Brief report: Autism spectrum disorder diagnostic persistence in a 10-year longitudinal study / Stian ORM in Research in Autism Spectrum Disorders, 97 (September 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 97 (September 2022) . - 102007 Titre : Brief report: Autism spectrum disorder diagnostic persistence in a 10-year longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : Stian ORM, Auteur ; Per Normann ANDERSEN, Auteur ; Ingrid Nesdal FOSSUM, Auteur ; Merete Glenne ØIE, Auteur ; Erik Winther SKOGLI, Auteur Article en page(s) : 102007 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Longitudinal study  Diagnostic stability  Diagnostic persistence  Childhood predictors Index. décimale : PER Périodiques Résumé : Background The aim was to examine diagnostic persistence of Autism Spectrum Disorder (ASD) in individuals without intellectual disability from childhood to emerging adulthood. Method We assessed 38 children with estimated full-scale intelligence quotient (IQ)70 who were diagnosed with ASD at baseline (Mage=12.0, SD=2.3, 84% male), and re-assessed two (n=37, Mage=14.2, SD=2.4, 84% male) and 10 years (n=23, Mage=21.7, SD=2.4, 78% male) later. Results At two-year follow-up, all participants still met diagnostic criteria for ASD according to the Diagnostic and Statistical Manual for Mental Disorders “ fourth version (DSM-IV). At 10-year follow-up, 65% met diagnostic criteria for ASD according to DSM-IV, 48% met diagnostic criteria according to the Diagnostic and Statistical Manual for Mental Disorders “ fifth version (DSM-5), 57% met the ASD cut-off on the Autism Spectrum Quotient 10-item (AQ-10), and 78% met either DSM-IV criteria or cut-off on the AQ-10. Higher IQ in childhood predicted loss of ASD diagnosis according to DSM-IV criteria (Hedges g = 1.30). A higher proportion of girls compared to boys displayed loss of ASD diagnosis according to DSM-IV criteria. Conclusions These findings suggest that ASD traits among individuals without intellectual disability may wane into emerging adulthood and that loss of ASD diagnosis is associated with higher IQ and being a girl. Diagnostic re-evaluations may be warranted for some individuals diagnosed with ASD as children or adolescents. En ligne : https://doi.org/10.1016/j.rasd.2022.102007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Brief report: Autism spectrum disorder diagnostic persistence in a 10-year longitudinal study [Texte imprimé et/ou numérique] / Stian ORM, Auteur ; Per Normann ANDERSEN, Auteur ; Ingrid Nesdal FOSSUM, Auteur ; Merete Glenne ØIE, Auteur ; Erik Winther SKOGLI, Auteur . - 102007. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 97 (September 2022) . - 102007 Mots-clés : Autism Spectrum Disorder  Longitudinal study  Diagnostic stability  Diagnostic persistence  Childhood predictors Index. décimale : PER Périodiques Résumé : Background The aim was to examine diagnostic persistence of Autism Spectrum Disorder (ASD) in individuals without intellectual disability from childhood to emerging adulthood. Method We assessed 38 children with estimated full-scale intelligence quotient (IQ)70 who were diagnosed with ASD at baseline (Mage=12.0, SD=2.3, 84% male), and re-assessed two (n=37, Mage=14.2, SD=2.4, 84% male) and 10 years (n=23, Mage=21.7, SD=2.4, 78% male) later. Results At two-year follow-up, all participants still met diagnostic criteria for ASD according to the Diagnostic and Statistical Manual for Mental Disorders “ fourth version (DSM-IV). At 10-year follow-up, 65% met diagnostic criteria for ASD according to DSM-IV, 48% met diagnostic criteria according to the Diagnostic and Statistical Manual for Mental Disorders “ fifth version (DSM-5), 57% met the ASD cut-off on the Autism Spectrum Quotient 10-item (AQ-10), and 78% met either DSM-IV criteria or cut-off on the AQ-10. Higher IQ in childhood predicted loss of ASD diagnosis according to DSM-IV criteria (Hedges g = 1.30). A higher proportion of girls compared to boys displayed loss of ASD diagnosis according to DSM-IV criteria. Conclusions These findings suggest that ASD traits among individuals without intellectual disability may wane into emerging adulthood and that loss of ASD diagnosis is associated with higher IQ and being a girl. Diagnostic re-evaluations may be warranted for some individuals diagnosed with ASD as children or adolescents. En ligne : https://doi.org/10.1016/j.rasd.2022.102007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

"I have to charge my social battery": Perspectives from autistic young adults on Quality of Life / Elisabeth ØVERLAND in Autism, 28-6 (June 2024)  

