Bayesian prevalence of autism and unmet special education needs in Chile in a sample of three million school-age children / Adele TYSON ; Gabriel GATICA-BAHAMONDE ; Robin VAN KESSEL ; Justin YANG ; Carola MANSILLA ; Isabel ZUNIGA ; Alejandra MÉNDEZ-FADOL ; Blanca LARRAIN ; Ricardo GARCIA ; Damaris KOCH ; Tamsin FORD ; Wim GROOT ; Milena PAVLOVA ; Katarzyna CZABANOWSKA in Autism, 29-10 (October 2025)  

Public ISBD [article]  inAutism > 29-10 (October 2025) . - p.2501-2512 Titre : Bayesian prevalence of autism and unmet special education needs in Chile in a sample of three million school-age children Type de document : texte imprimé Auteurs : Adele TYSON, Auteur ; Gabriel GATICA-BAHAMONDE, Auteur ; Robin VAN KESSEL, Auteur ; Justin YANG, Auteur ; Carola MANSILLA, Auteur ; Isabel ZUNIGA, Auteur ; Alejandra MÉNDEZ-FADOL, Auteur ; Blanca LARRAIN, Auteur ; Ricardo GARCIA, Auteur ; Damaris KOCH, Auteur ; Tamsin FORD, Auteur ; Wim GROOT, Auteur ; Milena PAVLOVA, Auteur ; Katarzyna CZABANOWSKA, Auteur Article en page(s) : p.2501-2512 Langues : Anglais (eng) Mots-clés : ASD prevalence  Bayesian methods  Chile  Latin America  special education needs Index. décimale : PER Périodiques Résumé : Autism spectrum disorder prevalence estimates in Latin America have been limited by a lack of reliable data. This cohort study aimed to estimate autism spectrum disorder prevalence in Chile by linking school registries with electronic health records. Probabilistic data linking was conducted between the 2021 Chilean school registry and 2003 2015 health records from the Araucania Sur Health Service. Bayesian prevalence estimation was used, considering variables such as age, sex, immigration status, ethnicity and rurality. Autism spectrum disorder prevalence across 29 health services was analysed for students aged 6 to 18 years. Regression models assessed unmet needs for special education services, validated using Araucania Sur Health Service health records. The study included 3,056,306 pupils (51.34% boys; mean age 11.6 years), with 14,549 having autism spectrum disorder. The national standardized school prevalence was 0.46%. Boys had 6 times higher odds of receiving special education services support than girls. In Araucania Sur Health Service, the adjusted clinical prevalence from health records was 1.22%. The Bayesian projected national autism spectrum disorder prevalence was 1.31%. This study, the largest of its kind in Latin America, revealed a higher autism spectrum disorder prevalence than previously reported, with one in 76 children affected. Disparities were observed across sex, ethnicity and health services.Lay abstract This project tried to understand how many children in Chile are affected by autism, as reliable data have been lacking not only in Chile but across much of Latin America. To do this, we carried out the largest autism prevalence study ever conducted in the region. We linked national school records from 2021 with over a decade of health records (2003-2015) from the Araucanía Sur Health Service in southern Chile. This allowed us to examine data from more than three million students aged 6 to 18 years across 29 health services. Our results revealed that around one in every 76 children may have autism - almost 3 times higher than what was reported in schools alone. We also found that boys were 6 times more likely than girls to receive special education support. Using advanced statistical modelling, we estimated a national autism prevalence rate of 1.31%. Importantly, we discovered disparities in diagnosis and access to support based on sex, ethnicity, immigration status and whether a child lived in a rural or urban area. These findings highlight the need for more inclusive and equitable approaches to autism identification and care across Chile. This research not only helps to fill a major data gap but also offers a model for how countries with limited resources can use existing administrative data to improve