4 recherche sur le mot-clé 'parental perceptions'

Parental expectations and perceptions of augmentative and alternative communication: A Sri Lankan perspective / Shyamani HETTIARACHCHI in Autism, 29-5 (May 2025)  

Public ISBD [article]  inAutism > 29-5 (May 2025) . - p.1157-1170 Titre : Parental expectations and perceptions of augmentative and alternative communication: A Sri Lankan perspective Type de document : texte imprimé Auteurs : Shyamani HETTIARACHCHI, Auteur ; Shamra NIZAR, Auteur ; Gopi KITNASAMY, Auteur ; Dilani GOPI, Auteur Article en page(s) : p.1157-1170 Langues : Anglais (eng) Mots-clés : augmentative and alternative communication  culture  disability  Global South  parental perceptions  qualitative Index. décimale : PER Périodiques Résumé : From a critical disability rights lens, everyone has a right to communicate using any means available, which includes augmentative and alternative communication. The uptake of augmentative and alternative communication beyond the therapy room may be influenced by awareness, perceptions and acceptance of augmentative and alternative communication by caregivers, family members and the wider society. This study aimed to uncover parental perceptions of augmentative and alternative communication in a Global South context. Ten mothers and six fathers (16 participants) of children with complex communication needs were invited to be part of the study. A focus-group discussion and semi-structured interviews were undertaken using an interview guide. The participant data were analysed using Framework Analysis and through the lens of gender and critical disability theory. The key theme expressed was fear of augmentative and alternative communication deterring speech development. In addition, there was also concern that siblings might adopt the alternative communication method and stop talking. The participants questioned whether the visibility of a communication device could highlight their child?s disability, thereby fearing societal stigma and negativity. Overall, parents' attitudes towards perspectives of and openness to use augmentative and alternative communication impact its uptake. The results suggest the need to consider the preparedness of parents prior to introducing augmentative and alternative communication and the need to offer on-going parental training.Lay abstract Everybody has a right to communicate in any way they can, which includes augmentative and alternative communication. The uptake of augmentative and alternative communication in everyday life may be influenced by awareness, perceptions and acceptance of augmentative and alternative communication by caregivers, family members and the wider society. This study aimed to uncover what parents thought about augmentative and alternative communication in a Global South context. Eleven mothers and five fathers (16 participants) of children with complex communication needs were included. Data were collected using an interview guide from a focus-group discussion and semi-structured interviews. The data were analysed using Framework Analysis and from a gender and critical disability theory viewpoint. The key theme found was fear of augmentative and alternative communication stopping the child from learning to speak. The parents wondered if siblings might also use the alternative communication method and stop talking. They worried whether the communication device will negatively highlight their child in society. As parents' views on augmentative and alternative communication influence whether they use it with their child, informing and preparing parents before introducing augmentative and alternative communication to a child and on-going parent training should be considered. En ligne : https://dx.doi.org/10.1177/13623613241298061 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Parental expectations and perceptions of augmentative and alternative communication: A Sri Lankan perspective [texte imprimé] / Shyamani HETTIARACHCHI, Auteur ; Shamra NIZAR, Auteur ; Gopi KITNASAMY, Auteur ; Dilani GOPI, Auteur . - p.1157-1170. Langues : Anglais (eng) in Autism > 29-5 (May 2025) . - p.1157-1170 Mots-clés : augmentative and alternative communication  culture  disability  Global South  parental perceptions  qualitative Index. décimale : PER Périodiques Résumé : From a critical disability rights lens, everyone has a right to communicate using any means available, which includes augmentative and alternative communication. The uptake of augmentative and alternative communication beyond the therapy room may be influenced by awareness, perceptions and acceptance of augmentative and alternative communication by caregivers, family members and the wider society. This study aimed to uncover parental perceptions of augmentative and alternative communication in a Global South context. Ten mothers and six fathers (16 participants) of children with complex communication needs were invited to be part of the study. A focus-group discussion and semi-structured interviews were undertaken using an interview guide. The participant data were analysed using Framework Analysis and through the lens of gender and critical disability theory. The key theme expressed was fear of