Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / Emily J. HICKEY in Autism, 25-6 (August 2021)  

Public ISBD [article]  inAutism > 25-6 (August 2021) . - p.1694-1708 Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : texte imprimé Auteurs : Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [texte imprimé] / Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur . - p.1694-1708. Langues : Anglais (eng) in Autism > 25-6 (August 2021) . - p.1694-1708 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / Emily J. HICKEY in Autism, 26-6 (August 2022)  

Public ISBD [article]  inAutism > 26-6 (August 2022) . - p.1694-1708 Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : texte imprimé Auteurs : Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [texte imprimé] / Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur . - p.1694-1708. Langues : Anglais (eng) in Autism > 26-6 (August 2022) . - p.1694-1708 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Reinvigorating the Promise of the National Database for Autism Research (NDAR) to Advance Autism Knowledge / Michelle L. STRANSKY ; Laneva COBB ; Nina MENON ; Emily BARNARD ; Cynthia BELFLEUR ; Lawrence SCAHILL ; Jocelyn KUHN in Journal of Autism and Developmental Disorders, 55-1 (January 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.385-389 Titre : Reinvigorating the Promise of the National Database for Autism Research (NDAR) to Advance Autism Knowledge : Journal of Autism and Developmental Disorders Type de document : texte imprimé Auteurs : Michelle L. STRANSKY, Auteur ; Laneva COBB, Auteur ; Nina MENON, Auteur ; Emily BARNARD, Auteur ; Cynthia BELFLEUR, Auteur ; Lawrence SCAHILL, Auteur ; Jocelyn KUHN, Auteur Article en page(s) : p.385-389 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The National Institute of Mental Health created the National Database for Autism Research (NDAR) to accelerate autism knowledge through data sharing and collaboration. However, our experience using NDAR reveals systematic challenges across several aspects of data submission, selection, management, and analysis that limit utility of this resource. We describe our NDAR experience in an ongoing project examining autism intervention outcomes among marginalized racial, ethnic, and gender groups. For this study, we planned to gather data from NDAR to conduct an individual participant data meta-analysis. Eighteen studies met inclusion criteria and reported data on participants at more than one point in time on the Vineland Adaptive Behavior Scales (Vineland) and the Autism Diagnostic Observation Schedule (ADOS). The difficulties with submitting, selecting, downloading, and managing data from NDAR posed limitations on data availability and analysis. Of the 3,850 unique participants in the selected studies, data at multiple time points were available for 312 participants on the Vineland and 278 on the ADOS. No participants had data on all assessment domains. To accelerate autism research via data sharing and collaboration with NDAR necessitates improving the processes for submitting, selecting, and managing data. En ligne : https://doi.org/10.1007/s10803-024-06641-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 [article] Reinvigorating the Promise of the National Database for Autism Research (NDAR) to Advance Autism Knowledge : Journal of Autism and Developmental Disorders [texte imprimé] / Michelle L. STRANSKY, Auteur ; Laneva COBB, Auteur ; Nina MENON, Auteur ; Emily BARNARD, Auteur ; Cynthia BELFLEUR, Auteur ; Lawrence SCAHILL, Auteur ; Jocelyn KUHN, Auteur . - p.385-389. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.385-389 Index. décimale : PER Périodiques Résumé : The National Institute of Mental Health created the National Database for Autism Research (NDAR) to accelerate autism knowledge through data sharing and collaboration. However, our experience using NDAR reveals systematic challenges across several aspects of data submission, selection, management, and analysis that limit utility of this resource. We describe our NDAR experience in an ongoing project examining autism intervention outcomes among marginalized racial, ethnic, and gender groups. For this study, we planned to gather data from NDAR to conduct an individual participant data meta-analysis. Eighteen studies met inclusion criteria and reported data on participants at more than one point in time on the Vineland Adaptive Behavior Scales (Vineland) and the Autism Diagnostic Observation Schedule (ADOS). The difficulties with submitting, selecting, downloading, and managing data from NDAR posed limitations on data availability and analysis. Of the 3,850 unique participants in the selected studies, data at multiple time points were available for 312 participants on the Vineland and 278 on the ADOS. No participants had data on all assessment domains. To accelerate autism research via data sharing and collaboration with NDAR necessitates improving the processes for submitting, selecting, and managing data. En ligne : https://doi.org/10.1007/s10803-024-06641-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547

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