public health planning and educational support for children with autism. En ligne : https://dx.doi.org/10.1177/13623613251342310 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567 [article] Bayesian prevalence of autism and unmet special education needs in Chile in a sample of three million school-age children [texte imprimé] / Adele TYSON, Auteur ; Gabriel GATICA-BAHAMONDE, Auteur ; Robin VAN KESSEL, Auteur ; Justin YANG, Auteur ; Carola MANSILLA, Auteur ; Isabel ZUNIGA, Auteur ; Alejandra MÉNDEZ-FADOL, Auteur ; Blanca LARRAIN, Auteur ; Ricardo GARCIA, Auteur ; Damaris KOCH, Auteur ; Tamsin FORD, Auteur ; Wim GROOT, Auteur ; Milena PAVLOVA, Auteur ; Katarzyna CZABANOWSKA, Auteur . - p.2501-2512. Langues : Anglais (eng) in Autism > 29-10 (October 2025) . - p.2501-2512 Mots-clés : ASD prevalence  Bayesian methods  Chile  Latin America  special education needs Index. décimale : PER Périodiques Résumé : Autism spectrum disorder prevalence estimates in Latin America have been limited by a lack of reliable data. This cohort study aimed to estimate autism spectrum disorder prevalence in Chile by linking school registries with electronic health records. Probabilistic data linking was conducted between the 2021 Chilean school registry and 2003 2015 health records from the Araucania Sur Health Service. Bayesian prevalence estimation was used, considering variables such as age, sex, immigration status, ethnicity and rurality. Autism spectrum disorder prevalence across 29 health services was analysed for students aged 6 to 18 years. Regression models assessed unmet needs for special education services, validated using Araucania Sur Health Service health records. The study included 3,056,306 pupils (51.34% boys; mean age 11.6 years), with 14,549 having autism spectrum disorder. The national standardized school prevalence was 0.46%. Boys had 6 times higher odds of receiving special education services support than girls. In Araucania Sur Health Service, the adjusted clinical prevalence from health records was 1.22%. The Bayesian projected national autism spectrum disorder prevalence was 1.31%. This study, the largest of its kind in Latin America, revealed a higher autism spectrum disorder prevalence than previously reported, with one in 76 children affected. Disparities were observed across sex, ethnicity and health services.Lay abstract This project tried to understand how many children in Chile are affected by autism, as reliable data have been lacking not only in Chile but across much of Latin America. To do this, we carried out the largest autism prevalence study ever conducted in the region. We linked national school records from 2021 with over a decade of health records (2003-2015) from the Araucanía Sur Health Service in southern Chile. This allowed us to examine data from more than three million students aged 6 to 18 years across 29 health services. Our results revealed that around one in every 76 children may have autism - almost 3 times higher than what was reported in schools alone. We also found that boys were 6 times more likely than girls to receive special education support. Using advanced statistical modelling, we estimated a national autism prevalence rate of 1.31%. Importantly, we discovered disparities in diagnosis and access to support based on sex, ethnicity, immigration status and whether a child lived in a rural or urban area. These findings highlight the need for more inclusive and equitable approaches to autism identification and care across Chile. This research not only helps to fill a major data gap but also offers a model for how countries with limited resources can use existing administrative data to improve public health planning and educational support for children with autism. En ligne : https://dx.doi.org/10.1177/13623613251342310 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567

