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Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians / Sarah WIGHAM in Autism, 27-2 (February 2023)
[article]
Titre : Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians Type de document : Texte imprimé et/ou numérique Auteurs : Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.344-355 Langues : Anglais (eng) Mots-clés : adult autism Delphi consensus optimal services post-diagnostic support stakeholder involvement Index. décimale : PER Périodiques Résumé : Opportunities for adults to access support following a clinical diagnosis of autism are limited. This study investigated perspectives of autistic adults, relatives and clinicians regarding characteristics of optimal adult autism post-diagnosis support and services. In Stage 1, key stakeholders were surveyed about recent experiences of UK adult autism post-diagnostic services immediately following assessment/up to 12 months afterwards. Information gathered from Stage 1 was used to devise a set of statements describing optimal post-autism diagnostic support/service characteristics. In Stage 2 statements were presented to clinicians in a modified Delphi process. Data analyses were non-parametric and descriptive. Three hundred forty-three autistic adults and 45 relatives completed the Stage 1 surveys. Thirty-five clinicians completed a parallel survey. Just over half of adults and relatives reported receiving a follow-up appointment. Fewer than 40% of autistic people received support/services 12 months after diagnosis. Eleven statements describing optimal post-autism diagnostic support/service provision were developed and consensus among clinicians was reached on all. Autistic adults, relatives and clinicians described some aspects of post-autism diagnosis support and services positively; however, there were significant opportunities for improvement. The study findings can be used to develop current UK post-diagnosis support and services and may be relevant internationally. En ligne : http://dx.doi.org/10.1177/13623613221097502 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493
in Autism > 27-2 (February 2023) . - p.344-355[article] Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians [Texte imprimé et/ou numérique] / Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur . - p.344-355.
Langues : Anglais (eng)
in Autism > 27-2 (February 2023) . - p.344-355
Mots-clés : adult autism Delphi consensus optimal services post-diagnostic support stakeholder involvement Index. décimale : PER Périodiques Résumé : Opportunities for adults to access support following a clinical diagnosis of autism are limited. This study investigated perspectives of autistic adults, relatives and clinicians regarding characteristics of optimal adult autism post-diagnosis support and services. In Stage 1, key stakeholders were surveyed about recent experiences of UK adult autism post-diagnostic services immediately following assessment/up to 12 months afterwards. Information gathered from Stage 1 was used to devise a set of statements describing optimal post-autism diagnostic support/service characteristics. In Stage 2 statements were presented to clinicians in a modified Delphi process. Data analyses were non-parametric and descriptive. Three hundred forty-three autistic adults and 45 relatives completed the Stage 1 surveys. Thirty-five clinicians completed a parallel survey. Just over half of adults and relatives reported receiving a follow-up appointment. Fewer than 40% of autistic people received support/services 12 months after diagnosis. Eleven statements describing optimal post-autism diagnostic support/service provision were developed and consensus among clinicians was reached on all. Autistic adults, relatives and clinicians described some aspects of post-autism diagnosis support and services positively; however, there were significant opportunities for improvement. The study findings can be used to develop current UK post-diagnosis support and services and may be relevant internationally. En ligne : http://dx.doi.org/10.1177/13623613221097502 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people / H. PHILLIPS in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
[article]
Titre : Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people Type de document : Texte imprimé et/ou numérique Auteurs : H. PHILLIPS, Auteur ; B. WRIGHT, Auteur ; Victoria ALLGAR, Auteur ; H. MCCONACHIE, Auteur ; J. SWEETMAN, Auteur ; R. HARGATE, Auteur ; R. HODKINSON, Auteur ; M. BLAND, Auteur ; H. GEORGE, Auteur ; A. HUGHES, Auteur ; E. HAYWARD, Auteur ; V. F. G. DE LAS HERAS, Auteur ; A. LE COUTEUR, Auteur Article en page(s) : p.553-568 Langues : Anglais (eng) Mots-clés : Adolescent Autism Spectrum Disorder/diagnosis Autistic Disorder Child Humans Sensitivity and Specificity Specialization Assessment Autism Spectrum Disorder Autism diagnostic observation schedule Deaf Delphi consensus Diagnosis Sign language research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : We report a Delphi Consensus modification and first validation study of the Autism Diagnostic Observation Schedule - 2 with deaf children and young people (ADOS-2 Deaf adaptation). Validation included 122 deaf participants (aged 2-18 years), 63 with an Autism Spectrum Disorder (ASD). This was compared to a National Institute for Health and Clinical Excellence (NICE) guideline standard clinical assessment by blinded independent specialist clinicians. Results showed overall sensitivity 73% (95%CI 60%, 83%); specificity 71% (95%CI 58%, 82%), and for the more common modules 1-3 (combined as in previous studies) sensitivity 79% (95% CI 65-89%); specificity 79% (95% CI 66-89%) suggesting this instrument will be a helpful addition for use with deaf children and young people. En ligne : http://dx.doi.org/10.1007/s10803-021-04931-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.553-568[article] Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people [Texte imprimé et/ou numérique] / H. PHILLIPS, Auteur ; B. WRIGHT, Auteur ; Victoria ALLGAR, Auteur ; H. MCCONACHIE, Auteur ; J. SWEETMAN, Auteur ; R. HARGATE, Auteur ; R. HODKINSON, Auteur ; M. BLAND, Auteur ; H. GEORGE, Auteur ; A. HUGHES, Auteur ; E. HAYWARD, Auteur ; V. F. G. DE LAS HERAS, Auteur ; A. LE COUTEUR, Auteur . - p.553-568.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.553-568
Mots-clés : Adolescent Autism Spectrum Disorder/diagnosis Autistic Disorder Child Humans Sensitivity and Specificity Specialization Assessment Autism Spectrum Disorder Autism diagnostic observation schedule Deaf Delphi consensus Diagnosis Sign language research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : We report a Delphi Consensus modification and first validation study of the Autism Diagnostic Observation Schedule - 2 with deaf children and young people (ADOS-2 Deaf adaptation). Validation included 122 deaf participants (aged 2-18 years), 63 with an Autism Spectrum Disorder (ASD). This was compared to a National Institute for Health and Clinical Excellence (NICE) guideline standard clinical assessment by blinded independent specialist clinicians. Results showed overall sensitivity 73% (95%CI 60%, 83%); specificity 71% (95%CI 58%, 82%), and for the more common modules 1-3 (combined as in previous studies) sensitivity 79% (95% CI 65-89%); specificity 79% (95% CI 66-89%) suggesting this instrument will be a helpful addition for use with deaf children and young people. En ligne : http://dx.doi.org/10.1007/s10803-021-04931-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455