Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Détail de l'auteur
Auteur Kim DE VERDIER |
Documents disponibles écrits par cet auteur (1)
Faire une suggestion Affiner la recherche
Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision / Kim DE VERDIER in Journal of Autism and Developmental Disorders, 50-6 (June 2020)
[article]
Titre : Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision Type de document : Texte imprimé et/ou numérique Auteurs : Kim DE VERDIER, Auteur ; Elisabeth FERNELL, Auteur ; Ulla EK, Auteur Article en page(s) : p.1921-1930 Langues : Anglais (eng) Mots-clés : Assessments Autism Blindness Children Parents’ experiences Support Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD), with or without intellectual disability (ID), is common in children with congenital blindness. This complex combination of disabilities often involves many challenges for the family. This study explored parents' experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Interviews with eight parents, representing six families, were performed. The parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children's development, and ASD. The support was often perceived as fragmented and did not correspond to the families' needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families. En ligne : http://dx.doi.org/10.1007/s10803-019-03944-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1921-1930[article] Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision [Texte imprimé et/ou numérique] / Kim DE VERDIER, Auteur ; Elisabeth FERNELL, Auteur ; Ulla EK, Auteur . - p.1921-1930.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1921-1930
Mots-clés : Assessments Autism Blindness Children Parents’ experiences Support Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD), with or without intellectual disability (ID), is common in children with congenital blindness. This complex combination of disabilities often involves many challenges for the family. This study explored parents' experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Interviews with eight parents, representing six families, were performed. The parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children's development, and ASD. The support was often perceived as fragmented and did not correspond to the families' needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families. En ligne : http://dx.doi.org/10.1007/s10803-019-03944-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425