Cross-cultural similarities and differences in reporting autistic symptoms in toddlers: A study synthesizing M-CHAT(-R) data from ten countries / Dejan STEVANOVIĆ in Research in Autism Spectrum Disorders, 95 (July 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 95 (July 2022) . - 101984 Titre : Cross-cultural similarities and differences in reporting autistic symptoms in toddlers: A study synthesizing M-CHAT(-R) data from ten countries Type de document : texte imprimé Auteurs : Dejan STEVANOVIĆ, Auteur ; Diana L. ROBINS, Auteur ; Floriana COSTANZO, Auteur ; Elisa FUCA, Auteur ; Giovanni VALERI, Auteur ; Stefano VICARI, Auteur ; Handan OZEK ERKURAN, Auteur ; Ferhat YAYLACI, Auteur ; Lilia ALBORES-GALLO, Auteur ; Gabriel GATICA-BAHAMONDE, Auteur ; Maia GABUNIA, Auteur ; Medea ZIRAKASHVILI, Auteur ; Tony CHARMAN, Auteur ; Sayyed Ali SAMADI, Auteur ; Teck-Hock TOH, Auteur ; Gayle WINDHAM, Auteur ; Laura A. BRENNAN, Auteur ; Tatjana ZORCEC, Auteur ; Alejandra AUZA, Auteur ; Maretha V. DE JONGE, Auteur ; Noordeen SHOQIRAT, Auteur ; Rajna KNEZ, Auteur Article en page(s) : 101984 Langues : Anglais (eng) Mots-clés : Toddlers  Autism  Screening  Culture  Equivalence Index. décimale : PER Périodiques Résumé : Background This study aimed to evaluate the endorsement rates of M-CHAT(-R) items by parents/caregivers of toddlers with autism spectrum disorder (ASD) synthesizing data from ten countries: Albania, Chile, Georgia, Macedonia, Malaysia, Mexico, Serbia, Turkey, United Kingdom, and the United States of America. Method Data were aggregated for toddlers aged 14 36 months who participated in previous studies or completed clinical screening. An item with < 30% of endorsements was classified as low endorsement, an item falling within the range of 30 60% as moderate endorsement, and an item with > 60% as high endorsement. Results All items had a low endorsement rate in at least one country and moderate to high in others. Of 20 items, 14 had a moderate to high endorsement rate in seven to nine countries. Of particular relevance are items with moderate to high endorsement rates in all countries excluding Malaysia, such as points to get help, points to show, brings things to show, follows a point, follows your gaze, and understands what is said. On the other hand, makes eye contact, responds to name, hearing concerns, and reciprocal smile were interpreted differently across the countries. Conclusions This study showed differences in parent/caregiver responding to M-CHAT(-R) items across ten countries, which may indicate cross-country variations in the recognition and evaluation of autistic symptoms in toddlers. Items related to joint attention, social engagement, and language comprehension were reported in a similar manner across countries and could be interpreted as universal autistic symptoms in toddlers. En ligne : https://doi.org/10.1016/j.rasd.2022.101984 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Cross-cultural similarities and differences in reporting autistic symptoms in toddlers: A study synthesizing M-CHAT(-R) data from ten countries [texte imprimé] / Dejan STEVANOVIĆ, Auteur ; Diana L. ROBINS, Auteur ; Floriana COSTANZO, Auteur ; Elisa FUCA, Auteur ; Giovanni VALERI, Auteur ; Stefano VICARI, Auteur ; Handan OZEK ERKURAN, Auteur ; Ferhat YAYLACI, Auteur ; Lilia ALBORES-GALLO, Auteur ; Gabriel GATICA-BAHAMONDE, Auteur ; Maia GABUNIA, Auteur ; Medea ZIRAKASHVILI, Auteur ; Tony CHARMAN, Auteur ; Sayyed Ali SAMADI, Auteur ; Teck-Hock TOH, Auteur ; Gayle WINDHAM, Auteur ; Laura A. BRENNAN, Auteur ; Tatjana ZORCEC, Auteur ; Alejandra AUZA, Auteur ; Maretha V. DE JONGE, Auteur ; Noordeen SHOQIRAT, Auteur ; Rajna KNEZ, Auteur . - 101984. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 95 (July 2022) . - 101984 Mots-clés : Toddlers  Autism  Screening  Culture  Equivalence Index. décimale : PER Périodiques Résumé : Background This study aimed to evaluate the endorsement rates of M-CHAT(-R) items by parents/caregivers of toddlers with autism spectrum disorder (ASD) synthesizing data from ten countries: Albania, Chile, Georgia, Macedonia, Malaysia, Mexico, Serbia, Turkey, United Kingdom, and the United States of America. Method Data were aggregated for toddlers aged 14 36 months who participated in previous studies or completed clinical screening. An item with < 30% of endorsements was classified as low endorsement, an item falling within the range of 30 60% as moderate endorsement, and an item with > 60% as high endorsement. Results All items had a low endorsement rate in at least one country and moderate to high in others. Of 20 items, 14 had a moderate to high endorsement rate in seven to nine countries. Of particular relevance are items with moderate to high endorsement rates in all countries excluding Malaysia, such as points to get help, points to show, brings things to show, follows a point, follows your gaze, and understands what is said. On the other hand, makes eye contact, responds to name, hearing concerns, and reciprocal smile were interpreted differently across the countries. Conclusions This study showed differences in parent/caregiver responding to M-CHAT(-R) items across ten countries, which may indicate cross-country variations in the recognition and evaluation of autistic symptoms in toddlers. Items related to joint attention, social engagement, and language comprehension were reported in a similar manner across countries and could be interpreted as universal autistic symptoms in toddlers. En ligne : https://doi.org/10.1016/j.rasd.2022.101984 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Measurement invariance of the Childhood Autism Rating Scale (CARS) across six countries / Dejan STEVANOVIĆ in Autism Research, 14-12 (December 2021)  

Public ISBD [article]  inAutism Research > 14-12 (December 2021) . - p.2544-2554 Titre : Measurement invariance of the Childhood Autism Rating Scale (CARS) across six countries Type de document : texte imprimé Auteurs : Dejan STEVANOVIĆ, Auteur ; Floriana COSTANZO, Auteur ; Elisa FUCA, Auteur ; Giovanni VALERI, Auteur ; Stefano VICARI, Auteur ; Diana L. ROBINS, Auteur ; Maureen SAMMS-VAUGHAN, Auteur ; Handan OZEK ERKURAN, Auteur ; Ferhat YAYLACI, Auteur ; Smita N. DESHPANDE, Auteur ; V. DESHMUKH, Auteur ; Narendra K. ARORA, Auteur ; Lilia ALBORES-GALLO, Auteur ; Cristina GARCIA-LOPEZ, Auteur ; Gabriel GATICA-BAHAMONDE, Auteur ; Maia GABUNIA, Auteur ; Medea ZIRAKASHVILI, Auteur ; Fernanda Prada MACHADO, Auteur ; Miruna RADAN, Auteur ; Sayyed Ali SAMADI, Auteur ; Teck-Hock TOH, Auteur ; Windham GAYLE, Auteur ; Lynn BRENNAN, Auteur ; Tatjana ZORCEC, Auteur ; Alejandra AUZA, Auteur ; Maretha V. DE JONGE, Auteur ; Noordeen SHOQIRAT, Auteur ; Anita MARINI, Auteur ; Rajna KNEZ, Auteur Article en page(s) : p.2544-2554 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Bayes Theorem  Child  Cross-Cultural Comparison  Humans  Psychometrics  United States  assessment  children  cross-cultural validity  differential item functioning Index. décimale : PER Périodiques Résumé : The Childhood Autism Rating Scale (CARS) is a simple and inexpensive tool for Autism spectrum disorder (ASD) assessments, with evidenced psychometric data from different countries. However, it is still unclear whether ASD symptoms are measured the same way across different societies and world regions with this tool, since data on its cross-cultural validity are lacking. This study evaluated the cross-cultural measurement invariance of the CARS among children with ASD from six countries, for whom data were aggregated from previous studies in India (n = 101), Jamaica (n = 139), Mexico (n = 72), Spain (n = 99), Turkey (n = 150), and the United States of America (n = 186). We analyzed the approximate measurement invariance based on Bayesian structural equation modeling. The model did not fit the data and its measurement invariance did not hold, with all items found non-invariant across the countries. Items related to social communication and interaction (i.e., relating to