augmentative and alternative communication deterring speech development. In addition, there was also concern that siblings might adopt the alternative communication method and stop talking. The participants questioned whether the visibility of a communication device could highlight their child?s disability, thereby fearing societal stigma and negativity. Overall, parents' attitudes towards perspectives of and openness to use augmentative and alternative communication impact its uptake. The results suggest the need to consider the preparedness of parents prior to introducing augmentative and alternative communication and the need to offer on-going parental training.Lay abstract Everybody has a right to communicate in any way they can, which includes augmentative and alternative communication. The uptake of augmentative and alternative communication in everyday life may be influenced by awareness, perceptions and acceptance of augmentative and alternative communication by caregivers, family members and the wider society. This study aimed to uncover what parents thought about augmentative and alternative communication in a Global South context. Eleven mothers and five fathers (16 participants) of children with complex communication needs were included. Data were collected using an interview guide from a focus-group discussion and semi-structured interviews. The data were analysed using Framework Analysis and from a gender and critical disability theory viewpoint. The key theme found was fear of augmentative and alternative communication stopping the child from learning to speak. The parents wondered if siblings might also use the alternative communication method and stop talking. They worried whether the communication device will negatively highlight their child in society. As parents' views on augmentative and alternative communication influence whether they use it with their child, informing and preparing parents before introducing augmentative and alternative communication to a child and on-going parent training should be considered. En ligne : https://dx.doi.org/10.1177/13623613241298061 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis / Christie M. BREWTON in Research in Autism Spectrum Disorders, 87 (September 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 87 (September 2021) . - 101825 Titre : Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis Type de document : texte imprimé Auteurs : Christie M. BREWTON, Auteur ; Sarah S. MIRE, Auteur ; Tammy D. TOLAR, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Milena A. KELLER-MARGULIS, Auteur ; Kimberly D. SCHOGER, Auteur ; Morgan M. MCNEEL, Auteur Article en page(s) : 101825 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parental perceptions  Etiology  IPQ-R-ASD  Principal component analysis Index. décimale : PER Périodiques Résumé : Background Parents’ perceptions about cause of autism spectrum disorder (ASD) influences their behaviors (e.g., treatment selection, vaccinations). The Revised Illness Perception Questionnaire for ASD (IPQ-R-ASD) offers a systematic way to measure parent parents’ perceptions of ASD cause, but further study is needed. Method Using principal component analysis (PCA), we investigated the factor structure of the IPQ-R-ASD Cause scale, which was administered online, in a sample of 326 North American parents (287 mothers [88 %], 39 fathers) raising children with confirmed ASD diagnoses. Results Six factors emerged on the Cause subscale and were labeled Personal Attributions, Parental Risk Factors, Environmental Risk Factors, Utero/Birth Stress, Biophysiological, and Metaphysical. Together, these factors accounted for a cumulative variance of 61.4 %. All items exceeded the minimum loading to be considered robust, and all but one loaded positively (i.e., “Will of God). Conclusions Understanding parental perceptions about the cause of their children’s ASD may help researchers and clinicians understand important aspects of raising a child with ASD, such as stress and coping responses, treatment selection and implementation, or shared decision-making about service use. Since measurement of causal beliefs is an important initial step in this direction, the current study is helpful in establishing the viability of a measure that may extend this line of research and, ultimately, the instrument’s clinical utility. En ligne : https://doi.org/10.1016/j.rasd.2021.101825 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis [texte imprimé] / Christie M. BREWTON, Auteur ; Sarah S. MIRE, Auteur ; Tammy D. TOLAR, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Milena A. KELLER-MARGULIS, Auteur ; Kimberly D. SCHOGER, Auteur ; Morgan M. MCNEEL, Auteur . - 101825. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 87 (September 2021) . - 101825 Mots-clés : Autism spectrum disorder  Parental perceptions  Etiology  IPQ-R-ASD  Principal component analysis Index. décimale : PER Périodiques Résumé : Background Parents’ perceptions about cause of autism spectrum disorder (ASD) influences their behaviors (e.g., treatment selection, vaccinations). The Revised Illness Perception Questionnaire for ASD (IPQ-R-ASD) offers a systematic way to measure parent parents’ perceptions of ASD cause, but further study is needed. Method Using principal component analysis (PCA), we investigated the factor structure of the IPQ-R-ASD Cause scale, which was administered online, in a sample of 326 North American parents (287 mothers [88 %], 39 fathers) raising children with confirmed ASD diagnoses. Results Six factors emerged on the Cause subscale and were labeled Personal Attributions, Parental Risk Factors, Environmental Risk Factors, Utero/Birth Stress, Biophysiological, and Metaphysical. Together, these factors accounted for a cumulative variance of 61.4 %. All items exceeded the minimum loading to be considered robust, and all but one loaded positively (i.e., “Will of God). Conclusions Understanding parental perceptions about the cause of their children’s ASD may help researchers and clinicians understand important aspects of raising a child with ASD, such as stress and coping responses, treatment selection and implementation, or shared decision-making about service use. Since measurement of causal beliefs is an important initial step in this direction, the current study is helpful in establishing the viability of a measure that may extend this line of research and, ultimately, the instrument’s clinical utility. En ligne : https://doi.org/10.1016/j.rasd.2021.101825 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Parents' Perceptions of Anxiety Treatment for Autistic Children / Sandra L. CEPEDA in Focus on Autism and Other Developmental Disabilities, 40-3 (September 2025)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 40-3 (September 2025) . - p.165-175 Titre : Parents' Perceptions of Anxiety Treatment for Autistic Children Type de document : texte imprimé Auteurs : Sandra L. CEPEDA, Auteur ; Minjee KOOK, Auteur ; Andrew G. GUZICK, Auteur ; Jill EHRENREICH-MAY, Auteur ; Sophie C. SCHNEIDER, Auteur ; Eric A. STORCH, Auteur Article en page(s) : p.165-175 Langues : Anglais (eng) Mots-clés : childhood anxiety  autism  parental perceptions  treatment interventions  acceptability Index. décimale : PER Périodiques Résumé : Despite the high prevalence of co-occurring anxiety in autistic children, little is known about parental perceptions of anxiety treatment in the context of autism. This study investigated how 101 U.S. parents perceived the acceptability, effectiveness, and willingness-to-use of four commonly available anxiety treatments for autistic youth: applied behavior analysis (ABA), cognitive-behavioral therapy (CBT), medications (e.g., selective serotonin reuptake inhibitors; SSRIs), and alternative interventions (e.g., specialized diets, nutritional supplements). While all four treatments were perceived favorably, parents rated CBT as more acceptable, more likely to be effective, and more willing-to-use over ABA or alternative interventions. Medication was also rated as likely to be effective over alternative interventions, but not over ABA or CBT. Parent perception ratings did not significantly differ between CBT and medication. Overall, CBT and, to a slightly more limited extent, SSRI medications, may be acceptable and approachable treatment options for autistic youth with co-occurring anxiety. En ligne : https://dx.doi.org/10.1177/10883576251349212 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] Parents' Perceptions of Anxiety Treatment for Autistic Children [texte imprimé] / Sandra L. CEPEDA, Auteur ; Minjee KOOK, Auteur ; Andrew G. GUZICK, Auteur ; Jill EHRENREICH-MAY, Auteur ; Sophie C. SCHNEIDER, Auteur ; Eric A. STORCH, Auteur . - p.165-175. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 40-3 (September 2025) . - p.165-175 Mots-clés : childhood anxiety  autism  parental perceptions  treatment interventions  acceptability Index. décimale : PER Périodiques Résumé : Despite the high prevalence of co-occurring anxiety in autistic children, little is known about parental perceptions of anxiety treatment in the context of autism. This study investigated how 101 U.S. parents perceived the acceptability, effectiveness, and willingness-to-use of four commonly available anxiety treatments for autistic youth: applied behavior analysis (ABA), cognitive-behavioral therapy (CBT), medications (e.g., selective serotonin reuptake inhibitors; SSRIs), and alternative interventions (e.g., specialized diets, nutritional supplements). While all four treatments were perceived favorably, parents rated CBT as more acceptable, more likely to be effective, and more willing-to-use over ABA or alternative interventions. Medication was also rated as likely to be effective over alternative interventions, but not over ABA or CBT. Parent perception ratings did not significantly differ between CBT and medication. Overall, CBT and, to a slightly more limited extent, SSRI medications, may be acceptable and approachable treatment options for autistic youth with co-occurring anxiety. En ligne : https://dx.doi.org/10.1177/10883576251349212 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

Do Biological Sex and Early Developmental Milestones Predict the Age of First Concerns and Eventual Diagnosis in Autism Spectrum Disorder? / Clare HARROP in Autism Research, 14-1 (January 2021)  

