Application of the international classification of functioning, disability, and health in autism and attention-deficit hyperactivity disorder: A scoping review / Lovisa ALEHAGEN ; Sven BÖLTE ; Melissa H. BLACK in Autism, 29-2 (February 2025)  

Public ISBD [article]  inAutism > 29-2 (February 2025) . - p.310-328 Titre : Application of the international classification of functioning, disability, and health in autism and attention-deficit hyperactivity disorder: A scoping review : Autism Type de document : Texte imprimé et/ou numérique Auteurs : Lovisa ALEHAGEN, Auteur ; Sven BÖLTE, Auteur ; Melissa H. BLACK, Auteur Article en page(s) : p.310-328 Langues : Anglais (eng) Mots-clés : attention-deficit hyperactivity disorder  autism  International Classification of Functioning  Disability  and Health  International Classification of Functioning Core Sets  International Classification of Functioning  Disability  and Health-Youth and Child ver Index. décimale : PER Périodiques Résumé : The International Classification of Functioning, Disability, and Health is a biopsychosocial framework of health-related functioning designed to provide a unifying system for health care, social services, education, and policy sectors. Since its publication in 2001, the International Classification of Functioning has been used to guide clinical practice and research in autism and attention-deficit hyperactivity disorder. More recently, to promote its practical application, shorter versions of the International Classification of Functioning, known as Core Sets, have been developed for autism and attention-deficit hyperactivity disorder. This scoping review explored the application of the International Classification of Functioning and the International Classification of Functioning Core Sets in autism and attention-deficit hyperactivity disorder. Electronic database searches were conducted, resulting in 78 studies meeting the inclusion criteria. The results demonstrate a wide-ranging application of the International Classification of Functioning using different methods across various contexts. However, the majority of the research conducted focused on autism and primarily involved children. The review highlights that although the research implemented the International Classification of Functioning, it did not necessarily align with the underlying philosophy of the International Classification of Functioning framework, as the impact of the medical perspective still seems to influence research methodologies and interpretation. Nonetheless, the International Classification of Functioning presents opportunities to facilitate a shift from a strictly medical viewpoint on neurodevelopmental conditions to more comprehensive approaches. Lay abstract The International Classification of Functioning, Disability, and Health (ICF) is a framework designed by the World Health Organization (WHO) to help different sectors, such as healthcare, social services, education, and policy, understand how people with health-related issues function (do the things they want to and need to do) in their daily lives. This framework has also been used to guide clinical practice and research in autism and attention-deficit hyperactivity disorder (ADHD). To make it more practical, shorter versions of the ICF called Core Sets have been developed. We wanted to explore how the ICF and the ICF Core Sets have been used in research relating to autism and ADHD. We looked at the research that had been previously published on this topic by conducting a systematic search and review. Seventy-eight studies meeting our criteria were included in our review. Results show that the ICF has been applied in many ways across various contexts. However, most of the research has focused on autism, mainly involving children. The review highlights that although the ICF was used in some studies, the underlying philosophies of the framework were not always followed. The medical perspective still influenced the way research was done and interpreted. Nevertheless, using the ICF in the right way can help shift research on neurodevelopmental conditions like autism and ADHD toward a more holistic approach, moving away from solely focusing on medical aspects. En ligne : https://dx.doi.org/10.1177/13623613241272044 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 [article] Application of the international classification of functioning, disability, and health in autism and attention-deficit hyperactivity disorder: A scoping review : Autism [Texte imprimé et/ou numérique] / Lovisa ALEHAGEN, Auteur ; Sven BÖLTE, Auteur ; Melissa H. BLACK, Auteur . - p.310-328. Langues : Anglais (eng) in Autism > 29-2 (February 2025) . - p.310-328 Mots-clés : attention-deficit hyperactivity disorder  autism  International Classification of Functioning  Disability  and Health  International Classification of Functioning Core Sets  International Classification of Functioning  Disability  and Health-Youth and Child ver Index. décimale : PER Périodiques Résumé : The International Classification of Functioning, Disability, and Health is a biopsychosocial framework of health-related functioning designed to provide a unifying system for health care, social services, education, and policy sectors. Since its publication in 2001, the International Classification of Functioning has been used to guide clinical practice and research in autism and attention-deficit hyperactivity disorder. More recently, to promote its practical application, shorter versions of the International Classification of Functioning, known as Core Sets, have been developed for autism and attention-deficit hyperactivity disorder. This scoping review explored the application of the International Classification of Functioning and the International Classification of Functioning Core Sets in autism and attention-deficit hyperactivity disorder. Electronic database searches were conducted, resulting in 78 studies meeting the inclusion criteria. The results demonstrate a wide-ranging application of the International Classification of Functioning using different methods across various contexts. However, the majority of the research conducted focused on autism and primarily involved children. The review highlights that although the research implemented the International Classification of Functioning, it did not necessarily align with the underlying philosophy of the International Classification of Functioning framework, as the impact of the medical perspective still seems to influence research methodologies and interpretation. Nonetheless, the International Classification of Functioning presents opportunities to facilitate a shift from a strictly medical viewpoint on neurodevelopmental conditions to more comprehensive approaches. Lay abstract The International Classification of Functioning, Disability, and Health (ICF) is a framework designed by the World Health Organization (WHO) to help different sectors, such as healthcare, social services, education, and policy, understand how people with health-related issues function (do the things they want to and need to do) in their daily lives. This framework has also been used to guide clinical practice and research in autism and attention-deficit hyperactivity disorder (ADHD). To make it more practical, shorter versions of the ICF called Core Sets have been developed. We wanted to explore how the ICF and the ICF Core Sets have been used in research relating to autism and ADHD. We looked at the research that had been previously published on this topic by conducting a systematic search and review. Seventy-eight studies meeting our criteria were included in our review. Results show that the ICF has been applied in many ways across various contexts. However, most of the research has focused on autism, mainly involving children. The review highlights that although the ICF was used in some studies, the underlying philosophies of the framework were not always followed. The medical perspective still influenced the way research was done and interpreted. Nevertheless, using the ICF in the right way can help shift research on neurodevelopmental conditions like autism and ADHD toward a more holistic approach, moving away from solely focusing on medical aspects. En ligne : https://dx.doi.org/10.1177/13623613241272044 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547

Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers / Sharmila VAZ in Research in Autism Spectrum Disorders, 84 (June 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 84 (June 2021) . - 101765 Titre : Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Sharmila VAZ, Auteur ; Allyson THOMSON, Auteur ; Belinda CUOMO, Auteur ; Torbjörn FALKMER, Auteur ; Angela CHAMBERLAIN, Auteur ; Melissa H. BLACK, Auteur Article en page(s) : 101765 Langues : Anglais (eng) Mots-clés : Autism  Child  Disability  Family  Routine  Intellectual disability Index. décimale : PER Périodiques Résumé : Background Having a child on the autism spectrum (AS) is known to impact caregiver quality of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is common among children on the autism spectrum, with ID itself impacting caregiver outcomes. Method This study sought to understand how co-occurring ID in children on the autism spectrum may influence caregiver-related outcomes. Secondary analysis of survey data from caregivers of 278 children on the autism spectrum with (n?=?62) and without (n?=?216) co-occurring ID was conducted, exploring impacts on caregiver QoL, stress, coping, and time-use. Results Univariate analysis showed that caregivers of children on the autism spectrum with co-occurring ID reported greater levels of stress due to core symptoms and co-occurring physical conditions, and had different time use patterns then caregivers of children on the autism spectrum without co-occurring ID. Multivariate analysis, however, showed that caregivers of children on the autism spectrum with and without co-occurring ID differed only in the time they spent preparing meals, socialising with friends and accessing in-home respite care. Conclusions The presence of co-occurring ID in children on the autism spectrum had limited impacts on caregiver-related outcomes. Families of children across the entire AS require adequate supports. En ligne : https://doi.org/10.1016/j.rasd.2021.101765 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446 [article] Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers [Texte imprimé et/ou numérique] / Sharmila VAZ, Auteur ; Allyson THOMSON, Auteur ; Belinda CUOMO, Auteur ; Torbjörn FALKMER, Auteur ; Angela CHAMBERLAIN, Auteur ; Melissa H. BLACK, Auteur . - 101765. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 84 (June 2021) . - 101765 Mots-clés : Autism  Child  Disability  Family  Routine  Intellectual disability Index. décimale : PER Périodiques Résumé : Background Having a child on the autism spectrum (AS) is known to impact caregiver quality of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is common among children on the autism spectrum, with ID itself impacting caregiver outcomes. Method This study sought to understand how co-occurring ID in children on the autism spectrum may influence caregiver-related outcomes. Secondary analysis of survey data from caregivers of 278 children on the autism spectrum with (n?=?62) and without (n?=?216) co-occurring ID was conducted, exploring impacts on caregiver QoL, stress, coping, and time-use. Results Univariate analysis showed that caregivers of children on the autism spectrum with co-occurring ID reported greater levels of stress due to core symptoms and co-occurring physical conditions, and had different time use patterns then caregivers of children on the autism spectrum without co-occurring ID. Multivariate analysis, however, showed that caregivers of children on the autism spectrum with and without co-occurring ID differed only in the time they spent preparing meals, socialising with friends and accessing in-home respite care. Conclusions The presence of co-occurring ID in children on the autism spectrum had limited impacts on caregiver-related outcomes. Families of children across the entire AS require adequate supports. En ligne : https://doi.org/10.1016/j.rasd.2021.101765 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446

