Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries / Tamara C. DALEY in Journal of Autism and Developmental Disorders, 43-9 (September 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-9 (September 2013) . - p.2002-2014 Titre : Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries Type de document : Texte imprimé et/ou numérique Auteurs : Tamara C. DALEY, Auteur ; Nidhi SINGHAL, Auteur ; Vibha KRISHNAMURTHY, Auteur Article en page(s) : p.2002-2014 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Ethics  Cross-cultural  ELSI  LMIC  LAMI  Global  India Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is being identified in an ever-increasing number of countries, including many that are low or middle income (LMIC). Research conducted in these countries requires awareness of unique ethical issues. Drawing on the experience of two organizations that have been involved in conducting and collaborating in ASD research in India, we describe specific considerations in conducting epidemiological, genetic and treatment studies as well as general principles from the field of multinational clinical research as they apply to the conduct of ASD research. We argue that greater attention to ethical concerns will result in quality studies conducted in LMICs that are also of greatest relevance for families and children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1750-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212 [article] Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries [Texte imprimé et/ou numérique] / Tamara C. DALEY, Auteur ; Nidhi SINGHAL, Auteur ; Vibha KRISHNAMURTHY, Auteur . - p.2002-2014. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-9 (September 2013) . - p.2002-2014 Mots-clés : Autism spectrum disorder  Ethics  Cross-cultural  ELSI  LMIC  LAMI  Global  India Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is being identified in an ever-increasing number of countries, including many that are low or middle income (LMIC). Research conducted in these countries requires awareness of unique ethical issues. Drawing on the experience of two organizations that have been involved in conducting and collaborating in ASD research in India, we describe specific considerations in conducting epidemiological, genetic and treatment studies as well as general principles from the field of multinational clinical research as they apply to the conduct of ASD research. We argue that greater attention to ethical concerns will result in quality studies conducted in LMICs that are also of greatest relevance for families and children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1750-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212

A National Sample of Preschoolers with Autism Spectrum Disorders: Special Education Services and Parent Satisfaction / Amy BITTERMAN in Journal of Autism and Developmental Disorders, 38-8 (September 2008)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 38-8 (September 2008) . - p.1509-1517 Titre : A National Sample of Preschoolers with Autism Spectrum Disorders: Special Education Services and Parent Satisfaction Type de document : Texte imprimé et/ou numérique Auteurs : Amy BITTERMAN, Auteur ; Tamara C. DALEY, Auteur ; Sunil MISRA, Auteur ; Elaine CARLSON, Auteur ; Joy MARKOWITZ, Auteur Année de publication : 2008 Article en page(s) : p.1509-1517 Langues : Anglais (eng) Mots-clés : Autism ASD IDEA Preschoolers Services Parent-satisfaction Index. décimale : PER Périodiques Résumé : The Pre-Elementary Education Longitudinal Study (PEELS) examines the preschool and early elementary school experiences of a nationally representative sample of 3,104 children ages 3–5 with disabilities from 2004 through 2009. This paper describes the special education and related services received by a subsample of 186 preschoolers with autism spectrum disorders (ASD) in 2003–2004 and parental satisfaction with those services. Past research and patterns of litigation suggest that parents of children with ASD are not wholly satisfied with the special education and related services their children receive. In the current study, the authors found many similarities between children with ASD and children with other disabilities in the type of services received under IDEA and in parent satisfaction with these services. Still, some significant differences emerged in the number of services received, the amount of time children with ASD spent in special education settings, and parent satisfaction with the amount of time children spent with typically developing peers. Implications about the importance of parent satisfaction and social validity measures are discussed. En ligne : http://dx.doi.org/10.1007/s10803-007-0531-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=539 [article] A National Sample of Preschoolers with Autism Spectrum Disorders: Special Education Services and Parent Satisfaction [Texte imprimé et/ou numérique] / Amy BITTERMAN, Auteur ; Tamara C. DALEY, Auteur ; Sunil MISRA, Auteur ; Elaine CARLSON, Auteur ; Joy MARKOWITZ, Auteur . - 2008 . - p.1509-1517. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 38-8 (September 2008) . - p.1509-1517 Mots-clés : Autism ASD IDEA Preschoolers Services Parent-satisfaction Index. décimale : PER Périodiques Résumé : The Pre-Elementary Education Longitudinal Study (PEELS) examines the preschool and early elementary school experiences of a nationally representative sample of 3,104 children ages 3–5 with disabilities from 2004 through 2009. This paper describes the special education and related services received by a subsample of 186 preschoolers with autism spectrum disorders (ASD) in 2003–2004 and parental satisfaction with those services. Past research and patterns of litigation suggest that parents of children with ASD are not wholly satisfied with the special education and related services their children receive. In the current study, the authors found many similarities between children with ASD and children with other disabilities in the type of services received under IDEA and in parent satisfaction with these services. Still, some significant differences emerged in the number of services received, the amount of time children with ASD spent in special education settings, and parent satisfaction with the amount of time children spent with typically developing peers. Implications about the importance of parent satisfaction and social validity measures are discussed. En ligne : http://dx.doi.org/10.1007/s10803-007-0531-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=539

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