Caregivers’ Agreement and Validity of Indirect Functional Analysis: A Cross Cultural Evaluation Across Multiple Problem Behavior Topographies / Javier VIRUES-ORTEGA in Journal of Autism and Developmental Disorders, 41-1 (January 2011)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 41-1 (January 2011) . - p.82-91 Titre : Caregivers’ Agreement and Validity of Indirect Functional Analysis: A Cross Cultural Evaluation Across Multiple Problem Behavior Topographies Type de document : Texte imprimé et/ou numérique Auteurs : Javier VIRUES-ORTEGA, Auteur ; David SEGUI-DURAN, Auteur ; Alberto DESCALZO-QUERO, Auteur ; Jose Julio CARNERERO, Auteur ; Neil MARTIN, Auteur Année de publication : 2011 Article en page(s) : p.82-91 Langues : Anglais (eng) Mots-clés : Motivation assessment scale  Autism  Functional analysis  Indirect methods Index. décimale : PER Périodiques Résumé : The Motivation Assessment Scale is an aid for hypothesis-driven functional analysis. This study presents its Spanish cross-cultural validation while examining psychometric attributes not yet explored. The study sample comprised 80 primary caregivers of children with autism. Acceptability, scaling assumptions, internal consistency, factor structure, inter-assessor reliability and agreement, and known-group validity analyses were performed. Scaling assumptions, internal consistency (Cronbach alpha of 0.75) and factor structure were satisfactory other than for the Escape domain which demonstrated low internal consistency (0.65), inadequate scaling assumptions (multitrait analysis, 50% success rate) and did not constitute a separate factor. Caregivers’ agreement for the primary function reached 73.9% and known group-validity hypotheses across behavior topographies were partially met. The clinical appropriateness of the scale is discussed. En ligne : http://dx.doi.org/10.1007/s10803-010-1022-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114 [article] Caregivers’ Agreement and Validity of Indirect Functional Analysis: A Cross Cultural Evaluation Across Multiple Problem Behavior Topographies [Texte imprimé et/ou numérique] / Javier VIRUES-ORTEGA, Auteur ; David SEGUI-DURAN, Auteur ; Alberto DESCALZO-QUERO, Auteur ; Jose Julio CARNERERO, Auteur ; Neil MARTIN, Auteur . - 2011 . - p.82-91. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 41-1 (January 2011) . - p.82-91 Mots-clés : Motivation assessment scale  Autism  Functional analysis  Indirect methods Index. décimale : PER Périodiques Résumé : The Motivation Assessment Scale is an aid for hypothesis-driven functional analysis. This study presents its Spanish cross-cultural validation while examining psychometric attributes not yet explored. The study sample comprised 80 primary caregivers of children with autism. Acceptability, scaling assumptions, internal consistency, factor structure, inter-assessor reliability and agreement, and known-group validity analyses were performed. Scaling assumptions, internal consistency (Cronbach alpha of 0.75) and factor structure were satisfactory other than for the Escape domain which demonstrated low internal consistency (0.65), inadequate scaling assumptions (multitrait analysis, 50% success rate) and did not constitute a separate factor. Caregivers’ agreement for the primary function reached 73.9% and known group-validity hypotheses across behavior topographies were partially met. The clinical appropriateness of the scale is discussed. En ligne : http://dx.doi.org/10.1007/s10803-010-1022-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114

Development of a standardized set of outcomes for autism spectrum disorder: The International Consortium for Health Outcomes Measurement (ICHOM) / Ivy CHONG ; Zofia DAS-GUPTA ; Claudia Bandeira DE LIMA ; Dennis DIXON ; Svyatoslav DOVBNYA ; Ellen FITTRO ; Peter GERHARDT ; Weihe HUANG ; Braden JOSEPHSON ; DAN LI ; Neil MARTIN ; Shaneel MUKERJI ; Kristine RODRIGUEZ ; Hanna RUE ; Kim STRUNK ; Jonathan TARBOX ; Yagnesh VADGAMA ; Amber VALENTINO ; Javier VIRUES-ORTEGA ; Sandra WILLIS in Research in Autism Spectrum Disorders, 117 (September 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 117 (September 2024) . - p.102451 Titre : Development of a standardized set of outcomes for autism spectrum disorder: The International Consortium for Health Outcomes Measurement (ICHOM) Type de document : Texte imprimé et/ou numérique Auteurs : Ivy CHONG, Auteur ; Zofia DAS-GUPTA, Auteur ; Claudia Bandeira DE LIMA, Auteur ; Dennis DIXON, Auteur ; Svyatoslav DOVBNYA, Auteur ; Ellen FITTRO, Auteur ; Peter GERHARDT, Auteur ; Weihe HUANG, Auteur ; Braden JOSEPHSON, Auteur ; DAN