An initial trial of OPT-In-Early: An online training program for caregivers of autistic children / Yael G DAI in Autism, 27-6 (August 2023)  

Public ISBD [article]  inAutism > 27-6 (August 2023) . - p.1601-1615 Titre : An initial trial of OPT-In-Early: An online training program for caregivers of autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Yael G DAI, Auteur ; Rebecca P THOMAS, Auteur ; Lynn BRENNAN, Auteur ; My-Linh LUU, Auteur ; Jamie HUGHES-LIKA, Auteur ; Molly REILLY, Auteur ; Paula MORENO, Auteur ; Brenda OBE, Auteur ; Kelli B AHMED, Auteur ; Leandra N BERRY, Auteur ; Robin P GOIN-KOCHEL, Auteur ; Molly S HELT, Auteur ; Marianne L BARTON, Auteur ; Thyde DUMONT-MATHIEU, Auteur ; Diana L ROBINS, Auteur ; Deborah A FEIN, Auteur Article en page(s) : p.1601-1615 Langues : Anglais (eng) Mots-clés : autistic;online training;parent training;self-directed;telehealth Index. décimale : PER Périodiques Résumé : Online Parent Training in Early Behavioral Intervention (OPT-In-Early) is a self-directed resource for caregivers of autistic children. Sixty-three parent-child dyads from three states in were randomized to the OPT-In-Early or treatment as usual group. Parents in both groups completed baseline and post-treatment visits, which were targeted for 4?months apart but allowed to go up to 6?months. Compared to parents in the treatment as usual group, parents randomized to OPT-In-Early learned more evidence-based intervention principles from baseline to post-treatment and were rated by observers blind to group and time as increasing their use of these strategies during brief semi-structured interactions with their children. Parent participation in OPT-In-Early did not significantly influence children?s social communication as coded from one observation session. Results suggest that parents acquired knowledge and skills in intervention techniques from OPT-In-Early. Longer trials may be needed for gains in child behavior.Lay abstractEarly intervention can help children learn language and improve social communication. However, many barriers, including the expense of services and an insufficient number of providers, prohibit families from accessing services when their children are young. We developed a comprehensive online program for caregivers of autistic children. The program, Online Parent Training in Early Behavioral Intervention (OPT-In-Early), uses text and video demonstrations to teach caregivers effective methods for improving their children?s language, social, and adaptive skills (e.g. using utensils, toilet training), and reducing their children?s disruptive behavior. Sixty-three parents from three states participated in the study. Half of the parents received access to the OPT-In-Early program. After 4?months, parents who had access to the OPT-In-Early program learned more effective intervention strategies, and started using these strategies during interactions with their children, than parents who did not receive access to the program. Parent participation in OPT-In-Early did not significantly influence children?s social communication compared to children whose parents did not have access to OPT-In-Early. A longer duration of parents using learned intervention skills with their children may be needed for children?s social communication skills to improve. En ligne : http://dx.doi.org/10.1177/13623613221142408 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509 [article] An initial trial of OPT-In-Early: An online training program for caregivers of autistic children [Texte imprimé et/ou numérique] / Yael G DAI, Auteur ; Rebecca P THOMAS, Auteur ; Lynn BRENNAN, Auteur ; My-Linh LUU, Auteur ; Jamie HUGHES-LIKA, Auteur ; Molly REILLY, Auteur ; Paula MORENO, Auteur ; Brenda OBE, Auteur ; Kelli B AHMED, Auteur ; Leandra N BERRY, Auteur ; Robin P GOIN-KOCHEL, Auteur ; Molly S HELT, Auteur ; Marianne L BARTON, Auteur ; Thyde DUMONT-MATHIEU, Auteur ; Diana L ROBINS, Auteur ; Deborah A FEIN, Auteur . - p.1601-1615. Langues : Anglais (eng) in Autism > 27-6 (August 2023) . - p.1601-1615 Mots-clés : autistic;online training;parent training;self-directed;telehealth Index. décimale : PER Périodiques Résumé : Online Parent Training in Early Behavioral Intervention (OPT-In-Early) is a self-directed resource for caregivers of autistic children. Sixty-three parent-child dyads from three states in were randomized to the OPT-In-Early or treatment as usual group. Parents in both groups completed baseline and post-treatment visits, which were targeted for 4?months apart but allowed to go up to 6?months. Compared to parents in the treatment as usual group, parents randomized to OPT-In-Early learned more evidence-based intervention principles from baseline to post-treatment and were