people, imitation, emotional response, and verbal and nonverbal communication) displayed lower levels of cross-country non-invariance compared to items about stereotyped behaviors/sensory sensitivity (i.e., body and object use, adaptation to change, or taste, smell, and touch response). This study found that the CARS may not provide cross-culturally valid ASD assessments. Thus, cross-cultural comparisons with the CARS should consider first which items operate differently across samples of interest, since its cross-cultural measurement non-invariance could be a source of cross-cultural variability in ASD presentations. Additional studies are needed before drawing valid recommendations in relation to the cultural sensitivity of particular items. En ligne : http://dx.doi.org/10.1002/aur.2586 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] Measurement invariance of the Childhood Autism Rating Scale (CARS) across six countries [texte imprimé] / Dejan STEVANOVIĆ, Auteur ; Floriana COSTANZO, Auteur ; Elisa FUCA, Auteur ; Giovanni VALERI, Auteur ; Stefano VICARI, Auteur ; Diana L. ROBINS, Auteur ; Maureen SAMMS-VAUGHAN, Auteur ; Handan OZEK ERKURAN, Auteur ; Ferhat YAYLACI, Auteur ; Smita N. DESHPANDE, Auteur ; V. DESHMUKH, Auteur ; Narendra K. ARORA, Auteur ; Lilia ALBORES-GALLO, Auteur ; Cristina GARCIA-LOPEZ, Auteur ; Gabriel GATICA-BAHAMONDE, Auteur ; Maia GABUNIA, Auteur ; Medea ZIRAKASHVILI, Auteur ; Fernanda Prada MACHADO, Auteur ; Miruna RADAN, Auteur ; Sayyed Ali SAMADI, Auteur ; Teck-Hock TOH, Auteur ; Windham GAYLE, Auteur ; Lynn BRENNAN, Auteur ; Tatjana ZORCEC, Auteur ; Alejandra AUZA, Auteur ; Maretha V. DE JONGE, Auteur ; Noordeen SHOQIRAT, Auteur ; Anita MARINI, Auteur ; Rajna KNEZ, Auteur . - p.2544-2554. Langues : Anglais (eng) in Autism Research > 14-12 (December 2021) . - p.2544-2554 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Bayes Theorem  Child  Cross-Cultural Comparison  Humans  Psychometrics  United States  assessment  children  cross-cultural validity  differential item functioning Index. décimale : PER Périodiques Résumé : The Childhood Autism Rating Scale (CARS) is a simple and inexpensive tool for Autism spectrum disorder (ASD) assessments, with evidenced psychometric data from different countries. However, it is still unclear whether ASD symptoms are measured the same way across different societies and world regions with this tool, since data on its cross-cultural validity are lacking. This study evaluated the cross-cultural measurement invariance of the CARS among children with ASD from six countries, for whom data were aggregated from previous studies in India (n = 101), Jamaica (n = 139), Mexico (n = 72), Spain (n = 99), Turkey (n = 150), and the United States of America (n = 186). We analyzed the approximate measurement invariance based on Bayesian structural equation modeling. The model did not fit the data and its measurement invariance did not hold, with all items found non-invariant across the countries. Items related to social communication and interaction (i.e., relating to people, imitation, emotional response, and verbal and nonverbal communication) displayed lower levels of cross-country non-invariance compared to items about stereotyped behaviors/sensory sensitivity (i.e., body and object use, adaptation to change, or taste, smell, and touch response). This study found that the CARS may not provide cross-culturally valid ASD assessments. Thus, cross-cultural comparisons with the CARS should consider first which items operate differently across samples of interest, since its cross-cultural measurement non-invariance could be a source of cross-cultural variability in ASD presentations. Additional studies are needed before drawing valid recommendations in relation to the cultural sensitivity of particular items. En ligne : http://dx.doi.org/10.1002/aur.2586 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

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