8 recherche sur le mot-clé 'Facilitators'

Facilitators, barriers, and strategies in implementing early intervention for children with autism spectrum disorder aged 0–6 years: A multicenter qualitative study using the consolidated framework for implementation research / Hongrui ZHU in Autism, 30-4 (April 2026)  

Public ISBD [article]  inAutism > 30-4 (April 2026) . - p.1028-1046 Titre : Facilitators, barriers, and strategies in implementing early intervention for children with autism spectrum disorder aged 0–6 years: A multicenter qualitative study using the consolidated framework for implementation research Type de document : texte imprimé Auteurs : Hongrui ZHU, Auteur ; Ka Yan HO, Auteur ; Vivien Xi WU, Auteur ; Jinlin YE, Auteur ; Lin XIAO, Auteur ; Yunfan LI, Auteur ; Zhuojun YU, Auteur ; Xingying WANG, Auteur ; Xianhong LI, Auteur Article en page(s) : p.1028-1046 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  barriers  consolidated framework for implementation research  early intervention  facilitators  strategies Index. décimale : PER Périodiques Résumé : Autism spectrum disorder poses a growing global health challenge due to rising prevalence and significant disability burdens. Early intervention during the 0- to 6-year developmental window is critical to reduce individual, familial, and societal impacts. However, implementation gaps persist in China, particularly in resource-limited settings, where context-specific barriers and facilitators remain understudied. This multicenter qualitative study (July 12 to October 28, 2024.) across 11 cities in Hainan Province involved 47 stakeholders (4 policymakers, 13 managers, 13 practitioners, and 17 family caregivers of children with autism spectrum disorder aged 0–6 years). Semi-structured interviews guided by the Consolidated Framework for Implementation Research were complemented by document review and field observations, with data analyzed via template analysis. Key facilitators included government funding, stratified training, caregivers’ positive attitudes, and clear implementation standards. Barriers mainly included low social acceptance, regional resource disparities, workforce shortages, caregiver challenges, and limited evidence-based practice adoption. Four key strategies were identified: strengthening external support, optimizing internal resources, empowering stakeholders, and refining implementation through technology and evidence-based practices. This first China-based study uses a stakeholder-driven approach to co-design contextualized strategies, offering a model for improving autism spectrum disorder care delivery in similar resource settings globally.Lay abstract This study explored how to improve early support services for young children aged 0 to 6 years with autism spectrum disorder in resource-limited areas. We interviewed 47 stakeholders, including policymakers, service managers, healthcare professionals, and parents of autistic children across 11 cities to identify factors that support or limit effective early support services. Key helpful factors were government funding, practical staff training, and parents’ proactive attitudes. Major challenges included low public understanding of autism, unequal resources between regions, too few trained professionals, and difficulties families face accessing care. To address these, we suggest four solutions: increasing funding and community awareness, sharing resources more fairly, training more staff and supporting parents, and using technology and proven therapies. As the first study in China to design solutions with families and professionals, these strategies could help similar communities globally deliver better early autism care. En ligne : https://dx.doi.org/10.1177/13623613261422944 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=584 [article] Facilitators, barriers, and strategies in implementing early intervention for children with autism spectrum disorder aged 0–6 years: A multicenter qualitative study using the consolidated framework for implementation research [texte imprimé] / Hongrui ZHU, Auteur ; Ka Yan HO, Auteur ; Vivien Xi WU, Auteur ; Jinlin YE, Auteur ; Lin XIAO, Auteur ; Yunfan LI, Auteur ; Zhuojun YU, Auteur ; Xingying WANG, Auteur ; Xianhong LI, Auteur . - p.1028-1046. Langues : Anglais (eng) in Autism > 30-4 (April 2026) . - p.1028-1046 Mots-clés : autism spectrum disorder  barriers  consolidated framework for implementation research  early intervention  facilitators  strategies Index. décimale : PER Périodiques Résumé : Autism spectrum disorder poses a growing global health challenge due to rising prevalence and significant disability burdens. Early intervention during the 0- to 6-year developmental window is critical to reduce individual, familial, and societal impacts. However, implementation gaps persist in China, particularly in resource-limited settings, where context-specific barriers and facilitators remain understudied. This multicenter qualitative study (July 12 to October 28, 2024.) across 11 cities in Hainan Province involved 47 stakeholders (4 policymakers, 13 managers, 13 practitioners, and 17 family caregivers of children with autism spectrum disorder aged 0–6 years). Semi-structured interviews guided by the Consolidated Framework for Implementation Research were complemented by document review and field observations, with data analyzed via template analysis. Key facilitators included government funding, stratified training, caregivers’ positive attitudes, and clear implementation standards. Barriers mainly included low social acceptance, regional resource disparities, workforce shortages, caregiver challenges, and limited evidence-based practice adoption. Four key strategies were identified: strengthening external support, optimizing internal resources, empowering stakeholders, and refining implementation through technology and evidence-based practices. This first China-based study uses a stakeholder-driven approach to co-design contextualized strategies, offering a model for improving autism spectrum disorder care delivery in similar resource settings globally.Lay abstract This study explored how to improve early support services for young children aged 0 to 6 years with autism spectrum disorder in resource-limited areas. We interviewed 47 stakeholders, including policymakers, service managers, healthcare professionals, and parents of autistic children across 11 cities to identify factors that support or limit effective early support services. Key helpful factors were government funding, practical staff training, and parents’ proactive attitudes. Major challenges included low public understanding of autism, unequal resources between regions, too few trained professionals, and difficulties families face accessing care. To address these, we suggest four solutions: increasing funding and community awareness, sharing resources more fairly, training more staff and supporting parents, and using technology and proven therapies. As the first study in China to design solutions with families and professionals, these strategies could help similar communities globally deliver better early autism care. En ligne : https://dx.doi.org/10.1177/13623613261422944 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=584