LI, Auteur ; Neil MARTIN, Auteur ; Shaneel MUKERJI, Auteur ; Kristine RODRIGUEZ, Auteur ; Hanna RUE, Auteur ; Kim STRUNK, Auteur ; Jonathan TARBOX, Auteur ; Yagnesh VADGAMA, Auteur ; Amber VALENTINO, Auteur ; Javier VIRUES-ORTEGA, Auteur ; Sandra WILLIS, Auteur Article en page(s) : p.102451 Langues : Anglais (eng) Mots-clés : ASD  Outcomes  Social communication  Repetitive behaviors Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is characterized by persistent deficits in reciprocal social interaction, communication, and restricted, repetitive, behaviour, that are atypical or excessive for the individual?s age and sociocultural context (Diagnostic and Statistical Manual 5th ed TR.; 2022). The rate of ASD continues to increase and remains a concern due to inequitable access to diagnosis and quality services. A lack of standardization in assessment and treatment presents further difficulty in benchmarking and improving care. Method The International Consortium for Health Outcomes Measurement (ICHOM) recruited a Working Group (WG) of 20 subject matter experts, including researchers, clinicians, policy makers, and lived-experience experts to identify a minimum set of measurable outcomes along with case mix variables (i.e., risk adjustment factors). A proposed set of Patient Centered Outcome Measures (henceforth known as the ASD Set) was identified and endorsed using a modified Delphi process to reach consensus. Results The WG took into consideration variation in global health, social care and educational systems were considered to ensure implementation of the ASD Set is feasible. The Set includes a core set of measurable outcomes (i.e., domains) that include core symptoms, daily functioning, accessibility, and support. Conclusions The ICHOM ASD Set is a scientifically-sound, internationally vetted tool that will enable assessment of care for individuals with ASD that can facilitate targeted, person-centered clinical and social inclusion strategies. Large scale implementation and use should generate standardized data describing the individual's health and wellbeing that can inform decision-making, quality improvement and best-practices insights. En ligne : https://doi.org/10.1016/j.rasd.2024.102451 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 [article] Development of a standardized set of outcomes for autism spectrum disorder: The International Consortium for Health Outcomes Measurement (ICHOM) [Texte imprimé et/ou numérique] / Ivy CHONG, Auteur ; Zofia DAS-GUPTA, Auteur ; Claudia Bandeira DE LIMA, Auteur ; Dennis DIXON, Auteur ; Svyatoslav DOVBNYA, Auteur ; Ellen FITTRO, Auteur ; Peter GERHARDT, Auteur ; Weihe HUANG, Auteur ; Braden JOSEPHSON, Auteur ; DAN LI, Auteur ; Neil MARTIN, Auteur ; Shaneel MUKERJI, Auteur ; Kristine RODRIGUEZ, Auteur ; Hanna RUE, Auteur ; Kim STRUNK, Auteur ; Jonathan TARBOX, Auteur ; Yagnesh VADGAMA, Auteur ; Amber VALENTINO, Auteur ; Javier VIRUES-ORTEGA, Auteur ; Sandra WILLIS, Auteur . - p.102451. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 117 (September 2024) . - p.102451 Mots-clés : ASD  Outcomes  Social communication  Repetitive behaviors Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is characterized by persistent deficits in reciprocal social interaction, communication, and restricted, repetitive, behaviour, that are atypical or excessive for the individual?s age and sociocultural context (Diagnostic and Statistical Manual 5th ed TR.; 2022). The rate of ASD continues to increase and remains a concern due to inequitable access to diagnosis and quality services. A lack of standardization in assessment and treatment presents further difficulty in benchmarking and improving care. Method The International Consortium for Health Outcomes Measurement (ICHOM) recruited a Working Group (WG) of 20 subject matter experts, including researchers, clinicians, policy makers, and lived-experience experts to identify a minimum set of measurable outcomes along with case mix variables (i.e., risk adjustment factors). A proposed set of Patient Centered Outcome Measures (henceforth known as the ASD Set) was identified and endorsed using a modified Delphi process to reach consensus. Results The WG took into consideration variation in global health, social care and educational systems were considered to ensure implementation of the ASD Set is feasible. The Set includes a core set of measurable outcomes (i.e., domains) that include core symptoms, daily functioning, accessibility, and support. Conclusions The ICHOM ASD Set is a scientifically-sound, internationally vetted tool that will enable assessment of care for individuals with ASD that can facilitate targeted, person-centered clinical and social inclusion strategies. Large scale implementation and use should generate standardized data describing the individual's health and wellbeing that can inform decision-making, quality improvement and best-practices insights. En ligne : https://doi.org/10.1016/j.rasd.2024.102451 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534

