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Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders / Kaaren HAAS in Journal of Autism and Developmental Disorders, 46-5 (May 2016)
[article]
Titre : Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Kaaren HAAS, Auteur ; Debra COSTLEY, Auteur ; Marita FALKMER, Auteur ; Amanda RICHDALE, Auteur ; Kate SOFRONOFF, Auteur ; Torbjörn FALKMER, Auteur Article en page(s) : p.1793-1805 Langues : Anglais (eng) Mots-clés : Autism Asperger syndrome Incentive Longitudinal studies Motivation Research recruitment Research participation Index. décimale : PER Périodiques Résumé : Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants. En ligne : http://dx.doi.org/10.1007/s10803-016-2708-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288
in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1793-1805[article] Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Kaaren HAAS, Auteur ; Debra COSTLEY, Auteur ; Marita FALKMER, Auteur ; Amanda RICHDALE, Auteur ; Kate SOFRONOFF, Auteur ; Torbjörn FALKMER, Auteur . - p.1793-1805.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1793-1805
Mots-clés : Autism Asperger syndrome Incentive Longitudinal studies Motivation Research recruitment Research participation Index. décimale : PER Périodiques Résumé : Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants. En ligne : http://dx.doi.org/10.1007/s10803-016-2708-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288 Letter to the Editor: A possible threat to data integrity for online qualitative autism research / Elizabeth PELLICANO in Autism, 28-3 (March 2024)
[article]
Titre : Letter to the Editor: A possible threat to data integrity for online qualitative autism research Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth PELLICANO, Auteur ; Dawn ADAMS, Auteur ; Laura CRANE, Auteur ; Calliope HOLLINGUE, Auteur ; Connie ALLEN, Auteur ; Katherine ALMENDINGER, Auteur ; Monique BOTHA, Auteur ; Tori HAAR, Auteur ; Steven K. KAPP, Auteur ; Elizabeth WHEELEY, Auteur Article en page(s) : p.786-792 Langues : Anglais (eng) Mots-clés : fraud imposter research participation Index. décimale : PER Périodiques Résumé : Researchers are increasingly relying on online methods for data collection, including for qualitative research involving interviews and focus groups. In this letter, we alert autism researchers to a possible threat to data integrity in such studies: "scammer" participants, who may be posing as autistic people and/or parents of autistic children in research studies, presumably for financial gain. Here, we caution qualitative autism researchers to be vigilant of potential scammer participants in their online studies and invite a broader discussion about the implications of such fraudulent acts. Lay abstract Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research. En ligne : https://dx.doi.org/10.1177/13623613231174543 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
in Autism > 28-3 (March 2024) . - p.786-792[article] Letter to the Editor: A possible threat to data integrity for online qualitative autism research [Texte imprimé et/ou numérique] / Elizabeth PELLICANO, Auteur ; Dawn ADAMS, Auteur ; Laura CRANE, Auteur ; Calliope HOLLINGUE, Auteur ; Connie ALLEN, Auteur ; Katherine ALMENDINGER, Auteur ; Monique BOTHA, Auteur ; Tori HAAR, Auteur ; Steven K. KAPP, Auteur ; Elizabeth WHEELEY, Auteur . - p.786-792.
Langues : Anglais (eng)
in Autism > 28-3 (March 2024) . - p.786-792
Mots-clés : fraud imposter research participation Index. décimale : PER Périodiques Résumé : Researchers are increasingly relying on online methods for data collection, including for qualitative research involving interviews and focus groups. In this letter, we alert autism researchers to a possible threat to data integrity in such studies: "scammer" participants, who may be posing as autistic people and/or parents of autistic children in research studies, presumably for financial gain. Here, we caution qualitative autism researchers to be vigilant of potential scammer participants in their online studies and invite a broader discussion about the implications of such fraudulent acts. Lay abstract Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research. En ligne : https://dx.doi.org/10.1177/13623613231174543 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523