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Profile and predictors of service needs for families of children with autism spectrum disorders / Sandra HODGETTS in Autism, 19-6 (August 2015)
[article]
Titre : Profile and predictors of service needs for families of children with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Sandra HODGETTS, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; David B NICHOLAS, Auteur Article en page(s) : p.673-683 Langues : Anglais (eng) Mots-clés : autism spectrum disorders family-centered care family functioning and support service systems unmet needs Index. décimale : PER Périodiques Résumé : Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families’ needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders.Methods: Parents of 143 children with autism spectrum disorders (2–18 years) completed a survey including demographic and descriptive information, the Family Needs Survey–Revised, and an open-ended question about service needs. Descriptive statistics characterize the sample and determine the degree to which items were identified and met as needs. Predictors of total and unmet needs were modeled with regression or generalized linear model. Qualitative responses were thematically analyzed.Results: The most frequently identified overall and unmet service needs were information on services, family support, and respite care. The funding and quality of professional support available were viewed positively. Decreased child’s age and income and being an older mother predicted more total needs. Having an older child or mother, lower income, and disruptive behaviors predicted more total unmet needs, yet only disruptive behaviors predicted proportional unmet need. Child’s language or intellectual abilities did not predict needs.Conclusion: Findings can help professionals, funders, and policy-makers tailor services to best meet families’ needs. En ligne : http://dx.doi.org/10.1177/1362361314543531 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=262
in Autism > 19-6 (August 2015) . - p.673-683[article] Profile and predictors of service needs for families of children with autism spectrum disorders [Texte imprimé et/ou numérique] / Sandra HODGETTS, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; David B NICHOLAS, Auteur . - p.673-683.
Langues : Anglais (eng)
in Autism > 19-6 (August 2015) . - p.673-683
Mots-clés : autism spectrum disorders family-centered care family functioning and support service systems unmet needs Index. décimale : PER Périodiques Résumé : Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families’ needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders.Methods: Parents of 143 children with autism spectrum disorders (2–18 years) completed a survey including demographic and descriptive information, the Family Needs Survey–Revised, and an open-ended question about service needs. Descriptive statistics characterize the sample and determine the degree to which items were identified and met as needs. Predictors of total and unmet needs were modeled with regression or generalized linear model. Qualitative responses were thematically analyzed.Results: The most frequently identified overall and unmet service needs were information on services, family support, and respite care. The funding and quality of professional support available were viewed positively. Decreased child’s age and income and being an older mother predicted more total needs. Having an older child or mother, lower income, and disruptive behaviors predicted more total unmet needs, yet only disruptive behaviors predicted proportional unmet need. Child’s language or intellectual abilities did not predict needs.Conclusion: Findings can help professionals, funders, and policy-makers tailor services to best meet families’ needs. En ligne : http://dx.doi.org/10.1177/1362361314543531 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=262 Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders / J. KUHN in Journal of Autism and Developmental Disorders, 48-3 (March 2018)
[article]
Titre : Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : J. KUHN, Auteur ; K. FORD, Auteur ; Leann S. DAWALT, Auteur Année de publication : 2018 Article en page(s) : p.940-946 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Ecological systems Ecomaps Parent psychological well-being Service systems Social supports Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders are generally known to experience elevated levels of stress and poorer psychological well-being. To provide treatments and resources that most effectively support parent mental health, it is critical to understand how parents' connections with various networks and systems impact their well-being. This study examined the relationship between the psychological well-being of mothers of adolescents with ASD (n = 20) and their systems of support from an ecological systems theoretical framework. Findings indicated that most connections across mothers' ecosystems were strong in nature. However, the presence of strong connections was not significantly related to psychological well-being. In contrast, stressful/weak connections were significantly related to elevated levels of depressive symptoms, perceived stress, and sense of burden. En ligne : https://doi.org/10.1007/s10803-017-3381-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339
in Journal of Autism and Developmental Disorders > 48-3 (March 2018) . - p.940-946[article] Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / J. KUHN, Auteur ; K. FORD, Auteur ; Leann S. DAWALT, Auteur . - 2018 . - p.940-946.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-3 (March 2018) . - p.940-946
Mots-clés : Autism spectrum disorder Ecological systems Ecomaps Parent psychological well-being Service systems Social supports Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders are generally known to experience elevated levels of stress and poorer psychological well-being. To provide treatments and resources that most effectively support parent mental health, it is critical to understand how parents' connections with various networks and systems impact their well-being. This study examined the relationship between the psychological well-being of mothers of adolescents with ASD (n = 20) and their systems of support from an ecological systems theoretical framework. Findings indicated that most connections across mothers' ecosystems were strong in nature. However, the presence of strong connections was not significantly related to psychological well-being. In contrast, stressful/weak connections were significantly related to elevated levels of depressive symptoms, perceived stress, and sense of burden. En ligne : https://doi.org/10.1007/s10803-017-3381-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339 Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers / Elizabeth R. CRAIS in Focus on Autism and Other Developmental Disabilities, 35-4 (December 2020)
[article]
Titre : Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth R. CRAIS, Auteur ; Cara S. MCCOMISH, Auteur ; Emily F. KERTCHER, Auteur ; Steve HOOPER, Auteur ; Rebecca PRETZEL, Auteur ; Lucia MENDEZ, Auteur ; Michelle VILLALOBOS, Auteur Article en page(s) : p.246-256 Langues : Anglais (eng) Mots-clés : ASD caregiver perspectives screening diagnosis access service systems Index. décimale : PER Périodiques Résumé : This study explored caregivers’ perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers’ suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process. En ligne : http://dx.doi.org/10.1177/1088357620922165 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434
in Focus on Autism and Other Developmental Disabilities > 35-4 (December 2020) . - p.246-256[article] Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers [Texte imprimé et/ou numérique] / Elizabeth R. CRAIS, Auteur ; Cara S. MCCOMISH, Auteur ; Emily F. KERTCHER, Auteur ; Steve HOOPER, Auteur ; Rebecca PRETZEL, Auteur ; Lucia MENDEZ, Auteur ; Michelle VILLALOBOS, Auteur . - p.246-256.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 35-4 (December 2020) . - p.246-256
Mots-clés : ASD caregiver perspectives screening diagnosis access service systems Index. décimale : PER Périodiques Résumé : This study explored caregivers’ perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers’ suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process. En ligne : http://dx.doi.org/10.1177/1088357620922165 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434