there is a specific description of the condition. In practice, it is important for clinicians to be aware that autistic burnout is different from depression. Psychological treatments for depression potentially could make autistic burnout worse. Further awareness of autistic burnout is needed, as well as further research to prove this condition is separate from depression, chronic fatigue and non-autistic burnout. En ligne : http://dx.doi.org/10.1177/13623613211019858 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Experiences of autistic and non-autistic individuals participating in a corporate internship scheme / A. REMINGTON in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.201-216 Titre : Experiences of autistic and non-autistic individuals participating in a corporate internship scheme Type de document : Texte imprimé et/ou numérique Auteurs : A. REMINGTON, Auteur ; B. HEASMAN, Auteur ; A. M. ROMUALDEZ, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.201-216 Langues : Anglais (eng) Mots-clés : autism  employment  internship  outcomes  work  of interest with respect to the research, authorship and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Autistic people can find it difficult to find and keep a job, and fewer autistic people are employed compared with people from other disability groups. There is not enough research in this area, especially research that directly compares the experiences of autistic and non-autistic colleagues starting in an organisation at the same time. Our study looked at the experiences of autistic and non-autistic people taking part in an internship at Deutsche Bank, UK. We spoke to the interns before the internship began, and again once it had finished. We also asked the interns' hiring managers about their experiences of the internship. We used interviews and online questionnaires to find out people's views. Before the programme began, managers of autistic interns were more worried about the internship than managers of the non-autistic interns. They were worried about providing the right level of support, communicating successfully and treating all their employees fairly. At the end of the internship, everyone felt that the internship was a success. Managers of autistic interns explained how the experience had made them better managers. Both groups of interns and said that they benefitted from clear communication and would have likes more support. Managers of autistic interns spoke about dividing tasks up into smaller chunks and being flexible in their communication were helpful when working with the autistic interns. More work is needed to make sure that autistic interns are integrated alongside non-autistic peers. One way to make this happen might be to create guides for managers. En ligne : http://dx.doi.org/10.1177/13623613211025115 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Experiences of autistic and non-autistic individuals participating in a corporate internship scheme [Texte imprimé et/ou numérique] / A. REMINGTON, Auteur ; B. HEASMAN, Auteur ; A. M. ROMUALDEZ, Auteur ; E. PELLICANO, Auteur . - p.201-216. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.201-216 Mots-clés : autism  employment  internship  outcomes  work  of interest with respect to the research, authorship and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Autistic people can find it difficult to find and keep a job, and fewer autistic people are employed compared with people from other disability groups. There is not enough research in this area, especially research that directly compares the experiences of autistic and non-autistic colleagues starting in an organisation at the same time. Our study looked at the experiences of autistic and non-autistic people taking part in an internship at Deutsche Bank, UK. We spoke to the interns before the internship began, and again once it had finished. We also asked the interns' hiring managers about their experiences of the internship. We used interviews and online questionnaires to find out people's views. Before the programme began, managers of autistic interns were more worried about the internship than managers of the non-autistic interns. They were worried about providing the right level of support, communicating successfully and treating all their employees fairly. At the end of the internship, everyone felt that the internship was a success. Managers of autistic interns explained how the experience had made them better managers. Both groups of interns and said that they benefitted from clear communication and would have likes more support. Managers of autistic interns spoke about dividing tasks up into smaller chunks and being flexible in their communication were helpful when working with the autistic interns. More work is needed to make sure that autistic interns are integrated alongside non-autistic peers. One way to make this happen might be to create guides for managers. En ligne : http://dx.doi.org/10.1177/13623613211025115 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Feasibility study of the National Autistic Society EarlyBird parent support programme / M. PALMER in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.147-159 Titre : Feasibility study of the National Autistic Society EarlyBird parent support programme Type de document : Texte imprimé et/ou numérique Auteurs : M. PALMER, Auteur ; Antonia SAN JOSE CACERES, Auteur ; J. TARVER, Auteur ; P. HOWLIN, Auteur ; V. SLONIMS, Auteur ; E. PELLICANO, Auteur ; Tony CHARMAN, Auteur Article en page(s) : p.147-159 Langues : Anglais (eng) Mots-clés : EarlyBird  autism  feasibility  intervention  psychoeducation Index. décimale : PER Périodiques Résumé : The EarlyBird programme is a group-based psychoeducation intervention for parents of young children with autism. Although it is widely used in the United Kingdom, the evidence base for the programme is very limited. Using a mixed method, non-randomised research design, we aimed to test (1) the acceptability of the research procedures (recruitment, retention, suitability of measures), (2) the parental acceptability of EarlyBird (attendance, views of the programme, perceived changes) and (3) the facilitator acceptability of EarlyBird (fidelity, views of the programme, perceived changes). Seventeen families with a 2- to 5-year-old autistic child and 10 EarlyBird facilitators took part. Pre- and post-intervention assessment included measures of the child's autism characteristics, cognitive ability, adaptive behaviour, emotional and behavioural problems and parent-reported autism knowledge, parenting competence, stress and wellbeing. Semi-structured interviews were completed at post-intervention with parents and facilitators. For those involved in the study, the research procedures were generally acceptable, retention rates were high and the research protocol was administered as planned. Generally, positive views of the intervention were expressed by parents and facilitators. Although the uncontrolled, within-participant design does not allow us to test for efficacy, change in several outcome measures from pre- to post-intervention was in the expected direction. Difficulties were encountered with recruitment (opt-in to the groups was ~56% and opt-in to the research was 63%), and strategies to enhance recruitment need to be built into any future trial. These findings should be used to inform protocols for pragmatic, controlled trials of EarlyBird and other group-based interventions for parents with young autistic children. En ligne : http://dx.doi.org/10.1177/1362361319851422 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Feasibility study of the National Autistic Society EarlyBird parent support programme [Texte imprimé et/ou numérique] / M. PALMER, Auteur ; Antonia SAN JOSE CACERES, Auteur ; J. TARVER, Auteur ; P. HOWLIN, Auteur ; V. SLONIMS, Auteur ; E. PELLICANO, Auteur ; Tony CHARMAN, Auteur . - p.147-159. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.147-159 Mots-clés : EarlyBird  autism  feasibility  intervention  psychoeducation Index. décimale : PER Périodiques Résumé : The EarlyBird programme is a group-based psychoeducation intervention for parents of young children with autism. Although it is widely used in the United Kingdom, the evidence base for the programme is very limited. Using a mixed method, non-randomised research design, we aimed to test (1) the acceptability of the research procedures (recruitment, retention, suitability of measures), (2) the parental acceptability of EarlyBird (attendance, views of the programme, perceived changes) and (3) the facilitator acceptability of EarlyBird (fidelity, views of the programme, perceived changes). Seventeen families with a 2- to 5-year-old autistic child and 10 EarlyBird facilitators took part. Pre- and post-intervention assessment included measures of the child's autism characteristics, cognitive ability, adaptive behaviour, emotional and behavioural problems and parent-reported autism knowledge, parenting competence, stress and wellbeing. Semi-structured interviews were completed at post-intervention with parents and facilitators. For those involved in the study, the research procedures were generally acceptable, retention rates were high and the research protocol was administered as planned. Generally, positive views of the intervention were expressed by parents and facilitators. Although the uncontrolled, within-participant design does not allow us to test for efficacy, change in several outcome measures from pre- to post-intervention was in the expected direction. Difficulties were encountered with recruitment (opt-in to the groups was ~56% and opt-in to the research was 63%), and strategies to enhance recruitment need to be built into any future trial. These findings should be used to inform protocols for pragmatic, controlled trials of EarlyBird and other group-based interventions for parents with young autistic children. En ligne : http://dx.doi.org/10.1177/1362361319851422 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

