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Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome / Paula L. OGSTON in Research in Autism Spectrum Disorders, 5-4 (October-December 2011)
[article]
Titre : Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Paula L. OGSTON, Auteur ; Virginia H. MACKINTOSH, Auteur ; Barbara J. MYERS, Auteur Année de publication : 2011 Article en page(s) : p.1378-1384 Langues : Anglais (eng) Mots-clés : Hope Worry Mothers Autism spectrum disorder Down syndrome Index. décimale : PER Périodiques Résumé : Mothers of children with an autism spectrum disorder (n = 199) or Down syndrome (n = 60) responded to an online questionnaire that assessed their hope and worry. Findings support previous research suggesting that hope is a protective factor against psychological distress: mothers with higher hope reported lower worry. Mothers who reported lower worry had more education and older children or children who were higher functioning. Those whose children had Down syndrome reported lower future-related worry and higher hope. In response to an open-ended question regarding what they worried about when they woke up at night, mothers’ responses resulted in themes related to themselves as well as to their children and families. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.01.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=125
in Research in Autism Spectrum Disorders > 5-4 (October-December 2011) . - p.1378-1384[article] Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome [Texte imprimé et/ou numérique] / Paula L. OGSTON, Auteur ; Virginia H. MACKINTOSH, Auteur ; Barbara J. MYERS, Auteur . - 2011 . - p.1378-1384.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 5-4 (October-December 2011) . - p.1378-1384
Mots-clés : Hope Worry Mothers Autism spectrum disorder Down syndrome Index. décimale : PER Périodiques Résumé : Mothers of children with an autism spectrum disorder (n = 199) or Down syndrome (n = 60) responded to an online questionnaire that assessed their hope and worry. Findings support previous research suggesting that hope is a protective factor against psychological distress: mothers with higher hope reported lower worry. Mothers who reported lower worry had more education and older children or children who were higher functioning. Those whose children had Down syndrome reported lower future-related worry and higher hope. In response to an open-ended question regarding what they worried about when they woke up at night, mothers’ responses resulted in themes related to themselves as well as to their children and families. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.01.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=125 Hope, social relations, and depressive symptoms in mothers of children with autism spectrum disorder / Naomi V. EKAS in Research in Autism Spectrum Disorders, 29-30 (September–October 2016)
[article]
Titre : Hope, social relations, and depressive symptoms in mothers of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Naomi V. EKAS, Auteur ; Megan M. PRUITT, Auteur ; Erin MCKAY, Auteur Article en page(s) : p.8-18 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Mothers Hope Loneliness Depression Positive psychology Index. décimale : PER Périodiques Résumé : AbstractBackground Raising a child with autism spectrum disorder (ASD) may negatively impact maternal mental health outcomes. Feelings of loneliness and a lack of social support may contribute to these outcomes. One factor that may help to promote better outcomes is hope. The current study examined the associations between maternal hope, loneliness, social support, and depressive symptoms. Method Ninety-four mothers of a child with ASD participated in this online study. Mothers were predominantly Caucasian, middle class, and educated. Children ranged in age from 2 to 13 years. Mothers completed questionnaires assessing hope, loneliness, perceived social support from friends and family, and depressive symptoms. Results The results of a multiple mediator model indicated that hope agency was indirectly associated with depressive symptoms via loneliness. In a follow-up serial mediation model, hope agency was associated with depressive symptoms through family support and loneliness. Conclusions The present study contributes to the growing body of research focusing on positive personality characteristics and mental health outcomes in mothers of children with ASD. Given that increased hopeful thinking was associated with less loneliness, the construct of hope should be given more attention in interventions that are aimed at improving maternal outcomes. Increasing hopeful thinking may be particularly important in aiding with improvement during psychotherapy for mothers with clinical levels of depressive symptoms. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.05.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292
in Research in Autism Spectrum Disorders > 29-30 (September–October 2016) . - p.8-18[article] Hope, social relations, and depressive symptoms in mothers of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Naomi V. EKAS, Auteur ; Megan M. PRUITT, Auteur ; Erin MCKAY, Auteur . - p.8-18.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 29-30 (September–October 2016) . - p.8-18
