Health conditions and service use of autistic women and men: A retrospective population-based case-control study / Ami TINT in Autism, 27-6 (August 2023)  

Public ISBD [article]  inAutism > 27-6 (August 2023) . - p.1641-1657 Titre : Health conditions and service use of autistic women and men: A retrospective population-based case-control study Type de document : Texte imprimé et/ou numérique Auteurs : Ami TINT, Auteur ; Hannah CHUNG, Auteur ; Meng-Chuan LAI, Auteur ; Robert BALOGH, Auteur ; Elizabeth LIN, Auteur ; Anna DURBIN, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.1641-1657 Langues : Anglais (eng) Mots-clés : autism;gender;mental health;physical health;service use;sex differences;women Index. décimale : PER Périodiques Résumé : This study used administrative data to compare the socio-demographics, health conditions, and health service use of autistic adults with adults with and without other developmental disabilities, after matching for age and sex. Autistic women and men were more likely to have a wide range of physical and mental health conditions compared to adults without developmental disabilities. Rates of co-occurring health conditions were similar or lower among autistic adults compared to adults with other developmental disabilities, except for a higher prevalence of psychiatric conditions among autistic adults. Notably increased psychiatric service use was evident among autistic women and men compared to the other groups. Among age-matched autistic women and men, significant differences were found for physical (i.e. Crohn?s disease/colitis, rheumatoid arthritis) and psychiatric conditions (i.e. psychotic disorders, non-psychotic disorders), as well as service use (i.e. emergency department visits, hospitalizations, family doctor and neurologist visits). These findings suggest autistic adults have high health care needs, as do adults with other developmental disabilities. Mental health support is especially critical for autistic adults and research examining sex and gender effects will assist in tailoring health promotion and intervention efforts.Lay abstractThis study used administrative data from Ontario, Canada to compare the health conditions and service use of autistic women and men with adults with other developmental disabilities and with adults without developmental disabilities. Autistic women and men were more likely to have physical and mental health conditions compared to adults without developmental disabilities. Rates of health conditions were similar or lower among autistic adults compared to adults with other developmental disabilities, except more autistic adults had psychiatric conditions. Autistic women and men used higher rates of psychiatric services compared to all other groups. When comparing autistic women with same aged autistic men, sex differences were found for specific physical (Crohn?s disease/colitis, rheumatoid arthritis) and psychiatric conditions (psychotic disorders, non-psychotic disorders), as well differences in service use (emergency department visits, hospitalizations, family doctor and neurologist visits). These results further highlight the high health needs and service use of autistic women and men, as well as adults with other developmental disabilities. It is critical for future research to focus on mental health support for autistic adults and to better understand how to tailor supports to best serve autistic women. En ligne : http://dx.doi.org/10.1177/13623613221144353 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509 [article] Health conditions and service use of autistic women and men: A retrospective population-based case-control study [Texte imprimé et/ou numérique] / Ami TINT, Auteur ; Hannah CHUNG, Auteur ; Meng-Chuan LAI, Auteur ; Robert BALOGH, Auteur ; Elizabeth LIN, Auteur ; Anna DURBIN, Auteur ; Yona LUNSKY, Auteur . - p.1641-1657. Langues : Anglais (eng) in Autism > 27-6 (August 2023) . - p.1641-1657 Mots-clés : autism;gender;mental health;physical health;service use;sex differences;women Index. décimale : PER Périodiques Résumé : This study used administrative data to compare the socio-demographics, health conditions, and health service use of autistic adults with adults with and without other developmental disabilities, after matching for age and sex. Autistic women and men were more likely to have a wide range of physical and mental health conditions compared to adults without developmental disabilities. Rates of co-occurring health conditions were similar or lower among autistic adults compared to adults with other developmental disabilities, except for a higher prevalence of psychiatric conditions among autistic adults. Notably increased psychiatric service use was evident among autistic women and men compared to the other groups. Among age-matched autistic women and men, significant differences were found for physical (i.e. Crohn?s disease/colitis, rheumatoid arthritis) and psychiatric conditions (i.e. psychotic disorders, non-psychotic disorders), as well as service use (i.e. emergency department visits, hospitalizations, family doctor and neurologist visits). These findings suggest