Public ISBD [article]  inAutism > 28-6 (June 2024) . - p.1369-1381 Titre : "I have to charge my social battery": Perspectives from autistic young adults on Quality of Life Type de document : Texte imprimé et/ou numérique Auteurs : Elisabeth ØVERLAND, Auteur ; Åshild Lappegard HAUGE, Auteur ; Stian ORM, Auteur ; Merete Glenne ØIE, Auteur ; Erik Winther SKOGLI, Auteur ; Elizabeth PELLICANO, Auteur ; Per Normann ANDERSEN, Auteur Article en page(s) : p.1369-1381 Langues : Anglais (eng) Mots-clés : autism  emerging adulthood  quality of life  reflexive thematic analysis Index. décimale : PER Périodiques Résumé : Several studies report on lower quality of life for autistic people when compared to non-autistic people. However, there are ongoing discussions about the conceptualization of quality of life for the autistic population. This qualitative study investigated self-perceived quality of life in the context of autistic young adults' everyday lives. Participants (age range 21-29 years) were recruited from a 10-year follow-up study, Lillehammer Neurodevelopmental Follow-up Study, all diagnosed in childhood and adolescence. Fourteen individual in-depth interviews were conducted. When asked about what was important for having a good quality of life, our autistic participants described relationships to people and pets as important, as well as having meaningful activities. Specific interests had guided many to their choice of both academic and work career. Many also described obstacles in their environment that had influenced their quality of life negatively, such as being misunderstood by teachers and other professionals, being bullied, and sensory and emotional overload. Our findings indicate that those in supportive roles should provide help with establishing connections to activities and people/animals, as this seems to be essential for creating a good quality of life. Taking advantage of passions and interests can create opportunities for autistic people. Findings suggest that future research should address the communication barriers between autistic people and professionals that can lead to misunderstandings. Lay abstract In this study we have asked a group of autistic young adults to describe what is important for their quality of life. The 14 participants (aged 21-29 years) were recruited from a 10-year follow-up study of autistic people. During interviews, our participants described the importance of having relationships with family, friends and pets. Having meaningful activities and being able to immerse themselves in particular interests was also reported to be important for a good quality of life. Interests had also guided their choice of what to study and what to do for work. They also spoke of how communication problems with professionals, bullying and sensory and emotional overload could have a negative impact on quality of life. Future interventions should focus on how professionals can help autistic people to connect to people/animals and meaningful activities, as the participants described this as important for having a good quality of life. These findings may be helpful in enhancing how passions and interests can be seen as opportunities for both academic and work careers for autistic people. Future research and interventions should also look at the communication barriers between autistic people and professionals, and how two-way understanding can be improved. En ligne : https://dx.doi.org/10.1177/13623613241245578 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 [article] "I have to charge my social battery": Perspectives from autistic young adults on Quality of Life [Texte imprimé et/ou numérique] / Elisabeth ØVERLAND, Auteur ; Åshild Lappegard HAUGE, Auteur ; Stian ORM, Auteur ; Merete Glenne ØIE, Auteur ; Erik Winther SKOGLI, Auteur ; Elizabeth PELLICANO, Auteur ; Per Normann ANDERSEN, Auteur . - p.1369-1381. Langues : Anglais (eng) in Autism > 28-6 (June 2024) . - p.1369-1381 Mots-clés : autism  emerging adulthood  quality of life  reflexive thematic analysis Index. décimale : PER Périodiques Résumé : Several studies report on lower quality of life for autistic people when compared to non-autistic people. However, there are ongoing discussions about the conceptualization of quality of life for the autistic population. This qualitative study investigated self-perceived quality of life in the context of autistic young adults' everyday lives. Participants (age range 21-29 years) were recruited from a 10-year follow-up study, Lillehammer Neurodevelopmental Follow-up Study, all diagnosed in childhood and adolescence. Fourteen individual in-depth interviews were conducted. When asked about what was important for having a good quality of life, our autistic participants described relationships to people and pets as important, as well as having meaningful activities. Specific interests had guided many to their choice of both academic and work career. Many also described obstacles in their environment that had influenced their quality of life negatively, such as being misunderstood by teachers and other professionals, being bullied, and sensory and emotional overload. Our findings indicate that those in supportive roles should provide help with establishing connections to activities and people/animals, as this seems to be essential for creating a good quality of life. Taking advantage of passions and interests can create opportunities for autistic people. Findings suggest that future research should address the communication barriers between autistic people and professionals that can lead to misunderstandings. Lay abstract In this study we have asked a group of autistic young adults to describe what is important for their quality of life. The 14 participants (aged 21-29 years) were recruited from a 10-year follow-up study of autistic people. During interviews, our participants described the importance of having relationships with family, friends and pets. Having meaningful activities and being able to immerse themselves in particular interests was also reported to be important for a good quality of life. Interests had also guided their choice of what to study and what to do for work. They also spoke of how communication problems with professionals, bullying and sensory and emotional overload could have a negative impact on quality of life. Future interventions should focus on how professionals can help autistic people to connect to people/animals and meaningful activities, as the participants described this as important for having a good quality of life. These findings may be helpful in enhancing how passions and interests can be seen as opportunities for both academic and work careers for autistic people. Future research and interventions should also look at the communication barriers between autistic people and professionals, and how two-way understanding can be improved. En ligne : https://dx.doi.org/10.1177/13623613241245578 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529

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