Public ISBD [article]  inAutism Research > 14-1 (January 2021) . - p.156-168 Titre : Do Biological Sex and Early Developmental Milestones Predict the Age of First Concerns and Eventual Diagnosis in Autism Spectrum Disorder? Type de document : texte imprimé Auteurs : Clare HARROP, Auteur ; Erin J. LIBSACK, Auteur ; Raphael A. BERNIER, Auteur ; Mirella DAPRETTO, Auteur ; Allison JACK, Auteur ; James C. MCPARTLAND, Auteur ; John D. VAN HORN, Auteur ; Sara J. WEBB, Auteur ; Kevin A. PELPHREY, Auteur Article en page(s) : p.156-168 Langues : Anglais (eng) Mots-clés : diagnosis  early milestones  females  parental perceptions  sex differences Index. décimale : PER Périodiques Résumé : Despite advances in early detection, the average age of autism spectrum disorder (ASD) diagnosis exceeds 4 years and is often later in females. In typical development, biological sex predicts inter-individual variation across multiple developmental milestones, with females often exhibiting earlier progression. The goal of this study was to examine sex differences in caregiver-reported developmental milestones (first word, phrase, walking) and their contribution to timing of initial concerns expressed by caregivers and eventual age of diagnosis. 195 (105 males) children and adolescents aged 8 to 17 years with a clinical diagnosis of ASD were recruited to the study (mean IQ = 99.76). While developmental milestones did not predict timing of diagnosis or age parents first expressed concerns, females had earlier first words and phrases than males. There was a marginal difference in the age of diagnosis, with females receiving their diagnosis 1 year later than males. Despite sex differences in developmental milestones and diagnostic variables, IQ was the most significant predictor in the timing of initial concerns and eventual diagnosis, suggesting children with lower IQ, regardless of sex, are identified and diagnosed earlier. Overall, biological sex and developmental milestones did not account for a large proportion of variance for the eventual age of ASD diagnosis, suggesting other factors (such as IQ and the timing of initial concerns) are potentially more influential. LAY SUMMARY: In this study, a later age of diagnosis in females having ASD was confirmed; however, biological sex was not the stronger predictor of age of diagnosis. Parents reported that females learned language more quickly than males, and parents noted their first concerns when females were older than males. In this sample, the strongest predictor of age of diagnosis was the age of first concerns. En ligne : http://dx.doi.org/10.1002/aur.2446 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=441 [article] Do Biological Sex and Early Developmental Milestones Predict the Age of First Concerns and Eventual Diagnosis in Autism Spectrum Disorder? [texte imprimé] / Clare HARROP, Auteur ; Erin J. LIBSACK, Auteur ; Raphael A. BERNIER, Auteur ; Mirella DAPRETTO, Auteur ; Allison JACK, Auteur ; James C. MCPARTLAND, Auteur ; John D. VAN HORN, Auteur ; Sara J. WEBB, Auteur ; Kevin A. PELPHREY, Auteur . - p.156-168. Langues : Anglais (eng) in Autism Research > 14-1 (January 2021) . - p.156-168 Mots-clés : diagnosis  early milestones  females  parental perceptions  sex differences Index. décimale : PER Périodiques Résumé : Despite advances in early detection, the average age of autism spectrum disorder (ASD) diagnosis exceeds 4 years and is often later in females. In typical development, biological sex predicts inter-individual variation across multiple developmental milestones, with females often exhibiting earlier progression. The goal of this study was to examine sex differences in caregiver-reported developmental milestones (first word, phrase, walking) and their contribution to timing of initial concerns expressed by caregivers and eventual age of diagnosis. 195 (105 males) children and adolescents aged 8 to 17 years with a clinical diagnosis of ASD were recruited to the study (mean IQ = 99.76). While developmental milestones did not predict timing of diagnosis or age parents first expressed concerns, females had earlier first words and phrases than males. There was a marginal difference in the age of diagnosis, with females receiving their diagnosis 1 year later than males. Despite sex differences in developmental milestones and diagnostic variables, IQ was the most significant predictor in the timing of initial concerns and eventual diagnosis, suggesting children with lower IQ, regardless of sex, are identified and diagnosed earlier. Overall, biological sex and developmental milestones did not account for a large proportion of variance for the eventual age of ASD diagnosis, suggesting other factors (such as IQ and the timing of initial concerns) are potentially more influential. LAY SUMMARY: In this study, a later age of diagnosis in females having ASD was confirmed; however, biological sex was not the stronger predictor of age of diagnosis. Parents reported that females learned language more quickly than males, and parents noted their first concerns when females were older than males. In this sample, the strongest predictor of age of diagnosis was the age of first concerns. En ligne : http://dx.doi.org/10.1002/aur.2446 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=441