autistic adults have high health care needs, as do adults with other developmental disabilities. Mental health support is especially critical for autistic adults and research examining sex and gender effects will assist in tailoring health promotion and intervention efforts.Lay abstractThis study used administrative data from Ontario, Canada to compare the health conditions and service use of autistic women and men with adults with other developmental disabilities and with adults without developmental disabilities. Autistic women and men were more likely to have physical and mental health conditions compared to adults without developmental disabilities. Rates of health conditions were similar or lower among autistic adults compared to adults with other developmental disabilities, except more autistic adults had psychiatric conditions. Autistic women and men used higher rates of psychiatric services compared to all other groups. When comparing autistic women with same aged autistic men, sex differences were found for specific physical (Crohn?s disease/colitis, rheumatoid arthritis) and psychiatric conditions (psychotic disorders, non-psychotic disorders), as well differences in service use (emergency department visits, hospitalizations, family doctor and neurologist visits). These results further highlight the high health needs and service use of autistic women and men, as well as adults with other developmental disabilities. It is critical for future research to focus on mental health support for autistic adults and to better understand how to tailor supports to best serve autistic women. En ligne : http://dx.doi.org/10.1177/13623613221144353 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509

Premature mortality in a population-based cohort of autistic adults in Canada / Yona LUNSKY in Autism Research, 15-8 (August 2022)  

Public ISBD [article]  inAutism Research > 15-8 (August 2022) . - p.1550-1559 Titre : Premature mortality in a population-based cohort of autistic adults in Canada Type de document : Texte imprimé et/ou numérique Auteurs : Yona LUNSKY, Auteur ; Meng-Chuan LAI, Auteur ; Robert BALOGH, Auteur ; Hannah CHUNG, Auteur ; Anna DURBIN, Auteur ; Patrick JACHYRA, Auteur ; Ami TINT, Auteur ; Jonathan WEISS, Auteur ; Elizabeth LIN, Auteur Article en page(s) : p.1550-1559 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Child  Cohort Studies  Developmental Disabilities/epidemiology  Female  Humans  Infant, Newborn  Male  Mortality, Premature  Ontario/epidemiology  autism  developmental disabilities  premature mortality  sex differences Index. décimale : PER Périodiques Résumé : Research from different countries suggests that autistic adults are more likely to die prematurely than non-autistic adults, but these studies do not always investigate male and female individuals separately and do not consider whether this pattern is unique to autistic people or is also an issue for people with other developmental disabilities. We examined premature mortality in autistic males and females (assigned at birth) in a population-based cohort, compared to males and females with and without other developmental disabilities. Using linked administrative health and social services population data from Ontario, Canada, age-matched males and females aged 19-65years were followed between 2010 and 2016, and causes of death were determined. Over the 6-year observation period, 330 of 42,607 persons (0.77%) in the group without developmental disabilities had died compared to 259 of 10,646 persons (2.43%) in the autism group and 419 of 10,615 persons (3.95%) in the other developmental disabilities group. Autistic males and females were more likely to die than non-autistic males (adjusted risk ratio, RR 3.13, 95%CI 2.58-3.79) and non-autistic females (adjusted RR 3.12, 95%CI 2.35-4.13) without developmental disabilities, but were less likely to die than adults with other developmental disabilities (males: adjusted RR 0.66, 95%CI 0.55-0.79; females: adjusted RR 0.55, 95%CI 0.43-0.71). Most common causes of death varied depending on a person's sex and diagnosis. Given the greater likelihood of premature mortality in adults with developmental disabilities including autism, greater attention and resources directed toward their health and social care are needed, tailored to their sex and diagnosis-informed needs. LAY SUMMARY: This study looked at how many autistic men and women died over 6years (2010-2016), along with how they died, and compared this to adults who did not have autism living in Ontario, Canada. It found that autistic men and women were more than three times as likely to die as people of the same age who did not have a developmental disability. However, adults with other developmental disabilities besides autism were even more likely to die than autistic adults. This means that we have to pay more attention and invest in better social and health care for autistic people, along with people who have other types of developmental disabilities. En ligne : http://dx.doi.org/10.1002/aur.2741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Premature mortality in a population-based cohort of