Assessing need in school-aged children with an autism spectrum disorder / Hilary K. BROWN in Research in Autism Spectrum Disorders, 4-4 (October-December 2010)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 4-4 (October-December 2010) . - p.539-547 Titre : Assessing need in school-aged children with an autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Hilary K. BROWN, Auteur ; Elizabeth KELLEY, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur Année de publication : 2010 Article en page(s) : p.539-547 Langues : Anglais (eng) Mots-clés : Autism-spectrum-disorders Needs-assessment Perceived-need Service-use Functional-independence Index. décimale : PER Périodiques Résumé : The assessment of support needs of children with an autism spectrum disorder and their families has been hindered by the ambiguity surrounding the definition of need and the lack of a conceptual framework to guide investigations. This paper examines two major approaches to measuring need and discusses their appropriateness for use in autism. We focus on school-aged children, because of the relative lack of research in this area and the challenges of measuring need in children with an autism spectrum disorder in this age group. A conceptual framework, which explores parents’ perceived need, is proposed. We suggest that the child's adaptive skills and challenging behaviors will be important in predicting the extent of the parent's perceived unmet need. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.12.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=102 [article] Assessing need in school-aged children with an autism spectrum disorder [Texte imprimé et/ou numérique] / Hilary K. BROWN, Auteur ; Elizabeth KELLEY, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur . - 2010 . - p.539-547. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 4-4 (October-December 2010) . - p.539-547 Mots-clés : Autism-spectrum-disorders Needs-assessment Perceived-need Service-use Functional-independence Index. décimale : PER Périodiques Résumé : The assessment of support needs of children with an autism spectrum disorder and their families has been hindered by the ambiguity surrounding the definition of need and the lack of a conceptual framework to guide investigations. This paper examines two major approaches to measuring need and discusses their appropriateness for use in autism. We focus on school-aged children, because of the relative lack of research in this area and the challenges of measuring need in children with an autism spectrum disorder in this age group. A conceptual framework, which explores parents’ perceived need, is proposed. We suggest that the child's adaptive skills and challenging behaviors will be important in predicting the extent of the parent's perceived unmet need. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.12.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=102

Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs / Hilary K. BROWN in Journal of Autism and Developmental Disorders, 41-10 (October 2011)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1291-1302 Titre : Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs Type de document : Texte imprimé et/ou numérique Auteurs : Hilary K. BROWN, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur ; Elizabeth KELLEY, Auteur ; Virginie COBIGO, Auteur ; Miu LAM, Auteur Année de publication : 2011 Article en page(s) : p.1291-1302 Langues : Anglais (eng) Mots-clés : Autism  Unmet need  Functional independence  Impact on family Index. décimale : PER Périodiques Résumé : High demand has resulted in gaps in autism service provision. Our objective was to explore the association between children’s functioning and parents’ perceived unmet needs. We conducted a cross-sectional study of 97 families of school-aged children with an autism spectrum disorder. Log binomial regression was used to examine the relative risk for unmet need. Families of children with high functional independence had lower unmet need than families of children with moderate functional independence (RR = 0.81, 95% CI = 0.67-0.99). Those who experienced greater impact of the child’s disability had greater unmet need (RR = 1.22, 95% CI = 1.03–1.45). The child’s functioning and its impact on the family provide insight into unmet need which may inform service planning. En ligne : http://dx.doi.org/10.1007/s10803-010-1148-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143 [article] Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs [Texte imprimé et/ou numérique] / Hilary K. BROWN, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur ; Elizabeth KELLEY, Auteur ; Virginie COBIGO, Auteur ; Miu LAM, Auteur . - 2011 . - p.1291-1302. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1291-1302 Mots-clés : Autism  Unmet need  Functional independence  Impact on family Index. décimale : PER Périodiques Résumé : High demand has resulted in gaps in autism service provision. Our objective was to explore the association between children’s functioning and parents’ perceived unmet needs. We conducted a cross-sectional study of 97 families of school-aged children with an autism spectrum disorder. Log binomial regression was used to examine the relative risk for unmet need. Families of children with high functional independence had lower unmet need than families of children with moderate functional independence (RR = 0.81, 95% CI = 0.67-0.99). Those who experienced greater impact of the child’s disability had greater unmet need (RR = 1.22, 95% CI = 1.03–1.45). The child’s functioning and its impact on the family provide insight into unmet need which may inform service planning. En ligne : http://dx.doi.org/10.1007/s10803-010-1148-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143

Health characteristics of reproductive-aged autistic women in Ontario: A population-based, cross-sectional study / Ami TINT in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1114-1124 Titre : Health characteristics of reproductive-aged autistic women in Ontario: A population-based, cross-sectional study Type de document : Texte imprimé et/ou numérique Auteurs : Ami TINT, Auteur ; Hilary K. BROWN, Auteur ; Simon CHEN, Auteur ; Meng-Chuan LAI, Auteur ; Lesley A. TARASOFF, Auteur ; Simone N. VIGOD, Auteur ; Susan L. PARISH, Auteur ; Susan M. HAVERCAMP, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.1114-1124 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  medical comorbidity  psychiatric comorbidity  reproductive-aged  women Index. décimale : PER Périodiques Résumé : While an increasing number of girls and women are being identified with autism, we know little about reproductive-aged autistic women's health. This study used administrative data from Ontario, Canada, to compare the health of reproductive-aged autistic women with non-autistic women. Overall, reproductive-aged autistic women had poorer health compared with non-autistic women, including increased rates of material deprivation, chronic medical conditions, psychiatric conditions, history of assault, and use of potentially teratogenic medications (i.e. drugs that can be harmful to the development of an embryo or fetus). These findings suggest that there is a need for health interventions tailored to the needs of reproductive-aged autistic women. En ligne : http://dx.doi.org/10.1177/1362361320982819 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Health characteristics of reproductive-aged autistic women in Ontario: A population-based, cross-sectional study [Texte imprimé et/ou numérique] / Ami TINT, Auteur ; Hilary K. BROWN, Auteur ; Simon CHEN, Auteur ; Meng-Chuan LAI, Auteur ; Lesley A. TARASOFF, Auteur ; Simone N. VIGOD, Auteur ; Susan L. PARISH, Auteur ; Susan M. HAVERCAMP, Auteur ; Yona LUNSKY, Auteur . - p.1114-1124. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1114-1124 Mots-clés : adults  autism spectrum disorders  medical comorbidity  psychiatric comorbidity  reproductive-aged  women Index. décimale : PER Périodiques Résumé : While an increasing number of girls and women are being identified with autism, we know little about reproductive-aged autistic women's health. This study used administrative data from Ontario, Canada, to compare the health of reproductive-aged autistic women with non-autistic women. Overall, reproductive-aged autistic women had poorer health compared with non-autistic women, including increased rates of material deprivation, chronic medical conditions, psychiatric conditions, history of assault, and use of potentially teratogenic medications (i.e. drugs that can be harmful to the development of an embryo or fetus). These findings suggest that there is a need for health interventions tailored to the needs of reproductive-aged autistic women. En ligne : http://dx.doi.org/10.1177/1362361320982819 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Physical health of autistic girls and women: a scoping review / Caroline KASSEE in Molecular Autism, 11 (2020)  

