Adapting measures of motor imitation for use by caregivers in virtual contexts: Reliability, validity, and sensitivity to change / Brooke INGERSOLL ; Mya HOWARD ; Devon OOSTING ; Alice S. CARTER ; Wendy L. STONE ; Natalie I. BERGER ; Allison L. WAINER ; Emily Roemer BRITSCH ; Rise Research Network in Autism Research, 18-1 (January 2025)  

Public ISBD [article]  inAutism Research > 18-1 (January 2025) . - p.122-132 Titre : Adapting measures of motor imitation for use by caregivers in virtual contexts: Reliability, validity, and sensitivity to change : Autism Research Type de document : texte imprimé Auteurs : Brooke INGERSOLL, Auteur ; Mya HOWARD, Auteur ; Devon OOSTING, Auteur ; Alice S. CARTER, Auteur ; Wendy L. STONE, Auteur ; Natalie I. BERGER, Auteur ; Allison L. WAINER, Auteur ; Emily Roemer BRITSCH, Auteur ; Rise Research Network, Auteur Article en page(s) : p.122-132 Langues : Anglais (eng) Mots-clés : assessment  autism  caregiver-implemented  imitation  virtual Index. décimale : PER Périodiques Résumé : Abstract Early imitation challenges for children with autism are thought to contribute to broader delays in their social communication development. As such, imitation is an important intervention target for young children with and showing early signs of autism, and efforts are underway to disseminate evidence-based imitation interventions into community settings. To our knowledge, there are currently no established imitation assessments that have been validated for use in virtual contexts. This study was designed to examine the reliability and validity of two caregiver-implemented imitation measures delivered with support from a remote virtual assessor. Study participants (177 caregiver-child dyads) were enrolled in a large, multisite study that is examining the effectiveness of a caregiver-implemented intervention delivered through the Part C early intervention (EI) system across four states. Results indicate that the assessments can be administered remotely with strong fidelity, internal reliability, predictive validity, discriminant validity, convergent validity, and sensitivity to change. Stability over time was adequate. These findings suggest that imitation skills can be measured effectively using a remote caregiver-implemented assessment, which provides greater opportunity for virtual clinical trials targeting social communication in young children. Clinical Trial Registration The trial protocol was registered at ClinicalTrials.gov (NCT05114538). En ligne : https://doi.org/10.1002/aur.3267 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] Adapting measures of motor imitation for use by caregivers in virtual contexts: Reliability, validity, and sensitivity to change : Autism Research [texte imprimé] / Brooke INGERSOLL, Auteur ; Mya HOWARD, Auteur ; Devon OOSTING, Auteur ; Alice S. CARTER, Auteur ; Wendy L. STONE, Auteur ; Natalie I. BERGER, Auteur ; Allison L. WAINER, Auteur ; Emily Roemer BRITSCH, Auteur ; Rise Research Network, Auteur . - p.122-132. Langues : Anglais (eng) in Autism Research > 18-1 (January 2025) . - p.122-132 Mots-clés : assessment  autism  caregiver-implemented  imitation  virtual Index. décimale : PER Périodiques Résumé : Abstract Early imitation challenges for children with autism are thought to contribute to broader delays in their social communication development. As such, imitation is an important intervention target for young children with and showing early signs of autism, and efforts are underway to disseminate evidence-based imitation interventions into community settings. To our knowledge, there are currently no established imitation assessments that have been validated for use in virtual contexts. This study was designed to examine the reliability and validity of two caregiver-implemented imitation measures delivered with support from a remote virtual assessor. Study participants (177 caregiver-child dyads) were enrolled in a large, multisite study that is examining the effectiveness of a caregiver-implemented intervention delivered through the Part C early intervention (EI) system across four states. Results indicate that the assessments can be administered remotely with strong fidelity, internal reliability, predictive validity, discriminant validity, convergent validity, and sensitivity to change. Stability over time was adequate. These findings suggest that imitation skills can be measured effectively using a remote caregiver-implemented assessment, which provides greater opportunity for virtual clinical trials targeting social communication in young children. Clinical Trial Registration The trial protocol was registered at ClinicalTrials.gov (NCT05114538). En ligne : https://doi.org/10.1002/aur.3267 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

