Parents’ perspectives of physical activity participation among Canadian adolescents with Autism Spectrum Disorder / Sarah GREGOR in Research in Autism Spectrum Disorders, 48 (April 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 48 (April 2018) . - p.53-62 Titre : Parents’ perspectives of physical activity participation among Canadian adolescents with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sarah GREGOR, Auteur ; Nicole BRUNI, Auteur ; Petar GRKINIC, Auteur ; Lindsey SCHWARTZ, Auteur ; Aimee MCDONALD, Auteur ; Patricia THILLE, Auteur ; Sharon GABISON, Auteur ; Barbara E. GIBSON, Auteur ; Patrick JACHYRA, Auteur Article en page(s) : p.53-62 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder (ASD)  Physical activity  Health  Co-morbid conditions  Qualitative research  Physiotherapy Index. décimale : PER Périodiques Résumé : Background Despite the numerous health and social benefits of regular physical activity participation, adolescents with autism spectrum disorder (ASD) are less likely to be active compared to their age-related peers. Yet, little is known why they are predominantly inactive, with a paucity of research that has examined how socio-behavioural mechanisms influence their participation. With no previous research in Canada, and very limited research in this area, this study examined parents’ perspectives and experiences of physical activity participation. Method Ten in-depth interviews were conducted with parents of adolescents with ASD. Interview data was analyzed thematically. Results Parents prioritized behavioural/communication interventions over physical activity throughout their adolescent’s life. This prioritization was most pronounced during childhood, and the lack of participation during their formative years shaped physical activity interests in adolescence. Second, parents also described experiencing systemic challenges when accessing physical activity programs, including a lack of awareness of ASD among service providers, funding challenges, and limited/few program options. The lack of PA individualization and competing commitments contributed to tremendous strain on families. Third, the findings suggest early guidance is needed to help parents balance family life, schooling, and therapies with PA. Conclusion Findings suggest that biological and socio-behavioural mechanisms functioned concurrently to influence physical activity participation. A family-centred, multidisciplinary collaborative approach that includes health care practitioners such as physical therapists can potentially be used to facilitate physical activity participation. Efforts educating community service providers about ASD are also needed in an effort to increase participation. En ligne : https://doi.org/10.1016/j.rasd.2018.01.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=340 [article] Parents’ perspectives of physical activity participation among Canadian adolescents with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Sarah GREGOR, Auteur ; Nicole BRUNI, Auteur ; Petar GRKINIC, Auteur ; Lindsey SCHWARTZ, Auteur ; Aimee MCDONALD, Auteur ; Patricia THILLE, Auteur ; Sharon GABISON, Auteur ; Barbara E. GIBSON, Auteur ; Patrick JACHYRA, Auteur . - p.53-62. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 48 (April 2018) . - p.53-62 Mots-clés : Autism spectrum disorder (ASD)  Physical activity  Health  Co-morbid conditions  Qualitative research  Physiotherapy Index. décimale : PER Périodiques Résumé : Background Despite the numerous health and social benefits of regular physical activity participation, adolescents with autism spectrum disorder (ASD) are less likely to be active compared to their age-related peers. Yet, little is known why they are predominantly inactive, with a paucity of research that has examined how socio-behavioural mechanisms influence their participation. With no previous research in Canada, and very limited research in this area, this study examined parents’ perspectives and experiences of physical activity participation. Method Ten in-depth interviews were conducted with parents of adolescents with ASD. Interview data was analyzed thematically. Results Parents prioritized behavioural/communication interventions over physical activity throughout their adolescent’s life. This prioritization was most pronounced during childhood, and the lack of participation during their formative years shaped physical activity interests in adolescence. Second, parents also described experiencing systemic challenges when accessing physical activity programs, including a lack of awareness of ASD among service providers, funding challenges, and limited/few program options. The lack of PA individualization and competing commitments contributed to tremendous strain on families. Third, the findings suggest early guidance is needed to help parents balance family life, schooling, and therapies with PA. Conclusion Findings suggest that biological and socio-behavioural mechanisms functioned concurrently to influence physical activity participation. A family-centred, multidisciplinary collaborative approach that includes health care practitioners such as physical therapists can potentially be used to facilitate physical activity participation. Efforts educating community service providers about ASD are also needed in an effort to increase participation. En ligne : https://doi.org/10.1016/j.rasd.2018.01.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=340