Social referencing skills in children with autism spectrum disorder: A systematic review / Maithri SIVARAMAN in Research in Autism Spectrum Disorders, 72 (April 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 72 (April 2020) . - p.101528 Titre : Social referencing skills in children with autism spectrum disorder: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Maithri SIVARAMAN, Auteur ; Javier VIRUES-ORTEGA, Auteur ; Herbert ROEYERS, Auteur Article en page(s) : p.101528 Langues : Anglais (eng) Mots-clés : Social referencing  Autism  Joint attention  Referential looking Index. décimale : PER Périodiques Résumé : Background Children with autism spectrum disorder (ASD) often exhibit severe and persistent deficits in social behaviors. An area of socialization that develops towards the end of the first year of life is social referencing, wherein infants when confronted with a new or unusual event, look at an adult, and base their subsequent behavior on the facial expression of the adult. Method We undertook a systematic review to highlight the existing conceptualizations of social referencing, and study the social referencing repertoire in children with ASD. We searched five databases for studies published until December 2018. Articles included reported behavioral measures of social referencing and were specific to individuals with ASD or those at elevated risk for ASD. Results Of the 54 articles meeting eligibility for full-text review, eight met inclusion criteria and the data were synthesized narratively. Deficits in social referencing were reported in seven studies, and data from all studies indicated atypical attention shifts between social and non-social stimuli in children with ASD. Conclusions A deficiency exists in spontaneous looking behaviors and possibly in differential responding to affective cues among children with ASD. The variations in the definitions and measurement methods present in the literature call for additional research that examines both referential looking and differential cue responding components within an ambiguous context. Guidelines for future research and clinical implications are discussed. En ligne : https://doi.org/10.1016/j.rasd.2020.101528 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 [article] Social referencing skills in children with autism spectrum disorder: A systematic review [Texte imprimé et/ou numérique] / Maithri SIVARAMAN, Auteur ; Javier VIRUES-ORTEGA, Auteur ; Herbert ROEYERS, Auteur . - p.101528. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 72 (April 2020) . - p.101528 Mots-clés : Social referencing  Autism  Joint attention  Referential looking Index. décimale : PER Périodiques Résumé : Background Children with autism spectrum disorder (ASD) often exhibit severe and persistent deficits in social behaviors. An area of socialization that develops towards the end of the first year of life is social referencing, wherein infants when confronted with a new or unusual event, look at an adult, and base their subsequent behavior on the facial expression of the adult. Method We undertook a systematic review to highlight the existing conceptualizations of social referencing, and study the social referencing repertoire in children with ASD. We searched five databases for studies published until December 2018. Articles included reported behavioral measures of social referencing and were specific to individuals with ASD or those at elevated risk for ASD. Results Of the 54 articles meeting eligibility for full-text review, eight met inclusion criteria and the data were synthesized narratively. Deficits in social referencing were reported in seven studies, and data from all studies indicated atypical attention shifts between social and non-social stimuli in children with ASD. Conclusions A deficiency exists in spontaneous looking behaviors and possibly in differential responding to affective cues among children with ASD. The variations in the definitions and measurement methods present in the literature call for additional research that examines both referential looking and differential cue responding components within an ambiguous context. Guidelines for future research and clinical implications are discussed. En ligne : https://doi.org/10.1016/j.rasd.2020.101528 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421