Cross-Cultural Adaptation to Australia of the KONTAKT© Social Skills Group Training Program for Youth with Autism Spectrum Disorder: A Feasibility Study / Bahareh AFSHARNEJAD in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4297-4316 Titre : Cross-Cultural Adaptation to Australia of the KONTAKT© Social Skills Group Training Program for Youth with Autism Spectrum Disorder: A Feasibility Study Type de document : Texte imprimé et/ou numérique Auteurs : Bahareh AFSHARNEJAD, Auteur ; Marita FALKMER, Auteur ; Melissa H. BLACK, Auteur ; Tasha ALACH, Auteur ; Fabian LENHARD, Auteur ; Anna FRIDELL, Auteur ; Christina COCO, Auteur ; Kelly MILNE, Auteur ; Nigel T. M. CHEN, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur Article en page(s) : p.4297-4316 Langues : Anglais (eng) Mots-clés : Adolescents  Autism spectrum disorder  Cross-cultural adaptation  Feasibility  Kontakt©  Social skills group training  Social skills intervention Index. décimale : PER Périodiques Résumé : This study investigated the feasibility and cultural validity of KONTAKT©, a manualised social skills group training, in improving the social functioning of adolescents with autism spectrum disorder (ASD). KONTAKT© was delivered to 17 adolescents (m(age)?=?14.09, SD(age)?=?1.43; 70% male) with ASD over sixteen 90 min sessions. A pre-test post-test design evaluated changes in personally meaningful social goals, symptom severity, quality of life, interpersonal efficacy, social anxiety, loneliness, and facial emotion recognition at pre, post and 3 months follow-up. Focus groups were conducted post intervention. Findings indicate that KONTAKT© may support Australian adolescents with ASD in achieving their personally meaningful social goals. This study resulted in finalisation of KONTAKT© in preparation for evaluation of its efficacy in a randomised controlled trial (Australian New Zealand Clinical Registry (ANZCTR): ACTRN12617001117303, ClinicalTrials.gov: NCT03294668). En ligne : http://dx.doi.org/10.1007/s10803-020-04477-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] Cross-Cultural Adaptation to Australia of the KONTAKT© Social Skills Group Training Program for Youth with Autism Spectrum Disorder: A Feasibility Study [Texte imprimé et/ou numérique] / Bahareh AFSHARNEJAD, Auteur ; Marita FALKMER, Auteur ; Melissa H. BLACK, Auteur ; Tasha ALACH, Auteur ; Fabian LENHARD, Auteur ; Anna FRIDELL, Auteur ; Christina COCO, Auteur ; Kelly MILNE, Auteur ; Nigel T. M. CHEN, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur . - p.4297-4316. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4297-4316 Mots-clés : Adolescents  Autism spectrum disorder  Cross-cultural adaptation  Feasibility  Kontakt©  Social skills group training  Social skills intervention Index. décimale : PER Périodiques Résumé : This study investigated the feasibility and cultural validity of KONTAKT©, a manualised social skills group training, in improving the social functioning of adolescents with autism spectrum disorder (ASD). KONTAKT© was delivered to 17 adolescents (m(age)?=?14.09, SD(age)?=?1.43; 70% male) with ASD over sixteen 90 min sessions. A pre-test post-test design evaluated changes in personally meaningful social goals, symptom severity, quality of life, interpersonal efficacy, social anxiety, loneliness, and facial emotion recognition at pre, post and 3 months follow-up. Focus groups were conducted post intervention. Findings indicate that KONTAKT© may support Australian adolescents with ASD in achieving their personally meaningful social goals. This study resulted in finalisation of KONTAKT© in preparation for evaluation of its efficacy in a randomised controlled trial (Australian New Zealand Clinical Registry (ANZCTR): ACTRN12617001117303, ClinicalTrials.gov: NCT03294668). En ligne : http://dx.doi.org/10.1007/s10803-020-04477-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

