Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders / Leslie A. MARKOWITZ in Autism, 20-7 (October 2016)  

Public ISBD [article]  inAutism > 20-7 (October 2016) . - p.832-844 Titre : Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders Type de document : texte imprimé Auteurs : Leslie A. MARKOWITZ, Auteur ; Charina REYES, Auteur ; Rebecca EMBACHER, Auteur ; Leslie L. SPEER, Auteur ; Nancy ROIZEN, Auteur ; Thomas W. FRAZIER, Auteur Article en page(s) : p.832-844 Langues : Anglais (eng) Mots-clés : autism  behavior problems  child functioning  developmental disabilities  family functioning  quality of life Index. décimale : PER Périodiques Résumé : This study investigated the psychometric properties of the Child and Family Quality of Life scale, a measure of psychosocial quality of life in those with autism and related developmental disorders. Parents of 212 children suspected of autism spectrum disorder completed the Child and Family Quality of Life prior to a diagnostic evaluation. Results indicated that the Child and Family Quality of Life measured six unique quality-of-life constructs (child, family/caregiver, financial, external support, partner relationship, and coping), had good reliability across score ranges and exhibited expected patterns of convergent validity. Caregivers of autism spectrum disorder–affected children reported reduced family quality of life prior to the time of diagnosis relative to caregivers of children with other developmental disabilities. The Child and Family Quality of Life is a brief, reliable measure for assessing psychosocial quality of life in families affected by developmental disability. This study is the first to demonstrate impairments in family quality of life early in the developmental course of autism spectrum disorder, prior to formal diagnosis. In addition to traditional child-focused intervention strategies, families with autism spectrum disorder–affected children require early, broad intervention strategies that positively impact the whole family. En ligne : http://dx.doi.org/10.1177/1362361315611382 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=293 [article] Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders [texte imprimé] / Leslie A. MARKOWITZ, Auteur ; Charina REYES, Auteur ; Rebecca EMBACHER, Auteur ; Leslie L. SPEER, Auteur ; Nancy ROIZEN, Auteur ; Thomas W. FRAZIER, Auteur . - p.832-844. Langues : Anglais (eng) in Autism > 20-7 (October 2016) . - p.832-844 Mots-clés : autism  behavior problems  child functioning  developmental disabilities  family functioning  quality of life Index. décimale : PER Périodiques Résumé : This study investigated the psychometric properties of the Child and Family Quality of Life scale, a measure of psychosocial quality of life in those with autism and related developmental disorders. Parents of 212 children suspected of autism spectrum disorder completed the Child and Family Quality of Life prior to a diagnostic evaluation. Results indicated that the Child and Family Quality of Life measured six unique quality-of-life constructs (child, family/caregiver, financial, external support, partner relationship, and coping), had good reliability across score ranges and exhibited expected patterns of convergent validity. Caregivers of autism spectrum disorder–affected children reported reduced family quality of life prior to the time of diagnosis relative to caregivers of children with other developmental disabilities. The Child and Family Quality of Life is a brief, reliable measure for assessing psychosocial quality of life in families affected by developmental disability. This study is the first to demonstrate impairments in family quality of life early in the developmental course of autism spectrum disorder, prior to formal diagnosis. In addition to traditional child-focused intervention strategies, families with autism spectrum disorder–affected children require early, broad intervention strategies that positively impact the whole family. En ligne : http://dx.doi.org/10.1177/1362361315611382 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=293

