"Don?t Promise Something You can?t Deliver:" Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism / Kristen A. BERG in Autism Research and Treatment, 2023 (2023)  

Public ISBD [article]  inAutism Research and Treatment > 2023 (2023) Titre : "Don?t Promise Something You can?t Deliver:" Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism Type de document : texte imprimé Auteurs : Kristen A. BERG, Auteur ; Karen J. ISHLER, Auteur ; Sarah LYTLE, Auteur ; Ronna KAPLAN, Auteur ; Fei WANG, Auteur ; Tugba OLGAC, Auteur ; Stacy MINER, Auteur ; Marjorie N. EDGUER, Auteur ; David E. BIEGEL, Auteur Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Approximately 50,000 youths with autism spectrum disorders (ASD) exit U.S. high schools yearly to enter adult systems of care, many of whom remain dependent on family for day-to-day care and service system navigation. As part of a larger study, 174 family caregivers for adolescents or young adults with ASD were asked what advice they would give service providers about how to improve services for youth with ASD. Reflexive thematic analysis identified a framework of five directives: (1) provide a roadmap to services; (2) improve service access; (3) fill gaps to address unmet needs; (4) educate themselves, their families, and society about autism; and (5) operate from a relationship-building paradigm with families. Education, health, and social service providers, as well as policymakers, can use these directives to better assist youth with ASD and their families in the transition to adulthood. En ligne : https://doi.org/10.1155/2023/6597554 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=538 [article] "Don?t Promise Something You can?t Deliver:" Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism [texte imprimé] / Kristen A. BERG, Auteur ; Karen J. ISHLER, Auteur ; Sarah LYTLE, Auteur ; Ronna KAPLAN, Auteur ; Fei WANG, Auteur ; Tugba OLGAC, Auteur ; Stacy MINER, Auteur ; Marjorie N. EDGUER, Auteur ; David E. BIEGEL, Auteur. Langues : Anglais (eng) in Autism Research and Treatment > 2023 (2023) Index. décimale : PER Périodiques Résumé : Approximately 50,000 youths with autism spectrum disorders (ASD) exit U.S. high schools yearly to enter adult systems of care, many of whom remain dependent on family for day-to-day care and service system navigation. As part of a larger study, 174 family caregivers for adolescents or young adults with ASD were asked what advice they would give service providers about how to improve services for youth with ASD. Reflexive thematic analysis identified a framework of five directives: (1) provide a roadmap to services; (2) improve service access; (3) fill gaps to address unmet needs; (4) educate themselves, their families, and society about autism; and (5) operate from a relationship-building paradigm with families. Education, health, and social service providers, as well as policymakers, can use these directives to better assist youth with ASD and their families in the transition to adulthood. En ligne : https://doi.org/10.1155/2023/6597554 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=538

Service Use Among Transition-Age Youth with Autism Spectrum Disorder / Karen J. ISHLER in Journal of Autism and Developmental Disorders, 52-3 (March 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1051-1065 Titre : Service Use Among Transition-Age Youth with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Karen J. ISHLER, Auteur ; David E. BIEGEL, Auteur ; Fei WANG, Auteur ; Tugba OLGAC, Auteur ; Sarah LYTLE, Auteur ; Stacy MINER, Auteur ; Marjorie EDGUER, Auteur ; Ronna KAPLAN, Auteur Article en page(s) : p.1051-1065 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/epidemiology/psychology/therapy  Caregivers  Delivery of Health Care  Humans  Medicaid  Patient Acceptance of Health Care  United States  Young Adult  Autism spectrum disorder  Family  Predictors  Service use  Transition age Index. décimale : PER Périodiques Résumé : This study explored predictors of service use among 174 transition-age youth (age 16-30) with an Autism Spectrum Disorder using Andersen's (J Health Soc Behav 36(1):1-10, 1995) healthcare utilization model. Family caregivers were interviewed about past 6-month use of 15 services. On average, youth used 6.1 and needed 3.2 additional services. Greater service use was associated with two predisposing (caregiver college educated, caregiver not married/partnered), two enabling (youth has Medicaid waiver, youth in high school), and one need factor (lower adaptive functioning). Use of specific services was most strongly related to enabling (Medicaid waiver, in high school) and need factors (lower adaptive functioning, comorbid mental health diagnosis). Findings provide a snapshot of the "service cliff" faced by families and highlight the need for additional research. En ligne : http://dx.doi.org/10.1007/s10803-021-04999-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] Service Use Among Transition-Age Youth with Autism Spectrum Disorder [texte imprimé] / Karen J. ISHLER, Auteur ; David E. BIEGEL, Auteur ; Fei WANG, Auteur ; Tugba OLGAC, Auteur ; Sarah LYTLE, Auteur ; Stacy MINER, Auteur ; Marjorie EDGUER, Auteur ; Ronna KAPLAN, Auteur . - p.1051-1065. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1051-1065 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/epidemiology/psychology/therapy  Caregivers  Delivery of Health Care  Humans  Medicaid  Patient Acceptance of Health Care  United States  Young Adult  Autism spectrum disorder  Family  Predictors  Service use  Transition age Index. décimale : PER Périodiques Résumé : This study explored predictors of service use among 174 transition-age youth (age 16-30) with an Autism Spectrum Disorder using Andersen's (J Health Soc Behav 36(1):1-10, 1995) healthcare utilization model. Family caregivers were interviewed about past 6-month use of 15 services. On average, youth used 6.1 and needed 3.2 additional services. Greater service use was associated with two predisposing (caregiver college educated, caregiver not married/partnered), two enabling (youth has Medicaid waiver, youth in high school), and one need factor (lower adaptive functioning). Use of specific services was most strongly related to enabling (Medicaid waiver, in high school) and need factors (lower adaptive functioning, comorbid mental health diagnosis). Findings provide a snapshot of the "service cliff" faced by families and highlight the need for additional research. En ligne : http://dx.doi.org/10.1007/s10803-021-04999-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

---

1 (1 - 2 / 2) Par page : 25 50 100 200