"Different but connected": Participatory action research using Photovoice to explore well-being in autistic young adults / Gary Yu Hin LAM in Autism, 24-5 (July 2020)  

Public ISBD [article]  inAutism > 24-5 (July 2020) . - p.1246-1259 Titre : "Different but connected": Participatory action research using Photovoice to explore well-being in autistic young adults Type de document : Texte imprimé et/ou numérique Auteurs : Gary Yu Hin LAM, Auteur ; Emily HOLDEN, Auteur ; Megan FITZPATRICK, Auteur ; Linda RAFFAELE MENDEZ, Auteur ; Karen BERKMAN, Auteur Article en page(s) : p.1246-1259 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  participatory research  qualitative research  quality of life  transition Index. décimale : PER Périodiques Résumé : Past research has mainly focused on autistic people's deficits and poor outcomes compared to other groups of people. Little is known about their positive life experiences, and how to support them to achieve a higher quality of life. It is important to include autistic individuals in research so that they can influence how their voices are represented in a meaningful way and how the research results will be useful to them. In this study, a university researcher collaborated with 14 autistic young adults in a post-school transition program to design and run the research, collect and analyze the data, and use the results to create a presentation to the community. Specifically, the participants took photos in daily life and discussed their ideas about what a good life means to them. Results showed that these young adults described themselves as uniquely and different, but they were eager to learn and adapt. They also valued their relationships with their families, friends, and animals around them, as well as the community at large. This research shows that autistic individuals have important perspectives to share and knowledge to contribute when they are given the opportunities to participate in different aspects of research. The findings will be useful in developing services and influencing policies that promote well-being among autistic adults. En ligne : http://dx.doi.org/10.1177/1362361319898961 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=427 [article] "Different but connected": Participatory action research using Photovoice to explore well-being in autistic young adults [Texte imprimé et/ou numérique] / Gary Yu Hin LAM, Auteur ; Emily HOLDEN, Auteur ; Megan FITZPATRICK, Auteur ; Linda RAFFAELE MENDEZ, Auteur ; Karen BERKMAN, Auteur . - p.1246-1259. Langues : Anglais (eng) in Autism > 24-5 (July 2020) . - p.1246-1259 Mots-clés : adults  autism spectrum disorders  participatory research  qualitative research  quality of life  transition Index. décimale : PER Périodiques Résumé : Past research has mainly focused on autistic people's deficits and poor outcomes compared to other groups of people. Little is known about their positive life experiences, and how to support them to achieve a higher quality of life. It is important to include autistic individuals in research so that they can influence how their voices are represented in a meaningful way and how the research results will be useful to them. In this study, a university researcher collaborated with 14 autistic young adults in a post-school transition program to design and run the research, collect and analyze the data, and use the results to create a presentation to the community. Specifically, the participants took photos in daily life and discussed their ideas about what a good life means to them. Results showed that these young adults described themselves as uniquely and different, but they were eager to learn and adapt. They also valued their relationships with their families, friends, and animals around them, as well as the community at large. This research shows that autistic individuals have important perspectives to share and knowledge to contribute when they are given the opportunities to participate in different aspects of research. The findings will be useful in developing services and influencing policies that promote well-being among autistic adults. En ligne : http://dx.doi.org/10.1177/1362361319898961 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=427

Program logic model and impacts perceived by stakeholders in a post-school transition program for autistic young adults / Gary Yu Hin LAM in Research in Autism Spectrum Disorders, 107 (September 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 107 (September 2023) . - p.102220 Titre : Program logic model and impacts perceived by stakeholders in a post-school transition program for autistic young adults Type de document : Texte imprimé et/ou numérique Auteurs : Gary Yu Hin LAM, Auteur ; Jaimie TIMMONS, Auteur ; Agnieszka ZALEWSKA, Auteur Article en page(s) : p.102220 Langues : Anglais (eng) Mots-clés : Post-school transition  Young adults  Qualitative interview  Logic model  Career development  Program evaluation Index. décimale : PER Périodiques Résumé : Background Autistic young adults frequently experience challenges in their transition to adulthood. Despite the available research base describing isolated transition practices, efforts to document comprehensive programs combining multiple components in community settings are scant. This study aimed to explore stakeholders' experience of a post-school transition program, including their perceived program components, processes, and impacts that contributed to the program success. Method We conducted individual qualitative interviews with 17 program stakeholders, including autistic