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Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs / Jennifer L. HILLMAN in Journal of Autism and Developmental Disorders, 47-10 (October 2017)
[article]
Titre : Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer L. HILLMAN, Auteur ; Michele C. WENTZEL, Auteur ; Connie M. ANDERSON, Auteur Article en page(s) : p.2957-2968 Langues : Anglais (eng) Mots-clés : Grandparents Autism spectrum disorder Grandchildren Resilience Depression Coping Communication Tantrums Inappropriate behavior Index. décimale : PER Périodiques Résumé : Limited information is available regarding the first person perspective of grandparents of children with Autism Spectrum Disorders (ASD). In the present study, 1870 grandparents of a child with ASD participated in a nationwide, online, anonymous, 30-minute survey and responded to open-ended questions including their “greatest challenges and greatest joys” as the grandparent of a child on the autism spectrum. A grounded theory approach to qualitative analysis revealed four overarching categories: a Desire for Connection, Barriers to Care, Celebration of Progress, and Personal Reactions. Despite the presence of significant challenges grandparents often experienced positivity in their role, and engaged in radical acceptance of their grandchild as well as transformative insight and advocacy. Specific recommendations are offered to help address grandparents’ needs and capitalize upon their resilience. En ligne : https://doi.org/10.1007/s10803-017-3211-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319
in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.2957-2968[article] Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs [Texte imprimé et/ou numérique] / Jennifer L. HILLMAN, Auteur ; Michele C. WENTZEL, Auteur ; Connie M. ANDERSON, Auteur . - p.2957-2968.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.2957-2968
Mots-clés : Grandparents Autism spectrum disorder Grandchildren Resilience Depression Coping Communication Tantrums Inappropriate behavior Index. décimale : PER Périodiques Résumé : Limited information is available regarding the first person perspective of grandparents of children with Autism Spectrum Disorders (ASD). In the present study, 1870 grandparents of a child with ASD participated in a nationwide, online, anonymous, 30-minute survey and responded to open-ended questions including their “greatest challenges and greatest joys” as the grandparent of a child on the autism spectrum. A grounded theory approach to qualitative analysis revealed four overarching categories: a Desire for Connection, Barriers to Care, Celebration of Progress, and Personal Reactions. Despite the presence of significant challenges grandparents often experienced positivity in their role, and engaged in radical acceptance of their grandchild as well as transformative insight and advocacy. Specific recommendations are offered to help address grandparents’ needs and capitalize upon their resilience. En ligne : https://doi.org/10.1007/s10803-017-3211-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319 It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder / J. L. HILLMAN in Journal of Autism and Developmental Disorders, 49-1 (January 2019)
[article]
Titre : It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : J. L. HILLMAN, Auteur ; C. M. ANDERSON, Auteur Article en page(s) : p.260-269 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Caregiving Coping Custodial grandparents Disabilities Grandchildren Kin networks Respite Strength-based approach Tantrums Wisdom Index. décimale : PER Périodiques Résumé : We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their "greatest challenges and joys" as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents' stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents' coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents' wisdom included patience and insight. Recommendations to support these caregivers are provided. En ligne : http://dx.doi.org/10.1007/s10803-018-3761-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377
in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.260-269[article] It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / J. L. HILLMAN, Auteur ; C. M. ANDERSON, Auteur . - p.260-269.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.260-269
Mots-clés : Autism spectrum disorder Caregiving Coping Custodial grandparents Disabilities Grandchildren Kin networks Respite Strength-based approach Tantrums Wisdom Index. décimale : PER Périodiques Résumé : We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their "greatest challenges and joys" as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents' stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents' coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents' wisdom included patience and insight. Recommendations to support these caregivers are provided. En ligne : http://dx.doi.org/10.1007/s10803-018-3761-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377