"As immigrants we are all lost in our autism journey": Experiences of raising children with autism, barriers to equal access, and facilitators to accessing autism services among immigrant fathers / Amy MCGEHEE ; Darcy Jones MCMAUGHAN in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202588 Titre : "As immigrants we are all lost in our autism journey": Experiences of raising children with autism, barriers to equal access, and facilitators to accessing autism services among immigrant fathers Type de document : texte imprimé Auteurs : Amy MCGEHEE, Auteur ; Darcy Jones MCMAUGHAN, Auteur Article en page(s) : 202588 Langues : Anglais (eng) Mots-clés : Immigrant fathers  Autism  Barriers  Facilitators Index. décimale : PER Périodiques Résumé : Background Immigrant families with autistic children face barriers to autism-related services and supports in the United States. The experiences of immigrant fathers, who play a crucial role in caregiving and decision-making for children with autism, have been largely ignored. This study aims to explore the experiences of immigrant fathers as they navigate autism-related supports and services in the United States. We alternate between identity-first and person-first language to honor the preferences of the autism and autistic community. Methods We used a qualitative interpretive approach and semi-structured interviews to collect and analyze data from 25 first-generation Afghan and Iranian immigrant fathers of autistic children living in the United States. Results Our research revealed stories from immigrant fathers of autistic children who faced stressors related to parenting, bonding with their children, and cultural stigma. These immigrant fathers encountered barriers in accessing autism services, attributed to a lack of social support and the U.S. health care system?s complexities. They emphasized the importance of culturally and linguistically tailored services, which could promote access to necessary supports, suggesting that acculturation plays a role in improving service accessibility. Conclusions In the development and execution of services for autistic children, it is imperative to incorporate considerations for the unique needs of immigrant families, including fathers. Tailoring services to address the cultural and linguistic requirements of these families is crucial. En ligne : https://doi.org/10.1016/j.reia.2025.202588 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] "As immigrants we are all lost in our autism journey": Experiences of raising children with autism, barriers to equal access, and facilitators to accessing autism services among immigrant fathers [texte imprimé] / Amy MCGEHEE, Auteur ; Darcy Jones MCMAUGHAN, Auteur . - 202588. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202588 Mots-clés : Immigrant fathers  Autism  Barriers  Facilitators Index. décimale : PER Périodiques Résumé : Background Immigrant families with autistic children face barriers to autism-related services and supports in the United States. The experiences of immigrant fathers, who play a crucial role in caregiving and decision-making for children with autism, have been largely ignored. This study aims to explore the experiences of immigrant fathers as they navigate autism-related supports and services in the United States. We alternate between identity-first and person-first language to honor the preferences of the autism and autistic community. Methods We used a qualitative interpretive approach and semi-structured interviews to collect and analyze data from 25 first-generation Afghan and Iranian immigrant fathers of autistic children living in the United States. Results Our research revealed stories from immigrant fathers of autistic children who faced stressors related to parenting, bonding with their children, and cultural stigma. These immigrant fathers encountered barriers in accessing autism services, attributed to a lack of social support and the U.S. health care system?s complexities. They emphasized the importance of culturally and linguistically tailored services, which could promote access to necessary supports, suggesting that acculturation plays a role in improving service accessibility. Conclusions In the development and execution of services for autistic children, it is imperative to incorporate considerations for the unique needs of immigrant families, including fathers. Tailoring services to address the cultural and linguistic requirements of these families is crucial. En ligne : https://doi.org/10.1016/j.reia.2025.202588 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Barriers and facilitators towards an autism diagnosis for females within healthcare: A thematic analysis of interviews with UK healthcare professionals / Chris ASHWIN in Research in Autism, 121-122 (March-April 2025)  