rated by observers blind to group and time as increasing their use of these strategies during brief semi-structured interactions with their children. Parent participation in OPT-In-Early did not significantly influence children?s social communication as coded from one observation session. Results suggest that parents acquired knowledge and skills in intervention techniques from OPT-In-Early. Longer trials may be needed for gains in child behavior.Lay abstractEarly intervention can help children learn language and improve social communication. However, many barriers, including the expense of services and an insufficient number of providers, prohibit families from accessing services when their children are young. We developed a comprehensive online program for caregivers of autistic children. The program, Online Parent Training in Early Behavioral Intervention (OPT-In-Early), uses text and video demonstrations to teach caregivers effective methods for improving their children?s language, social, and adaptive skills (e.g. using utensils, toilet training), and reducing their children?s disruptive behavior. Sixty-three parents from three states participated in the study. Half of the parents received access to the OPT-In-Early program. After 4?months, parents who had access to the OPT-In-Early program learned more effective intervention strategies, and started using these strategies during interactions with their children, than parents who did not receive access to the program. Parent participation in OPT-In-Early did not significantly influence children?s social communication compared to children whose parents did not have access to OPT-In-Early. A longer duration of parents using learned intervention skills with their children may be needed for children?s social communication skills to improve. En ligne : http://dx.doi.org/10.1177/13623613221142408 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509

Investigating frank autism: clinician initial impressions and autism characteristics / Caroline LARSON ; Rebecca P THOMAS ; Marianne BARTON ; Deborah FEIN ; Inge-Marie EIGSTI in Molecular Autism, 15 (2024)  

Public ISBD [article]  inMolecular Autism > 15 (2024) . - 48 Titre : Investigating frank autism: clinician initial impressions and autism characteristics Type de document : Texte imprimé et/ou numérique Auteurs : Caroline LARSON, Auteur ; Rebecca P THOMAS, Auteur ; Marianne BARTON, Auteur ; Deborah FEIN, Auteur ; Inge-Marie EIGSTI, Auteur Article en page(s) : 48 Langues : Anglais (eng) Mots-clés : Humans  Adolescent  Male  Female  Adult  Child  Young Adult  *Autistic Disorder/diagnosis/psychology  Autism Spectrum Disorder/diagnosis  Autism diagnosis  Autism in adulthood  Five-minute impressions  Loss of autism diagnosis  Optimal outcomes  Prototypical autism  was approved by the University of Connecticut IRB. Consent for publication Not  applicable. Competing interests Dr. Fein and Dr. Barton are co-owners of M-CHAT  LLC, which licenses use of the M-CHAT-R in electronic products. The other authors  declare that they have no conflict of interest. Index. décimale : PER Périodiques Résumé : BACKGROUND: "Frank autism," recognizable through the first minutes of an interaction, describes a behavioral presentation of a subset of autistic individuals that is closely tied to social communication challenges, and may be linked to so-called "prototypical autism." To date, there is no research on frank autism presentations of autistic adolescents and young adults, nor individuals diagnosed with autism spectrum disorder (ASD) in childhood who do not meet diagnostic criteria during or after adolescence (loss of autism diagnosis, LAD). In addition, there are currently no data on the factors that drive frank autism impressions in these adolescent groups. METHODS: This study quantifies initial impressions of autistic characteristics in 24 autistic, 24 LAD and 26 neurotypical (NT) individuals ages 12 to 39 years. Graduate student and expert clinicians completed five-minute impressions, rated confidence in their own impressions, and scored the atypicality of behaviors associated with impressions; impressions were compared with current gold-standard diagnostic outcomes. RESULTS: Overall, clinicians' impressions within the first five minutes generally matched current gold-standard diagnostic status (clinical best estimate), were highly correlated with ADOS-2 CSS, and were driven primarily by prosodic and facial cues. However, this brief observation did not detect autism in all cases. While clinicians noted some subclinical atypicalities in the LAD group, impressions of the LAD and NT groups were similar. LIMITATIONS: The brief observations in this study were conducted during clinical