Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward / Grant BRUNO ; Anne LINDBLOM ; Jon-Are Masternes ; Jessica TUPOU ; TC WAISMAN ; Samarra Toby ; Christine Vining ; Iliana MAGIATI in Autism, 29-2 (February 2025)  

Public ISBD [article]  inAutism > 29-2 (February 2025) . - p.275-283 Titre : Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward : Autism Type de document : Texte imprimé et/ou numérique Auteurs : Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jon-Are Masternes, Auteur ; Jessica TUPOU, Auteur ; TC WAISMAN, Auteur ; Samarra Toby, Auteur ; Christine Vining, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.275-283 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251318399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 [article] Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward : Autism [Texte imprimé et/ou numérique] / Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jon-Are Masternes, Auteur ; Jessica TUPOU, Auteur ; TC WAISMAN, Auteur ; Samarra Toby, Auteur ; Christine Vining, Auteur ; Iliana MAGIATI, Auteur . - p.275-283. Langues : Anglais (eng) in Autism > 29-2 (February 2025) . - p.275-283 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251318399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547

Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study / Laurie K MCLAY in Autism, 29-5 (May 2025)  

Public ISBD [article]  inAutism > 29-5 (May 2025) . - p.1143-1156 Titre : Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study Type de document : Texte imprimé et/ou numérique Auteurs : Laurie K MCLAY, Auteur ; Philip J SCHLUTER, Auteur ; John WILLIAMS, Auteur ; Francesca ANNS, Auteur ; Ruth MONK, Auteur ; Joanne DACOMBE, Auteur ; Gabrielle HOGG, Auteur ; Jessica TUPOU, Auteur ; Troy RUHE, Auteur ; Taylor Scott, Auteur ; Emma WOODFORD, Auteur ; Hiran THABREW, Auteur ; Nicholas BOWDEN, Auteur Article en page(s) : p.1143-1156 Langues : Anglais (eng) Mots-clés : autism  co-occurring conditions  health  health service use  mental health  pharmaceutical dispensing  youth Index. décimale : PER Périodiques Résumé : Many autistic youth have complex healthcare needs, resulting in high rates of health service utilization. However, many characteristics of this health service utilization remain unknown. Using whole-of-population data, this study aimed to quantify and compare rates of psychiatric and non-psychiatric health service utilization among autistic and non-autistic youth, with and without co-occurring intellectual disability. A national retrospective cohort study was employed using linked individual-level administrative data for Aotearoa New Zealand youth (aged 0-24?years). Health service utilization outcomes included 11 psychiatric and non-psychiatric domains. Propensity score matching on a range of sociodemographic measures compared groups across health service utilization outcomes. Data were obtained for 19,479 autistic youth, 29% of whom had a co-occurring intellectual disability and 1,561,278 non-autistic youth. Results demonstrated higher rates of mental health service utilization among autistic compared with non-autistic youth, including inpatient (prevalence ratio 5.85; 95% confidence interval 4.93-6.94) and outpatient (prevalence ratio 4.96; 95% confidence interval 4.75-5.18) service use and psychotropic medication dispensing (prevalence ratio 6.83; 95% confidence interval 6.65-7.02), particularly among autistic youth without intellectual disability. Rates of non-psychiatric hospital admissions (prevalence ratio 1.93; 95% confidence interval 1.85-2.01), potentially avoidable hospitalizations (prevalence ratio 1.91; 95% confidence interval 1.82-2.00) and outpatient visits (prevalence ratio 1.99; 95% confidence interval 1.95-2.01) were also higher among autistic youth. Research implications for delivery of healthcare services are discussed.Lay abstract Autistic youth generally use healthcare services more often than non-autistic youth. However, we know very little about the factors that can affect health service use and the types of services that are used, and this has not been explored in Aotearoa New Zealand. We analysed data from New Zealand to compare health service use among autistic and non-autistic youth (0 to 24-year-olds). Data were available for 19,479 autistic youth and 1,561,278 non-autistic youth. We compared hospitalizations, specialist visits, emergency department visits and use of different types of medications. In this study, autistic youth were found to have been hospitalized for medical and mental health reasons, more often than non-autistic youth. Autistic youth were also more likely to have attended specialist appointments and to have been given medication. These differences were particularly large for medications commonly used for mental health conditions (e.g. anxiety, depression, attention deficit hyperactivity disorder) or associated symptoms. Autistic youth who also had an intellectual disability were more likely to use