Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights / Janet MCLAUGHLIN ; Margaret SCHNEIDER ; Grant BRUNO in Research in Autism Spectrum Disorders, 111 (March 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 111 (March 2024) . - p.102314 Titre : Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights Type de document : Texte imprimé et/ou numérique Auteurs : Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur ; Grant BRUNO, Auteur Article en page(s) : p.102314 Mots-clés : Autism  Qualitative  Indigenous peoples  Newcomers  Services Index. décimale : PER Périodiques Résumé : Background Indigenous Peoples and newcomers are two of the largest and fastest growing populations in Canada (Statistics Canada, 2022; Zimonjic, 2022). Yet despite this, little is known about their experiences navigating and accessing autism services for their children. Method To address this gap, the current study sought to explore the autism service needs and priorities of Indigenous and newcomer families in Canada. A total of 19 participants (9 Indigenous and 10 newcomer caregivers) were selected using purposive sampling to participate in a semi-structured interview. Results The findings revealed that Indigenous families prioritized the need for services in rural and remote areas, tailored information to their needs, and support preserving their cultural heritage. On the other hand, newcomer families emphasized the importance of peer support, quality standards for services and therapies, and support during transition periods. Similarities across both groups indicated the need for addressing the lengthy waitlists for services, which have also been reported in the general population in Canada, having services and professionals place a greater emphasis on the child?s strengths, and culturally safe services and practice. Conclusion The present findings have important implications for the design and implementation of services and supports which reflect the needs and priorities of underserved communities. En ligne : https://doi.org/10.1016/j.rasd.2023.102314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521 [article] Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights [Texte imprimé et/ou numérique] / Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur ; Grant BRUNO, Auteur . - p.102314. in Research in Autism Spectrum Disorders > 111 (March 2024) . - p.102314 Mots-clés : Autism  Qualitative  Indigenous peoples  Newcomers  Services Index. décimale : PER Périodiques Résumé : Background Indigenous Peoples and newcomers are two of the largest and fastest growing populations in Canada (Statistics Canada, 2022; Zimonjic, 2022). Yet despite this, little is known about their experiences navigating and accessing autism services for their children. Method To address this gap, the current study sought to explore the autism service needs and priorities of Indigenous and newcomer families in Canada. A total of 19 participants (9 Indigenous and 10 newcomer caregivers) were selected using purposive sampling to participate in a semi-structured interview. Results The findings revealed that Indigenous families prioritized the need for services in rural and remote areas, tailored information to their needs, and support preserving their cultural heritage. On the other hand, newcomer families emphasized the importance of peer support, quality standards for services and therapies, and support during transition periods. Similarities across both groups indicated the need for addressing the lengthy waitlists for services, which have also been reported in the general population in Canada, having services and professionals place a greater emphasis on the child?s strengths, and culturally safe services and practice. Conclusion The present findings have important implications for the design and implementation of services and supports which reflect the needs and priorities of underserved communities. En ligne : https://doi.org/10.1016/j.rasd.2023.102314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521

"We are exhausted, worn out, and broken": Understanding the impact of service satisfaction on caregiver well-being / Janet MCLAUGHLIN ; Margaret SCHNEIDER in Autism Research, 16-11 (November 2023)  

Public ISBD [article]  inAutism Research > 16-11 (November 2023) . - p.2198-2207 Titre : "We are exhausted, worn out, and broken": Understanding the impact of service satisfaction on caregiver well-being Type de document : Texte imprimé et/ou numérique Auteurs : Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur Article en page(s) : p.2198-2207 Langues : Anglais (eng) Mots-clés : autism  policy  qualitative  quantitative  service satisfaction  well-being Index. décimale : PER Périodiques Résumé : Abstract Few studies exist that have examined the impact of service-related factors and system-level disruptions (i.e., the pandemic) on families of autistic children in Canada using large sample sizes. To address this gap, the goal of this research was to examine the impact of satisfaction with autism services on caregiver stress, controlling for important demographic variables, such as family income, marital status, and child level of support needs. The impact of navigating and accessing services on parent well-being was also explored. A total of 1810 primary caregivers of autistic children or youth living in Ontario, Canada completed a survey with both closed- and open-ended questions in the summer of 2021. A hierarchical multiple regression was conducted to examine the impact of satisfaction with autism services on caregiver stress. Open-ended responses on the survey from a subset of the sample (n?=?637) were coded using thematic analysis to understand the impact of navigating and accessing services on parent well-being. Satisfaction with services significantly predicted caregiver stress after controlling for marital support, family income, and child level of support needs. Qualitative analysis revealed impacts of navigating and accessing services in three areas: (1) Physical, (2) Emotional/Psychological, and (3) Financial Well-being. Understanding parent perceptions of satisfaction with services can shed light on strategies for improving services that support parent well-being. En ligne : https://doi.org/10.1002/aur.3024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517 [article] "We are exhausted, worn out, and broken": Understanding the impact of service satisfaction on caregiver well-being [Texte imprimé et/ou numérique] / Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur . - p.2198-2207. Langues : Anglais (eng) in Autism Research > 16-11 (November 2023) . - p.2198-2207 Mots-clés : autism  policy  qualitative  quantitative  service satisfaction  well-being Index. décimale : PER Périodiques Résumé : Abstract Few studies exist that have examined the impact of service-related factors and system-level disruptions (i.e., the pandemic) on families of autistic children in Canada using large sample sizes. To address this gap, the goal of this research was to examine the impact of satisfaction with autism services on caregiver stress, controlling for important demographic variables, such as family income, marital status, and child level of support needs. The impact of navigating and accessing services on parent well-being was also explored. A total of 1810 primary caregivers of autistic children or youth living in Ontario, Canada completed a survey with both closed- and open-ended questions in the summer of 2021. A hierarchical multiple regression was conducted to examine the impact of satisfaction with autism services on caregiver stress. Open-ended responses on the survey from a subset of the sample (n?=?637) were coded using thematic analysis to understand the impact of navigating and accessing services on parent well-being. Satisfaction with services significantly predicted caregiver stress after controlling for marital support, family income, and child level of support needs. Qualitative analysis revealed impacts of navigating and accessing services in three areas: (1) Physical, (2) Emotional/Psychological, and (3) Financial Well-being. Understanding parent perceptions of satisfaction with services can shed light on strategies for improving services that support parent well-being. En ligne : https://doi.org/10.1002/aur.3024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517

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