Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience / Rachel AG O?CONNOR in Autism, 28-4 (April 2024)  

Public ISBD [article]  inAutism > 28-4 (April 2024) . - p.816-830 Titre : Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience Type de document : Texte imprimé et/ou numérique Auteurs : Rachel AG O?CONNOR, Auteur ; Mary DOHERTY, Auteur ; Theresa RYAN-ENRIGHT, Auteur ; Keith GAYNOR, Auteur Article en page(s) : p.816-830 Langues : Anglais (eng) Mots-clés : autism,female,mental health,neurodiversity,well-being Index. décimale : PER Périodiques Résumé : Autistic girls and women experience more mental health difficulties and poorer well-being than their non-autistic peers. Little emphasis has been placed on the perspectives of the girls and women within the literature. This review aims to provide an overview of the factors that impact autistic females' emotional and social well-being and mental health, as described in self-report qualitative studies. The protocol for the present review was pre-registered on PROSPERO (CRD42020184983), and this article follows Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. PsycInfo, Academic Search Complete and MEDLINE were systematically searched using a pre-defined search string. This yielded 877 unique records, which were systematically screened by two reviewers, resulting in 52 eligible studies. Structured data extraction and quality appraisal were completed. The present review presents the perspectives of 973 autistic females aged 13-70+. Thematic synthesis identified three themes and nine subthemes. Our findings suggest that autistic girls' and women?s experiences can be conceptualised within a social model, where biological and psychological factors ('The Autistic Neurotype') are experienced through the lens of social factors ('The Neurotypical World' and 'Stigma'), together shaping well-being and mental health outcomes. Lay abstract Difficulties with mental health and low levels of well-being are more common among autistic girls and women than non-autistic people, but we do not fully understand why. Research does not focus enough on what autistic girls and women could tell us about this. This review aims to summarise the studies where autistic girls and women explain things that affect their mental health and well-being to help us understand how to prevent these difficulties from developing. Three research databases were searched to find possibly relevant studies. There were 877 studies found, which two researchers screened according to particular criteria. They found 52 studies that could be included in this review. One researcher evaluated the quality of these studies and extracted the key information from them. This review summarises the views of 973 autistic girls and women aged between 13 and 70+. The findings from the 52 studies were analysed, and we found many factors that affect the mental health and well-being of autistic girls and women. These factors fall into two categories: (1) difficulties living in a world not designed for autistic people and (2) the impact of stigma due to being autistic. En ligne : https://dx.doi.org/10.1177/13623613231215026 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525 [article] Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience [Texte imprimé et/ou numérique] / Rachel AG O?CONNOR, Auteur ; Mary DOHERTY, Auteur ; Theresa RYAN-ENRIGHT, Auteur ; Keith GAYNOR, Auteur . - p.816-830. Langues : Anglais (eng) in Autism > 28-4 (April 2024) . - p.816-830 Mots-clés : autism,female,mental health,neurodiversity,well-being Index. décimale : PER Périodiques Résumé : Autistic girls and women experience more mental health difficulties and poorer well-being than their non-autistic peers. Little emphasis has been placed on the perspectives of the girls and women within the literature. This review aims to provide an overview of the factors that impact autistic females' emotional and social well-being and mental health, as described in self-report qualitative studies. The protocol for the present review was pre-registered on PROSPERO (CRD42020184983), and this article follows Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. PsycInfo, Academic Search Complete and MEDLINE were systematically searched using a pre-defined search string. This yielded 877 unique records, which were systematically screened by two reviewers, resulting in 52 eligible studies. Structured data extraction and quality appraisal were completed. The present review presents the perspectives of 973 autistic females aged 13-70+. Thematic synthesis identified three themes and nine subthemes. Our findings suggest that autistic girls' and women?s experiences can be conceptualised within a social model, where biological and psychological factors ('The Autistic Neurotype') are experienced through the lens of social factors ('The Neurotypical World' and 'Stigma'), together shaping well-being and mental health outcomes. Lay abstract Difficulties with mental health and low levels of well-being are more common among autistic girls and women than non-autistic people, but we do not fully understand why. Research does not focus enough on what autistic girls and women could tell us about this. This review aims to summarise the studies where autistic girls and women explain things that affect their mental health and well-being to help us understand how to prevent these difficulties from developing. Three research databases were searched to find possibly relevant studies. There were 877 studies found, which two researchers screened according to particular criteria. They found 52 studies that could be included in this review. One researcher evaluated the quality of these studies and extracted the key information from them. This review summarises the views of 973 autistic girls and women aged between 13 and 70+. The findings from the 52 studies were analysed, and we found many factors that affect the mental health and well-being of autistic girls and women. These factors fall into two categories: (1) difficulties living in a world not designed for autistic people and (2) the impact of stigma due to being autistic. En ligne : https://dx.doi.org/10.1177/13623613231215026 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525