healthcare services for physical health conditions, but were less likely to use mental health services, when compared with autistic youth who did not have an intellectual disability. These findings, along with other research, suggest that the healthcare needs of autistic youth are not always being met. Further work is needed to enhance our understanding of co-occurring conditions among autistic youth, including those that result in high rates of health service use, in order to inform the development of healthcare services and training for healthcare professionals to better cater to the needs of autistic youth. En ligne : https://dx.doi.org/10.1177/13623613241298352 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study [Texte imprimé et/ou numérique] / Laurie K MCLAY, Auteur ; Philip J SCHLUTER, Auteur ; John WILLIAMS, Auteur ; Francesca ANNS, Auteur ; Ruth MONK, Auteur ; Joanne DACOMBE, Auteur ; Gabrielle HOGG, Auteur ; Jessica TUPOU, Auteur ; Troy RUHE, Auteur ; Taylor Scott, Auteur ; Emma WOODFORD, Auteur ; Hiran THABREW, Auteur ; Nicholas BOWDEN, Auteur . - p.1143-1156. Langues : Anglais (eng) in Autism > 29-5 (May 2025) . - p.1143-1156 Mots-clés : autism  co-occurring conditions  health  health service use  mental health  pharmaceutical dispensing  youth Index. décimale : PER Périodiques Résumé : Many autistic youth have complex healthcare needs, resulting in high rates of health service utilization. However, many characteristics of this health service utilization remain unknown. Using whole-of-population data, this study aimed to quantify and compare rates of psychiatric and non-psychiatric health service utilization among autistic and non-autistic youth, with and without co-occurring intellectual disability. A national retrospective cohort study was employed using linked individual-level administrative data for Aotearoa New Zealand youth (aged 0-24?years). Health service utilization outcomes included 11 psychiatric and non-psychiatric domains. Propensity score matching on a range of sociodemographic measures compared groups across health service utilization outcomes. Data were obtained for 19,479 autistic youth, 29% of whom had a co-occurring intellectual disability and 1,561,278 non-autistic youth. Results demonstrated higher rates of mental health service utilization among autistic compared with non-autistic youth, including inpatient (prevalence ratio 5.85; 95% confidence interval 4.93-6.94) and outpatient (prevalence ratio 4.96; 95% confidence interval 4.75-5.18) service use and psychotropic medication dispensing (prevalence ratio 6.83; 95% confidence interval 6.65-7.02), particularly among autistic youth without intellectual disability. Rates of non-psychiatric hospital admissions (prevalence ratio 1.93; 95% confidence interval 1.85-2.01), potentially avoidable hospitalizations (prevalence ratio 1.91; 95% confidence interval 1.82-2.00) and outpatient visits (prevalence ratio 1.99; 95% confidence interval 1.95-2.01) were also higher among autistic youth. Research implications for delivery of healthcare services are discussed.Lay abstract Autistic youth generally use healthcare services more often than non-autistic youth. However, we know very little about the factors that can affect health service use and the types of services that are used, and this has not been explored in Aotearoa New Zealand. We analysed data from New Zealand to compare health service use among autistic and non-autistic youth (0 to 24-year-olds). Data were available for 19,479 autistic youth and 1,561,278 non-autistic youth. We compared hospitalizations, specialist visits, emergency department visits and use of different types of medications. In this study, autistic youth were found to have been hospitalized for medical and mental health reasons, more often than non-autistic youth. Autistic youth were also more likely to have attended specialist appointments and to have been given medication. These differences were particularly large for medications commonly used for mental health conditions (e.g. anxiety, depression, attention deficit hyperactivity disorder) or associated symptoms. Autistic youth who also had an intellectual disability were more likely to use healthcare services for physical health conditions, but were less likely to use mental health services, when compared with autistic youth who did not have an intellectual disability. These findings, along with other research, suggest that the healthcare needs of autistic youth are not always being met. Further work is needed to enhance our understanding of co-occurring conditions among autistic youth, including those that result in high rates of health service use, in order to inform the development of healthcare services and training for healthcare professionals to better cater to the needs of autistic youth. En ligne : https://dx.doi.org/10.1177/13623613241298352 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children / Phoebe JORDAN in Autism, 29-3 (March 2025)  

