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Family level processes associated with outcomes for individuals with autism spectrum disorder: A scoping review / Jessica L. GREENLEE in Research in Autism Spectrum Disorders, 53 (September 2018)
[article]
Titre : Family level processes associated with outcomes for individuals with autism spectrum disorder: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Jessica L. GREENLEE, Auteur ; Marcia A. WINTER, Auteur ; Joshua John DIEHL, Auteur Article en page(s) : p.41-52 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Family Family systems theory Family functioning Family processes Index. décimale : PER Périodiques Résumé : Background Families of individuals with autism spectrum disorder (ASD) face distinct challenges, and there is a need for research that attends specifically to the family. Despite the recognition of reciprocal influences in the family, research on families of individuals with ASD has tended to focus on child effects within a dyadic subsystem and not necessarily family effects. Thus, this review focuses on whether and how family processes are associated with the behavioral, social, and/or emotional development of individuals with ASD. Method A scoping review was conducted to synthesize existing empirical literature regarding links from family functioning to individual outcomes. Family systems approaches are used along with ecological models to provide an inclusive, guiding framework for research design and interpretation of findings in family-based ASD research. Results Results suggest that family-wide factors such as adaptability, cohesion, social support, dynamics, and functioning may be important for child development. However, the heterogeneity of the body of literature reviewed makes definitive conclusions difficult. Conclusions Recommendations for future research, including the need for theoretically grounded, developmentally appropriate, models that highlight the unique strengths, challenges, and cultural influences of families of an individual with ASD are discussed. En ligne : https://doi.org/10.1016/j.rasd.2018.06.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368
in Research in Autism Spectrum Disorders > 53 (September 2018) . - p.41-52[article] Family level processes associated with outcomes for individuals with autism spectrum disorder: A scoping review [Texte imprimé et/ou numérique] / Jessica L. GREENLEE, Auteur ; Marcia A. WINTER, Auteur ; Joshua John DIEHL, Auteur . - p.41-52.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 53 (September 2018) . - p.41-52
Mots-clés : Autism spectrum disorder Family Family systems theory Family functioning Family processes Index. décimale : PER Périodiques Résumé : Background Families of individuals with autism spectrum disorder (ASD) face distinct challenges, and there is a need for research that attends specifically to the family. Despite the recognition of reciprocal influences in the family, research on families of individuals with ASD has tended to focus on child effects within a dyadic subsystem and not necessarily family effects. Thus, this review focuses on whether and how family processes are associated with the behavioral, social, and/or emotional development of individuals with ASD. Method A scoping review was conducted to synthesize existing empirical literature regarding links from family functioning to individual outcomes. Family systems approaches are used along with ecological models to provide an inclusive, guiding framework for research design and interpretation of findings in family-based ASD research. Results Results suggest that family-wide factors such as adaptability, cohesion, social support, dynamics, and functioning may be important for child development. However, the heterogeneity of the body of literature reviewed makes definitive conclusions difficult. Conclusions Recommendations for future research, including the need for theoretically grounded, developmentally appropriate, models that highlight the unique strengths, challenges, and cultural influences of families of an individual with ASD are discussed. En ligne : https://doi.org/10.1016/j.rasd.2018.06.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368 Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? / L. MYERS in Journal of Autism and Developmental Disorders, 51-9 (September 2021)
[article]
Titre : Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? Type de document : Texte imprimé et/ou numérique Auteurs : L. MYERS, Auteur ; S. M. KARP, Auteur ; M. S. DIETRICH, Auteur ; W. S. LOOMAN, Auteur ; M. LUTENBACHER, Auteur Article en page(s) : p.3073-3084 Langues : Anglais (eng) Mots-clés : Anxiety Disorders Autism Spectrum Disorder/diagnosis Child Family Humans Parents Patient-Centered Care Autism spectrum disorders Communication Diagnosis Family-centered care Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04765-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3073-3084[article] Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? [Texte imprimé et/ou numérique] / L. MYERS, Auteur ; S. M. KARP, Auteur ; M. S. DIETRICH, Auteur ; W. S. LOOMAN, Auteur ; M. LUTENBACHER, Auteur . - p.3073-3084.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3073-3084