Applying a User-Centered Design Framework to Develop a Remote Research Assessment Protocol for a Randomized Clinical Trial for Toddlers with Early Autism Characteristics / Daina M. TAGAVI in Journal of Autism and Developmental Disorders, 55-10 (October 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3417-3431 Titre : Applying a User-Centered Design Framework to Develop a Remote Research Assessment Protocol for a Randomized Clinical Trial for Toddlers with Early Autism Characteristics Type de document : texte imprimé Auteurs : Daina M. TAGAVI, Auteur ; Yael G. DAI, Auteur ; Natalie I. BERGER, Auteur ; Marisa PETRUCCELLI, Auteur ; Sabine E. SCOTT, Auteur ; Devon OOSTING, Auteur ; Mya HOWARD, Auteur ; Alice S. CARTER, Auteur ; Brooke INGERSOLL, Auteur ; Allison L. WAINER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Wendy L. STONE, Auteur Article en page(s) : p.3417-3431 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : COVID-19 required many research teams to shift from in-person to remote assessments, which posed both procedural and theoretical challenges. While research has explored the utility of remote assessments for autism diagnosis from the perspective of families and clinicians, less is known about their application in clinical trials. This paper describes the development of a remote research assessment protocol for a randomized clinical trial focusing on the implementation of reciprocal imitation teaching (RIT) with toddlers in Part C early intervention. This project spans two phases. For Phase 1, our team developed and documented a series of steps utilizing user-centered design (UCD) strategies (e.g., recruiting potential users, creating a prototype, engaging in iterative development) for the purpose of redesigning an assessment protocol for a remote environment. For Phase 2, we examined preliminary outcomes of the redesign process. Primary end users (assessors) rated post-redesign usability and acceptability, while acceptability was examined using attrition data from secondary end users (family participants). Preliminary fidelity of implementation was also examined. The iterative redesign process allowed the research team to refine aspects of the assessment that ultimately led to promising preliminary ratings of usability, acceptability, and feasibility, as well as high fidelity. Preliminary data suggest that the redesigned assessment appears to be an acceptable, feasible, and usable tool for autism clinical trial research and that assessors can use it with fidelity. Further research is needed to examine the reliability and validity of the assessment, as well as implementation characteristics on a larger scale. En ligne : https://doi.org/10.1007/s10803-024-06455-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568 [article] Applying a User-Centered Design Framework to Develop a Remote Research Assessment Protocol for a Randomized Clinical Trial for Toddlers with Early Autism Characteristics [texte imprimé] / Daina M. TAGAVI, Auteur ; Yael G. DAI, Auteur ; Natalie I. BERGER, Auteur ; Marisa PETRUCCELLI, Auteur ; Sabine E. SCOTT, Auteur ; Devon OOSTING, Auteur ; Mya HOWARD, Auteur ; Alice S. CARTER, Auteur ; Brooke INGERSOLL, Auteur ; Allison L. WAINER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Wendy L. STONE, Auteur . - p.3417-3431. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3417-3431 Index. décimale : PER Périodiques Résumé : COVID-19 required many research teams to shift from in-person to remote assessments, which posed both procedural and theoretical challenges. While research has explored the utility of remote assessments for autism diagnosis from the perspective of families and clinicians, less is known about their application in clinical trials. This paper describes the development of a remote research assessment protocol for a randomized clinical trial focusing on the implementation of reciprocal imitation teaching (RIT) with toddlers in Part C early intervention. This project spans two phases. For Phase 1, our team developed and documented a series of steps utilizing user-centered design (UCD) strategies (e.g., recruiting potential users, creating a prototype, engaging in iterative development) for the purpose of redesigning an assessment protocol for a remote environment. For Phase 2, we examined preliminary outcomes of the redesign process. Primary end users (assessors) rated post-redesign usability and acceptability, while acceptability was examined using attrition data from secondary end users (family participants). Preliminary fidelity of implementation was also examined. The iterative redesign process allowed the research team to refine aspects of the assessment that ultimately led to promising preliminary ratings of usability, acceptability, and feasibility, as well as high fidelity. Preliminary data suggest that the redesigned assessment appears to be an acceptable, feasible, and usable tool for autism clinical trial research and that assessors can use it with fidelity. Further research is needed to examine the reliability and validity of the assessment, as well as implementation characteristics on a larger scale. En ligne : https://doi.org/10.1007/s10803-024-06455-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568

Building Capacity: A Systematic Review of Training in the Diagnosis of Autism for Community-Based Clinicians / Mya HOWARD ; Michelle MENEZES ; Christina BURROUGHS ; Jessica PAPPAGIANOPOULOS ; Vibha SASTRI ; Sophie BRUNT ; Ryan MILLER ; Anzhelika PARENCHUK ; Jocelyn KUHN ; Micah O. MAZUREK in Autism Research, 18-4 (April 2025)  