Public ISBD [article]  inAutism > 29-3 (March 2025) . - p.740-753 Titre : 'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Phoebe JORDAN, Auteur ; Carla WALLACE-WATKIN, Auteur ; Jessica TUPOU, Auteur ; Sarah PILLAR, Auteur ; Hannah WADDINGTON, Auteur Article en page(s) : p.740-753 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : There has been considerable research into the barriers and facilitators of coaching parents of autistic children. However, little is known about parents' preferences for this approach compared to support provided directly by a clinician to an autistic or ... En ligne : https://dx.doi.org/10.1177/13623613241287300 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] 'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children [Texte imprimé et/ou numérique] / Phoebe JORDAN, Auteur ; Carla WALLACE-WATKIN, Auteur ; Jessica TUPOU, Auteur ; Sarah PILLAR, Auteur ; Hannah WADDINGTON, Auteur . - p.740-753. Langues : Anglais (eng) in Autism > 29-3 (March 2025) . - p.740-753 Index. décimale : PER Périodiques Résumé : There has been considerable research into the barriers and facilitators of coaching parents of autistic children. However, little is known about parents' preferences for this approach compared to support provided directly by a clinician to an autistic or ... En ligne : https://dx.doi.org/10.1177/13623613241287300 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

MÄ�ori and autism: A scoping review / Jessica TUPOU in Autism, 26-7 (October 2022)  

Public ISBD [article]  inAutism > 26-7 (October 2022) . - p.1844-1858 Titre : MÄ�ori and autism: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Jessica TUPOU, Auteur ; Sally CURTIS, Auteur ; Dorothy TAARE-SMITH, Auteur ; Ali GLASGOW, Auteur ; Hannah WADDINGTON, Auteur Article en page(s) : p.1844-1858 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/epidemiology  Humans  Native Hawaiian or Other Pacific Islander  New Zealand/epidemiology  Prevalence  autism spectrum disorders  culture and ASD  indigenous research  scoping review Index. décimale : PER Périodiques Résumé : Most current approaches to identifying, researching and managing autism are based on Western views and understandings. However, different cultural groups may understand and approach autism differently. We searched a wide range of websites, academic journals and other sources for published information related to autism and MÄ�ori, the indigenous people of Aotearoa/New Zealand. Our search identified 13 publications that addressed questions related to MÄ�ori understandings of autism, MÄ�ori prevalence rates and diagnostic and support services for MÄ�ori. Overall, we found broad differences in MÄ�ori and Western understandings of autism and slightly higher autism prevalence rates for MÄ�ori than for non-MÄ�ori New Zealanders. Findings also highlighted a need for diagnostic and support services that are both effective and culturally appropriate for MÄ�ori. We discuss what these findings might mean for future research and the provision of services for MÄ�ori with autism. En ligne : http://dx.doi.org/10.1177/13623613211018649 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] MÄ�ori and autism: A scoping review [Texte imprimé et/ou numérique] / Jessica TUPOU, Auteur ; Sally CURTIS, Auteur ; Dorothy TAARE-SMITH, Auteur ; Ali GLASGOW, Auteur ; Hannah WADDINGTON, Auteur . - p.1844-1858. Langues : Anglais (eng) in Autism > 26-7 (October 2022) . - p.1844-1858 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/epidemiology  Humans  Native Hawaiian or Other Pacific Islander  New Zealand/epidemiology  Prevalence  autism spectrum disorders  culture and ASD  indigenous research  scoping review Index. décimale : PER Périodiques Résumé : Most current approaches to identifying, researching and managing autism are based on Western views and understandings. However, different cultural groups may understand and approach autism differently. We searched a wide range of websites, academic journals and other sources for published information related to autism and MÄ�ori, the indigenous people of Aotearoa/New Zealand. Our search identified 13 publications that addressed questions related to MÄ�ori understandings of autism, MÄ�ori prevalence rates and diagnostic and support services for MÄ�ori. Overall, we found broad differences in MÄ�ori and Western understandings of autism and slightly higher autism prevalence rates for MÄ�ori than for non-MÄ�ori New Zealanders. Findings also highlighted a need for diagnostic and support services that are both effective and culturally appropriate for MÄ�ori. We discuss what these findings might mean for future research and the provision of services for MÄ�ori with autism. En ligne : http://dx.doi.org/10.1177/13623613211018649 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Mortality risk among Autistic children and young people: A nationwide birth cohort study / Nicholas BOWDEN ; Sheree GIBB ; Richard AUDAS ; Joanne DACOMBE ; Laurie MCLAY ; Andrew SPORLE ; Hilary STACE ; Barry TAYLOR ; Hiran THABREW ; Reremoana THEODORE ; Jessica TUPOU ; Philip J. SCHLUTER in Autism, 28-9 (September 2024)  

