It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder / J. L. HILLMAN in Journal of Autism and Developmental Disorders, 49-1 (January 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.260-269 Titre : It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : J. L. HILLMAN, Auteur ; C. M. ANDERSON, Auteur Article en page(s) : p.260-269 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Caregiving  Coping  Custodial grandparents  Disabilities  Grandchildren  Kin networks  Respite  Strength-based approach  Tantrums  Wisdom Index. décimale : PER Périodiques Résumé : We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their "greatest challenges and joys" as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents' stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents' coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents' wisdom included patience and insight. Recommendations to support these caregivers are provided. En ligne : http://dx.doi.org/10.1007/s10803-018-3761-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377 [article] It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / J. L. HILLMAN, Auteur ; C. M. ANDERSON, Auteur . - p.260-269. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.260-269 Mots-clés : Autism spectrum disorder  Caregiving  Coping  Custodial grandparents  Disabilities  Grandchildren  Kin networks  Respite  Strength-based approach  Tantrums  Wisdom Index. décimale : PER Périodiques Résumé : We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their "greatest challenges and joys" as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents' stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents' coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents' wisdom included patience and insight. Recommendations to support these caregivers are provided. En ligne : http://dx.doi.org/10.1007/s10803-018-3761-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377

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