research, including some semi-structured assessments. While results suggest overall concordance between initial impressions and diagnoses following more thorough evaluation, findings may not generalize to less structured, informal contexts. In addition, our sample was demographically homogeneous and comprised only speaking autistic participants. They were also unmatched for sex, with more females in the non-autistic group. Future studies should recruit samples that are diverse in demographic variables and ability level to replicate these findings and explore their implications. CONCLUSIONS: Results provide insights into the behavioral characteristics that contribute to the diagnosis of adolescents and young adults and may help inform diagnostic decision making in the wake of an increase in the demand for autism evaluations later than childhood. They also substantiate claims of an absence of apparent autistic characteristics in individuals who have lost the diagnosis. En ligne : https://dx.doi.org/10.1186/s13229-024-00627-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Investigating frank autism: clinician initial impressions and autism characteristics [Texte imprimé et/ou numérique] / Caroline LARSON, Auteur ; Rebecca P THOMAS, Auteur ; Marianne BARTON, Auteur ; Deborah FEIN, Auteur ; Inge-Marie EIGSTI, Auteur . - 48. Langues : Anglais (eng) in Molecular Autism > 15 (2024) . - 48 Mots-clés : Humans  Adolescent  Male  Female  Adult  Child  Young Adult  *Autistic Disorder/diagnosis/psychology  Autism Spectrum Disorder/diagnosis  Autism diagnosis  Autism in adulthood  Five-minute impressions  Loss of autism diagnosis  Optimal outcomes  Prototypical autism  was approved by the University of Connecticut IRB. Consent for publication Not  applicable. Competing interests Dr. Fein and Dr. Barton are co-owners of M-CHAT  LLC, which licenses use of the M-CHAT-R in electronic products. The other authors  declare that they have no conflict of interest. Index. décimale : PER Périodiques Résumé : BACKGROUND: "Frank autism," recognizable through the first minutes of an interaction, describes a behavioral presentation of a subset of autistic individuals that is closely tied to social communication challenges, and may be linked to so-called "prototypical autism." To date, there is no research on frank autism presentations of autistic adolescents and young adults, nor individuals diagnosed with autism spectrum disorder (ASD) in childhood who do not meet diagnostic criteria during or after adolescence (loss of autism diagnosis, LAD). In addition, there are currently no data on the factors that drive frank autism impressions in these adolescent groups. METHODS: This study quantifies initial impressions of autistic characteristics in 24 autistic, 24 LAD and 26 neurotypical (NT) individuals ages 12 to 39 years. Graduate student and expert clinicians completed five-minute impressions, rated confidence in their own impressions, and scored the atypicality of behaviors associated with impressions; impressions were compared with current gold-standard diagnostic outcomes. RESULTS: Overall, clinicians' impressions within the first five minutes generally matched current gold-standard diagnostic status (clinical best estimate), were highly correlated with ADOS-2 CSS, and were driven primarily by prosodic and facial cues. However, this brief observation did not detect autism in all cases. While clinicians noted some subclinical atypicalities in the LAD group, impressions of the LAD and NT groups were similar. LIMITATIONS: The brief observations in this study were conducted during clinical research, including some semi-structured assessments. While results suggest overall concordance between initial impressions and diagnoses following more thorough evaluation, findings may not generalize to less structured, informal contexts. In addition, our sample was demographically homogeneous and comprised only speaking autistic participants. They were also unmatched for sex, with more females in the non-autistic group. Future studies should recruit samples that are diverse in demographic variables and ability level to replicate these findings and explore their implications. CONCLUSIONS: Results provide insights into the behavioral characteristics that contribute to the diagnosis of adolescents and young adults and may help inform diagnostic decision making in the wake of an increase in the demand for autism evaluations later than childhood. They also substantiate claims of an absence of apparent autistic characteristics in individuals who have lost the diagnosis. En ligne : https://dx.doi.org/10.1186/s13229-024-00627-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

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