Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights / Janet MCLAUGHLIN ; Margaret SCHNEIDER ; Grant BRUNO in Research in Autism Spectrum Disorders, 111 (March 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 111 (March 2024) . - p.102314 Titre : Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights Type de document : texte imprimé Auteurs : Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur ; Grant BRUNO, Auteur Article en page(s) : p.102314 Mots-clés : Autism  Qualitative  Indigenous peoples  Newcomers  Services Index. décimale : PER Périodiques Résumé : Background Indigenous Peoples and newcomers are two of the largest and fastest growing populations in Canada (Statistics Canada, 2022; Zimonjic, 2022). Yet despite this, little is known about their experiences navigating and accessing autism services for their children. Method To address this gap, the current study sought to explore the autism service needs and priorities of Indigenous and newcomer families in Canada. A total of 19 participants (9 Indigenous and 10 newcomer caregivers) were selected using purposive sampling to participate in a semi-structured interview. Results The findings revealed that Indigenous families prioritized the need for services in rural and remote areas, tailored information to their needs, and support preserving their cultural heritage. On the other hand, newcomer families emphasized the importance of peer support, quality standards for services and therapies, and support during transition periods. Similarities across both groups indicated the need for addressing the lengthy waitlists for services, which have also been reported in the general population in Canada, having services and professionals place a greater emphasis on the child?s strengths, and culturally safe services and practice. Conclusion The present findings have important implications for the design and implementation of services and supports which reflect the needs and priorities of underserved communities. En ligne : https://doi.org/10.1016/j.rasd.2023.102314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521 [article] Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights [texte imprimé] / Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur ; Grant BRUNO, Auteur . - p.102314. in Research in Autism Spectrum Disorders > 111 (March 2024) . - p.102314 Mots-clés : Autism  Qualitative  Indigenous peoples  Newcomers  Services Index. décimale : PER Périodiques Résumé : Background Indigenous Peoples and newcomers are two of the largest and fastest growing populations in Canada (Statistics Canada, 2022; Zimonjic, 2022). Yet despite this, little is known about their experiences navigating and accessing autism services for their children. Method To address this gap, the current study sought to explore the autism service needs and priorities of Indigenous and newcomer families in Canada. A total of 19 participants (9 Indigenous and 10 newcomer caregivers) were selected using purposive sampling to participate in a semi-structured interview. Results The findings revealed that Indigenous families prioritized the need for services in rural and remote areas, tailored information to their needs, and support preserving their cultural heritage. On the other hand, newcomer families emphasized the importance of peer support, quality standards for services and therapies, and support during transition periods. Similarities across both groups indicated the need for addressing the lengthy waitlists for services, which have also been reported in the general population in Canada, having services and professionals place a greater emphasis on the child?s strengths, and culturally safe services and practice. Conclusion The present findings have important implications for the design and implementation of services and supports which reflect the needs and priorities of underserved communities. En ligne : https://doi.org/10.1016/j.rasd.2023.102314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521

Content Analysis of Responses From an INSAR Special Interest Group (SIG): Indigenous Perspectives on Autism / Grant BRUNO in Autism Research, 19-5 (May 2026)  

Public ISBD [article]  inAutism Research > 19-5 (May 2026) . - p.e70224 Titre : Content Analysis of Responses From an INSAR Special Interest Group (SIG): Indigenous Perspectives on Autism Type de document : texte imprimé Auteurs : Grant BRUNO, Auteur ; Annie TANG, Auteur ; Troy Q. BOUCHER, Auteur ; Emily COOMBS, Auteur ; T. C. WAISMAN, Auteur ; Anne LINDBLOM, Auteur Article en page(s) : p.e70224 Langues : Anglais (eng) Mots-clés : autism  cultural supports  health outcomes  Indigenous  INSAR SIG  Special Interest Group Index. décimale : PER Périodiques Résumé : ABSTRACT Autism remains understudied and under-detected in Indigenous communities across the globe. This content analysis investigates key themes and future directions for Indigenous autism research, as discussed during a Special Interest Group at the 2025 International Society for Autism Research meeting in Seattle, United States. Discussions and perspectives were explored with shared knowledge from international participants who were service providers, Autistic self-advocates, academics, and other autism-related stakeholders. The emergent themes emphasized the need for autism research in Indigenous communities to utilize approaches that are decolonized, culturally informed, and strengths-based. The results highlighted the need for researchers to focus on building trust, fostering relationship-building, and encouraging collaborative research partnerships with communities, while addressing systemic limiting factors and integrating knowledge systems from Indigenous and Western models. There is also a desire for more Indigenous-led initiatives that allow non-Indigenous researchers to provide support. Overall, there is a clear interest in further Indigenous autism research initiatives, but further shifts are needed to ensure that efforts are community-led and strengths-based. En ligne : https://doi.org/10.1002/aur.70224 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587 [article] Content Analysis of Responses From an INSAR Special Interest Group (SIG): Indigenous Perspectives on Autism [texte imprimé] / Grant BRUNO, Auteur ; Annie TANG, Auteur ; Troy Q. BOUCHER, Auteur ; Emily COOMBS, Auteur ; T. C. WAISMAN, Auteur ; Anne LINDBLOM, Auteur . - p.e70224. Langues : Anglais (eng) in Autism Research > 19-5 (May 2026) . - p.e70224 Mots-clés : autism  cultural supports  health outcomes  Indigenous  INSAR SIG  Special Interest Group Index. décimale : PER Périodiques Résumé : ABSTRACT Autism remains understudied and under-detected in Indigenous communities across the globe. This content analysis investigates key themes and future directions for Indigenous autism research, as discussed during a Special Interest Group at the 2025 International Society for Autism Research meeting in Seattle, United States. Discussions and perspectives were explored with shared knowledge from international participants who were service providers, Autistic self-advocates, academics, and other autism-related stakeholders. The emergent themes emphasized the need for autism research in Indigenous communities to utilize approaches that are decolonized, culturally informed, and strengths-based. The results highlighted the need for researchers to focus on building trust, fostering relationship-building, and encouraging collaborative research partnerships with communities, while addressing systemic limiting factors and integrating knowledge systems from Indigenous and Western models. There is also a desire for more Indigenous-led initiatives that allow non-Indigenous researchers to provide support. Overall, there is a clear interest in further Indigenous autism research initiatives, but further shifts are needed to ensure that efforts are community-led and strengths-based. En ligne : https://doi.org/10.1002/aur.70224 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587