Public ISBD [article]  inAutism > 28-9 (September 2024) . - p.2244-2253 Titre : Mortality risk among Autistic children and young people: A nationwide birth cohort study Type de document : Texte imprimé et/ou numérique Auteurs : Nicholas BOWDEN, Auteur ; Sheree GIBB, Auteur ; Richard AUDAS, Auteur ; Joanne DACOMBE, Auteur ; Laurie MCLAY, Auteur ; Andrew SPORLE, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Hiran THABREW, Auteur ; Reremoana THEODORE, Auteur ; Jessica TUPOU, Auteur ; Philip J. SCHLUTER, Auteur Article en page(s) : p.2244-2253 Langues : (en) Mots-clés : adolescents  autism spectrum disorders  health services  medical comorbidity  pre-school children  school-age children  social services Index. décimale : PER Périodiques Résumé : Autism has been associated with increased mortality risk among adult populations, but little is known about the mortality risk among children and young people (0-24?years). We used a 15-year nationwide birth cohort study using linked health and non-health administrative data to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. Time-to-event analysis was used to determine the association between autism and mortality, controlling for sex, age, ethnicity, deprivation and rurality of residence. The participant population included 895,707 children of whom 11,919 (1.4%) were identified as Autistic. Autism was associated with a significantly higher mortality risk (hazard ratio = 2.35; 95% confidence interval = 1.80-3.06) compared to the general population. In addition, using stratified analyses, we found that this risk was significantly higher among females (hazard ratio = 5.40; 95% confidence interval = 3.42-8.52) compared to males (hazard ratio = 1.82; 95% confidence interval = 1.32-2.52). We also determined that among Autistic young people, mortality risk was significantly higher for those with a co-occurring intellectual disability (hazard ratio = 2.02; 95% confidence interval = 1.17-3.46). In this study, autism was associated with higher mortality in children and young people compared to the non-Autistic population. Increased efforts are required to better meet the health needs of this population. Lay abstract Existing literature indicates that Autistic people have shorter life expectancy, but little is known about the mortality risk among Autistic children and young people (0-24?years). We used a 15-year nationwide birth cohort study to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. The study included 895,707 children and 11,919 (1.4%) were Autistic. We found that autism was associated with a significantly higher mortality risk compared to the non-Autistic population. In addition, we found that this risk was significantly higher among females compared to males and for those with a co-occurring intellectual disability. Increased efforts are required to better meet the health needs of this population. En ligne : https://dx.doi.org/10.1177/13623613231224015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 [article] Mortality risk among Autistic children and young people: A nationwide birth cohort study [Texte imprimé et/ou numérique] / Nicholas BOWDEN, Auteur ; Sheree GIBB, Auteur ; Richard AUDAS, Auteur ; Joanne DACOMBE, Auteur ; Laurie MCLAY, Auteur ; Andrew SPORLE, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Hiran THABREW, Auteur ; Reremoana THEODORE, Auteur ; Jessica TUPOU, Auteur ; Philip J. SCHLUTER, Auteur . - p.2244-2253. Langues : (en) in Autism > 28-9 (September 2024) . - p.2244-2253 Mots-clés : adolescents  autism spectrum disorders  health services  medical comorbidity  pre-school children  school-age children  social services Index. décimale : PER Périodiques Résumé : Autism has been associated with increased mortality risk among adult populations, but little is known about the mortality risk among children and young people (0-24?years). We used a 15-year nationwide birth cohort study using linked health and non-health administrative data to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. Time-to-event analysis was used to determine the association between autism and mortality, controlling for sex, age, ethnicity, deprivation and rurality of residence. The participant population included 895,707 children of whom 11,919 (1.4%) were identified as Autistic. Autism was associated with a significantly higher mortality risk (hazard ratio = 2.35; 95% confidence interval = 1.80-3.06) compared to the general population. In addition, using stratified analyses, we found that this risk was significantly higher among females (hazard ratio = 5.40; 95% confidence interval = 3.42-8.52) compared to males (hazard ratio = 1.82; 95% confidence interval = 1.32-2.52). We also determined that among Autistic young people, mortality risk was significantly higher for those with a co-occurring intellectual disability (hazard ratio = 2.02; 95% confidence interval = 1.17-3.46). In this study, autism was associated with higher mortality in children and young people compared to the non-Autistic population. Increased efforts are required to better meet the health needs of this population. Lay abstract Existing literature indicates that Autistic people have shorter life expectancy, but little is known about the mortality risk among Autistic children and young people (0-24?years). We used a 15-year nationwide birth cohort study to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. The study included 895,707 children and 11,919 (1.4%) were Autistic. We found that autism was associated with a significantly higher mortality risk compared to the non-Autistic population. In addition, we found that this risk was significantly higher among females compared to males and for those with a co-occurring intellectual disability. Increased efforts are required to better meet the health needs of this population. En ligne : https://dx.doi.org/10.1177/13623613231224015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535

Supporting tamariki takiw?tanga M?ori (autistic M?ori children): Exploring the experience of early childhood educators / Jessica TUPOU in Autism, 28-3 (March 2024)  

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