Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia / Bethlehem TEKOLA in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.51-63 Titre : Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia Type de document : texte imprimé Auteurs : Bethlehem TEKOLA, Auteur ; Fikirte GIRMA, Auteur ; Mersha KINFE, Auteur ; Rehana ABDURAHMAN, Auteur ; Markos TESFAYE, Auteur ; Zemi YENUS, Auteur ; Erica SALOMONE, Auteur ; Laura PACIONE, Auteur ; Abebaw FEKADU, Auteur ; Chiara SERVILI, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur Article en page(s) : p.51-63 Langues : Anglais (eng) Mots-clés : Ethiopia  caregivers  developmental delay  developmental disorders  parent-mediated  parenting skills programme  qualitative Index. décimale : PER Périodiques Résumé : The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361319848532 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia [texte imprimé] / Bethlehem TEKOLA, Auteur ; Fikirte GIRMA, Auteur ; Mersha KINFE, Auteur ; Rehana ABDURAHMAN, Auteur ; Markos TESFAYE, Auteur ; Zemi YENUS, Auteur ; Erica SALOMONE, Auteur ; Laura PACIONE, Auteur ; Abebaw FEKADU, Auteur ; Chiara SERVILI, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur . - p.51-63. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.51-63 Mots-clés : Ethiopia  caregivers  developmental delay  developmental disorders  parent-mediated  parenting skills programme  qualitative Index. décimale : PER Périodiques Résumé : The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361319848532 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Ethiopian community health workers' beliefs and attitudes towards children with autism: Impact of a brief training intervention / Dejene TILAHUN in Autism, 23-1 (January 2019)  

Public ISBD [article]  inAutism > 23-1 (January 2019) . - p.39-49 Titre : Ethiopian community health workers' beliefs and attitudes towards children with autism: Impact of a brief training intervention Type de document : texte imprimé Auteurs : Dejene TILAHUN, Auteur ; Abebaw FEKADU, Auteur ; Bethlehem TEKOLA, Auteur ; Mesfin ARAYA, Auteur ; Ilona ROTH, Auteur ; Basiro DAVEY, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur Article en page(s) : p.39-49 Langues : Anglais (eng) Mots-clés : attitude  autism spectrum disorder  community health workers  developing  countries  developmental disabilities  Ethiopia  stigma  mental-health  low-income  illness  disorders  africa  guangzhou  knowledge  people  staff  Psychology Index. décimale : PER Périodiques Résumé : There is a severe shortage of services for children with autism in Ethiopia; access to services is further impeded by negative beliefs and stigmatising attitudes towards affected children and their families. To increase access to services, care provision is decentralised through task-shifted care by community health extension workers. This study aimed to examine the impact of a brief training (Health Education and Training; HEAT) for Ethiopian rural health extension workers and comprised three groups: (1) health extension workers who completed a basic mental health training module (HEAT group, N = 104); (2) health extension workers who received enhanced training, comprising basic HEAT as well as video-based training on developmental disorders and a mental health pocket guide (HEAT+ group, N = 97); and (3) health extension workers untrained in mental health (N = 108). All participants completed a questionnaire assessing beliefs and social distance towards children with autism. Both the HEAT and HEAT+ group showed fewer negative beliefs and decreased social distance towards children with autism compared to the untrained health extension worker group, with the HEAT+ group outperforming the HEAT group. However, HEAT+ trained health extension workers were less likely to have positive expectations about children with autism than untrained health extension workers. These findings have relevance for task-sharing and scale up of autism services in low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361317730298 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379 [article] Ethiopian community health workers' beliefs and attitudes towards children with autism: Impact of a brief training intervention [texte imprimé] / Dejene TILAHUN, Auteur ; Abebaw FEKADU, Auteur ; Bethlehem TEKOLA, Auteur ; Mesfin ARAYA, Auteur ; Ilona ROTH, Auteur ; Basiro DAVEY, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur . - p.39-49. Langues : Anglais (eng) in Autism > 23-1 (January 2019) . - p.39-49 Mots-clés : attitude  autism spectrum disorder  community health workers  developing  countries  developmental disabilities  Ethiopia  stigma  mental-health  low-income  illness  disorders  africa  guangzhou  knowledge  people  staff  Psychology Index. décimale : PER Périodiques Résumé : There is a severe shortage of services for children with autism in Ethiopia; access to services is further impeded by negative beliefs and stigmatising attitudes towards affected children and their families. To increase access to services, care provision is decentralised through task-shifted care by community health extension workers. This study aimed to examine the impact of a brief training (Health Education and Training; HEAT) for Ethiopian rural health extension workers and comprised three groups: (1) health extension workers who completed a basic mental health training module (HEAT group, N = 104); (2) health extension workers who received enhanced training, comprising basic HEAT as well as video-based training on developmental disorders and a mental health pocket guide (HEAT+ group, N = 97); and (3) health extension workers untrained in mental health (N = 108). All participants completed a questionnaire assessing beliefs and social distance towards children with autism. Both the HEAT and HEAT+ group showed fewer negative beliefs and decreased social distance towards children with autism compared to the untrained health extension worker group, with the HEAT+ group outperforming the HEAT group. However, HEAT+ trained health extension workers were less likely to have positive expectations about children with autism than untrained health extension workers. These findings have relevance for task-sharing and scale up of autism services in low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361317730298 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379

Neurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships / Yulin CHENG in Autism, 27-3 (April 2023)  

Public ISBD [article]  inAutism > 27-3 (April 2023) . - p.573-577 Titre : Neurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships Type de document : texte imprimé Auteurs : Yulin CHENG, Auteur ; Bethlehem TEKOLA, Auteur ; Anand BALASUBRAMANIAN, Auteur ; Laura CRANE, Auteur ; Kathy LEADBITTER, Auteur Article en page(s) : p.573-577 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1177/13623613231159165 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] Neurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships [texte imprimé] / Yulin CHENG, Auteur ; Bethlehem TEKOLA, Auteur ; Anand BALASUBRAMANIAN, Auteur ; Laura CRANE, Auteur ; Kathy LEADBITTER, Auteur . - p.573-577. Langues : Anglais (eng) in Autism > 27-3 (April 2023) . - p.573-577 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1177/13623613231159165 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

The experiences of parents raising children with developmental disabilities in Ethiopia / Bethlehem TEKOLA in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.539-551 Titre : The experiences of parents raising children with developmental disabilities in Ethiopia Type de document : texte imprimé Auteurs : Bethlehem TEKOLA, Auteur ; Mersha KINFE, Auteur ; Fikirte GIRMA BAYOUH, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur Article en page(s) : p.539-551 Langues : Anglais (eng) Mots-clés : children  developmental disabilities  Ethiopia  parents  qualitative Index. décimale : PER Périodiques Résumé : The experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. Parents’ lived experiences can provide insights into local conceptualizations of developmental disabilities, challenges children and their families face and their needs. This study explores the experiences of parents (14 mothers and 4 fathers) raising children with developmental disabilities in urban and rural Ethiopia using in-depth interviews. Cultural and religious beliefs played a role in the types of delays or differences in their child’s development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple and intersecting struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed. En ligne : http://dx.doi.org/10.1177/13623613221105085 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] The experiences of parents raising children with developmental disabilities in Ethiopia [texte imprimé] / Bethlehem TEKOLA, Auteur ; Mersha KINFE, Auteur ; Fikirte GIRMA BAYOUH, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur . - p.539-551. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.539-551 Mots-clés : children  developmental disabilities  Ethiopia  parents  qualitative Index. décimale : PER Périodiques Résumé : The experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. Parents’ lived experiences can provide insights into local conceptualizations of developmental disabilities, challenges children and their families face and their needs. This study explores the experiences of parents (14 mothers and 4 fathers) raising children with developmental disabilities in urban and rural Ethiopia using in-depth interviews. Cultural and religious beliefs played a role in the types of delays or differences in their child’s development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple and intersecting struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed. En ligne : http://dx.doi.org/10.1177/13623613221105085 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

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