Mots-clés : Autism spectrum disorder Mothers Hope Loneliness Depression Positive psychology Index. décimale : PER Périodiques Résumé : AbstractBackground Raising a child with autism spectrum disorder (ASD) may negatively impact maternal mental health outcomes. Feelings of loneliness and a lack of social support may contribute to these outcomes. One factor that may help to promote better outcomes is hope. The current study examined the associations between maternal hope, loneliness, social support, and depressive symptoms. Method Ninety-four mothers of a child with ASD participated in this online study. Mothers were predominantly Caucasian, middle class, and educated. Children ranged in age from 2 to 13 years. Mothers completed questionnaires assessing hope, loneliness, perceived social support from friends and family, and depressive symptoms. Results The results of a multiple mediator model indicated that hope agency was indirectly associated with depressive symptoms via loneliness. In a follow-up serial mediation model, hope agency was associated with depressive symptoms through family support and loneliness. Conclusions The present study contributes to the growing body of research focusing on positive personality characteristics and mental health outcomes in mothers of children with ASD. Given that increased hopeful thinking was associated with less loneliness, the construct of hope should be given more attention in interventions that are aimed at improving maternal outcomes. Increasing hopeful thinking may be particularly important in aiding with improvement during psychotherapy for mothers with clinical levels of depressive symptoms. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.05.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292 Vicarious futurity, hope, and well-being in parents of children with autism spectrum disorder / Daniel J. FASO in Research in Autism Spectrum Disorders, 7-2 (February 2013)
[article]
Titre : Vicarious futurity, hope, and well-being in parents of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Daniel J. FASO, Auteur ; A. Rebecca NEAL-BEEVERS, Auteur ; Caryn L. CARLSON, Auteur Article en page(s) : p.288-297 Langues : Anglais (eng) Mots-clés : Autism Parents Well-being Hope Despair Stress Index. décimale : PER Périodiques Résumé : Hope is shown to provide resiliency for parents of children with autism spectrum disorders (ASDs) against the negative effects related to extreme parenting stressors. The broad positivity of hope may overlook opposing parental feelings about their child that may be important for well-being. Vicarious futurity (VF) is the hope and despair a parent feels for the future of their child, which reflects both positive and negative components of parental attitudes directed toward their child. In this study we examined how vicarious futurity related to hope, and how each predicted well-being in 71 parents (53 mothers) of children with ASD. Results indicated that regardless of child symptom severity, vicarious futurity strongly predicted stress experienced by parents, hope predicted depressive symptoms, and both predicted life satisfaction. Vicarious futurity and hope were found to be weakly correlated, indicating that both constructs are largely independent when influencing the well-being of parents raising a child with ASD. General hopefulness is important for parental well-being, but in the unique context of parents raising children with ASD, child focused constructs that measure both positive and negative components, such as vicarious futurity, may be more informative and useful when understanding how parental feelings about their child influence their own well-being. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.08.014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=186
in Research in Autism Spectrum Disorders > 7-2 (February 2013) . - p.288-297[article] Vicarious futurity, hope, and well-being in parents of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Daniel J. FASO, Auteur ; A. Rebecca NEAL-BEEVERS, Auteur ; Caryn L. CARLSON, Auteur . - p.288-297.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 7-2 (February 2013) . - p.288-297
Mots-clés : Autism Parents Well-being Hope Despair Stress Index. décimale : PER Périodiques Résumé : Hope is shown to provide resiliency for parents of children with autism spectrum disorders (ASDs) against the negative effects related to extreme parenting stressors. The broad positivity of hope may overlook opposing parental feelings about their child that may be important for well-being. Vicarious futurity (VF) is the hope and despair a parent feels for the future of their child, which reflects both positive and negative components of parental attitudes directed toward their child. In this study we examined how vicarious futurity related to hope, and how each predicted well-being in 71 parents (53 mothers) of children with ASD. Results indicated that regardless of child symptom severity, vicarious futurity strongly predicted stress experienced by parents, hope predicted depressive symptoms, and both predicted life satisfaction. Vicarious futurity and hope were found to be weakly correlated, indicating that both constructs are largely independent when influencing the well-being of parents raising a child with ASD. General hopefulness is important for parental well-being, but in the unique context of parents raising children with ASD, child focused constructs that measure both positive and negative components, such as vicarious futurity, may be more informative and useful when understanding how parental feelings about their child influence their own well-being. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.08.014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=186 Entitlement, Hope, and Life Satisfaction Among Mothers of Children with Developmental Disabilities / S. GEORGE-LEVI in Journal of Autism and Developmental Disorders, 51-11 (November 2021)