Public ISBD [article]  inAutism Research > 18-4 (April 2025) . - p.690-709 Titre : Building Capacity: A Systematic Review of Training in the Diagnosis of Autism for Community-Based Clinicians Type de document : texte imprimé Auteurs : Mya HOWARD, Auteur ; Michelle MENEZES, Auteur ; Christina BURROUGHS, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Vibha SASTRI, Auteur ; Sophie BRUNT, Auteur ; Ryan MILLER, Auteur ; Anzhelika PARENCHUK, Auteur ; Jocelyn KUHN, Auteur ; Micah O. MAZUREK, Auteur Article en page(s) : p.690-709 Langues : Anglais (eng) Mots-clés : autism diagnosis  capacity-building  clinician training  diagnostic training  systematic review Index. décimale : PER Périodiques Résumé : ABSTRACT In an effort to reduce the ?waitlist crisis,? researchers have developed training programs to educate community-based clinicians in best-practice autism diagnostic assessments. This systematic review aims to synthesize the effectiveness and implementation outcomes of such trainings. The following databases were searched from inception until August 2023: PubMed, Web of Science, APA PsycINFO, CINAHL, ERIC, and a select number from Google Scholar. Ten studies were included in the present review because they met the following criteria: development and/or evaluation of a training for practicing community-based clinicians to diagnose autism, published full-text in English, and original research. Risk of bias was assessed through an adapted NIH quality assessment tool. Only seven distinct training programs in autism diagnosis for practicing community-based clinicians were identified. Trainings demonstrated preliminary efficacy in the improvement of clinician knowledge, self-efficacy, practice behavior, and diagnostic accuracy. Many of the trainings had a reported positive impact on the community and were feasible to participate in; however, systems-level factors (e.g., time and reimbursement) remain as barriers to community-based diagnosis. Findings from the present review position clinician training as a promising strategy to increase families' timely access to an autism diagnosis. More research on training models is needed due to both the limited number of trainings and the limited reported effectiveness and implementation outcomes. Future implementation studies are also needed to reduce systems-level barriers and to aid in the determination of what trainings best fit the needs of different contexts. En ligne : https://doi.org/10.1002/aur.70014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554 [article] Building Capacity: A Systematic Review of Training in the Diagnosis of Autism for Community-Based Clinicians [texte imprimé] / Mya HOWARD, Auteur ; Michelle MENEZES, Auteur ; Christina BURROUGHS, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Vibha SASTRI, Auteur ; Sophie BRUNT, Auteur ; Ryan MILLER, Auteur ; Anzhelika PARENCHUK, Auteur ; Jocelyn KUHN, Auteur ; Micah O. MAZUREK, Auteur . - p.690-709. Langues : Anglais (eng) in Autism Research > 18-4 (April 2025) . - p.690-709 Mots-clés : autism diagnosis  capacity-building  clinician training  diagnostic training  systematic review Index. décimale : PER Périodiques Résumé : ABSTRACT In an effort to reduce the ?waitlist crisis,? researchers have developed training programs to educate community-based clinicians in best-practice autism diagnostic assessments. This systematic review aims to synthesize the effectiveness and implementation outcomes of such trainings. The following databases were searched from inception until August 2023: PubMed, Web of Science, APA PsycINFO, CINAHL, ERIC, and a select number from Google Scholar. Ten studies were included in the present review because they met the following criteria: development and/or evaluation of a training for practicing community-based clinicians to diagnose autism, published full-text in English, and original research. Risk of bias was assessed through an adapted NIH quality assessment tool. Only seven distinct training programs in autism diagnosis for practicing community-based clinicians were identified. Trainings demonstrated preliminary efficacy in the improvement of clinician knowledge, self-efficacy, practice behavior, and diagnostic accuracy. Many of the trainings had a reported positive impact on the community and were feasible to participate in; however, systems-level factors (e.g., time and reimbursement) remain as barriers to community-based diagnosis. Findings from the present review position clinician training as a promising strategy to increase families' timely access to an autism diagnosis. More research on training models is needed due to both the limited number of trainings and the limited reported effectiveness and implementation outcomes. Future implementation studies are also needed to reduce systems-level barriers and to aid in the determination of what trainings best fit the needs of different contexts. En ligne : https://doi.org/10.1002/aur.70014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554

