The experience of autistic adults accessing adapted cognitive behaviour therapy: ADEPT (Autism Depression Trial) qualitative evaluation / Jeremy HORWOOD in Research in Autism Spectrum Disorders, 86 (August 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 86 (August 2021) . - 101802 Titre : The experience of autistic adults accessing adapted cognitive behaviour therapy: ADEPT (Autism Depression Trial) qualitative evaluation Type de document : Texte imprimé et/ou numérique Auteurs : Jeremy HORWOOD, Auteur ; Kate COOPER, Auteur ; Hannah HARVEY, Auteur ; Lauren DAVIES, Auteur ; Ailsa RUSSELL, Auteur Article en page(s) : 101802 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Adults  Qualitative research  Depression  Cognitive behaviour therapy Index. décimale : PER Périodiques Résumé : Background High rates of depression are frequently reported in autistic adults. There have been no randomised trials investigating low-intensity psychological interventions for mild-moderate depression adapted for autistic adults. Method This qualitative evaluation investigated the acceptability of the ADEPT pilot randomised controlled trial (RCT) design and guided self-help intervention. Participants (autistic adults with a diagnosis of depression (PHQ-9 score ? 10)) were randomised to Guided Self-Help (GSH): low intensity psychological intervention based on Behavioural Activation adapted for autistic adults, or Treatment as Usual (TAU). 21 trial participants (14 GSH and 7 TAU), and 5 low intensity psychological therapists or ‘coaches’ were interviewed, and transcripts analysed thematically. Results All participants and coaches welcomed an intervention for depression adapted for autistic adults due to current lack of provision in mainstream services. Interviews highlighted participants' preference for GSH over TAU. Dissatisfaction with prior experience of TAU was identified as a potential driver for differential attrition from the TAU arm. Participants who received GSH appreciated the coaches having a good understanding of autistic adults and were positive towards the aim and structure of the GSH intervention. Suggested improvements include more regularly checking progress with therapy goals. Conclusions A full scale RCT to evaluate the effectiveness of this intervention is now warranted. Future trial study design needs to address potential for differential rate of participant recruitment and attrition between the treatment and comparison groups due to negative prior experience of TAU. En ligne : https://doi.org/10.1016/j.rasd.2021.101802 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] The experience of autistic adults accessing adapted cognitive behaviour therapy: ADEPT (Autism Depression Trial) qualitative evaluation [Texte imprimé et/ou numérique] / Jeremy HORWOOD, Auteur ; Kate COOPER, Auteur ; Hannah HARVEY, Auteur ; Lauren DAVIES, Auteur ; Ailsa RUSSELL, Auteur . - 101802. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 86 (August 2021) . - 101802 Mots-clés : Autism spectrum disorders  Adults  Qualitative research  Depression  Cognitive behaviour therapy Index. décimale : PER Périodiques Résumé : Background High rates of depression are frequently reported in autistic adults. There have been no randomised trials investigating low-intensity psychological interventions for mild-moderate depression adapted for autistic adults. Method This qualitative evaluation investigated the acceptability of the ADEPT pilot randomised controlled trial (RCT) design and guided self-help intervention. Participants (autistic adults with a diagnosis of depression (PHQ-9 score ? 10)) were randomised to Guided Self-Help (GSH): low intensity psychological intervention based on Behavioural Activation adapted for autistic adults, or Treatment as Usual (TAU). 21 trial participants (14 GSH and 7 TAU), and 5 low intensity psychological therapists or ‘coaches’ were interviewed, and transcripts analysed thematically. Results All participants and coaches welcomed an intervention for depression adapted for autistic adults due to current lack of provision in mainstream services. Interviews highlighted participants' preference for GSH over TAU. Dissatisfaction with prior experience of TAU was identified as a potential driver for differential attrition from the TAU arm. Participants who received GSH appreciated the coaches having a good understanding of autistic adults and were positive towards the aim and structure of the GSH intervention. Suggested improvements include more regularly checking progress with therapy goals. Conclusions A full scale RCT to evaluate the effectiveness of this intervention is now warranted. Future trial study design needs to address potential for differential rate of participant recruitment and attrition between the treatment and comparison groups due to negative prior experience of TAU. En ligne : https://doi.org/10.1016/j.rasd.2021.101802 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome / Hannah HARVEY in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4553-4556 Titre : The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Hannah HARVEY, Auteur ; Maria ASHWORTH, Auteur ; Olympia PALIKARA, Auteur ; Jo VAN HERWEGEN, Auteur Article en page(s) : p.4553-4556 Langues : Anglais (eng) Mots-clés : Down syndrome  Neurodevelopmental disorders  Special educational needs  Vision  Williams syndrome Index. décimale : PER Périodiques Résumé : Vision problems can lead to negative developmental outcomes. Children with Williams syndrome and Down syndrome are at higher risk of vision problems, and these are less likely to be detected due to diagnostic overshadowing and difficulty accessing eye-care. Education, Health and Care (EHC) plans are statutory documents, introduced by the Children and Families Act 2014 in England, with the intention of integrating provision across these domains. Vision issues should be reported in these plans, and recommendations made about appropriate adjustments for them. We analysed the EHC plans from 53 children with Down or Williams syndrome. Our results showed significant underreporting, especially for children with Williams syndrome, and little explanation of what adjustments should be made. We also report pockets of good practice. En ligne : http://dx.doi.org/10.1007/s10803-020-04520-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome [Texte imprimé et/ou numérique] / Hannah HARVEY, Auteur ; Maria ASHWORTH, Auteur ; Olympia PALIKARA, Auteur ; Jo VAN HERWEGEN, Auteur . - p.4553-4556. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4553-4556 Mots-clés : Down syndrome  Neurodevelopmental disorders  Special educational needs  Vision  Williams syndrome Index. décimale : PER Périodiques Résumé : Vision problems can lead to negative developmental outcomes. Children with Williams syndrome and Down syndrome are at higher risk of vision problems, and these are less likely to be detected due to diagnostic overshadowing and difficulty accessing eye-care. Education, Health and Care (EHC) plans are statutory documents, introduced by the Children and Families Act 2014 in England, with the intention of integrating provision across these domains. Vision issues should be reported in these plans, and recommendations made about appropriate adjustments for them. We analysed the EHC plans from 53 children with Down or Williams syndrome. Our results showed significant underreporting, especially for children with Williams syndrome, and little explanation of what adjustments should be made. We also report pockets of good practice. En ligne : http://dx.doi.org/10.1007/s10803-020-04520-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

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