[article]
Titre : Entitlement, Hope, and Life Satisfaction Among Mothers of Children with Developmental Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : S. GEORGE-LEVI, Auteur ; R. LASLO-ROTH, Auteur Article en page(s) : p.3818-3828 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Child Developmental Disabilities Female Humans Parenting Personal Satisfaction Stress, Psychological Developmental disabilities Hope Life satisfaction Mothers Sense of entitlement Index. décimale : PER Périodiques Résumé : The interplay between sense of entitlement and hope might have a unique contribution to mothers of children with developmental disabilities (DD) life satisfaction. Seventy-three mothers of children with DD and 47 mothers of children without DD participated in the study. Mothers of children with DD (vs. without DD) experienced low levels of life satisfaction and high levels of entitlement. The relationship between being a mother of children with DD and life satisfaction was mediated by the interaction between sense of entitlement and hope. Higher entitlement was negatively related to life satisfaction when mothers' hope was low and positively related to life satisfaction when mothers' hope was high. Entitlement can act as a resource for life satisfaction, depending on hope levels. En ligne : http://dx.doi.org/10.1007/s10803-020-04832-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3818-3828[article] Entitlement, Hope, and Life Satisfaction Among Mothers of Children with Developmental Disabilities [Texte imprimé et/ou numérique] / S. GEORGE-LEVI, Auteur ; R. LASLO-ROTH, Auteur . - p.3818-3828.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3818-3828
Mots-clés : Autism Spectrum Disorder Child Developmental Disabilities Female Humans Parenting Personal Satisfaction Stress, Psychological Developmental disabilities Hope Life satisfaction Mothers Sense of entitlement Index. décimale : PER Périodiques Résumé : The interplay between sense of entitlement and hope might have a unique contribution to mothers of children with developmental disabilities (DD) life satisfaction. Seventy-three mothers of children with DD and 47 mothers of children without DD participated in the study. Mothers of children with DD (vs. without DD) experienced low levels of life satisfaction and high levels of entitlement. The relationship between being a mother of children with DD and life satisfaction was mediated by the interaction between sense of entitlement and hope. Higher entitlement was negatively related to life satisfaction when mothers' hope was low and positively related to life satisfaction when mothers' hope was high. Entitlement can act as a resource for life satisfaction, depending on hope levels. En ligne : http://dx.doi.org/10.1007/s10803-020-04832-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress / Vanessa H. BAL in Autism Research, 14-6 (June 2021)
[article]
Titre : Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa H. BAL, Auteur ; E. WILKINSON, Auteur ; L. C. WHITE, Auteur ; J. K. LAW, Auteur ; P. FELICIANO, Auteur ; W. K. CHUNG, Auteur Article en page(s) : p.1209-1219 Langues : Anglais (eng) Mots-clés : Adolescent Adult Autistic Disorder/psychology COVID-19/epidemiology Female Health Surveys Hope Humans Internet Male Pandemics Psychological Distress Risk Assessment Stress, Psychological/psychology Young Adult COVID-19 pandemic adults co-morbid conditions gender/female ASD hope loneliness funding from Novartis, Roche, Pfizer, Biogen, Ipsen, LAM Therapeutics, Astellas, Bridgebio and Quadrant Biosciences and has served on the Scientific Advisory Boards for Sage Therapeutics, Roche, Celgene, Aeovian, Regenxbio and Takeda. Robin Kochel has a contract with Yamo Pharmaceuticals, Inc., to consult on the design of clinical trials for individuals with ASD. Suma Jacobs has been an investigator in multisite treatment trials by Roche and served on an autism advisory board for Roche. Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has disrupted lives around the world. Autistic adults are at higher risk for co-occurring medical and psychiatric conditions and may be more prone to difficulties adapting to pandemic-related changes and social distancing mandates and coping with ongoing uncertainties. On the other hand, the pandemic may lead to greater understanding and acceptance of accommodations in the broader community that may facilitate supports for autistic adults beyond the pandemic. To learn more about their early pandemic experiences, online surveys were sent to independent adults enrolled in the Simons Powering Autism Research Knowledge (SPARK). The first survey was open from March 30 to April 19, 2020; a follow-up survey sent to original responders was open from May 27 to June 