students, parents, mentors, community collaborators, and program staff. Findings were used to create a logic model that describes how various program components and processes effect changes in autistic youths and their parents. Results Results revealed that the program values are focused on student-led participation, a strength-based approach, individualization and customization, and professional development. Program activities holistically fostered development in the autistic youth through processes of imparting career-related knowledge, facilitating ecologically relevant practice, and providing supportive peers and environment. Stakeholders described heightened sense of self-awareness, self-esteem, independence, social competence, and preparedness for the future in autistic young adults, while parents also gained the trust and confidence in fostering autonomy in their adult children. Conclusions Transition program that integrates multiple components and processes informed by the evidence-based literature can facilitate career construction and development in autistic youth. Program model developed based on stakeholders' input can offer rich information about how a program works in a naturalistic context, which can support future program adaptaion and replication to meet the needs of diverse communities and settings. En ligne : https://doi.org/10.1016/j.rasd.2023.102220 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=512 [article] Program logic model and impacts perceived by stakeholders in a post-school transition program for autistic young adults [Texte imprimé et/ou numérique] / Gary Yu Hin LAM, Auteur ; Jaimie TIMMONS, Auteur ; Agnieszka ZALEWSKA, Auteur . - p.102220. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 107 (September 2023) . - p.102220 Mots-clés : Post-school transition  Young adults  Qualitative interview  Logic model  Career development  Program evaluation Index. décimale : PER Périodiques Résumé : Background Autistic young adults frequently experience challenges in their transition to adulthood. Despite the available research base describing isolated transition practices, efforts to document comprehensive programs combining multiple components in community settings are scant. This study aimed to explore stakeholders' experience of a post-school transition program, including their perceived program components, processes, and impacts that contributed to the program success. Method We conducted individual qualitative interviews with 17 program stakeholders, including autistic students, parents, mentors, community collaborators, and program staff. Findings were used to create a logic model that describes how various program components and processes effect changes in autistic youths and their parents. Results Results revealed that the program values are focused on student-led participation, a strength-based approach, individualization and customization, and professional development. Program activities holistically fostered development in the autistic youth through processes of imparting career-related knowledge, facilitating ecologically relevant practice, and providing supportive peers and environment. Stakeholders described heightened sense of self-awareness, self-esteem, independence, social competence, and preparedness for the future in autistic young adults, while parents also gained the trust and confidence in fostering autonomy in their adult children. Conclusions Transition program that integrates multiple components and processes informed by the evidence-based literature can facilitate career construction and development in autistic youth. Program model developed based on stakeholders' input can offer rich information about how a program works in a naturalistic context, which can support future program adaptaion and replication to meet the needs of diverse communities and settings. En ligne : https://doi.org/10.1016/j.rasd.2023.102220 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=512

A qualitative exploration of the experience of autistic females in Hong Kong / Gary Yu Hin LAM in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1047-1057 Titre : A qualitative exploration of the experience of autistic females in Hong Kong Type de document : Texte imprimé et/ou numérique Auteurs : Gary Yu Hin LAM, Auteur ; Constance Kit Ching CHOW, Auteur ; Sibyl Wai CHAN, Auteur Article en page(s) : p.1047-1057 Langues : Anglais (eng) Mots-clés : adults  autism  Chinese  lived experience  qualitative research  women Index. décimale : PER Périodiques Résumé : There are fewer females than males diagnosed with autism, but autistic females are said to be under-identified and underrepresented in the existing diagnostic and service systems. The gender discrepancy may potentially be attributed to the lack of accurate understanding of autistic females and their needs. Emerging research has begun to document the experiences of autistic women in Western countries, but their experience in Eastern cultures is almost unknown. This study aimed to investigate the lived experience of autistic women in Hong Kong. Thirteen formally diagnosed or self-diagnosed autistic women completed semi-structured interviews, discussing how they identified with autism, their diagnostic experience, and their understanding of autism. Results based on thematic analysis revealed Hong Kong autistic women commonly experienced emotional problems and encountered autistic models on the way they came to identify with autism, despite often being dismissed by families and professionals. They found an autism diagnosis or identity