Physical activity participation among adolescents with autism spectrum disorder / Patrick JACHYRA in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.613-626 Titre : Physical activity participation among adolescents with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Patrick JACHYRA, Auteur ; Rebecca RENWICK, Auteur ; Brenda GLADSTONE, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Barbara E GIBSON, Auteur Article en page(s) : p.613-626 Langues : Anglais (eng) Mots-clés : adolescents  autism spectrum disorder  digital storytelling  physical activity  physical health  qualitative research Index. décimale : PER Périodiques Résumé : Adolescents with autism spectrum disorder are less likely to be physically active compared to their age-related peers. Despite the lower levels of physical activity observed among adolescents with autism spectrum disorder, it is unknown why they are predominantly inactive. Much of the research so far has focused on understanding how biological aspects influence physical activity participation. But there is little research that has examined how social and cultural components influence their physical activity participation. There is also little research that has sought the perspectives and experiences of adolescents with autism spectrum disorder. In this study, 10 adolescent boys with autism spectrum disorder created a digital story, and also participated in two face-to-face interviews. The purpose of the study was to examine how individual, social, and cultural forces influenced physical activity participation. Analysis of the data highlight that bullying, challenges in community programs, and the prioritization of therapeutic interventions limited participation. On the contrary, participants were more likely to be active when physical activity generated meaning, purpose, a sense of identity, and affective pleasures. The findings add new knowledge suggesting that adolescents with autism spectrum disorder are not simply unmotivated. Rather, physical activity participation was shaped by wider social experiences, norms, values, and practices in which they were immersed. The findings suggest a need for directed efforts to create policies and practices which are individualized and reflective of the needs and abilities of adolescents with autism spectrum disorder to promote physical activity participation and potentially enhance physical health and wellbeing. En ligne : http://dx.doi.org/10.1177/1362361320949344 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Physical activity participation among adolescents with autism spectrum disorder [Texte imprimé et/ou numérique] / Patrick JACHYRA, Auteur ; Rebecca RENWICK, Auteur ; Brenda GLADSTONE, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Barbara E GIBSON, Auteur . - p.613-626. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.613-626 Mots-clés : adolescents  autism spectrum disorder  digital storytelling  physical activity  physical health  qualitative research Index. décimale : PER Périodiques Résumé : Adolescents with autism spectrum disorder are less likely to be physically active compared to their age-related peers. Despite the lower levels of physical activity observed among adolescents with autism spectrum disorder, it is unknown why they are predominantly inactive. Much of the research so far has focused on understanding how biological aspects influence physical activity participation. But there is little research that has examined how social and cultural components influence their physical activity participation. There is also little research that has sought the perspectives and experiences of adolescents with autism spectrum disorder. In this study, 10 adolescent boys with autism spectrum disorder created a digital story, and also participated in two face-to-face interviews. The purpose of the study was to examine how individual, social, and cultural forces influenced physical activity participation. Analysis of the data highlight that bullying, challenges in community programs, and the prioritization of therapeutic interventions limited participation. On the contrary, participants were more likely to be active when physical activity generated meaning, purpose, a sense of identity, and affective pleasures. The findings add new knowledge suggesting that adolescents with autism spectrum disorder are not simply unmotivated. Rather, physical activity participation was shaped by wider social experiences, norms, values, and practices in which they were immersed. The findings suggest a need for directed efforts to create policies and practices which are individualized and reflective of the needs and abilities of adolescents with autism spectrum disorder to promote physical activity participation and potentially enhance physical health and wellbeing. En ligne : http://dx.doi.org/10.1177/1362361320949344 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Premature mortality in a population-based cohort of autistic adults in Canada / Yona LUNSKY in Autism Research, 15-8 (August 2022)  