6, yielding 396 participants with data for both surveys. We found that adults who were female, younger, had prior diagnoses of a mental health condition, personal COVID-19 experience (i.e., knowing someone who had symptoms or tested positive) or less frequent hope for the future reported the greatest negative impacts. Decrease in feelings of hopefulness over time predicted greater psychological distress at T2, accounting for T1 impact and distress levels and increases in total COVID-19 impact. Less perceived benefit of online services also predicted later distress. Although there tends to be a focus on coping with negative effects of the pandemic, mental health providers may consider approaches that focus on positives, such as fostering hope and understanding factors that facilitate benefit from online services. LAY SUMMARY: Autistic adults may be at risk for psychological distress during the COVID-19 pandemic. The current study suggests that autistic adults who were younger, female, had a mental health diagnosis before the pandemic and knew someone who showed symptoms or tested positive for COVID-19 reported more areas negatively impacted by COVID-19 and greater difficulty coping with those effects. Decreases in hope over time were associated with greater psychological distress. Less perceived benefit from online services also predicted distress 2?months later. These results suggest important areas to further explore as we develop supports for autistic adults during the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2480 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-6 (June 2021) . - p.1209-1219[article] Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress [Texte imprimé et/ou numérique] / Vanessa H. BAL, Auteur ; E. WILKINSON, Auteur ; L. C. WHITE, Auteur ; J. K. LAW, Auteur ; P. FELICIANO, Auteur ; W. K. CHUNG, Auteur . - p.1209-1219.
Langues : Anglais (eng)
in Autism Research > 14-6 (June 2021) . - p.1209-1219
Mots-clés : Adolescent Adult Autistic Disorder/psychology COVID-19/epidemiology Female Health Surveys Hope Humans Internet Male Pandemics Psychological Distress Risk Assessment Stress, Psychological/psychology Young Adult COVID-19 pandemic adults co-morbid conditions gender/female ASD hope loneliness funding from Novartis, Roche, Pfizer, Biogen, Ipsen, LAM Therapeutics, Astellas, Bridgebio and Quadrant Biosciences and has served on the Scientific Advisory Boards for Sage Therapeutics, Roche, Celgene, Aeovian, Regenxbio and Takeda. Robin Kochel has a contract with Yamo Pharmaceuticals, Inc., to consult on the design of clinical trials for individuals with ASD. Suma Jacobs has been an investigator in multisite treatment trials by Roche and served on an autism advisory board for Roche. Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has disrupted lives around the world. Autistic adults are at higher risk for co-occurring medical and psychiatric conditions and may be more prone to difficulties adapting to pandemic-related changes and social distancing mandates and coping with ongoing uncertainties. On the other hand, the pandemic may lead to greater understanding and acceptance of accommodations in the broader community that may facilitate supports for autistic adults beyond the pandemic. To learn more about their early pandemic experiences, online surveys were sent to independent adults enrolled in the Simons Powering Autism Research Knowledge (SPARK). The first survey was open from March 30 to April 19, 2020; a follow-up survey sent to original responders was open from May 27 to June 6, yielding 396 participants with data for both surveys. We found that adults who were female, younger, had prior diagnoses of a mental health condition, personal COVID-19 experience (i.e., knowing someone who had symptoms or tested positive) or less frequent hope for the future reported the greatest negative impacts. Decrease in feelings of hopefulness over time predicted greater psychological distress at T2, accounting for T1 impact and distress levels and increases in total COVID-19 impact. Less perceived benefit of online services also predicted later distress. Although there tends to be a focus on coping with negative effects of the pandemic, mental health providers may consider approaches that focus on positives, such as fostering hope and understanding factors that facilitate benefit from online services. LAY SUMMARY: Autistic adults may be at risk for psychological distress during the COVID-19 pandemic. The current study suggests that autistic adults who were younger, female, had a mental health diagnosis before the pandemic and knew someone who showed symptoms or tested positive for COVID-19 reported more areas negatively impacted by COVID-19 and greater difficulty coping with those effects. Decreases in hope over time were associated with greater psychological distress. Less perceived benefit from online services also predicted distress 2?months later. These results suggest important areas to further explore as we develop supports for autistic adults during the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2480 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 Parents' future visions for their autistic transition-age youth: Hopes and expectations / J. CHEN in Autism, 23-6 (August 2019)
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