Inner experiences, mental health, and well-being in autistic and non-autistic adults / Micah O. MAZUREK in Autism Research, 17-12 (December 2024)  

Public ISBD [article]  inAutism Research > 17-12 (December 2024) . - p.2676-2688 Titre : Inner experiences, mental health, and well-being in autistic and non-autistic adults Type de document : texte imprimé Auteurs : Micah O. MAZUREK, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Sophie BRUNT, Auteur ; Rose NEVILL, Auteur ; Michelle MENEZES, Auteur ; Christina BURROUGHS, Auteur ; Eleonora SADIKOVA, Auteur ; Jessica V. SMITH, Auteur ; Mya HOWARD, Auteur Article en page(s) : p.2676-2688 Langues : Anglais (eng) Mots-clés : autism  inner speech  mental health  self-talk  verbal thinking  visual thinking Index. décimale : PER Périodiques Résumé : Abstract The nature of autistic adults' everyday inner experiences has been largely unstudied. The purpose of this study was to examine patterns of inner experiences and how they relate to mental health and wellness among autistic and non-autistic adults. Autistic (n 303) and non-autistic (n 289) adults (ages 21 82) completed online surveys assessing their anxiety, depression, happiness, life satisfaction, and inner thinking patterns, (inner speaking [i.e., verbal thinking], inner seeing [i.e., visual thinking], unsymbolized thinking, feelings, sensory awareness, self-talk). Group differences in inner thinking were examined using Mann Whitney U and chi-square tests. Correlations and multiple linear regressions examined associations between inner experiences, mental health, and well-being. Autistic adults had greater use of inner speaking and sensory awareness, compared to non-autistic adults. The most common primary mode of inner experience for both groups was inner speaking, while fewer autistic adults reported that experiencing thoughts as feelings was their primary modality. Autistic adults reported greater use of self-talk for social assessment, self-criticism, and self-management purposes, compared to non-autistic adults. Experiencing thoughts as inner speech and as feelings were associated with anxiety in both groups. Using self-talk for social assessment and self-criticism purposes was correlated with anxiety and depression in both groups, while using self-talk for self-management was associated with depression and anxiety only among autistic adults. The results suggest that autistic and non-autistic adults have similarities in overall patterns of inner thinking, yet autistic adults may be more likely to engage in self-talk as a strategy to manage challenging day-to-day experiences. En ligne : https://dx.doi.org/10.1002/aur.3273 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544 [article] Inner experiences, mental health, and well-being in autistic and non-autistic adults [texte imprimé] / Micah O. MAZUREK, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Sophie BRUNT, Auteur ; Rose NEVILL, Auteur ; Michelle MENEZES, Auteur ; Christina BURROUGHS, Auteur ; Eleonora SADIKOVA, Auteur ; Jessica V. SMITH, Auteur ; Mya HOWARD, Auteur . - p.2676-2688. Langues : Anglais (eng) in Autism Research > 17-12 (December 2024) . - p.2676-2688 Mots-clés : autism  inner speech  mental health  self-talk  verbal thinking  visual thinking Index. décimale : PER Périodiques Résumé : Abstract The nature of autistic adults' everyday inner experiences has been largely unstudied. The purpose of this study was to examine patterns of inner experiences and how they relate to mental health and wellness among autistic and non-autistic adults. Autistic (n 303) and non-autistic (n 289) adults (ages 21 82) completed online surveys assessing their anxiety, depression, happiness, life satisfaction, and inner thinking patterns, (inner speaking [i.e., verbal thinking], inner seeing [i.e., visual thinking], unsymbolized thinking, feelings, sensory awareness, self-talk). Group differences in inner thinking were examined using Mann Whitney U and chi-square tests. Correlations and multiple linear regressions examined associations between inner experiences, mental health, and well-being. Autistic adults had greater use of inner speaking and sensory awareness, compared to non-autistic adults. The most common primary mode of inner experience for both groups was inner speaking, while fewer autistic adults reported that experiencing thoughts as feelings was their primary modality. Autistic adults reported greater use of self-talk for social assessment, self-criticism, and self-management purposes, compared to non-autistic adults. Experiencing thoughts as inner speech and as feelings were associated with anxiety in both groups. Using self-talk for social assessment and self-criticism purposes was correlated with anxiety and depression in both groups, while using self-talk for self-management was associated with depression and anxiety only among autistic adults. The results suggest that autistic and non-autistic adults have similarities in overall patterns of inner thinking, yet autistic adults may be more likely to engage in self-talk as a strategy to manage challenging day-to-day experiences. En ligne : https://dx.doi.org/10.1002/aur.3273 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544

Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities / Micah O. MAZUREK in Journal of Autism and Developmental Disorders, 55-10 (October 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3553-3564 Titre : Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities Type de document : texte imprimé Auteurs : Micah O. MAZUREK, Auteur ; Rose E. NEVILL, Auteur ; Karen ORLANDO, Auteur ; Keith PAGE, Auteur ; Mya HOWARD, Auteur ; Beth Ellen DAVIS, Auteur Article en page(s) : p.3553-3564 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Children with autism from underserved communities face complex system-, provider-, and family-level barriers to accessing timely diagnosis and early intervention. The current study evaluated the preliminary effects and feasibility of a new program (ECHO Autism LINKS) that integrated pediatric primary care provider (PCP) training with family navigation (FN) to bridge the gaps between screening, referral, and service access. Three cohorts of PCPs (n = 42) participated in the program, which consisted of 60-minute sessions delivered by Zoom twice per month for 12 months. Each session included didactics, case-based learning, and collaborative discussion with participants and an interdisciplinary team of experts. Family navigators were members of the expert team and provided FN services to families referred by PCP participants. Program attendance and engagement were strong, with 40 cases presented and 258 families referred for FN services, most of whom (83%) needed help accessing and connecting with services, and 13% required ongoing support due to complex needs. PCPs demonstrated significant improvements in self-efficacy in providing best-practice care for children with autism, reported high satisfaction, and observed improved knowledge and practice as a result of the program. The results of this initial pilot provide support for the feasibility, acceptability, and preliminary efficacy of the ECHO Autism LINKS program. The model holds promise in addressing complex barriers to healthcare access by providing both PCPs and families with the knowledge and support they need. Future research is needed to evaluate the efficacy and effectiveness of the program in improving child and family outcomes. En ligne : https://doi.org/10.1007/s10803-024-06445-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568 [article] Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities [texte imprimé] / Micah O. MAZUREK, Auteur ; Rose E. NEVILL, Auteur ; Karen ORLANDO, Auteur ; Keith PAGE, Auteur ; Mya HOWARD, Auteur ; Beth Ellen DAVIS, Auteur . - p.3553-3564. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3553-3564 Index. décimale : PER Périodiques Résumé : Children with autism from underserved communities face complex system-, provider-, and family-level barriers to accessing timely diagnosis and early intervention. The current study evaluated the preliminary effects and feasibility of a new program (ECHO Autism LINKS) that integrated pediatric primary care provider (PCP) training with family navigation (FN) to bridge the gaps between screening, referral, and service access. Three cohorts of PCPs (n = 42) participated in the program, which consisted of 60-minute sessions delivered by Zoom twice per month for 12 months. Each session included didactics, case-based learning, and collaborative discussion with participants and an interdisciplinary team of experts. Family navigators were members of the expert team and provided FN services to families referred by PCP participants. Program attendance and engagement were strong, with 40 cases presented and 258 families referred for FN services, most of whom (83%) needed help accessing and connecting with services, and 13% required ongoing support due to complex needs. PCPs demonstrated significant improvements in self-efficacy in providing best-practice care for children with autism, reported high satisfaction, and observed improved knowledge and practice as a result of the program. The results of this initial pilot provide support for the feasibility, acceptability, and preliminary efficacy of the ECHO Autism LINKS program. The model holds promise in addressing complex barriers to healthcare access by providing both PCPs and families with the knowledge and support they need. Future research is needed to evaluate the efficacy and effectiveness of the program in improving child and family outcomes. En ligne : https://doi.org/10.1007/s10803-024-06445-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568

Prevalence of discrimination experienced by autistic youth as compared to neurotypical youth and youth with other neurodevelopmental diagnoses / Jessica PAPPAGIANOPOULOS ; Jessica V SMITH ; Mya HOWARD ; Sophie BRUNT ; Lauren WITTE ; Sydney ANDERSON ; Brian A. BOYD ; Micah O MAZUREK in Autism, 29-7 (July 2025)  

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Relative Efficacy of Self-directed and Therapist-assisted Telehealth Models of a Parent-mediated Intervention for Autism: Examining Effects on Parent Intervention Fidelity, Well-being, and Program Engagement / Brooke INGERSOLL in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

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