Decolonizing autism research: Integrating Indigenous ways of knowing, being, and doing / Grant BRUNO in Autism, 29-11 (November 2025)  

Public ISBD [article]  inAutism > 29-11 (November 2025) . - p.2637-2643 Titre : Decolonizing autism research: Integrating Indigenous ways of knowing, being, and doing Type de document : texte imprimé Auteurs : Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jessica TUPOU, Auteur ; Fran KEWENE, Auteur ; TC WAISMAN, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.2637-2643 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251382398 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570 [article] Decolonizing autism research: Integrating Indigenous ways of knowing, being, and doing [texte imprimé] / Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jessica TUPOU, Auteur ; Fran KEWENE, Auteur ; TC WAISMAN, Auteur ; Iliana MAGIATI, Auteur . - p.2637-2643. Langues : Anglais (eng) in Autism > 29-11 (November 2025) . - p.2637-2643 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251382398 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570

Exploring the Experiences of First Nations Caregivers of Autistic Children in Canada: A Qualitative Community-Based Participatory Research Study / Grant BRUNO in Autism, 30-9 (September 2026)  

Public ISBD [article]  inAutism > 30-9 (September 2026) . - p.2288-2300 Titre : Exploring the Experiences of First Nations Caregivers of Autistic Children in Canada: A Qualitative Community-Based Participatory Research Study Type de document : texte imprimé Auteurs : Grant BRUNO, Auteur ; Mariam AHMAD, Auteur ; Carmella CUTKNIFE, Auteur ; Heather LITTLECHILD, Auteur ; Trina ERTMAN, Auteur ; Jacqueline SMITH, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; David NICHOLAS, Auteur Article en page(s) : p.2288-2300 Langues : Anglais (eng) Mots-clés : Indigenous  First Nation  Canada  autism  caregiver  community-based participatory research  neurodiversity Index. décimale : PER Périodiques Résumé : Autism exists across all populations, including among Indigenous Peoples, yet the experiences of First Nations caregivers of Autistic children remain significantly under-researched. This study explores the lived realities of caregivers in two First Nations communities: Maskwacîs (Alberta) and Six Nations of the Grand River (Ontario). Guided by a Community-Based Participatory Research (CBPR) approach and grounded in the nêhiyaw concept of wâhkôtowin (relationality), this research was co-led by the Autism Community Research Circle, which included Elders, Autistic individuals, caregivers, and professionals. Fourteen caregivers participated in semi-structured interviews, and thematic analysis revealed eight key themes: lack of understanding and recognition; caregiver burnout; challenges with diagnosis and clinical navigation; school experiences; advocacy; stigma and ableism; culture and ceremony; and acceptance and transformation. Caregivers identified barriers including jurisdictional divides, racism, and lack of culturally appropriate services, but also emphasized the importance of kinship, cultural identity, and community acceptance. Autism was often reframed through Indigenous worldviews as a gift from the Creator, highlighting a strength-based perspective rooted in relationality. This study addresses a critical gap in the literature and calls for culturally grounded, community-led autism supports that align with Indigenous knowledge systems. Findings offer essential insights to inform more responsive policy, programming, and future research.Lay Abstract Autism exists in every community, including among First Nations Peoples in Canada, yet very little research has explored the experiences of Indigenous families raising Autistic children. This study looked at what life is like for First Nations caregivers of Autistic children in two communities, Maskwacîs in Alberta and Six Nations of the Grand River in Ontario. The project was led in partnership with community members, including Autistic people, Elders, caregivers, and professionals, through the Autism Community Research Circle. Together, we used a community-based approach that followed local teachings and values, especially the Cree concept of wâhkôtowin, which means kinship and relationship. Fourteen caregivers took part in interviews where they shared their stories and perspectives. We learned that caregivers often face major challenges in getting autism diagnoses and finding appropriate supports and services. Many spoke about burnout, stigma, and racism, as well as frustration with school systems and health care providers. Despite these barriers, caregivers described the strength they draw from family, culture, and community. Cultural teachings, ceremonies, and language helped caregivers and their children feel proud, connected, and supported. Some families described autism as a gift from the Creator, showing how Indigenous ways of understanding autism can promote acceptance and belonging. This research shows the need for autism programs, services, and policies that are guided by Indigenous knowledge, community leadership, and cultural safety. It also highlights the importance of seeing autism through a strengths-based lens that values family relationships, community, and identity. By listening to First Nations caregivers, we can build more inclusive and culturally grounded supports for Autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613261464661 