A systematic review of autistic children’s prosocial behaviour / Theresa RYAN-ENRIGHT in Research in Autism Spectrum Disorders, 98 (October 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 98 (October 2022) . - 102023 Titre : A systematic review of autistic children’s prosocial behaviour Type de document : Texte imprimé et/ou numérique Auteurs : Theresa RYAN-ENRIGHT, Auteur ; Rachel O’CONNOR, Auteur ; Jessica BRAMHAM, Auteur ; Laura K. TAYLOR, Auteur Article en page(s) : 102023 Langues : Anglais (eng) Mots-clés : Prosocial behaviour  Comforting  Sharing  Helping  Children  Autistic strengths  Systematic review  PRISMA Index. décimale : PER Périodiques Résumé : Background Prosocial behaviour (e.g., comforting, helping, sharing) is associated with important positive life outcomes. Historical and recent theory, evidence and personal accounts within the autism community present a mixed picture regarding Autistic children’s prosocial engagement. This systematic review consolidates, for the first time, how empirical studies have been measuring Autistic children’s prosocial behaviour to date (objective one). This review clarifies what knowledge the evidence provides, specifically how the type (e.g., comforting, helping, sharing), target (e.g., parent, experimenter, Autistic or neurotypical peer) and timing (e.g., young, middle, and late childhood) affect Autistic children’s prosocial behaviour (objective two). Methods Relevant published records were identified through systematic searches of three electronic databases: PsychINFO, PubMED and Embase. Thirty studies presented in 29 articles met eligibility criteria and were included for data-extraction, quality assessment and narrative synthesis. Results The most common methodologies used were found to be: in-person paradigms, games, informant reports, and self-reports. Reliability and validity efforts were inconsistent. It is hoped these findings will act as a benchmark for development of future research in the area. Outcomes were found to be much more positive about Autistic children’s engagement in prosocial behaviour than diagnostic criteria and historical theory suggests, with Autistic children often engaging in prosocial behaviour to the same frequency as comparison groups despite unfamiliar and neurotypical targets. Narrative synthesis revealed moderating variables and differing patterns and styles of Autistic children’s prosocial behaviour. Conclusions Findings encourage Autistic strengths-based approaches and caution is expressed regarding findings possibly linked to Autistic masking. En ligne : https://doi.org/10.1016/j.rasd.2022.102023 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 [article] A systematic review of autistic children’s prosocial behaviour [Texte imprimé et/ou numérique] / Theresa RYAN-ENRIGHT, Auteur ; Rachel O’CONNOR, Auteur ; Jessica BRAMHAM, Auteur ; Laura K. TAYLOR, Auteur . - 102023. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 98 (October 2022) . - 102023 Mots-clés : Prosocial behaviour  Comforting  Sharing  Helping  Children  Autistic strengths  Systematic review  PRISMA Index. décimale : PER Périodiques Résumé : Background Prosocial behaviour (e.g., comforting, helping, sharing) is associated with important positive life outcomes. Historical and recent theory, evidence and personal accounts within the autism community present a mixed picture regarding Autistic children’s prosocial engagement. This systematic review consolidates, for the first time, how empirical studies have been measuring Autistic children’s prosocial behaviour to date (objective one). This review clarifies what knowledge the evidence provides, specifically how the type (e.g., comforting, helping, sharing), target (e.g., parent, experimenter, Autistic or neurotypical peer) and timing (e.g., young, middle, and late childhood) affect Autistic children’s prosocial behaviour (objective two). Methods Relevant published records were identified through systematic searches of three electronic databases: PsychINFO, PubMED and Embase. Thirty studies presented in 29 articles met eligibility criteria and were included for data-extraction, quality assessment and narrative synthesis. Results The most common methodologies used were found to be: in-person paradigms, games, informant reports, and self-reports. Reliability and validity efforts were inconsistent. It is hoped these findings will act as a benchmark for development of future research in the area. Outcomes were found to be much more positive about Autistic children’s engagement in prosocial behaviour than diagnostic criteria and historical theory suggests, with Autistic children often engaging in prosocial behaviour to the same frequency as comparison groups despite unfamiliar and neurotypical targets. Narrative synthesis revealed moderating variables and differing patterns and styles of Autistic children’s prosocial behaviour. Conclusions Findings encourage Autistic strengths-based approaches and caution is expressed regarding findings possibly linked to Autistic masking. En ligne : https://doi.org/10.1016/j.rasd.2022.102023 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490

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