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Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders / Amber HARPER in Journal of Autism and Developmental Disorders, 43-11 (November 2013)
[article]
Titre : Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Amber HARPER, Auteur ; Tina Taylor DYCHES, Auteur ; James HARPER, Auteur ; Susanne Olsen ROPER, Auteur ; Mikle SOUTH, Auteur Article en page(s) : p.2604-2616 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders Marital quality Respite Social support Stress Mothers and fathers Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) are at risk for having higher stress and lower marital quality than other parents. Survey data regarding respite care, marital quality, and daily hassles and uplifts were obtained from 101 mother-father dyads who were together raising at least one child with ASD (total # of children = 118). Number of hours of respite care was positively related to improved marital quality for both husbands and wives, such that a 1-h increase in weekly respite care was associated with a one-half standard deviation increase in marital quality. This relationship was significantly mediated by perceived daily stresses and uplifts in both husbands and wives. More respite care was associated with increased uplifts and reduced stress; increased uplifts were associated with improved marital quality; and more stress was associated with reduced marital quality. The number of children in the family was associated with greater stress, and reduced relational quality and daily uplifts. Results suggest policymakers and practitioners should develop supports for providing respite for families raising children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-013-1812-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=217
in Journal of Autism and Developmental Disorders > 43-11 (November 2013) . - p.2604-2616[article] Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Amber HARPER, Auteur ; Tina Taylor DYCHES, Auteur ; James HARPER, Auteur ; Susanne Olsen ROPER, Auteur ; Mikle SOUTH, Auteur . - p.2604-2616.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 43-11 (November 2013) . - p.2604-2616
Mots-clés : Autism spectrum disorders Marital quality Respite Social support Stress Mothers and fathers Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) are at risk for having higher stress and lower marital quality than other parents. Survey data regarding respite care, marital quality, and daily hassles and uplifts were obtained from 101 mother-father dyads who were together raising at least one child with ASD (total # of children = 118). Number of hours of respite care was positively related to improved marital quality for both husbands and wives, such that a 1-h increase in weekly respite care was associated with a one-half standard deviation increase in marital quality. This relationship was significantly mediated by perceived daily stresses and uplifts in both husbands and wives. More respite care was associated with increased uplifts and reduced stress; increased uplifts were associated with improved marital quality; and more stress was associated with reduced marital quality. The number of children in the family was associated with greater stress, and reduced relational quality and daily uplifts. Results suggest policymakers and practitioners should develop supports for providing respite for families raising children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-013-1812-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=217 Use of equipment and respite services and caregiver health among Australian families living with Rett syndrome / Anna URBANOWICZ in Research in Autism Spectrum Disorders, 5-2 (April-June 2011)
[article]
Titre : Use of equipment and respite services and caregiver health among Australian families living with Rett syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Anna URBANOWICZ, Auteur ; Jenny DOWNS, Auteur ; Ami BEBBINGTON, Auteur ; Peter JACOBY, Auteur ; Sonya GIRDLER, Auteur ; Helen LEONARD, Auteur Année de publication : 2011 Article en page(s) : p.722-732 Langues : Anglais (eng) Mots-clés : Rett syndrome Respite Equipment Maternal health Maternal wellbeing SF-12 Index. décimale : PER Périodiques Résumé : This study assessed factors that could influence equipment and respite services use among Australian families caring for a girl/woman with Rett syndrome and examined relationships between use of these resources and the health of female caregivers. Data was sourced from questionnaires completed by families (n = 170) contributing to the Australian Rett Syndrome Database in 2004 and 2006. Regression analysis was used to assess relationships between child factors (age, mobility, clinical severity and behaviour), family factors (accessibility and socio-economic factors) and the use of equipment and respite services in 2004, and relationships between resource use in 2004 and health of female caregivers as measured by the SF-12 in 2006. In 2004, the majority (88.3%) of families used at least one piece of equipment with more equipment use associated with greater mobility restrictions. Home respite services were used by 54.9% of families and overnight respite services by 47.6% of families. Use of more home respite services was associated with severely restricted levels of mobility and mothers having a vocational or university qualification. Use of more overnight respite services was associated with increasing age of the girl/woman with Rett syndrome and mothers being employed while use of less overnight respite services was associated with increasingly difficult behaviours in the girl/woman. In 2006, female caregivers had a mean mental health score of 41.1 (95% CI 38.9–43.3) and no relationships with previous resource use were identified. The mean physical health score of female caregivers was 48.7 (95% CI 46.8–50.5) and lower scores were associated with the use of equipment and overnight respite services. Equipment was a widely used resource whereas respite services, particularly overnight services, were used less widely. Further investigation of the reasons for this and alternative support strategies is indicated. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.08.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114
in Research in Autism Spectrum Disorders > 5-2 (April-June 2011) . - p.722-732[article] Use of equipment and respite services and caregiver health among Australian families living with Rett syndrome [Texte imprimé et/ou numérique] / Anna URBANOWICZ, Auteur ; Jenny DOWNS, Auteur ; Ami BEBBINGTON, Auteur ; Peter JACOBY, Auteur ; Sonya GIRDLER, Auteur ; Helen LEONARD, Auteur . - 2011 . - p.722-732.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 5-2 (April-June 2011) . - p.722-732
Mots-clés : Rett syndrome Respite Equipment Maternal health Maternal wellbeing SF-12 Index. décimale : PER Périodiques Résumé : This study assessed factors that could influence equipment and respite services use among Australian families caring for a girl/woman with Rett syndrome and examined relationships between use of these resources and the health of female caregivers. Data was sourced from questionnaires completed by families (n = 170) contributing to the Australian Rett Syndrome Database in 2004 and 2006. Regression analysis was used to assess relationships between child factors (age, mobility, clinical severity and behaviour), family factors (accessibility and socio-economic factors) and the use of equipment and respite services in 2004, and relationships between resource use in 2004 and health of female caregivers as measured by the SF-12 in 2006. In 2004, the majority (88.3%) of families used at least one piece of equipment with more equipment use associated with greater mobility restrictions. Home respite services were used by 54.9% of families and overnight respite services by 47.6% of families. Use of more home respite services was associated with severely restricted levels of mobility and mothers having a vocational or university qualification. Use of more overnight respite services was associated with increasing age of the girl/woman with Rett syndrome and mothers being employed while use of less overnight respite services was associated with increasingly difficult behaviours in the girl/woman. In 2006, female caregivers had a mean mental health score of 41.1 (95% CI 38.9–43.3) and no relationships with previous resource use were identified. The mean physical health score of female caregivers was 48.7 (95% CI 46.8–50.5) and lower scores were associated with the use of equipment and overnight respite services. Equipment was a widely used resource whereas respite services, particularly overnight services, were used less widely. Further investigation of the reasons for this and alternative support strategies is indicated. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.08.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114 It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder / J. L. HILLMAN in Journal of Autism and Developmental Disorders, 49-1 (January 2019)
[article]
Titre : It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : J. L. HILLMAN, Auteur ; C. M. ANDERSON, Auteur Article en page(s) : p.260-269 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Caregiving Coping Custodial grandparents Disabilities Grandchildren Kin networks Respite Strength-based approach Tantrums Wisdom Index. décimale : PER Périodiques Résumé : We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their "greatest challenges and joys" as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents' stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents' coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents' wisdom included patience and insight. Recommendations to support these caregivers are provided. En ligne : http://dx.doi.org/10.1007/s10803-018-3761-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377
in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.260-269[article] It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / J. L. HILLMAN, Auteur ; C. M. ANDERSON, Auteur . - p.260-269.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.260-269
Mots-clés : Autism spectrum disorder Caregiving Coping Custodial grandparents Disabilities Grandchildren Kin networks Respite Strength-based approach Tantrums Wisdom Index. décimale : PER Périodiques Résumé : We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their "greatest challenges and joys" as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents' stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents' coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents' wisdom included patience and insight. Recommendations to support these caregivers are provided. En ligne : http://dx.doi.org/10.1007/s10803-018-3761-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377