autistic adults in Canada [Texte imprimé et/ou numérique] / Yona LUNSKY, Auteur ; Meng-Chuan LAI, Auteur ; Robert BALOGH, Auteur ; Hannah CHUNG, Auteur ; Anna DURBIN, Auteur ; Patrick JACHYRA, Auteur ; Ami TINT, Auteur ; Jonathan WEISS, Auteur ; Elizabeth LIN, Auteur . - p.1550-1559. Langues : Anglais (eng) in Autism Research > 15-8 (August 2022) . - p.1550-1559 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Child  Cohort Studies  Developmental Disabilities/epidemiology  Female  Humans  Infant, Newborn  Male  Mortality, Premature  Ontario/epidemiology  autism  developmental disabilities  premature mortality  sex differences Index. décimale : PER Périodiques Résumé : Research from different countries suggests that autistic adults are more likely to die prematurely than non-autistic adults, but these studies do not always investigate male and female individuals separately and do not consider whether this pattern is unique to autistic people or is also an issue for people with other developmental disabilities. We examined premature mortality in autistic males and females (assigned at birth) in a population-based cohort, compared to males and females with and without other developmental disabilities. Using linked administrative health and social services population data from Ontario, Canada, age-matched males and females aged 19-65years were followed between 2010 and 2016, and causes of death were determined. Over the 6-year observation period, 330 of 42,607 persons (0.77%) in the group without developmental disabilities had died compared to 259 of 10,646 persons (2.43%) in the autism group and 419 of 10,615 persons (3.95%) in the other developmental disabilities group. Autistic males and females were more likely to die than non-autistic males (adjusted risk ratio, RR 3.13, 95%CI 2.58-3.79) and non-autistic females (adjusted RR 3.12, 95%CI 2.35-4.13) without developmental disabilities, but were less likely to die than adults with other developmental disabilities (males: adjusted RR 0.66, 95%CI 0.55-0.79; females: adjusted RR 0.55, 95%CI 0.43-0.71). Most common causes of death varied depending on a person's sex and diagnosis. Given the greater likelihood of premature mortality in adults with developmental disabilities including autism, greater attention and resources directed toward their health and social care are needed, tailored to their sex and diagnosis-informed needs. LAY SUMMARY: This study looked at how many autistic men and women died over 6years (2010-2016), along with how they died, and compared this to adults who did not have autism living in Ontario, Canada. It found that autistic men and women were more than three times as likely to die as people of the same age who did not have a developmental disability. However, adults with other developmental disabilities besides autism were even more likely to die than autistic adults. This means that we have to pay more attention and invest in better social and health care for autistic people, along with people who have other types of developmental disabilities. En ligne : http://dx.doi.org/10.1002/aur.2741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Repeated use of hospital-based services and delayed hospital discharges in a population-based cohort of autistic adults in Canada / Yona LUNSKY ; Robert BALOGH ; Hannah CHUNG ; Anna DURBIN ; Meng-Chuan LAI ; Ami TINT ; Jonathan WEISS ; Barry Isaacs ; Elizabeth LIN in Autism, 29-2 (February 2025)  

Public ISBD [article]  inAutism > 29-2 (February 2025) . - p.536-543 Titre : Repeated use of hospital-based services and delayed hospital discharges in a population-based cohort of autistic adults in Canada : Autism Type de document : Texte imprimé et/ou numérique Auteurs : Yona LUNSKY, Auteur ; Robert BALOGH, Auteur ; Hannah CHUNG, Auteur ; Anna DURBIN, Auteur ; Meng-Chuan LAI, Auteur ; Ami TINT, Auteur ; Jonathan WEISS, Auteur ; Barry Isaacs, Auteur ; Elizabeth LIN, Auteur Article en page(s) : p.536-543 Langues : Anglais (eng) Mots-clés : autism  emergency departments  hospitalizations Index. décimale : PER Périodiques Résumé : Recognizing higher rates of co-occurring health conditions in autistic adults and the frequent use of hospital-based health care services, this study compared rates of repeat emergency visits, repeat hospitalizations, and delayed discharges in autistic adults to other adults with and without developmental disabilities matched for age and sex, living in Ontario, Canada. Returning to the hospital emergency department within a month, being readmitted to hospital within a month and experiencing a delayed discharge from hospital were each more likely to occur in autistic males and females than their counterparts without developmental disabilities, with the risk ratios being the highest for delayed discharges. Males and females with other developmental disabilities were more likely to return to the emergency department within a month than their autistic counterparts, and males with other developmental disabilities were more likely than autistic males to be readmitted to hospital, but the likelihood of delayed discharge in the two groups was similar. These findings