The New Zealand minds for minds autism spectrum disorder self-reported cohort / Javier VIRUES-ORTEGA in Research in Autism Spectrum Disorders, 36 (April 2017)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 36 (April 2017) . - p.1-7 Titre : The New Zealand minds for minds autism spectrum disorder self-reported cohort Type de document : Texte imprimé et/ou numérique Auteurs : Javier VIRUES-ORTEGA, Auteur ; Klaus LEHNERT, Auteur ; Brendan SWAN, Auteur ; Michael W. TAYLOR, Auteur ; Adrienne SOUTHEE, Auteur ; Dane DOUGAN, Auteur ; Juliet TAYLOR, Auteur ; Rosamund HILL, Auteur ; Russell G. SNELL, Auteur ; Jessie C. JACOBSEN, Auteur Article en page(s) : p.1-7 Langues : Anglais (eng) Mots-clés : Asd  M4M cohort  New Zealand  Comorbidity Index. décimale : PER Périodiques Résumé : To improve our understanding of autism spectrum disorder (ASD) in New Zealand, a multi-disciplinary research network, Minds for Minds, was created. This network has established a cohort of self- and proxy-reported individuals and their family members with ASD in New Zealand. The aim of this manuscript is to present the New Zealand Minds for Minds Autism Spectrum Disorder Self-Reported Cohort, M4M cohort for short, and to provide preliminary insights into the trends of ASD in New Zealand through the analysis of diagnostic and sociodemographic information of 972 members (ages 2–83) of this cohort, the majority of which were carer-reported. Method The participants were recruited via an internet-based questionnaire, and social network analysis was used to visually analyse the mutual interactions of the cohort. Results We observed the well-reported gender bias and an ethnic structure that reflects New Zealand’s most recent census. Comorbidity patterns were consistent with epidemiological literature: anxiety disorders, depression and epilepsy were highly prevalent amongst individuals with ASD and their families. This is the first national large-scale ASD research cohort, which contains an ethnic composition unique to the country. It is anticipated that the multi-disciplinary research approach of this cohort will help inform health policies in New Zealand and contribute to the international effort to better understand ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.12.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 [article] The New Zealand minds for minds autism spectrum disorder self-reported cohort [Texte imprimé et/ou numérique] / Javier VIRUES-ORTEGA, Auteur ; Klaus LEHNERT, Auteur ; Brendan SWAN, Auteur ; Michael W. TAYLOR, Auteur ; Adrienne SOUTHEE, Auteur ; Dane DOUGAN, Auteur ; Juliet TAYLOR, Auteur ; Rosamund HILL, Auteur ; Russell G. SNELL, Auteur ; Jessie C. JACOBSEN, Auteur . - p.1-7. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 36 (April 2017) . - p.1-7 Mots-clés : Asd  M4M cohort  New Zealand  Comorbidity Index. décimale : PER Périodiques Résumé : To improve our understanding of autism spectrum disorder (ASD) in New Zealand, a multi-disciplinary research network, Minds for Minds, was created. This network has established a cohort of self- and proxy-reported individuals and their family members with ASD in New Zealand. The aim of this manuscript is to present the New Zealand Minds for Minds Autism Spectrum Disorder Self-Reported Cohort, M4M cohort for short, and to provide preliminary insights into the trends of ASD in New Zealand through the analysis of diagnostic and sociodemographic information of 972 members (ages 2–83) of this cohort, the majority of which were carer-reported. Method The participants were recruited via an internet-based questionnaire, and social network analysis was used to visually analyse the mutual interactions of the cohort. Results We observed the well-reported gender bias and an ethnic structure that reflects New Zealand’s most recent census. Comorbidity patterns were consistent with epidemiological literature: anxiety disorders, depression and epilepsy were highly prevalent amongst individuals with ASD and their families. This is the first national large-scale ASD research cohort, which contains an ethnic composition unique to the country. It is anticipated that the multi-disciplinary research approach of this cohort will help inform health policies in New Zealand and contribute to the international effort to better understand ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.12.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304

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