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=592 [article] Exploring the Experiences of First Nations Caregivers of Autistic Children in Canada: A Qualitative Community-Based Participatory Research Study [texte imprimé] / Grant BRUNO, Auteur ; Mariam AHMAD, Auteur ; Carmella CUTKNIFE, Auteur ; Heather LITTLECHILD, Auteur ; Trina ERTMAN, Auteur ; Jacqueline SMITH, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; David NICHOLAS, Auteur . - p.2288-2300. Langues : Anglais (eng) in Autism > 30-9 (September 2026) . - p.2288-2300 Mots-clés : Indigenous  First Nation  Canada  autism  caregiver  community-based participatory research  neurodiversity Index. décimale : PER Périodiques Résumé : Autism exists across all populations, including among Indigenous Peoples, yet the experiences of First Nations caregivers of Autistic children remain significantly under-researched. This study explores the lived realities of caregivers in two First Nations communities: Maskwacîs (Alberta) and Six Nations of the Grand River (Ontario). Guided by a Community-Based Participatory Research (CBPR) approach and grounded in the nêhiyaw concept of wâhkôtowin (relationality), this research was co-led by the Autism Community Research Circle, which included Elders, Autistic individuals, caregivers, and professionals. Fourteen caregivers participated in semi-structured interviews, and thematic analysis revealed eight key themes: lack of understanding and recognition; caregiver burnout; challenges with diagnosis and clinical navigation; school experiences; advocacy; stigma and ableism; culture and ceremony; and acceptance and transformation. Caregivers identified barriers including jurisdictional divides, racism, and lack of culturally appropriate services, but also emphasized the importance of kinship, cultural identity, and community acceptance. Autism was often reframed through Indigenous worldviews as a gift from the Creator, highlighting a strength-based perspective rooted in relationality. This study addresses a critical gap in the literature and calls for culturally grounded, community-led autism supports that align with Indigenous knowledge systems. Findings offer essential insights to inform more responsive policy, programming, and future research.Lay Abstract Autism exists in every community, including among First Nations Peoples in Canada, yet very little research has explored the experiences of Indigenous families raising Autistic children. This study looked at what life is like for First Nations caregivers of Autistic children in two communities, Maskwacîs in Alberta and Six Nations of the Grand River in Ontario. The project was led in partnership with community members, including Autistic people, Elders, caregivers, and professionals, through the Autism Community Research Circle. Together, we used a community-based approach that followed local teachings and values, especially the Cree concept of wâhkôtowin, which means kinship and relationship. Fourteen caregivers took part in interviews where they shared their stories and perspectives. We learned that caregivers often face major challenges in getting autism diagnoses and finding appropriate supports and services. Many spoke about burnout, stigma, and racism, as well as frustration with school systems and health care providers. Despite these barriers, caregivers described the strength they draw from family, culture, and community. Cultural teachings, ceremonies, and language helped caregivers and their children feel proud, connected, and supported. Some families described autism as a gift from the Creator, showing how Indigenous ways of understanding autism can promote acceptance and belonging. This research shows the need for autism programs, services, and policies that are guided by Indigenous knowledge, community leadership, and cultural safety. It also highlights the importance of seeing autism through a strengths-based lens that values family relationships, community, and identity. By listening to First Nations caregivers, we can build more inclusive and culturally grounded supports for Autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613261464661 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=592

Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward / Grant BRUNO ; Anne LINDBLOM ; Jon-Are MASTERNES ; Jessica TUPOU ; TC WAISMAN ; Samarra TOBY ; Christine VINING ; Iliana MAGIATI in Autism, 29-2 (February 2025)  

Public ISBD [article]  inAutism > 29-2 (February 2025) . - p.275-283 Titre : Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward : Autism Type de document : texte imprimé Auteurs : Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jon-Are MASTERNES, Auteur ; Jessica TUPOU, Auteur ; TC WAISMAN, Auteur ; Samarra TOBY, Auteur ; Christine VINING, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.275-283 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251318399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 [article] Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward : Autism [texte imprimé] / Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jon-Are MASTERNES, Auteur ; Jessica TUPOU, Auteur ; TC WAISMAN, Auteur ; Samarra TOBY, Auteur ; Christine VINING, Auteur ; Iliana MAGIATI, Auteur . - p.275-283. Langues : Anglais (eng) in Autism > 29-2 (February 2025) . - p.275-283 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251318399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547

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