Mots-clés : Anxiety Disorders Autism Spectrum Disorder/diagnosis Child Family Humans Parents Patient-Centered Care Autism spectrum disorders Communication Diagnosis Family-centered care Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04765-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Family Empowerment: Predicting Service Utilization for Children with Autism Spectrum Disorder / Patricia K. ZEMANTIC in Journal of Autism and Developmental Disorders, 52-11 (November 2022)
[article]
Titre : Family Empowerment: Predicting Service Utilization for Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Patricia K. ZEMANTIC, Auteur ; Evangeline C. KURTZ-NELSON, Auteur ; Hannah BARTON, Auteur ; Jonathan SAFER-LICHTENSTEIN, Auteur ; Laura Lee MCINTYRE, Auteur Article en page(s) : p.4986-4993 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology/therapy Child Complementary Therapies Family Humans Autism Early intervention Family empowerment Service utilization Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder (ASD) often utilize a variety of services. Relatively few studies have examined the relationship between family empowerment and service utilization for this population. The present study investigated the relationship between family empowerment and service utilization in families of children with ASD from the Pacific Northwest. Family empowerment did not predict the use of behavioral services or established related services. However, higher family empowerment was reported for families who reported use of complementary and alternative medicine. Implications for future research and clinical practice are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-05329-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4986-4993[article] Family Empowerment: Predicting Service Utilization for Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Patricia K. ZEMANTIC, Auteur ; Evangeline C. KURTZ-NELSON, Auteur ; Hannah BARTON, Auteur ; Jonathan SAFER-LICHTENSTEIN, Auteur ; Laura Lee MCINTYRE, Auteur . - p.4986-4993.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4986-4993
Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology/therapy Child Complementary Therapies Family Humans Autism Early intervention Family empowerment Service utilization Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder (ASD) often utilize a variety of services. Relatively few studies have examined the relationship between family empowerment and service utilization for this population. The present study investigated the relationship between family empowerment and service utilization in families of children with ASD from the Pacific Northwest. Family empowerment did not predict the use of behavioral services or established related services. However, higher family empowerment was reported for families who reported use of complementary and alternative medicine. Implications for future research and clinical practice are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-05329-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Family Impact During the Time Between Autism Screening and Definitive Diagnosis / Emily J. HICKEY in Journal of Autism and Developmental Disorders, 52-11 (November 2022)
[article]
Titre : Family Impact During the Time Between Autism Screening and Definitive Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Emily J. HICKEY, Auteur ; Emily FEINBERG, Auteur ; Jocelyn KUHN, Auteur ; Howard J. CABRAL, Auteur ; Sarabeth BRODER-FINGERT, Auteur Article en page(s) : p.4908-4920 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology Autistic Disorder Child Child Behavior Family Humans Parents Autism Spectrum Disorder Autism risk Child functioning Developmental disability Difficult child behavior Family impact Index. décimale : PER Périodiques Résumé : Over the past 10Â years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis-a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child's behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274]=5.82, p=.017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6]=13.11, p < .001) than later diagnostic group (t[6]=-Â 2.10, p=.037), and child functioning did not predict family impact (t[6]=-0.31, p=.76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support. En ligne : http://dx.doi.org/10.1007/s10803-021-05354-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4908-4920[article] Family Impact During the Time Between Autism Screening and Definitive Diagnosis [Texte imprimé et/ou numérique] / Emily J. HICKEY, Auteur ; Emily FEINBERG, Auteur ; Jocelyn KUHN, Auteur ; Howard J. CABRAL, Auteur ; Sarabeth BRODER-FINGERT, Auteur . - p.4908-4920.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4908-4920
Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology Autistic Disorder Child Child Behavior Family Humans Parents Autism Spectrum Disorder Autism risk Child functioning Developmental disability Difficult child behavior Family impact Index. décimale : PER Périodiques Résumé : Over the past 10Â years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis-a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child's behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274]=5.82, p=.017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6]=13.11, p < .001) than later diagnostic group (t[6]=-Â 2.10, p=.037), and child functioning did not predict family impact (t[6]=-0.31, p=.76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support. En ligne : http://dx.doi.org/10.1007/s10803-021-05354-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development / Catherine C. DICK in Journal of Autism and Developmental Disorders, 52-9 (September 2022)
[article]
Titre : Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development Type de document : Texte imprimé et/ou numérique Auteurs : Catherine C. DICK, Auteur ; Lisa V. IBAÑEZ, Auteur ; Trent D. DESCHAMPS, Auteur ; Shana M. ATTAR, Auteur ; Wendy L. STONE, Auteur Article en page(s) : p.4181-4190 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Caregivers Child, Preschool Early Intervention, Educational Family Humans Patient-Centered Care Autism concerns Autism spectrum disorder Caregiver experiences Early intervention Family-centered care Primary care Service delivery Index. décimale : PER Périodiques Résumé : Family-centered care represents a collaborative partnership between caregivers and service providers, and is associated with positive caregiver and child outcomes. This approach may be especially important for caregivers with early concerns about autism, as service providers are often the gateway to appropriately-specialized intervention. Perceptions of family-centered care received from primary care providers (PCPs) and Part C Early Intervention (EI) providers were rated by two groups of caregivers: those concerned about autism (n=37) and those concerned about another developmental problem (n=22), using the Measure of Processes of Care (MPOC-20). Ratings did not differ across caregiver groups, but both groups rated EI providers significantly higher than PCPs, which may reflect systems-level differences between primary care and EI. En ligne : http://dx.doi.org/10.1007/s10803-021-05248-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4181-4190[article] Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development [Texte imprimé et/ou numérique] / Catherine C. DICK, Auteur ; Lisa V. IBAÑEZ, Auteur ; Trent D. DESCHAMPS, Auteur ; Shana M. ATTAR, Auteur ; Wendy L. STONE, Auteur . - p.4181-4190.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4181-4190
Mots-clés : Autism Spectrum Disorder Caregivers Child, Preschool Early Intervention, Educational Family Humans Patient-Centered Care Autism concerns Autism spectrum disorder Caregiver experiences Early intervention Family-centered care Primary care Service delivery Index. décimale : PER Périodiques Résumé : Family-centered care represents a collaborative partnership between caregivers and service providers, and is associated with positive caregiver and child outcomes. This approach may be especially important for caregivers with early concerns about autism, as service providers are often the gateway to appropriately-specialized intervention. Perceptions of family-centered care received from primary care providers (PCPs) and Part C Early Intervention (EI) providers were rated by two groups of caregivers: those concerned about autism (n=37) and those concerned about another developmental problem (n=22), using the Measure of Processes of Care (MPOC-20). Ratings did not differ across caregiver groups, but both groups rated EI providers significantly higher than PCPs, which may reflect systems-level differences between primary care and EI. En ligne : http://dx.doi.org/10.1007/s10803-021-05248-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 Family Emotional Climate and Children with Autism Spectrum Disorder / E. J. HICKEY in Journal of Autism and Developmental Disorders, 49-8 (August 2019)
PermalinkFamily influences on social and play outcomes among children with ASD during middle childhood / Paul R. BENSON in Research in Autism Spectrum Disorders, 7-9 (September 2013)
PermalinkAutism severity aggregates with family psychiatric history in a community-based autism sample / D. SIPSOCK in Autism Research, 14-12 (December 2021)
PermalinkCross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 25-5 (July 2021)
PermalinkCross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 26-5 (July 2022)
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