Disembedding performance and eye gaze behavior of adolescents with Autism Spectrum Disorder / Melissa H. BLACK in Research in Autism Spectrum Disorders, 66 (October 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 66 (October 2019) . - p.101417 Titre : Disembedding performance and eye gaze behavior of adolescents with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Melissa H. BLACK, Auteur ; Sharmila VAZ, Auteur ; Richard PARSONS, Auteur ; Torbjörn FALKMER, Auteur ; Julia S. Y. TANG, Auteur ; Susan MORRIS, Auteur ; Hoe LEE, Auteur ; Marita FALKMER, Auteur Article en page(s) : p.101417 Langues : Anglais (eng) Mots-clés : Eye tracking  Local bias  Weak central coherence  Enhanced perceptual functioning Index. décimale : PER Périodiques Résumé : Background Atypical visual perception in individuals with Autism Spectrum Disorders (ASD) may contribute to superiority in disembedding tasks. Gaze behavior has provided some insights in to mechanisms underlying this purported superiority in children, however evidence is limited and requires additional investigation. Method The performance and gaze behavior of 27 adolescents with ASD and 27 matched typically developing (TD) peers were examined during the Figure Ground Subtest of the Test of Visual Perception Skills-third edition (TVPS-3). Results Compared to their TD counterparts, adolescents with ASD were no different in accuracy, however, had a longer response time. Differences in gaze behavior were also observed, characterized by adolescents with ASD spending less time viewing the incorrect and target figures, and spending a greater proportion of time viewing irrelevant areas of the stimuli compared to TD adolescents. Conclusions Results suggest that while altered visual perception was observed, this did not contribute to superiority in disembedding tasks in adolescents with ASD. Future research is required to elucidate conditions under which altered visual perception may contribute to behavioral superiority. En ligne : https://doi.org/10.1016/j.rasd.2019.101417 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404 [article] Disembedding performance and eye gaze behavior of adolescents with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Melissa H. BLACK, Auteur ; Sharmila VAZ, Auteur ; Richard PARSONS, Auteur ; Torbjörn FALKMER, Auteur ; Julia S. Y. TANG, Auteur ; Susan MORRIS, Auteur ; Hoe LEE, Auteur ; Marita FALKMER, Auteur . - p.101417. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101417 Mots-clés : Eye tracking  Local bias  Weak central coherence  Enhanced perceptual functioning Index. décimale : PER Périodiques Résumé : Background Atypical visual perception in individuals with Autism Spectrum Disorders (ASD) may contribute to superiority in disembedding tasks. Gaze behavior has provided some insights in to mechanisms underlying this purported superiority in children, however evidence is limited and requires additional investigation. Method The performance and gaze behavior of 27 adolescents with ASD and 27 matched typically developing (TD) peers were examined during the Figure Ground Subtest of the Test of Visual Perception Skills-third edition (TVPS-3). Results Compared to their TD counterparts, adolescents with ASD were no different in accuracy, however, had a longer response time. Differences in gaze behavior were also observed, characterized by adolescents with ASD spending less time viewing the incorrect and target figures, and spending a greater proportion of time viewing irrelevant areas of the stimuli compared to TD adolescents. Conclusions Results suggest that while altered visual perception was observed, this did not contribute to superiority in disembedding tasks in adolescents with ASD. Future research is required to elucidate conditions under which altered visual perception may contribute to behavioral superiority. En ligne : https://doi.org/10.1016/j.rasd.2019.101417 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404