Public ISBD [article]  inAutism Research > 15-8 (August 2022) . - p.1550-1559 Titre : Premature mortality in a population-based cohort of autistic adults in Canada Type de document : Texte imprimé et/ou numérique Auteurs : Yona LUNSKY, Auteur ; Meng-Chuan LAI, Auteur ; Robert BALOGH, Auteur ; Hannah CHUNG, Auteur ; Anna DURBIN, Auteur ; Patrick JACHYRA, Auteur ; Ami TINT, Auteur ; Jonathan WEISS, Auteur ; Elizabeth LIN, Auteur Article en page(s) : p.1550-1559 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Child  Cohort Studies  Developmental Disabilities/epidemiology  Female  Humans  Infant, Newborn  Male  Mortality, Premature  Ontario/epidemiology  autism  developmental disabilities  premature mortality  sex differences Index. décimale : PER Périodiques Résumé : Research from different countries suggests that autistic adults are more likely to die prematurely than non-autistic adults, but these studies do not always investigate male and female individuals separately and do not consider whether this pattern is unique to autistic people or is also an issue for people with other developmental disabilities. We examined premature mortality in autistic males and females (assigned at birth) in a population-based cohort, compared to males and females with and without other developmental disabilities. Using linked administrative health and social services population data from Ontario, Canada, age-matched males and females aged 19-65years were followed between 2010 and 2016, and causes of death were determined. Over the 6-year observation period, 330 of 42,607 persons (0.77%) in the group without developmental disabilities had died compared to 259 of 10,646 persons (2.43%) in the autism group and 419 of 10,615 persons (3.95%) in the other developmental disabilities group. Autistic males and females were more likely to die than non-autistic males (adjusted risk ratio, RR 3.13, 95%CI 2.58-3.79) and non-autistic females (adjusted RR 3.12, 95%CI 2.35-4.13) without developmental disabilities, but were less likely to die than adults with other developmental disabilities (males: adjusted RR 0.66, 95%CI 0.55-0.79; females: adjusted RR 0.55, 95%CI 0.43-0.71). Most common causes of death varied depending on a person's sex and diagnosis. Given the greater likelihood of premature mortality in adults with developmental disabilities including autism, greater attention and resources directed toward their health and social care are needed, tailored to their sex and diagnosis-informed needs. LAY SUMMARY: This study looked at how many autistic men and women died over 6years (2010-2016), along with how they died, and compared this to adults who did not have autism living in Ontario, Canada. It found that autistic men and women were more than three times as likely to die as people of the same age who did not have a developmental disability. However, adults with other developmental disabilities besides autism were even more likely to die than autistic adults. This means that we have to pay more attention and invest in better social and health care for autistic people, along with people who have other types of developmental disabilities. En ligne : http://dx.doi.org/10.1002/aur.2741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Premature mortality in a population-based cohort of autistic adults in Canada [Texte imprimé et/ou numérique] / Yona LUNSKY, Auteur ; Meng-Chuan LAI, Auteur ; Robert BALOGH, Auteur ; Hannah CHUNG, Auteur ; Anna DURBIN, Auteur ; Patrick JACHYRA, Auteur ; Ami TINT, Auteur ; Jonathan WEISS, Auteur ; Elizabeth LIN, Auteur . - p.1550-1559. Langues : Anglais (eng) in Autism Research > 15-8 (August 2022) . - p.1550-1559 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Child  Cohort Studies  Developmental Disabilities/epidemiology  Female  Humans  Infant, Newborn  Male  Mortality, Premature  Ontario/epidemiology  autism  developmental disabilities  premature mortality  sex differences Index. décimale : PER Périodiques Résumé : Research from different countries suggests that autistic adults are more likely to die prematurely than non-autistic adults, but these studies do not always investigate male and female individuals separately and do not consider whether this pattern is unique to autistic people or is also an issue for people with other developmental disabilities. We examined premature mortality in autistic males and females (assigned at birth) in a population-based cohort, compared to males and females with and without other developmental disabilities. Using linked administrative health and social services population data from Ontario, Canada, age-matched males and females aged 19-65years were followed between 2010 and 2016, and causes of death were determined. Over the 6-year observation period, 330 of 42,607 persons (0.77%) in the group without developmental disabilities had died compared to 259 of 10,646 persons (2.43%) in the autism group and 419 of 10,615 persons (3.95%) in the other developmental disabilities group. Autistic males and females were more likely to die than non-autistic males (adjusted risk ratio, RR 3.13, 95%CI 2.58-3.79) and non-autistic females (adjusted RR 3.12, 95%CI 2.35-4.13) without developmental disabilities, but were less likely to die than adults with other developmental disabilities (males: adjusted RR 0.66, 95%CI 0.55-0.79; females: adjusted RR 0.55, 95%CI 0.43-0.71). Most common causes of death varied depending on a person's sex and diagnosis. Given the greater likelihood of premature mortality in adults with developmental disabilities including autism, greater attention and resources directed toward their health and social care are needed, tailored to their sex and diagnosis-informed needs. LAY SUMMARY: This study looked at how many autistic men and women died over 6years (2010-2016), along with how they died, and compared this to adults who did not have autism living in Ontario, Canada. It found that autistic men and women were more than three times as likely to die as people of the same age who did not have a developmental disability. However, adults with other developmental disabilities besides autism were even more likely to die than autistic adults. This means that we have to pay more attention and invest in better social and health care for autistic people, along with people who have other types of developmental disabilities. En ligne : http://dx.doi.org/10.1002/aur.2741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Suicidal Thoughts and Behaviours Among Autistic Adults Presenting