Public ISBD [article]  inMolecular Autism > 11 (2020) Titre : Physical health of autistic girls and women: a scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Caroline KASSEE, Auteur ; Stephanie BABINSKI, Auteur ; Ami TINT, Auteur ; Yona LUNSKY, Auteur ; Hilary K. BROWN, Auteur ; Stephanie H. AMEIS, Auteur ; Peter SZATMARI, Auteur ; Meng-Chuan LAI, Auteur ; Gillian EINSTEIN, Auteur Langues : Anglais (eng) Mots-clés : Autism  Gender  Girls  Physical health  Scoping review  Sex differences  Women Index. décimale : PER Périodiques Résumé : BACKGROUND: There is a growing recognition of sex and gender influences in autism. Increasingly, studies include comparisons between sexes or genders, but few have focused on clarifying the characteristics of autistic girls'/women's physical health. METHODS: A scoping review was conducted to determine what is currently known about the physical health of autistic girls/women. We screened 1112 unique articles, with 40 studies meeting the inclusion criteria. We used a convergent iterative process to synthesize this content into broad thematic areas. RESULTS: Autistic girls/women experience more overall physical health challenges compared to non-autistic girls/women and to autistic boys/men. Emerging evidence suggests increased prevalence of epilepsy in autistic girls/women compared to non-autistic girls/women and to autistic boys/men. The literature also suggests increased endocrine and reproductive health conditions in autistic girls/women compared to non-autistic girls/women. Findings regarding gastrointestinal, metabolic, nutritional, and immune-related conditions are preliminary and inconsistent. LIMITATIONS: The literature has substantial heterogeneity in how physical health conditions were assessed and reported. Further, our explicit focus on physical health may have constrained the ability to examine interactions between mental and physical health. The widely differing research aims and methodologies make it difficult to reach definitive conclusions. Nevertheless, in keeping with the goals of a scoping review, we were able to identify key themes to guide future research. CONCLUSIONS: The emerging literature suggests that autistic girls/women have heightened rates of physical health challenges compared to non-autistic girls/women and to autistic boys/men. Clinicians should seek to provide holistic care that includes a focus on physical health and develop a women's health lens when providing clinical care to autistic girls/women. En ligne : http://dx.doi.org/10.1186/s13229-020-00380-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438 [article] Physical health of autistic girls and women: a scoping review [Texte imprimé et/ou numérique] / Caroline KASSEE, Auteur ; Stephanie BABINSKI, Auteur ; Ami TINT, Auteur ; Yona LUNSKY, Auteur ; Hilary K. BROWN, Auteur ; Stephanie H. AMEIS, Auteur ; Peter SZATMARI, Auteur ; Meng-Chuan LAI, Auteur ; Gillian EINSTEIN, Auteur. Langues : Anglais (eng) in Molecular Autism > 11 (2020) Mots-clés : Autism  Gender  Girls  Physical health  Scoping review  Sex differences  Women Index. décimale : PER Périodiques Résumé : BACKGROUND: There is a growing recognition of sex and gender influences in autism. Increasingly, studies include comparisons between sexes or genders, but few have focused on clarifying the characteristics of autistic girls'/women's physical health. METHODS: A scoping review was conducted to determine what is currently known about the physical health of autistic girls/women. We screened 1112 unique articles, with 40 studies meeting the inclusion criteria. We used a convergent iterative process to synthesize this content into broad thematic areas. RESULTS: Autistic girls/women experience more overall physical health challenges compared to non-autistic girls/women and to autistic boys/men. Emerging evidence suggests increased prevalence of epilepsy in autistic girls/women compared to non-autistic girls/women and to autistic boys/men. The literature also suggests increased endocrine and reproductive health conditions in autistic girls/women compared to non-autistic girls/women. Findings regarding gastrointestinal, metabolic, nutritional, and immune-related conditions are preliminary and inconsistent. LIMITATIONS: The literature has substantial heterogeneity in how physical health conditions were assessed and reported. Further, our explicit focus on physical health may have constrained the ability to examine interactions between mental and physical health. The widely differing research aims and methodologies make it difficult to reach definitive conclusions. Nevertheless, in keeping with the goals of a scoping review, we were able to identify key themes to guide future research. CONCLUSIONS: The emerging literature suggests that autistic girls/women have heightened rates of physical health challenges compared to non-autistic girls/women and to autistic boys/men. Clinicians should seek to provide holistic care that includes a focus on physical health and develop a women's health lens when providing clinical care to autistic girls/women. En ligne : http://dx.doi.org/10.1186/s13229-020-00380-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438

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