From Symptomatology to Functioning - Applying the ICF to Autism Measures to Facilitate Neurodiversity-Affirmative Data Harmonization / Melissa H. BLACK ; Karl Lundin Remnélius ; Lovisa ALEHAGEN ; Thomas BOURGERON ; Sven BÖLTE in Journal of Autism and Developmental Disorders, 55-1 (January 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.114-129 Titre : From Symptomatology to Functioning - Applying the ICF to Autism Measures to Facilitate Neurodiversity-Affirmative Data Harmonization : Journal of Autism and Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Melissa H. BLACK, Auteur ; Karl Lundin Remnélius, Auteur ; Lovisa ALEHAGEN, Auteur ; Thomas BOURGERON, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.114-129 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : A considerable number of screening and diagnostic tools for autism exist, but variability in these measures presents challenges to data harmonization and the comparability and generalizability of findings. At the same time, there is a movement away from autism symptomatology to stances that capture heterogeneity and appreciate diversity. The International Classification of Functioning, Disability and Health (ICF) provides a classification system that can support content harmonization of different screening and diagnostic tools for autism while enabling the translation of diagnostic information into functioning. En ligne : https://doi.org/10.1007/s10803-023-06204-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] From Symptomatology to Functioning - Applying the ICF to Autism Measures to Facilitate Neurodiversity-Affirmative Data Harmonization : Journal of Autism and Developmental Disorders [Texte imprimé et/ou numérique] / Melissa H. BLACK, Auteur ; Karl Lundin Remnélius, Auteur ; Lovisa ALEHAGEN, Auteur ; Thomas BOURGERON, Auteur ; Sven BÖLTE, Auteur . - p.114-129. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.114-129 Index. décimale : PER Périodiques Résumé : A considerable number of screening and diagnostic tools for autism exist, but variability in these measures presents challenges to data harmonization and the comparability and generalizability of findings. At the same time, there is a movement away from autism symptomatology to stances that capture heterogeneity and appreciate diversity. The International Classification of Functioning, Disability and Health (ICF) provides a classification system that can support content harmonization of different screening and diagnostic tools for autism while enabling the translation of diagnostic information into functioning. En ligne : https://doi.org/10.1007/s10803-023-06204-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

"He Sees his Autism as a Strength, Not a Deficit Now": A Repeated Cross-Sectional Study Investigating the Impact of Strengths-Based Programs on Autistic Adolescents / Elinda Ai Lim LEE in Journal of Autism and Developmental Disorders, 54-5 (May 2024)  

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"I Met Someone Like Me!": Autistic Adolescents and Their Parents' Experience of the KONTAKT® Social Skills Group Training / Bahareh AFSHARNEJAD in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

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Motivation to participate in structured physical activity for autistic youth: A systematic scoping review / Michelle L. WONG in Autism, 28-10 (October 2024)  

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Multi-informant International Perspectives on the Facilitators and Barriers to Employment for Autistic Adults / Melissa H. BLACK in Autism Research, 13-7 (July 2020)  

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Success Factors Enabling Employment for Adults on the Autism Spectrum from Employers' Perspective / Jessica DREAVER in Journal of Autism and Developmental Disorders, 50-5 (May 2020)  

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Suitability of the DSM-5 social anxiety disorder severity scale for autistic adults / Simon G. BRETT in Autism, 29-3 (March 2025)  

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"That impending dread sort of feeling": Experiences of social interaction from the perspectives of autistic adults / Melissa H. BLACK in Research in Autism Spectrum Disorders, 101 (March 2023)  

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The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets / Lovisa ALEHAGEN ; Melissa H. BLACK ; John HASSLINGER ; Elina WESSMAN ; Karl LUNDIN REMNÉLIUS ; Peter B. MARSCHIK ; Emily D?ARCY ; Susanna CROWSON ; Megan FREETH ; Andreas SEIDEL ; Sonya GIRDLER ; Eric ZANDER in Autism, 28-9 (September 2024)  

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The Methodological Quality and Intervention Fidelity of Randomised Controlled Trials Evaluating Social Skills Group Programs in Autistic Adolescents: A Systematic Review and Meta-analysis / Bahareh AFSHARNEJAD in Journal of Autism and Developmental Disorders, 54-4 (April 2024)  

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"We Can See a Bright Future": Parents' Perceptions of the Outcomes of Participating in a Strengths-Based Program for Adolescents with Autism Spectrum Disorder / Elinda Ai Lim LEE in Journal of Autism and Developmental Disorders, 50-9 (September 2020)  

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