Public ISBD [article]  inResearch in Autism > 121-122 (March-April 2025) . - 202547 Titre : Barriers and facilitators towards an autism diagnosis for females within healthcare: A thematic analysis of interviews with UK healthcare professionals Type de document : texte imprimé Auteurs : Chris ASHWIN, Auteur Article en page(s) : 202547 Langues : Anglais (eng) Mots-clés : Autism  Females  Healthcare  Barriers  Facilitators  Diagnosis Index. décimale : PER Périodiques Résumé : There has been growing recognition that autism spectrum disorder (ASD) presents differently in females than in males, and our current understanding of autism is male-centric. This may produce barriers towards appropriate recognition of autistic characteristics in key social areas, such as healthcare, which could affect referral for assessments and accurate autism diagnosis for females. While there are many studies reporting about patient perspectives on the autism diagnostic process, there is a dearth of research investigating the perspectives of healthcare professionals about the female presentation of autism. The present study aimed to explore the perspectives of NHS healthcare professionals (HCPs) on the recognition, referral, and diagnosis of autism in female patients across the lifespan. Semi-structured interviews were conducted with eleven NHS HCPs and a reflexive thematic analysis was carried out to identify the key themes. The results revealed themes about gender biases and diagnostic overshadowing as important general barriers towards autism recognition and diagnosis for females within the NHS healthcare system. Themes involving systemic barriers were also identified as limiting the recognition of female autistic presentation, which included issues about time constraints and a lack of training. Several facilitators towards better diagnosis of autism in females were identified, which emphasised changes to current practice and diagnostic criteria to better account for the heterogeneity of female autism, and a more integrated approach to referrals with the education sector. Together, these findings have implications for healthcare service development and implementation for the classification of autism, suggesting targeted training and diagnostic adaptions to improve the experience and accuracy of the pathway of females for a diagnosis of autism. En ligne : https://doi.org/10.1016/j.reia.2025.202547 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Barriers and facilitators towards an autism diagnosis for females within healthcare: A thematic analysis of interviews with UK healthcare professionals [texte imprimé] / Chris ASHWIN, Auteur . - 202547. Langues : Anglais (eng) in Research in Autism > 121-122 (March-April 2025) . - 202547 Mots-clés : Autism  Females  Healthcare  Barriers  Facilitators  Diagnosis Index. décimale : PER Périodiques Résumé : There has been growing recognition that autism spectrum disorder (ASD) presents differently in females than in males, and our current understanding of autism is male-centric. This may produce barriers towards appropriate recognition of autistic characteristics in key social areas, such as healthcare, which could affect referral for assessments and accurate autism diagnosis for females. While there are many studies reporting about patient perspectives on the autism diagnostic process, there is a dearth of research investigating the perspectives of healthcare professionals about the female presentation of autism. The present study aimed to explore the perspectives of NHS healthcare professionals (HCPs) on the recognition, referral, and diagnosis of autism in female patients across the lifespan. Semi-structured interviews were conducted with eleven NHS HCPs and a reflexive thematic analysis was carried out to identify the key themes. The results revealed themes about gender biases and diagnostic overshadowing as important general barriers towards autism recognition and diagnosis for females within the NHS healthcare system. Themes involving systemic barriers were also identified as limiting the recognition of female autistic presentation, which included issues about time constraints and a lack of training. Several facilitators towards better diagnosis of autism in females were identified, which emphasised changes to current practice and diagnostic criteria to better account for the heterogeneity of female autism, and a more integrated approach to referrals with the education sector. Together, these findings have implications for healthcare service development and implementation for the classification of autism, suggesting targeted training and diagnostic adaptions to improve the experience and accuracy of the pathway of females for a diagnosis of autism. En ligne : https://doi.org/10.1016/j.reia.2025.202547 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