Psychometric evaluation of the revised child and family quality of life questionnaire (CFQL-2) / Thomas W. FRAZIER in Research in Autism Spectrum Disorders, 70 (February 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 70 (February 2020) . - p.101474 Titre : Psychometric evaluation of the revised child and family quality of life questionnaire (CFQL-2) Type de document : texte imprimé Auteurs : Thomas W. FRAZIER, Auteur ; Allison C. HYLAND, Auteur ; Leslie A. MARKOWITZ, Auteur ; Leslie L. SPEER, Auteur ; Elizabeth A. DIEKROGER, Auteur Article en page(s) : p.101474 Langues : Anglais (eng) Mots-clés : Autism  Quality of life  Neurodevelopmental  Sensitivity to change  Behavior problems Index. décimale : PER Périodiques Résumé : Background The revised Child and Family Quality of Life (CFQL-2) questionnaire was adapted from the original version to be shorter and more sensitive to changes in psychosocial quality of life (QoL) in families of children with Autism Spectrum Disorder (ASD) or related neurodevelopmental conditions. The present study examined the psychometric properties of the CFQL-2. Methods Caregivers of 566 patients presenting to an ASD-specific diagnostic clinic completed the CFQL-2 and other behavioral measurements as part of a diagnostic evaluation. Psychometric properties, including factor structure, internal consistency reliability, reliability across the latent trait, relationships with other clinical measures, and ASD vs. non-ASD group differences were examined for the total score and each subscale. Test-retest reliability and sensitivity to change were evaluated in a separate sleep intervention trial. Results Results indicated that the CFQL-2 reliably measured eight independent QoL domains (Child, Family, Caregiver, Financial, Social Network, Partner Relationship, Coping, and QoL Change), with good-to-excellent reliability across score ranges, good test-retest reliability, and expected relationships with other measures. The change subscale was slightly, but not significantly, more sensitive to change than the total score. Externalizing behavior problems in the child had a strong negative association with several aspects of QoL. Conclusion The CFQL-2 is a brief, reliable scale that effectively measures psychosocial aspects of QoL and is sensitive to changes in QoL in families of children with ASD or related neurodevelopmental disorders. Child externalizing behavior is strongly associated with reductions in multiple aspects of child and family psychosocial QoL. En ligne : https://doi.org/10.1016/j.rasd.2019.101474 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Psychometric evaluation of the revised child and family quality of life questionnaire (CFQL-2) [texte imprimé] / Thomas W. FRAZIER, Auteur ; Allison C. HYLAND, Auteur ; Leslie A. MARKOWITZ, Auteur ; Leslie L. SPEER, Auteur ; Elizabeth A. DIEKROGER, Auteur . - p.101474. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 70 (February 2020) . - p.101474 Mots-clés : Autism  Quality of life  Neurodevelopmental  Sensitivity to change  Behavior problems Index. décimale : PER Périodiques Résumé : Background The revised Child and Family Quality of Life (CFQL-2) questionnaire was adapted from the original version to be shorter and more sensitive to changes in psychosocial quality of life (QoL) in families of children with Autism Spectrum Disorder (ASD) or related neurodevelopmental conditions. The present study examined the psychometric properties of the CFQL-2. Methods Caregivers of 566 patients presenting to an ASD-specific diagnostic clinic completed the CFQL-2 and other behavioral measurements as part of a diagnostic evaluation. Psychometric properties, including factor structure, internal consistency reliability, reliability across the latent trait, relationships with other clinical measures, and ASD vs. non-ASD group differences were examined for the total score and each subscale. Test-retest reliability and sensitivity to change were evaluated in a separate sleep intervention trial. Results Results indicated that the CFQL-2 reliably measured eight independent QoL domains (Child, Family, Caregiver, Financial, Social Network, Partner Relationship, Coping, and QoL Change), with good-to-excellent reliability across score ranges, good test-retest reliability, and expected relationships with other measures. The change subscale was slightly, but not significantly, more sensitive to change than the total score. Externalizing behavior problems in the child had a strong negative association with several aspects of QoL. Conclusion The CFQL-2 is a brief, reliable scale that effectively measures psychosocial aspects of QoL and is sensitive to changes in QoL in families of children with ASD or related neurodevelopmental disorders. Child externalizing behavior is strongly associated with reductions in multiple aspects of child and family psychosocial QoL. En ligne : https://doi.org/10.1016/j.rasd.2019.101474 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

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