meaningful to their self-understanding. Societal misunderstanding toward autism had a great impact on their self-identity as an autistic female. Findings can inform improved services for autistic women in Hong Kong and provide insights to enhance understanding of autism in Chinese culture.Lay abstract There are more males than females with autism. One of the reasons can be that we do not understand autistic females well. Some research in Western cultures has begun to document the lived experience of autistic females, but no such studies are conducted with Chinese autistic females. This study explored the first-person experience of living with autism in Hong Kong autistic women. We conducted qualitative interviews with 13 women with a formal diagnosis of autism or self-diagnosed as autistic. We used semi-structured interviews to discuss how they came to recognize or identify with autism, their diagnostic experience, and their understanding of autistic females. We summarized several broad themes that depicted their experience. Participants recognized autism in themselves when seeing other autistic people. They indicated mental health challenges that led them to seek help from professionals, who might sometimes reject their concerns about autism. Participants found it meaningful to have an autism diagnosis or identity, but other people?s judgment would affect their self-understanding. Participants also described themselves different from the stereotypes of autism, not the same as autistic males, and were perceived by others as not autistic enough. Our findings suggested autistic women in Hong Kong faced challenges in identity development and support services. There is a need to increase awareness and knowledge about autism in professionals and the public. Understanding how unique cultural factors that influence the identity of autistic women or individuals in Chinese cultures is important to promote their well-being. En ligne : https://dx.doi.org/10.1177/13623613241295318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] A qualitative exploration of the experience of autistic females in Hong Kong [Texte imprimé et/ou numérique] / Gary Yu Hin LAM, Auteur ; Constance Kit Ching CHOW, Auteur ; Sibyl Wai CHAN, Auteur . - p.1047-1057. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1047-1057 Mots-clés : adults  autism  Chinese  lived experience  qualitative research  women Index. décimale : PER Périodiques Résumé : There are fewer females than males diagnosed with autism, but autistic females are said to be under-identified and underrepresented in the existing diagnostic and service systems. The gender discrepancy may potentially be attributed to the lack of accurate understanding of autistic females and their needs. Emerging research has begun to document the experiences of autistic women in Western countries, but their experience in Eastern cultures is almost unknown. This study aimed to investigate the lived experience of autistic women in Hong Kong. Thirteen formally diagnosed or self-diagnosed autistic women completed semi-structured interviews, discussing how they identified with autism, their diagnostic experience, and their understanding of autism. Results based on thematic analysis revealed Hong Kong autistic women commonly experienced emotional problems and encountered autistic models on the way they came to identify with autism, despite often being dismissed by families and professionals. They found an autism diagnosis or identity meaningful to their self-understanding. Societal misunderstanding toward autism had a great impact on their self-identity as an autistic female. Findings can inform improved services for autistic women in Hong Kong and provide insights to enhance understanding of autism in Chinese culture.Lay abstract There are more males than females with autism. One of the reasons can be that we do not understand autistic females well. Some research in Western cultures has begun to document the lived experience of autistic females, but no such studies are conducted with Chinese autistic females. This study explored the first-person experience of living with autism in Hong Kong autistic women. We conducted qualitative interviews with 13 women with a formal diagnosis of autism or self-diagnosed as autistic. We used semi-structured interviews to discuss how they came to recognize or identify with autism, their diagnostic experience, and their understanding of autistic females. We summarized several broad themes that depicted their experience. Participants recognized autism in themselves when seeing other autistic people. They indicated mental health challenges that led them to seek help from professionals, who might sometimes reject their concerns about autism. Participants found it meaningful to have an autism diagnosis or identity, but other people?s judgment would affect their self-understanding. Participants also described themselves different from the stereotypes of autism, not the same as autistic males, and were perceived by others as not autistic enough. Our findings suggested autistic women in Hong Kong faced challenges in identity development and support services. There is a need to increase awareness and knowledge about autism in professionals and the public. Understanding how unique cultural factors that influence the identity of autistic women or individuals in Chinese cultures is important to promote their well-being. En ligne : https://dx.doi.org/10.1177/13623613241295318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

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