suggest that more needs to be done to both improve hospital-based experiences of autistic adults and adults with other developmental disabilities, and to strengthen community-based care to reduce the likelihood of repeat and extended stays in hospital. Lay abstract We know that autistic people have more health problems and are more likely to go to the emergency department and get hospitalized than other people, but we know less about the problems they have once they get to the hospital. In this study, we looked at all autistic adults in Ontario and compared them to adults who were not autistic and to adults who had other kinds of developmental disabilities to see who came back to the emergency department in the month after an emergency department visit, who got re-hospitalized in the month after being sent home from hospital, and who stayed in the hospital longer than they needed to because there was no place appropriate for them to go to. We found that both autistic males and females were more likely to have these things happen to them than the same age- and sex-matched adults who did not have developmental disabilities. We also found that adults with other kinds of developmental disabilities had similar problems to autistic people. This makes us think that we need to work harder to improve health care for autistic adults and adults with other developmental disabilities when they come to hospital. We also need to make community services work better, and work more closely with hospital services, so that people only come to hospital when they need to and that they can go home when they are ready. En ligne : https://dx.doi.org/10.1177/13623613241299285 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548 [article] Repeated use of hospital-based services and delayed hospital discharges in a population-based cohort of autistic adults in Canada : Autism [Texte imprimé et/ou numérique] / Yona LUNSKY, Auteur ; Robert BALOGH, Auteur ; Hannah CHUNG, Auteur ; Anna DURBIN, Auteur ; Meng-Chuan LAI, Auteur ; Ami TINT, Auteur ; Jonathan WEISS, Auteur ; Barry Isaacs, Auteur ; Elizabeth LIN, Auteur . - p.536-543. Langues : Anglais (eng) in Autism > 29-2 (February 2025) . - p.536-543 Mots-clés : autism  emergency departments  hospitalizations Index. décimale : PER Périodiques Résumé : Recognizing higher rates of co-occurring health conditions in autistic adults and the frequent use of hospital-based health care services, this study compared rates of repeat emergency visits, repeat hospitalizations, and delayed discharges in autistic adults to other adults with and without developmental disabilities matched for age and sex, living in Ontario, Canada. Returning to the hospital emergency department within a month, being readmitted to hospital within a month and experiencing a delayed discharge from hospital were each more likely to occur in autistic males and females than their counterparts without developmental disabilities, with the risk ratios being the highest for delayed discharges. Males and females with other developmental disabilities were more likely to return to the emergency department within a month than their autistic counterparts, and males with other developmental disabilities were more likely than autistic males to be readmitted to hospital, but the likelihood of delayed discharge in the two groups was similar. These findings suggest that more needs to be done to both improve hospital-based experiences of autistic adults and adults with other developmental disabilities, and to strengthen community-based care to reduce the likelihood of repeat and extended stays in hospital. Lay abstract We know that autistic people have more health problems and are more likely to go to the emergency department and get hospitalized than other people, but we know less about the problems they have once they get to the hospital. In this study, we looked at all autistic adults in Ontario and compared them to adults who were not autistic and to adults who had other kinds of developmental disabilities to see who came back to the emergency department in the month after an emergency department visit, who got re-hospitalized in the month after being sent home from hospital, and who stayed in the hospital longer than they needed to because there was no place appropriate for them to go to. We found that both autistic males and females were more likely to have these things happen to them than the same age- and sex-matched adults who did not have developmental disabilities. We also found that adults with other kinds of developmental disabilities had similar problems to autistic people. This makes us think that we need to work harder to improve health care for autistic adults and adults with other developmental disabilities when they come to hospital. We also need to make community services work better, and work more closely with hospital services, so that people only come to hospital when they need to and that they can go home when they are ready. En ligne : https://dx.doi.org/10.1177/13623613241299285 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548

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