to the Psychiatric Emergency Department: An Exploratory Chart Review / Patrick JACHYRA in Journal of Autism and Developmental Disorders, 52-5 (May 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2367-2375 Titre : Suicidal Thoughts and Behaviours Among Autistic Adults Presenting to the Psychiatric Emergency Department: An Exploratory Chart Review Type de document : Texte imprimé et/ou numérique Auteurs : Patrick JACHYRA, Auteur ; Meng-Chuan LAI, Auteur ; Juveria ZAHEER, Auteur ; Natasha FERNANDES, Auteur ; Michelle DALE, Auteur ; Amanda SAWYER, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.2367-2375 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis/psychology  Emergency Service, Hospital  Humans  Retrospective Studies  Suicidal Ideation  Autism  Chart review  Emergency department  Interpersonal conflicts  Life transition  Rumination  Suicide Index. décimale : PER Périodiques Résumé : Despite increasing attention on suicidality in autistic people, we know little about suicidal presentations when autistic individuals present to hospital emergency departments (ED). We conducted an exploratory retrospective chart review of suicidal thoughts and behaviours (STB) of autistic adults who presented to a psychiatric ED. The analysis included 16 charts over a 10-week period. Findings highlight that reported STB were not always the presenting issue. Life transitions and interpersonal conflicts were common antecedents, and active rumination about STB was distressing and fatiguing. Findings imply that ED visits serve as important opportunities for suicidal risk reduction for autistic individuals, through implementation of strategies for identification of STB such as active screening, and the provision of suicide resources tailored to autistic people. En ligne : http://dx.doi.org/10.1007/s10803-021-05102-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 [article] Suicidal Thoughts and Behaviours Among Autistic Adults Presenting to the Psychiatric Emergency Department: An Exploratory Chart Review [Texte imprimé et/ou numérique] / Patrick JACHYRA, Auteur ; Meng-Chuan LAI, Auteur ; Juveria ZAHEER, Auteur ; Natasha FERNANDES, Auteur ; Michelle DALE, Auteur ; Amanda SAWYER, Auteur ; Yona LUNSKY, Auteur . - p.2367-2375. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2367-2375 Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis/psychology  Emergency Service, Hospital  Humans  Retrospective Studies  Suicidal Ideation  Autism  Chart review  Emergency department  Interpersonal conflicts  Life transition  Rumination  Suicide Index. décimale : PER Périodiques Résumé : Despite increasing attention on suicidality in autistic people, we know little about suicidal presentations when autistic individuals present to hospital emergency departments (ED). We conducted an exploratory retrospective chart review of suicidal thoughts and behaviours (STB) of autistic adults who presented to a psychiatric ED. The analysis included 16 charts over a 10-week period. Findings highlight that reported STB were not always the presenting issue. Life transitions and interpersonal conflicts were common antecedents, and active rumination about STB was distressing and fatiguing. Findings imply that ED visits serve as important opportunities for suicidal risk reduction for autistic individuals, through implementation of strategies for identification of STB such as active screening, and the provision of suicide resources tailored to autistic people. En ligne : http://dx.doi.org/10.1007/s10803-021-05102-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476

Understanding the Use of the Term "Weaponized Autism" in An Alt-Right Social Media Platform / Christie WELCH in Journal of Autism and Developmental Disorders, 53-10 (October 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.4035-4046 Titre : Understanding the Use of the Term "Weaponized Autism" in An Alt-Right Social Media Platform Type de document : Texte imprimé et/ou numérique Auteurs : Christie WELCH, Auteur ; Lili SENMAN, Auteur ; Rachel LOFTIN, Auteur ; Christian PICCIOLINI, Auteur ; John ROBISON, Auteur ; Alexander WESTPHAL, Auteur ; Barbara PERRY, Auteur ; Jenny NGUYEN, Auteur ; Patrick JACHYRA, Auteur ; Suzanne STEVENSON, Auteur ; Jai AGGARWAL, Auteur ; Sachindri WIJEKOON, Auteur ; Simon BARON-COHEN, Auteur ; Melanie PENNER, Auteur Article en page(s) : p.4035-4046 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The term "weaponized autism" is frequently used on extremist platforms. To better understand this, we conducted a discourse analysis of posts on Gab, an alt-right social media platform. En ligne : https://doi.org/10.1007/s10803-022-05701-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511 [article] Understanding the Use of the Term "Weaponized Autism" in An Alt-Right Social Media Platform [Texte imprimé et/ou numérique] / Christie WELCH, Auteur ; Lili SENMAN, Auteur ; Rachel LOFTIN, Auteur ; Christian PICCIOLINI, Auteur ; John ROBISON, Auteur ; Alexander WESTPHAL, Auteur ; Barbara PERRY, Auteur ; Jenny NGUYEN, Auteur ; Patrick JACHYRA, Auteur ; Suzanne STEVENSON, Auteur ; Jai AGGARWAL, Auteur ; Sachindri WIJEKOON, Auteur ; Simon BARON-COHEN, Auteur ; Melanie PENNER, Auteur . - p.4035-4046. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.4035-4046 Index. décimale : PER Périodiques Résumé : The term "weaponized autism" is frequently used on extremist platforms. To better understand this, we conducted a discourse analysis of posts on Gab, an alt-right social media platform. En ligne : https://doi.org/10.1007/s10803-022-05701-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511

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