From awareness to action: Facilitators and advocacy in healthcare by autistic adults / RaeAnne LINDSAY ; Sarah DEMISSIE ; Isabelle BURAKOV ; Saury RAMOS-TORRES ; Meghan M. BURKE in Autism, 29-10 (October 2025)  

Public ISBD [article]  inAutism > 29-10 (October 2025) . - p.2513-2523 Titre : From awareness to action: Facilitators and advocacy in healthcare by autistic adults Type de document : texte imprimé Auteurs : RaeAnne LINDSAY, Auteur ; Sarah DEMISSIE, Auteur ; Isabelle BURAKOV, Auteur ; Saury RAMOS-TORRES, Auteur ; Meghan M. BURKE, Auteur Article en page(s) : p.2513-2523 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  facilitators  healthcare  self-advocacy Index. décimale : PER Périodiques Résumé : Autistic adults face various psychological and physical health conditions which often require ongoing medical attention. Despite a greater likelihood of health conditions, autistic adults face many systemic barriers in accessing healthcare services. It is important to identify facilitators to healthcare access and recognize the impact of self-advocacy on these experiences. In this qualitative study, we interviewed 15 autistic participants to understand their experienced and desired facilitators when accessing healthcare services, as well as the role of self-advocacy in accessing these services. Overall, participants agreed that formal and informal supports, provider knowledge about autism, and provider openness to providing accommodations served as facilitators. Participants also shared about their experiences related to self-advocacy and accessing healthcare services such as examples of self-advocacy in healthcare, learning to be a self-advocate, and facilitators of self-advocacy. Implications for research and practice are discussed.Lay abstract Autistic adults often have both mental and physical health needs that require ongoing care. However, they often face obstacles when trying to get healthcare. This study aimed to find out what helps autistic adults get the healthcare they need and how self-advocacy, or speaking up for themselves, plays a role. We talked to 15 autistic individuals about their experiences and what they wished for when accessing healthcare. Participants mentioned that support from others, doctors' knowledge about autism, and doctors being willing to make changes as needed per patient need were helpful. They also shared how self-advocacy impacted their healthcare experiences, including examples of how they advocated for themselves and what helped them do so. The study offers insights that could inform future research and healthcare practices. En ligne : https://dx.doi.org/10.1177/13623613251343350 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567 [article] From awareness to action: Facilitators and advocacy in healthcare by autistic adults [texte imprimé] / RaeAnne LINDSAY, Auteur ; Sarah DEMISSIE, Auteur ; Isabelle BURAKOV, Auteur ; Saury RAMOS-TORRES, Auteur ; Meghan M. BURKE, Auteur . - p.2513-2523. Langues : Anglais (eng) in Autism > 29-10 (October 2025) . - p.2513-2523 Mots-clés : autism spectrum disorders  facilitators  healthcare  self-advocacy Index. décimale : PER Périodiques Résumé : Autistic adults face various psychological and physical health conditions which often require ongoing medical attention. Despite a greater likelihood of health conditions, autistic adults face many systemic barriers in accessing healthcare services. It is important to identify facilitators to healthcare access and recognize the impact of self-advocacy on these experiences. In this qualitative study, we interviewed 15 autistic participants to understand their experienced and desired facilitators when accessing healthcare services, as well as the role of self-advocacy in accessing these services. Overall, participants agreed that formal and informal supports, provider knowledge about autism, and provider openness to providing accommodations served as facilitators. Participants also shared about their experiences related to self-advocacy and accessing healthcare services such as examples of self-advocacy in healthcare, learning to be a self-advocate, and facilitators of self-advocacy. Implications for research and practice are discussed.Lay abstract Autistic adults often have both mental and physical health needs that require ongoing care. However, they often face obstacles when trying to get healthcare. This study aimed to find out what helps autistic adults get the healthcare they need and how self-advocacy, or speaking up for themselves, plays a role. We talked to 15 autistic individuals about their experiences and what they wished for when accessing healthcare. Participants mentioned that support from others, doctors' knowledge about autism, and doctors being willing to make changes as needed per patient need were helpful. They also shared how self-advocacy impacted their healthcare experiences, including examples of how they advocated for themselves and what helped them do so. The study offers insights that could inform future research and healthcare practices. En ligne : https://dx.doi.org/10.1177/13623613251343350 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567

Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand / Carla WALLACE-WATKIN in Autism, 27-8 (November 2023)  

Public ISBD [article]  inAutism > 27-8 (November 2023) . - p.2542-2554 Titre : Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand Type de document : texte imprimé Auteurs : Carla WALLACE-WATKIN, Auteur ; Jeff SIGAFOOS, Auteur ; Lisa WOODS, Auteur ; Hannah WADDINGTON, Auteur Article en page(s) : p.2542-2554 Mots-clés : barriers  facilitators  parent perspectives  support services  New Zealand Index. décimale : PER Périodiques Résumé : We surveyed New Zealand parents of autistic children to identify their perceived barriers and facilitators to accessing support services, including the influence of a family?s level of financial resourcing. A total of 173 completed surveys were analysed. Service pathway factors were the greatest barrier experienced by participants, whereas facilitators related to providers tended to be most helpful. Lower family income was associated with a higher number of reported barriers. Both lower family income and having a child who identified their gender as non-binary were predictive of rating the extent of barriers higher. Parents of younger or of non-speaking autistic children on average reported a greater number of facilitators. Implications of these results for support service delivery and potential areas for future research are discussed.Lay abstractParents might have problems in getting support services for their autistic child due to certain barriers. However, there might also be things that can ease or facilitate parents' access to support services. In this study, New Zealand parents were asked about their experiences in getting support services for their autistic child. We also looked at differences in reported barriers and facilitators based on several demographic factors with a focus on family level of financial resourcing. A total of 173 parents completed a survey. The results suggested that parents experienced several barriers, particularly related to service pathways. Facilitators were also experienced, predominantly related to providers. Financial resourcing predicted the number of parent-reported barriers. Both lower level of family financial resourcing and having a non-binary child predicted parents' rating of the extent of barriers. Child age and level of speech were predictors for reports of experiencing a higher number of facilitators, with parents of younger children or of non-speaking autistic children reporting a greater number of facilitators. We discuss how these results may be useful to support service delivery and identify areas for future research. En ligne : http://dx.doi.org/10.1177/13623613231168240 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=514 [article] Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand [texte imprimé] / Carla WALLACE-WATKIN, Auteur ; Jeff SIGAFOOS, Auteur ; Lisa WOODS, Auteur ; Hannah WADDINGTON, Auteur . - p.2542-2554. in Autism > 27-8 (November 2023) . - p.2542-2554 Mots-clés : barriers  facilitators  parent perspectives  support services  New Zealand Index. décimale : PER Périodiques Résumé : We surveyed New Zealand parents of autistic children to identify their perceived barriers and facilitators to accessing support services, including the influence of a family?s level of financial resourcing. A total of 173 completed surveys were analysed. Service pathway factors were the greatest barrier experienced by participants, whereas facilitators related to providers tended to be most helpful. Lower family income was associated with a higher number of reported barriers. Both lower family income and having a child who identified their gender as non-binary were predictive of rating the extent of barriers higher. Parents of younger or of non-speaking autistic children on average reported a greater number of facilitators. Implications of these results for support service delivery and potential areas for future research are discussed.Lay abstractParents might have problems in getting support services for their autistic child due to certain barriers. However, there might also be things that can ease or facilitate parents' access to support services. In this study, New Zealand parents were asked about their experiences in getting support services for their autistic child. We also looked at differences in reported barriers and facilitators based on several demographic factors with a focus on family level of financial resourcing. A total of 173 parents completed a survey. The results suggested that parents experienced several barriers, particularly related to service pathways. Facilitators were also experienced, predominantly related to providers. Financial resourcing predicted the number of parent-reported barriers. Both lower level of family financial resourcing and having a non-binary child predicted parents' rating of the extent of barriers. Child age and level of speech were predictors for reports of experiencing a higher number of facilitators, with parents of younger children or of non-speaking autistic children reporting a greater number of facilitators. We discuss how these results may be useful to support service delivery and identify areas for future research. En ligne : http://dx.doi.org/10.1177/13623613231168240 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=514

Physical activity in young adults with autism spectrum disorder: Parental perceptions of barriers and facilitators / Chad NICHOLS in Autism, 23-6 (August 2019)  

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A scoping review of the barriers and facilitators to the implementation of interventions in autism education / Lorna BARRY in Research in Autism Spectrum Disorders, 78 (October 2020)  

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Implementation of a multi-family autism transition program in the high school setting / Jocelyn KUHN in Autism, 26-3 (April 2022)  

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