'I definitely feel more in control of my life': The perspectives of young autistic people and their parents on emerging adulthood / S. CRIBB in Autism, 23-7 (October 2019)  

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'It's different for girls': Gender differences in the friendships and conflict of autistic and neurotypical adolescents / F. SEDGEWICK in Autism, 23-5 (July 2019)  

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"Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation / R. STEWARD in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

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Making the future together: Shaping autism research through meaningful participation / Sue FLETCHER-WATSON in Autism, 23-4 (May 2019)  

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Meaningful research for autistic people? Ask autistics! / R. POULSEN in Autism, 26-1 (January 2022)  

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Parents' views and experiences of talking about autism with their children / L. CRANE in Autism, 23-8 (November 2019)  

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Participatory autism research: Early career and established researchers' views and experiences / H. PICKARD in Autism, 26-1 (January 2022)  

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'People should be allowed to do what they like': Autistic adults' views and experiences of stimming / Steven K. KAPP in Autism, 23-7 (October 2019)  

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Perceptions of social and work functioning are related to social anxiety and executive function in autistic adults / A. WOOLARD in Autism, 25-7 (October 2021)  

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A Portfolio Analysis of Autism Research Funding in Australia, 2008-2017 / Jacquiline DEN HOUTING in Journal of Autism and Developmental Disorders, 49-11 (November 2019)  

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